Looking for a local support group then please sign up for a basic membership to become a member, it’s free and you get access to their magazine ‘Fragile Links’.… Read More Ehlers-Danlos Syndrome Awareness in the Month of May
Many thanks for supporting the work that the charity Fibromyalgia Action UK does towards raising awareness through educating people about what fibromyalgia is. Also, through the many support groups that the charity has throughout the UK that all support patients with fibromyalgia.… Read More May 12th International Fibromyalgia Awareness Day
This EXCLUSIVE PAPER ‘What Patients Want’ discusses the roundtables / interactive sessions that were designed + led by patients, co-chaired by patients, and moderated by industry facilitators ie patient advocates.… Read More ‘What Patients Want’ Executive Round table Summary – eyeforpharma Patient Summit October 2019
A few articles you might have missed – eyeforpharma Featuring insights from Abbvie, Pfizer, Novo Nordisk and more. Pharma’s new ally: The caregiver Pharma has only just started thinking about how engaging with caregivers could unlock a range of valuable insights #caregiverengagement #notjustpatients 18th annual eyeforpharma Philadelphia Conference Apr 15, 2020 – Apr 16, 2020,… Read More A few articles you might have missed – eyeforpharma
In all honesty I am amazed that I have done all this especially considering my health was quite bad last year. I do tend to distract myself as much as possible, but crikey, I got around quite a bit didn’t I. – closing thoughts… Read More Reflecting back! My year of patient, health, research and pharma advocacy 2019 | Carole Scrafton
“For 2019, we have a practical focus on transforming the whole pipeline – R&D, clinical trials and commercial – demonstrating how patient-led design can reduce cost whilst driving effectiveness and value.”… Read More I’m speaking at the @eyeforpharma PATIENT SUMMIT EUROPE | Pharma’s home for patient-centricity in Europe
Hello and welcome to this eyeforpharma event special where I share with you the upcoming conferences in Philadelphia – North America and in London – Europe, during October 2019 Many people possibly will wish to know why I champion eyeforpharma, and indeed pharma in general so I’ll go into it, ‘briefly’, here before introducing the… Read More What’s coming up? #pharma #patients @eyeforpharma? Take a look & see! (sponsored)
Fri, Jul 26 2019: FibroFlutters (FibroFlutters) Newsletter on Nuzzel. Subscribe to FibroFlutters’ Nuzzel Newsletter Today’s Issue: #chronicillnessVOICE health related newsletter for everyone #notjustpatients – FibroFlutters’ Nuzzel Newsletter on Fri, Jul 26 2019 Good morning from FibroFlutters here’s my selection for Jul 26 Newsletter featuring #chronicillnessVOICE health related newsletter for everyone #notjustpatients #pharma #research #health #caregivers… Read More #chronicillnessVOICE health related newsletter for everyone #notjustpatients – FibroFlutters’ Nuzzel Newsletter on Fri, Jul 26 2019
Feature: ‘Find Me A Cure’
Very soon FibroFlutters website will have it’s own very unique widget for readers to search for appriate clinical trials for any illness anywhere in the World and Find Me A cure have already sent me some designs to choose from.… Read More #chronicillnessVOICE | Health & medical related mini-mag for everyone| February 2019 | #notjustpatients
“what a confusing argument for an onlooker from ‘pharma’ who wanted to know ‘who to trust’ as a patient expert when they’re witnessing different types of ‘patient-expert’ arguing about what constitutes one.”
~ CAROLE, OWN OPINION!… Read More Updated Version! New Look! | #chronicillnessVOICE | SPECIAL EDITION | eyeforpharma Patient Summit Europe ~ My experiences, incl. Im-patient | Carole Scrafton
