Protect Your Vision from PsA (Psoriatic Arthritis) Learn what eye conditions are linked to PsA and what treatments are available.
The Arthritis Foundation say that the same inflammation that attacks our joints is the same that can cause certain eye diseases / conditions.
Meaning that an inflammatory health condition such as PsA, and others, which attack the collagen / connective-tissues, can also affect our eyes.
“Within a small little ball, the eye is like a microcosm of the entire body.”
Taken from the Arthritis Foundation Newsletter:
Psoriatic Arthritis Can Affect Your Vision | 26 October 2018
Now I can hear you all asking ‘what eye conditions should you be looking out for?’
The Arthritis Foundation advise that during your diagnosis of PsA there are 6 main eye conditions to watch for. The link takes you to their website where you can find out about these 6 conditions and what symptoms to look out for?who it affects? and also, the kinds of things that you can do to help prevent the conditions from developing, or from worsening.
“Your eyesight means everything to what you experience in everyday life – and we want to help you protect your vision when you have PsA.”
Taken from the Arthritis Foundation Newsletter:
Psoriatic Arthritis Can Affect Your Vision | 26 October 2018
Read all about the ‘6 Ways Arthritis Can Affect Your Eyes’ via the following link >>>
PLEASE NOTE: That myself and fellow FibroFlutters are patients leading a patient support group and a patient led social media network for our advocacy, networking and support services, we are not medical professionals.
Disability News Service (DNS) is run by John Pring, an experienced journalistwho has been reporting on disability issues for nearly 20 years.
He launched DNS in April 2009 to address the absence of in-depth reporting in both the specialist and mainstream media on issues that affect the lives of disabled people.
NEWS | Last call on applications for second year of NHS Digital Academy
CLINICAL SOFTWARE | DrDoctor to be trialled across 11 more NHS hospitals
AI AND ANALYTICS | Facebook’s health research head says doctors should have more patient data
INFRASTRUCTURE | Mandatory open standards will not close health IT market, DHSC believes
NEWS |James Dyson award shortlist includes range of health innovations
Features
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FEATURE | A host of changes: moving a PHR to the managed cloud
FEATURE | I welcome Hancock’s vision, yet can’t entirely eliminate my cynicism
FEATURE | The CCIO profile: Dominic Bullas, Barnsley Hospital NHS Foundation Trust
Upcoming Events >>>
One London: Linking health and care across the capitalOne London was named in May as one of five Local Health and Care Records Exemplar to pioneer linking and sharing records across the capital. Some £7.5m of national money will be matched by £7.5m of local money to achieve this vision at scale in London.
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Turbo-charging programme management across the NHS – why and how
The webinar will provide you with insights into how and why the trust selected and implemented Fortinet. You will also learn how the use of SIEM has helped improve compliancy, driven efficiencies and enabled the trust to better utilise information from their existing technology assets to gain useful and insightful knowledge from their network.
For a full list of Digital Health events and free webinarsclick here.
Registered number: 10004395 Registered office: Rawdon House, Green Lane, Yeadon, Leeds LS19 7BY. Patient is a UK registered trade mark.
PLEASE NOTE: That myself and fellow FibroFlutters are patients leading a patient support group and a patient led social media network for our advocacy, networking and support services, we are not medical professionals.
Meanwhile, why not take a peek at the eyeforpharma Awards & Barcelona conference for March 12th – 14th 2019 where once again I will be participating in a panel and roundtables, sign up and I hope to see you there.
The views and opinions expressed in our content are those of the authors and do not necessarily reflect the official policy or position of eyeforpharma. Examples of analysis performed within this article are only examples. Assumptions made within the analysis are not reflective of the position of eyeforpharma.
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We believe the industry must focus on a business model combining service with product, with patients at the center.
Are you a #DisabilityGameChanger?
Scope | The fight for equality | 11 October 2018
Being a person with varying debilitating problems I am classed as being disabled. I don’t look particularly disabled and I have the capacity to get on my feet and move around. However, the excessive level of joint hypermobility, dreadful balance and coordination and vertigo make me a bit of a liability when walking around. I use walking stick sometimes one, sometimes two, or I have my electric power chair for getting around town in.
There is never a time when I go out that I don’t come across some form of discouraging and negative incidence, whether it is just a simple sneer from someone when they see me stand up, or climb out of the wheelchair to walk to the Ladies bathroom, to the people who just plain and simply can’t accept that not all people who are disabled are paralysed. I’m not bad-mouthing those who are paralysed because they come under just as much unfairness and scrutiny which is why this campaign by SCOPE is so important.
It is time that we were experiencing better fairness and equality, in fact it is well overdue, yes, naturally I’m biased about that but at least I can acknowledge the problem and stand up and fight for the cause. Not just for myself but for all the FibroFlutter followers and supporters out there who also need this to happen.
Workplaces need to be better equipped, employers need to be educated, but most of all the Government shouldn’t just recognise our issues but start doing something about them.
Please join me and 5000 others, sign up to become a #|DisabilityGameChanger and help SCOPE to fight inequality for the disabled
If you want to talk to others and share your experiencesJOIN their Online Community, which is a friendly space for disabled people, parents and carers to talk to others with similar experiences
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Survey: 100 Chronic Pain Patients Needed | National Pain Report| 29 October 2018
Excerpt
The group seeks to localize key recommendations from the National Institutes of Health’s National Pain Strategy in the Golden State. Then they hope that this strategy cannot only be implemented in California, but it will be a guide for other states.
To do that, they must understand what the chronic pain community thinks the big issues are.
Enjoy our latest Neuroscience News updates from the last 24 hours. You can read the full articles by clicking on the headlines or the links embedded in the summary.
2018-10-28 A new study reveals unique connections within brain networks in children on the autism spectrum. Researchers say, in ASD, the amygdala shows marked differences in connection with the occipital cortex than in typically developing children.
“PatientsLikeMe is the world’s largest personalized health network that helps people findnew treatment options, connect with others and take action to improve their outcomes.”
I am Proud to be a member and Ambassador of
@patientslikeme, the world’s largest personalized health network helping 600,000+ people with 2,800+ conditions find new options for treatments, connect with others and take action to improve their outcomes.
A chance to change the future of personalized health.
Very soon PatientsLikeMe.com will have their own spot on the website where you will have access to the links to their community as well as their news and information. ~ Carole
PLEASE NOTE: that I have opted-in to receive all the newsletters that I post from and also please remember to read the privacy policies.
Also, due to the excessive amount of newsletters landing in my inbox, and my haphazard sleep cycle, not all will get updated daily!
If you like what you readPLEASEremember to share and opt-in
Awareness Campaigns
Got a campaign you’d like to share, drop me an e-mail, Carole at fibroflutters@gmail.com
Fundraising to raise £20,000 for Fibro drop-in centre | Rock Off Fibro ~ Fibromyalgia awareness
Quoted from Just Giving page:
“Weʼre raising £20,000 to Help fund the opening of the UKs 1st Fibromyalgia, drop in center to drive our work forward helping those with Fibro , Ptsd , Chronic pain”, Jackie Williams ~ Rock Off Fibro, Fibromyalgia Awareness
Please can you help such a worthy cause, patients are trying to help other patients?!
Every morning and evening I was posting several links to a variety of online newspapers and thought that maybe I could post from here via newsletters, our website/blog, instead.
This is to ensure that all the news and stories go out to everyone that follows us across the social media platforms that we have profiles/accounts.
There’s a few links to my favourite online newspapers for finding a variety of health related news from other Chronic Illness Bloggers & Warriors, for up to date news about health conditions such as latest research papers or people sharing hints and tips about how they cope day-to-day.
Let us help them by showing our support by sharing the news and stories that they share.
If you publish a health related paper.li or other health news magazine/paper that isn’t listed and you would like it to be, please contact me – Carole Sian at fibroflutters@gmail.com or use the form below and let me know, always happy to help 🙂
FibroFlutters – Support Group for people with Fibromyalgia, Chronic Pain, EDS/Hypermobility, Mental health, Chronic fatigue/Me, Rare & others offering friendship, support & advice in Sunderland, NE UK and offering online support via our social media network across the globe.
PLEASE NOTE:We are not medical professionals nor claim to be, and remember that you should always consult your doctor about any health problems and not use Dr Google, or rely on information that you may read online through 3rd parties.
Advocating for a Multi-Disciplinary approach to all aspects of medical healthcare. With a model approach using all the ‘stakeholders’ I’ve designed a patient’s perspective of what patient-centred care, patient-included, patient-involved, patient-centric should look like and involve, that’s everyone by the way!
You all need to pitch in!!
#notjustpatients
PLEASE NOTE: that I have opted-in to receive all the newsletters that I post from and also please remember to read the privacy policies.
Also, due to the excessive amount of newsletters landing in my inbox, and my haphazard sleep cycle, not all will get updated daily!
If you like what you readPLEASEremember to share and opt-in
MANY THANKS in advance for your understanding –
from the administrator – fibrofly73
Many thanks for reading our posts and helping to share the news that other folks like you write, or, find.
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