If you haven’t signed up as a member please do or I can’t let you into the meeting.
Thankyou
You can sign up for the free membership via this link >>>
Members from both Sunderland and Newcastle areas are welcome… Read More ‘Strut your stripes’ in Sunderland TODAY 1 – 3 pm at our first ever EDSUK meet up
“Wow!” I think that is a word that a lot us we will be saying for a few days after our opening meeting for 2018 yesterday in Sunderland UK, for Chronic / Invisible & Rare illness. FibroFlutters always post a thankyou to the folks that attend out meet ups because we know that the illnesses… Read More “Wow!” Thanks for attending, what a great opening meet up for 2018 yesterday
Volunteer Opportunities (2018) Volunteer Job Opportunities Photography Videography and Video Editing Graphic Design Editing Campaigns Online Moderator Patient Advocate Grants/Trusts Events EDS Conference Volunteer Jobs Artistic Talents Writing If you think you can offer support as a volunteer please click the link for more information and if you decide it is something you would… Read More Volunteer with The Ehlers-Danlos Society | Volunteer Opportunities (2018)
Friendly support group for anyone with chronic illness and rare illnesses too. It really is an informal event where we just meet up over late lunch and talk about all matters. … Read More First meeting of 2018 |Tuesday 20 February | 1 – 4 pm
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Do have EDS or any other hypermobility syndrome? Are you unsure about what the condition is or whether you may have it or not? Would you like to know more about it?, for instance one of the main questions often asked… … Why the Zebra? The following link takes you to the charity website of… Read More Info site – Ehlers Danlos UK: Hypermobility Ehlers-Danlos syndrome
Thanks to Afternoon Tea4Two | Barmac5 for nominating me for the Liebster award!
I am really tickled, thankyou for nominating FibroFlutters for this award, I shall embed the badge on a widget.
The award is supposed to be for those with under 200 followers, so I have mainly nominated bloggers who have a wordpress following of around 200 or less like me.
All nominees are from my wordpress reader list.… Read More Nomination > LIEBSTER AWARD 2018
EDS has gone under re-classification since this was written, not that it affects the post content but the reclassification information may be useful for the newly diagnosed. See link below.… Read More 8 Tips for Patients Newly Diagnosed with Ehlers-Danlos | Shared via painnewsnetwork.org (2015) | Ellen Lennox Smith
CAPRICIOUS LESTRANGE | Could Medication Overuse Be Causing Your Headaches? Join a Study https://zebrapit.wordpress.com/2017/11/22/could-medication-overuse-be-causing-your-headaches-join-a-study/ Posted in EDS, ME/CFS & FMS Resources, MigraineTagged Axert, chronic migraine, EDS, Head pain, Headache, Imitrex, Maxalt, Medication Overuse, Medication Study, migraines, MOTS Trial, Sumatriptan, topamax, Trial, Triptans, Zomig NOVEMBER 22, 2017 (taken from the blog post)
For a number of years I have explained many times that I believe my Fibromyalgia is a result of my Joint Hypermobility and in this post I talk about it. My #chronicblog post will also take you to an article by Carol Eustace, an Arthritis and Joint Conditions Expert, who writes for verywell.com and she… Read More Joint Hypermobility and Fibromyalgia | Is there a connection? | Carole Scrafton
