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    • Do you have constant pain? This article may interest you!
    • We’re off mobilising for charity – 1 month long Superhero Series challenge
    • ARDEnt Report – Rare Disease and the impact of the COVID19 pandemic.
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    • Where can you find Fibromyalgia and Chronic Pain resources across the Globe? Find out here!
    • Look at us on this chronic illness related community ‘aDoddle Map’ for groups, charities and related organisations to help locate each other!
    • FibroFlutters ~ CHRONIC, INVISIBLE AND RARE ILLNESS SUPPORT / ADVICE / ADVOCACY| Disclaimer | Privacy Notes | 8 May 2018
    • Fibromyalgia? What’s that?Pronounced:- Fi – bro – my – al – jia – UPDATED POST
    • Pharma and Health Hub – Reuters Events Pharma Formerly eyeforpharma
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  • Zebra Strutters – Rare Disease Advocacy
    • EDS, JHS, HMS & all things collagen / connective-tissue
      • Hypermobility disorders & EDS reclassification as of 15th March 2017
      • Lara Bloom has Ehlers-Danlos Syndrome, a genetic connective tissue condition and this is her interview on ‘The Moment’ with Maxine Mawhinney.
      • Info site – Ehlers Danlos UK: Hypermobility Ehlers-Danlos syndrome
      • Autonomic Dysfunction Sheet (PoTS) for people with EDS – HT / (h)EDS | Ehlers Danlos Support UK
      • How to Explain Your Pain to a Doctor | EDS and Chronic Pain News & Info
      • (EDS UK) Ehlers Danlos UK – Fibromyalgia and CF (Chronic fatigue) by Dr Alan Hakim, MA FRCP
      • Article from HMSA – Anaesthetic and JHS / EDS – Posted By Alan Hakim, June 29, 2013
      • Volunteer with The Ehlers-Danlos Society | Volunteer Opportunities (2018)
      • (EDS UK) Ehlers Danlos UK – Fibromyalgia and CF (Chronic fatigue) by Dr Alan Hakim, MA FRCP
    • Rare neurological disease – Awareness campaign for AtaxiaUK #IAAD21
    • International Ataxia Awareness Day 25th September with ‘Ataxia and Me’
    • Rare Disease Male Support Group – mental health community support.
    • Dazzle4Rare 2021 – #StrutYourStripes with us at ZebraStrutters to raise awareness!
    • ARDEnt Report – Rare Disease and the impact of the COVID19 pandemic.
    • Pigmented Villonodular Synovitis (PVNS) our Co-Founder’s patient experience with ultra rare disease. #dazzle4rare2020
    • Are you aware of this #Rare? Today is International Ataxia Awareness Day.
    • Are you aware of this #Rare? | Wolfram Syndrome UK Virtual Conference 2020 | 19th and 26th September
    • Today is #RareDiseaseDay – Read my Patient Experience: Living with multiple rare diseases | Pharmafile | What’s your #Rare? care to share?
    • It is time to ‘dazzle’, ‘strut your stripes’ and share ‘rare voices’ for #dazzle4rare2020! 9 – 14th August
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  • Mental Health
    • MedicineNet ~ Newsletter |  Stages of Alcohol Use Disorder  |  30 August 2018
    • Why ADHD Can Look Like Depression | By Neil Petersen | psychcentral.com
    • NHS Choices: Ten ways to fight your fears – Stress, anxiety and depression – NHS Choices
    • This Is Your Body On Anxiety
    • How does our brain process fear? Study investigates | Medical News Today
    • How does Chronic Illness / Pain affect your Sleeping Habits
  • Treatments and Therapies
    • Therapies and Treatments
      • How to Get Started with Essential Oils – Pink Fortitude, LLC
      • THE BOWEN TECHNIQUE FOR PAIN RELIEF IN FIBROMYALGIA AND BACK PAIN…
      • Medical news Article: How Muscle Relaxants can Benefit People Suffering From Fibromyalgia | Welcome to Fibromyalgia Symptoms
      • WHAT ARE SOME OF THE MOST USED MEDICATIONS TO TAKE FOR FIBROMYALGIA?…
      • Hydrotherapy – Heaven or hell? Part Four – Week Four starting 22/02/2017
      • Hydrotherapy – Heaven or hell? Part Two – session one / week one
      • Product Review | Nrem Sleep System | Sponsored Post
  • The Chillout Lounge
    • The CHILLOUT LOUNGE
    • Alternative / Complementary Therapies & Treatments
      • Cannacares CBD gel capsules Product Review – (sponsored)
      • TREAT YOURSELF WITH ACUPRESSURE FOR LOWER BACK PAIN… – BACK PAIN BLOG UK…
      • Reflexology reduces anxiety and improves quality of sleep in informal carers — Federation of Holistic Therapists (FHT) – BACK PAIN BLOG UK…
      • Your Aromatherapy Guide  |  Jan Randall  |  14 April 2018
      • ‘OIL’ have you know!
        • Fibromyalgia, Essential Oils, and You | Fibromyalgia news Today | Robin Dix
        • Honey Colony’s Superior Cannabinoid Rich Hemp Oil ⋆ Lilac and Lyme
        • INFO site: Thinking about trying something complementary here are the ‘Ten Must Have Basic Essential Oils’ | your-aromatherapy-guide.com
        • Are You in Chronic Stress Mode? Seastones natural therapies
        • Complementary Therapy – Massage for Stress Management: Get in touch with its many benefits – Mayo Clinic
        • Reblogged |TRIGGER POINT THERAPY FOR CHRONIC PAIN AND FIBROMYALGIA | BackPainBlog
        • Touch Heals
    • Relaxation Techniques
      • Mindfulness & ilk | Meditation / Study / Relaxation | 3 hours of relaxing music – Peder B. Helland
      • Serenely Sunday: Guided Imagery, Visualisation & Relaxation down by the Lake
      • The Therapeutic Benefits of Gardening | By: Virgil Anderson
      • Serenly Sunday – Let’s take a few deep breaths… and a few slow steps…
      • Relaxation can be the key to helping us to recharge our batteries when they’re feeling a bit on the flat side…
      • Article from Huff Post Healthy Living: 5 Big Benefits Of Being A Doodler
      • Serenely Sunday: A lake that is noisy cannot reflect anything – Robert Adams
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  • Awareness campaigns
    • Fibromyalgia Awareness Week 2021 – #BecomeFibroAware
    • International Ataxia Awareness Day 25th September with ‘Ataxia and Me’
    • International Awareness Day May 12th
    • Ehlers-Danlos Syndrome Awareness in the Month of May
    • May 12th International Fibromyalgia Awareness Day
    • FMAUK | Fighting for the freedom from Fibromyalgia
  • Research related readables
    • ARMA has a new #knowledgehub
    • Accessing specialist doctors faster after a brain injury
    • Bursitis and Osteoarthritis Similarities and Differences | News Medical | By Tim Boughton, M.Sc.
    • Focusing on Nature for New Sources of Analgesic Compounds | Craig Hopp, PhD | NCCIH |  July 1 2019
    • Somatic Symptom Disorder. Learn about this disorder. | Patient
    • Are you interested in #research? Would like to get more involved, or know what research is going on around you?
    • ARMA has a new #knowledgehub
    • You may be partly conscious under general anesthesia  |  Ana Sandoiu  | Medical News Today | 6 July 2018
    • Pain: Hope Through Research: National Institute of Neurological Disorders and Stroke (NINDS)
  • Food, drink and recipes
    • Sweet potato and spinach chilli recipe | Patient
    • For a healthier heart read NHLBI Deliciously Healthy Eating Recipes
    • Simple and easy Cauliflower English Muffins.
    • Two Peas and Their Pod Lemon Almond Cookies – Bake at 350°
    • Ellen Bayens | The Celiac Scene News | Issue: August 2019
    • Patient Newsletter  |  Subject:  The best foods for fighting skin problems |  11 July 2018
    • Make The Healthiest Desserts Ever With Only Fruits, Nuts And Seeds – The Alternative Daily
    • 10 Amazing Health Benefits Of Green Tea | DIY Health Remedy
    • Natural Remedies: Ginger Ale Recipe for Pain: Reduce Chronic Inflammation, Migraines, & Pain REALfarmacy.com | Healthy News and Information
  • The hints and tips station
    • How to sleep when pregnant: Best positions and sleep aids
    • Do you have arthritis? and do you find exercising problematic? Read this post by Arthritis Foundation
    • #PAM2018 #Arthritis  #Toolkit  #TeamApproach  #HealthCare The Arthritis Foundation  |   Managing Health Care With Arthritis  |  10 September 2018
    • Live Better with Rheumatoid Arthritis  |  Arthritis Foundation 
    • Do you know how to make the most of your Doctors appointment? | fibrofly73
    • HOW TO KEEP A PAIN DIARY (free download)…
    • THE BEST EVER PORTABLE HEAT PAD FOR TRAVEL..
    • How to employ your own Personal Assistant (PA)
    • Article -Huffington Post: Here’s How To Stop A Migraine Before It Destroys Your Whole Day
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    • Look at us on this chronic illness related community ‘aDoddle Map’ for groups, charities and related organisations to help locate each other!
    • Weekly Digest for September 10th, 2018 [Mayo Clinic Social Media Network]
    • Are you a ‘SAVVY’ patient? come and check it out!
    • Are you looking for a chance to change the future of personalized health, join ‘Patients Like Me’.
    • NEW online magazine channel | Siemens Healthineers ~ News & Stories – Online magazine channel 
    • RELIEF: PAIN RESEARCH NEWS, INSIGHTS AND IDEAS |BROUGHT TO YOU BY THE IASP PAIN RESEARCH FORUM
    • New Patient platform!  patient-patient registry
    • Chronic Illness Bloggers | Connecting You to the Chronic Illness Community
  • Musculoskeletal
    • Fibromyalgia & Chronic Pain
      • Stretch, 1, 2, 3, 4… Bend 1, 2, 3, 4 … | ActivePosture shirt – Product review | Carole Scrafton
      • Article: Diagnosing Depression in People with Chronic Pain – Arthritis Health
      • Rare Revolution Mag ~ Morven May MacCullum discusses her journey with Lyme Disease about finding new purpose
      • I love to nap. Do you? |You may enjoy reading ‘Napping: the expert’s guide’
      • Patients & Caregivers | American College of Rheumatology | Find information you need about rheumatic diseases & conditions.
      • Fibro – What’s that? Find out here!
      • Central Sensitivity Syndromes – Difficult to Classify
      • Where can you find Fibromyalgia and Chronic Pain resources across the Globe? Find out here!
      • Latest edition! ARMA Newletters | Arthritis & Musculoskeletal Alliance | March / February 2019
      • Fibromyalgia? What’s that?Pronounced:- Fi – bro – my – al – jia – UPDATED POST
      • Do you have arthritis? and do you find exercising problematic? Read this post by Arthritis Foundation
      • MSK services survey – Please let us know what is happening locally | ARMA
      • Fibromyalgia – What’s that? Find out where to find relevant information :-)
      • What are the Symptoms of Fibromyalgia? UPDATED POST
      • Article – Muscle Atrophy Symptoms Causes-and Treatments. | Healthguidance.org | Poignancy regarding #chronicillness & the wastage in my left leg.
      • Fibromyalgia – Symptoms – NHS Choices
      • The burdens of pain management, inflammation and sensitivity to anti-inflammatories. | Carole Scrafton | 27 March 2019
      • DO THE DISCS IN YOUR SPINE ‘SLIP’ ?…|  BARMAC5 | BackPainBlog  | 22 September 2018
      • Fibro Files: 1990 ACR classification pdf and Tender Points image for diagnosing Fibromyalgia
      • How is Fibromyalgia Classified/Diagnosed Part 1 – Historical background – From Fibrositis to Fibromyalgia
      • Central nervous system and Sympathetic Skin Response
      • How is Fibromyalgia Classified/Diagnosed Part 2 – TpT & ACR diagnostic criteria of 1990
      • Tune in: How Listening to Music Improves Fibromyalgia | Katarina Zulak ~ Skillfully Well & Painfully Aware |  4 August 2017
      • Fibromyalgia – Musculoskeletal and Connective Tissue Disorders – Merck Manual Professional Edition
      • Hyperparathyroidism Sometimes Misdiagnosed as Fibromyalgia | edsinfo.wordpress.com
      • Article from MigraineAgain: Aching Body, Aching Head: Understanding Migraine and Fibromyalgia
      • Migraine Again | Why Painful Light Sensitivity Affects Many with Migraines
      • Questions and Answers About Fibromyalgia – Information resource | NIAMS
      • Exclusive Interview: Health Ergonomics – Health Professional explains what it is and then talks about how #covid19 pivoted her into tele-consulting.
      • Top 10 Self-Help Tips for Back Pain and Fibromyalgia Sufferers | Nichola Adams, Health Ergonomist
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  • Rare neurological disease - Awareness campaign for AtaxiaUK #IAAD21
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  • International Ataxia Awareness Day 25th September with 'Ataxia and Me'
    International Ataxia Awareness Day 25th September with 'Ataxia and Me'
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    Are you aware of this #Rare? Today is International Ataxia Awareness Day.
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  • BPB ALERT : FIBROMYALGIA PATIENTS REPORT LESS PAIN, IMPROVED SLEEP FOLLOWING MEDICAL CANNABIS TREATMENT… September 25, 2021
    Written on NORML “Patients diagnosed with fibromyalgia and other inflammatory rheumatic diseases report experiencing reduced levels of pain and improved sleep quality following their use of medical cannabis products, according to data published in the journal Pain Research and Management.“ Israeli investigators surveyed 319 patients about their use of prescription medical cannabis products. Among those with fibromyalgia (82 percent of […]
    Back Pain Blog UK
  • Saturday Stories: Our Biggest Failing, Anti-Vaxxers' Ongoing Radicalization, And Breakthrough Infectiousness September 25, 2021
    James Heathers, with a rare must read recommendation, in Medium, on how our biggest failing of the pandemic has been keeping it invisible.  Ben Collins, in NBC News, on the rapid continuing radicalization of the anti-vaxxer movement Craig Spencer, in The Atlantic, explains why vaccinated people are far less likely to spread the coronavirus [And […]
    Weighty Matters
  • Chocolate Orange Traybake Cake! September 25, 2021
    An easy and delicious chocolate orange traybake with a chocolate orange fudge cake, and chocolate orange buttercream frosting!  So we all know just how obsessed I am with anything chocolate orange… I just can’t help myself. I just love the combination of milk or dark chocolate with an orange twist. My favourite of course is… […]
    Jane's Patisserie
  • The 20 Most Popular Fall Drinks. September 25, 2021
    The 20 Most Popular Fall Drinks. Sharing The 20 Most Popular Fall Drinks today to help you find the perfect drink for all the cozy fall nights ahead. This list has everything from pitcher-style drinks…like my Pumpkin Patch Punch, to spooky Halloween cocktails, to warming apple cider moscow mules, and just about everything in between. […]
    Half Baked Harvest by Tieghan.
  • Let It Be Sunday, 336! September 25, 2021
    Hello friends! Happy Sunday from your favorite baker on the back of a motorcycle. I’m in Northern California with Will at my family reunion. We have too much food and more water guns than people it’s all going really well  my heart is full up. This week’s Sunday reads come from my dear friend Toby […]
    Joy the Baker
  • The Weekend Dish: 9/25/2021 September 25, 2021
    The Weekend Dish: 9/25/2021 Happy first Saturday of fall! The weather has significantly turned here and it’s just glorious! Yesterday was in the low 70’s but there was a distinct chill to the air, and the sun felt warm but noticeably different than the summer sun. I just adore this time of year. What are […]
    Brown Eyed Baker by Michelle
  • Ode to Salt: Commentary on “Skin Sodium Accumulates in Psoriasis and Reflects Disease Severity” September 25, 2021
    “Skin Sodium Accumulates in Psoriasis and Reflects Disease Severity” (Maifeld et al., 2021) showed that skin sodium ion (Na+) is increased in patients with a PASI > 5. Na+ concentration as well as its content were increased in these patients, supporting the proposed mechanism that increased Na+ concentrations enhance IL-17 expression from CD4+ cells. These data […]
    Journal of Investigative Dermatology
  • Keratinocytes Counteract UVB-Induced Immunosuppression in Mice Via HIF-1a Signaling September 25, 2021
    The transcription factor Hypoxia-Inducible Factor-1alpha (HIF-1a) regulates cellular metabolism under hypoxia but also immune responses and UVB-induced skin reactions. In keratinocytes, HIF-1a is an environmental sensor orchestrating the adaptation to environmental changes. Here, we investigated the role of HIF-1a in keratinocytes for skin reactions to acute and chronic UVB exposure in mice.The function of HIF-1a […]
    Journal of Investigative Dermatology
  • TRPC3 Antagonizes Pruritus in A Mouse Contact Dermatitis Model September 25, 2021
    Contact dermatitis (CD), including allergic and irritant CD, are common dermatological diseases and characterized by an erythematous rash and severe itch. In this study, we investigated the function of TRPC3, a canonical TRP channel highly expressed in type 1 non-peptidergic (NP1) nociceptive primary afferents and other cell types, in a mouse CD model. Though TrpC3 […]
    Journal of Investigative Dermatology
  • Nailfold Microvascular Imaging by Dynamic Optical Coherence Tomography in Systemic Sclerosis: a Case-Controlled Pilot Study September 25, 2021
    In systemic sclerosis (SSc) outcome measures of skin microvasculopathy are needed for both clinical trials and practice. Aim of this study was to determine whether dynamic-optical coherence tomography (D-OCT) is able to provide information on microvasculopathy compared to the current gold-standard, nailfold videocapillaroscopy (NVC), in SSc patients. This case-controlled study included: 1) forty SSc patients, […]
    Journal of Investigative Dermatology

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Medical news stories / blog posts / research / pharma /science

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  • For a healthier heart read NHLBI Deliciously Healthy Eating Recipes
  • Autonomic Dysfunction Sheet (PoTS) for people with EDS – HT / (h)EDS | Ehlers Danlos Support UK
  • Irritable bowel syndrome (IBS) what is it? – video | Patient | Dr Sarah Jarvis
  • British Heart Foundation |  Keep hearts beating and blood flowing | 13 June 2018
  • Muscle Cramps (Charley Horse) and Muscle Spasms |By John A. Daller, MD
  • Barriers to Patient-Centered Research Aired at Harvard Symposium | EMR & HIPAA |  Andy Oram  |  2 July 2018
  • Accepting ‘Chronic Illness’ (Updated Post) | Carole Scrafton
  • Article – Muscle Atrophy Symptoms Causes-and Treatments. | Healthguidance.org | Poignancy regarding #chronicillness & the wastage in my left leg.
  • (EDS UK) Ehlers Danlos UK – Fibromyalgia and CF (Chronic fatigue) by Dr Alan Hakim, MA FRCP
  • Article from HMSA – Anaesthetic and JHS / EDS – Posted By Alan Hakim, June 29, 2013
  • How does our brain process fear? Study investigates | Medical News Today
  • Why ADHD Can Look Like Depression | By Neil Petersen | psychcentral.com
  • Product Review | Nrem Sleep System | Sponsored Post
  • Article from Arthritis-health: How Chronic Pain May Sap Your Motivation
  • Scope Blog Post  |  “We all want to be a part of society don’t we?” Addressing loneliness in disabled people
  • How Neglecting Minorities in Medical Research Has Led to Deadly Outcomes | Brian Clark | CEO of  (Human Data Project) HDP Health
  • Migraine Again | Why Painful Light Sensitivity Affects Many with Migraines
  • Study suggests small cell lung cancer should not be treated as single disease | Cancer Research
  • The Importance of Stomach Acid: Why Antacids Could Make You Sick | Hormones Matter
  • Brain Fog clouding your view of Multiple Sclerosis a cognitive impairment
  • Article: Diagnosing Depression in People with Chronic Pain – Arthritis Health
  • Pain: Hope Through Research: National Institute of Neurological Disorders and Stroke (NINDS)
  • A selection of posts from around the National Institutes of Health (NIH) Family
  • Article: Joint hypermobility: emerging disease or illness behaviour? – Journal of the Royal College of Physicians
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International #Ataxia Awareness Day #IAAD 25th September
International #Ataxia Awareness Day #IAAD 25th September
International #Ataxia Awareness Day #IAAD 25th September

Picture Gallery

Guide yourself down the path to the...?
Guide yourself down the path to the…?
Great place for sound imagery, hear the watery echoes
Great place for sound imagery, hear the watery echoes
Who would you like to sit and chat with?
Who would you like to sit and chat with?
A thoughtful walk or a fantastical adventure with fairies and pixies, or knights on white horses!? wherever your mind takes you.
A thoughtful walk or a fantastical adventure with fairies and pixies, or knights on white horses!? wherever your mind takes you.
aving a tough time, can't figure things out? Here's a pretty place for self reflection
aving a tough time, can’t figure things out? Here’s a pretty place for self reflection
A picture for using your imagination to take you on a peaceful journey
A picture for using your imagination to take you on a peaceful journey
Go on take a seat, sit back let yourself relax and close your eyes, and absorb the nature around you What can you hear? What can you smell?
Go on take a seat, sit back let yourself relax and close your eyes, and absorb the nature around you What can you hear? What can you smell?
An eye into the unknown
An eye into the unknown
Fantasy land
Fantasy land
A scented garden to take your mind on a soothing aromatic journey.
A scented garden to take your mind on a soothing aromatic journey.
A place of serenity by the pool
A place of serenity by the pool
Listen to the sounds of the water rushing and feel its energy as is flows and you breathe
Listen to the sounds of the water rushing and feel its energy as is flows and you breathe
What will you find if you wander through the gate
What will you find if you wander through the gate
... forget about the world and spend some time on yourself
… forget about the world and spend some time on yourself
StillnessSpeaks.com
StillnessSpeaks.com
An image to guide your mind to anywhere whilst laying on the beach
An image to guide your mind to anywhere whilst laying on the beach
Feel the stillness and breathe long and deep
Feel the stillness and breathe long and deep

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