Today is #RareDiseaseDay – Read my Patient Experience: Living with multiple rare diseases | Pharmafile | What’s your #Rare? care to share?

Not everyone with EDS has hypermobility, and not everyone with hypermobility has EDS!… Read More Today is #RareDiseaseDay – Read my Patient Experience: Living with multiple rare diseases | Pharmafile | What’s your #Rare? care to share?

Our First Dog Show – Competing in Rally Obedience as a Handler with a Disability – The Invincible Summer

What are a wonderful read this is by Kathleen Elizabeth, aka blogger of ‘The Invincible Summer’, as she talks about her first time as a disabled dog handler in a dog show. She eloquently describes in detail about the highs and lows of her experience whilst giving us a brilliant explanation of how this role… Read More Our First Dog Show – Competing in Rally Obedience as a Handler with a Disability – The Invincible Summer

Stretch, 1, 2, 3, 4… Bend 1, 2, 3, 4 … | ActivePosture shirt – Product review | Carole Scrafton (sponsored post)

I decided to test how long it would be before my back began to ache when sat in a regular dining chair, one with no arms and a straight back. It wasn’t long before I began to notice little things….… Read More Stretch, 1, 2, 3, 4… Bend 1, 2, 3, 4 … | ActivePosture shirt – Product review | Carole Scrafton (sponsored post)

UPCOMING WEBINAR WITH EDS WELLNESS & Dr. Lawrence Afrin #MCAD #Hypermobility & #ChronicPain

UPCOMING WEBINAR WITH EDS WELLNESS: (MCAD) MAST CELL ACTIVATION DISEASE: CURRENT CONCEPTS WITH PARTICULAR NOTES ON HYPERMOBILITY AND CHRONIC PAIN’ Posted by:  Strength/Flexibility/Health/EDS  | K N Myles | Apr 3, 2018 | Opening paragraph: ‘EDS Wellness is thrilled to have Dr. Lawrence Afrin join the speaker line up for their 2018 Video Webinar Series &… Read More UPCOMING WEBINAR WITH EDS WELLNESS & Dr. Lawrence Afrin #MCAD #Hypermobility & #ChronicPain

8 Tips for Patients Newly Diagnosed with Ehlers-Danlos | Shared via painnewsnetwork.org (2015) | Ellen Lennox Smith

EDS has gone under re-classification since this was written, not that it affects the post content but the reclassification information may be useful for the newly diagnosed. See link below.… Read More 8 Tips for Patients Newly Diagnosed with Ehlers-Danlos | Shared via painnewsnetwork.org (2015) | Ellen Lennox Smith