Unfortunately, there is no one-size fits all solution to the management of fibromyalgia.… Read More Fibromyalgia Awareness Week 2021 – #BecomeFibroAware
Great opportunity to get together with other guys that have rare diseases and mental health issues.
Meet in a safe space, talk about what you are going through and offer support to each other if and where needed.… Read More Rare Disease Male Support Group – mental health community support.
There are a good number of people in Sunderland with Fibromyalgia and varying other long term chronic chronic conditions, actually, and it shocked me in the beginning.
At the time I was volunteering and advocating for a charity called FibroAction and so became a voice for the charity across the NE UK with FibroFlutters members, and readers, this is because even though there were only 5 of us but we spanned 3 counties!… Read More About Us -How we began
“Talking is very beneficial as it helps members to also learn about their conditions and also where to find specified help and resources. Sometimes just knowing you’re not the only one can mean the World when times are so difficult.” #PatientGroupLeader #PatientVoice #MentalHealth
Thoughts by Carole Sian ~ FibroFlutters regarding support groups >>>… Read More The Power Of A Support Group | John Kaniecki | PLUS… ‘Thoughts regarding support groups’ by Carole Sian ~ FibroFlutters CEO
Update coming soon! I’m a sufferer myself alongside many others where I live and my group members need this change as much as I do. That is why I signed this petition >>> Carole Sian Scrafton Will you join in the fight for fibro to be recognised by the UK Government as a disabling condition,… Read More PETITION to UK Parliament > Make Fibromyalgia a disability | originated by Adrienne Lakin