About Us

Contents About Us – our aims and desires, missions and wants as a patient led group. Advocacy & raising awareness Advocacy & raising awareness (Continued from Page 2) Health communications & Sharing information #chronicillnessVOICE, Nuzzel News, Paper.li’s, News-Medical newsletters Social media community platform link Where can you find us? FibroFlutters Super Highway >>> Our network… Read More About Us

#ChronicillnessVOICE SPECIAL EDITION ‘PHARMA’ APRIL 2019 | eyeforpharma Barcelona review

> I am a supporter of pharma community platforms, but as a patient wish there was one platform for all of them rather than insular separate ones. I believe that compiling resources and knowledge could lead to better results. Plus, it would make them easier to find.

>Being invited back to #efpbarca this year was indeed exciting and also an honour. This review that follows will give you a few insights into my week at Barcelona with eyeforpharma as a ‘Volunteer’ Patient Advocate, and as ‘Impatient Conference Steering Committee member, attending through their ‘Patient Policy’.

Hope you enjoy reading!… Read More #ChronicillnessVOICE SPECIAL EDITION ‘PHARMA’ APRIL 2019 | eyeforpharma Barcelona review

#ChronicillnessVOICE SPECIAL EDITION ‘PHARMA’ APRIL 2019 | eyeforpharma Barcelona review | Plus Newsletters & Resources

I am a supporter of pharma community platforms, but as a patient wish there was one platform for all of them rather than insular separate ones. I believe that compiling resources and knowledge could lead to better results. Plus, it would make them easier to find.

Hope you enjoy reading!… Read More #ChronicillnessVOICE SPECIAL EDITION ‘PHARMA’ APRIL 2019 | eyeforpharma Barcelona review | Plus Newsletters & Resources

Updated Version! New Look! | #chronicillnessVOICE | SPECIAL EDITION | eyeforpharma Patient Summit Europe ~ My experiences, incl. Im-patient | Carole Scrafton

“what a confusing argument for an onlooker from ‘pharma’ who wanted to know ‘who to trust’ as a patient expert when they’re witnessing different types of ‘patient-expert’ arguing about what constitutes one.”
~ CAROLE, OWN OPINION!… Read More Updated Version! New Look! | #chronicillnessVOICE | SPECIAL EDITION | eyeforpharma Patient Summit Europe ~ My experiences, incl. Im-patient | Carole Scrafton

Only 4 weeks to go and we’ll be packing our little cases and boarding the train to London, will you be there? The eyeforpharma Patient Summit

Helping to close the gap between pharma and patients and increase relations, encourage collaborations and stave off the ideas that patients can be manipulated.

The Im-patient Conference which is new, and its bold.

No longer is eyeforpharma HQ in the driving seat, instead it is entirely designed, created and hosted by patients. We believe that in doing so, we will capture the true essence of what patients want – and put them in the driving seat.

Come and see me take part:  17th October | 17:00 – 17:40 (Day 2) 

Panel: Candid patient perspectives on the good, the bad and the ugly of service design… Read More Only 4 weeks to go and we’ll be packing our little cases and boarding the train to London, will you be there? The eyeforpharma Patient Summit

#ChronicIllness Morning Post | A selection of online health related newspapers/magazines/newsletters/blogs | LONG POST

Excerpt:

* Is integrative medicine right for you?  | Len Canter ~ Healthday Reporter |  8 May 2018

‘Integrative medicine focuses on your well-being and considers all aspects of your health: physical, emotional, mental, social, spiritual and environmental. It draws on whatever medical approaches—traditional or alternative—will serve you best.’… Read More #ChronicIllness Morning Post | A selection of online health related newspapers/magazines/newsletters/blogs | LONG POST

#ChronicIllness Morning Post | A selection of online health related newspapers/magazines/newsletters/blogs | LONG POST

Quoted from Opening lines of Jaime’s ~  Proud to Be Pale – How a Melanoma Diagnosis Changed the Way I See My Skin:

“I know. I know. I know. I’m so white, I’d make a sheet of paper jealous. I get it. I’ve heard it all. I’m pale, fair, porcelain, delicate, etc. Yadda yadda yadda.

**sigh**”… Read More #ChronicIllness Morning Post | A selection of online health related newspapers/magazines/newsletters/blogs | LONG POST

#ChronicIllness Morning Post | A selection of online health related newspapers/magazines/newsletters/blogs | LONG POST

#Patient #may12th #HealthNews #fightfibro #TrussyTrek #Fibro2018 #Millionsmissing #chilloutlounge #ChronicPain #ChronicBlogger #spoonie#Autoimmune  #Systemic #Dementia #PatientAdvocacy  #chronicillness  #invisibleillness
#Arthritis #Lupus #Sjogrens
#carenews #careguide #care #homecare #elderly #disabled #Fibro  #ME #CFS #brain #mentalhealth #depression  #anxiety #stress #Migraines #GlutenFree #Diabetes #MSK #EDS #HSD #neuroendocrine #NETs #cancer … Read More #ChronicIllness Morning Post | A selection of online health related newspapers/magazines/newsletters/blogs | LONG POST

#ChronicIllness Morning Post | A selection of online health related newspapers/magazines/newsletters/blogs | LONG POST

Excerpt:

How to Make Gluten-Free Lasagna with Quinoa  |  EatingWell | Daily Nosh | 3 May 2018

See how to make noodleless lasagna using quinoa instead of pasta for a gluten-free, vegetarian dinner. This healthy recipe satisfies your comfort food craving with whole grains and veggies.

Read More #ChronicIllness Morning Post | A selection of online health related newspapers/magazines/newsletters/blogs | LONG POST