About Us

Contents About Us – our aims and desires, missions and wants as a patient led group. Advocacy & raising awareness Advocacy & raising awareness (Continued from Page 2) – Including: Updated Version! New Look! | #chronicillnessVOICE | SPECIAL EDITION | eyeforpharma Patient Summit Europe ~ My experiences, incl. Im-patient | Carole Scrafton Is pharma being… Read More About Us

Reflecting back! My year of patient, health, research and pharma advocacy 2019 | Carole Scrafton

In all honesty I am amazed that I have done all this especially considering my health was quite bad last year. I do tend to distract myself as much as possible, but crikey, I got around quite a bit didn’t I. – closing thoughts… Read More Reflecting back! My year of patient, health, research and pharma advocacy 2019 | Carole Scrafton

Fibromyalgia? What’s that?Pronounced:- Fi – bro – my – al – jia – UPDATED POST

Read this post to find resources for fibromyalgia and to learn the different definitions from around the medical websites and dictionaries.… Read More Fibromyalgia? What’s that?Pronounced:- Fi – bro – my – al – jia – UPDATED POST

TREAT YOURSELF WITH ACUPRESSURE FOR LOWER BACK PAIN… – BACK PAIN BLOG UK…

If you are suffering from lower back pain then according to Science Daily you could treat yourself using acupressure. A recent study fou… Read More TREAT YOURSELF WITH ACUPRESSURE FOR LOWER BACK PAIN… – BACK PAIN BLOG UK…

New edition of Airing Pain | Pain Concern | 2 July 2019

Programme 115: Neuropathic Pain 1 of 2: Targeted Pain Management Programmes Exploring neuropathic pain and the various ways it can be managed. Airing Pain & Pain Concern work to improve the lives of people living with pain and those who care for them. Their goals: Produce information, Provide support and Raise awareness Trailor You can… Read More New edition of Airing Pain | Pain Concern | 2 July 2019

I’ve been nominated for ‘The Chronically Hopeful Award’ created by Pamela Jessen from There is Always Hope

It’s great to be recognised with ‘The Chronically Hopeful Award’ which Pamela Jensen from There is Always Hope has created, by Barbara McLullich from ‘BACKPAINBLOGUK’ who is a fellow blogger, advocate, and chronic friend.… Read More I’ve been nominated for ‘The Chronically Hopeful Award’ created by Pamela Jessen from There is Always Hope

FINDING A MEDITATION TO SUIT YOU… – BACK PAIN BLOG UK…

Another great post by fellow blogger Barb over at Back Pain Blog Uk “While waiting to go into the Doctors I sat reading a Good Housekeeping Health Living magazine. It had a brilliant article on finding the right type of meditation to suit your mood. These are some o…” Read more via the link button… Read More FINDING A MEDITATION TO SUIT YOU… – BACK PAIN BLOG UK…

Stretch, 1, 2, 3, 4… Bend 1, 2, 3, 4 … | ActivePosture shirt – Product review | Carole Scrafton (sponsored post)

I decided to test how long it would be before my back began to ache when sat in a regular dining chair, one with no arms and a straight back. It wasn’t long before I began to notice little things….… Read More Stretch, 1, 2, 3, 4… Bend 1, 2, 3, 4 … | ActivePosture shirt – Product review | Carole Scrafton (sponsored post)

May 12th International Fibromyalgia Awareness Day – Happy 5th Birthday FibroFlutters

Our loyalty has remained since 2014 and as a result today on our fifth birthday I ask you to please help us to support their 2019 International Awareness Day Campaign by ‘becoming Fibromyalgia Aware’. Please visit the website to learn about the condition, but also learn about the work that the charity does in support of research and education.… Read More May 12th International Fibromyalgia Awareness Day – Happy 5th Birthday FibroFlutters

The burdens of pain management, inflammation and sensitivity to anti-inflammatories. | Carole Scrafton | 27 March 2019

What I have explained in this post is the chain reaction of ‘pain’ and ‘inflammation’ that I fight to prevent on a daily basis and when it gets as bad as this the ‘sciatic’ pain is so intense that it really does make me cry.
Read More The burdens of pain management, inflammation and sensitivity to anti-inflammatories. | Carole Scrafton | 27 March 2019