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FibroFlutters
Advocating for a Multi-Disciplinary approach to all aspects of medical healthcare. With a business model approach using all the ‘stakeholders’ I’m using a patient’s perspective of what patient-centred care, patient-included, patient-involved, patient-centric should look like and involve, that’s everyone by the way!
You all need to pitch in!!
Locally we’re a Support Group for people with Fibromyalgia, Chronic Pain, EDS/Hypermobility, Mental health, Chronic fatigue/Me, Rare & others offering friendship, support & advice in Sunderland, NE UK …
… but we also offer online support, advice and advocacy via our social media network , chronic illness portal, across the globe.
Patient * Health * Research * Pharma * Advocacy
PLEASE NOTE: We are not medical professionals nor claim to be, and remember that you should always consult your doctor about any health problems and not use Dr Google, or rely on information that you may read online through 3rd parties.
Many thanks for reading our posts and helping to share the news that other folks like you write, or, find.
Please can you read our ‘Disclaimer’ & ‘Privacy’ notes and if you have a problem we are always open to discussion, just e-mail Carole fibroflutters@gmail.com
Some other useful FibroFlutter links:
A UK Community Map for those who provide care and support to humankind, charities and non-profits
Sign-up for my DAILY Nuzzel newsletter
Other links:
MANY THANKS in advance for your understanding –from the administrator – fibrofly73
For other things to read please check out the archives:
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re item about allergy. There was a piece on Channel 4 Dispatches saying that our known allergies pretty much started after WWII. No coincidence methinks and reinforces my beliefs in pollution etc