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#RAREsummit19 | 23 September in Cambridge | I’m going, will you join us?!

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September 8, 2019October 31, 2019 fibrofly73

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Hello and thank you for visiting our website, FibroFlutters is a 'Patient-Led' Non-profit Community based Patient organisation that is ran by 'unpaid' Patient Volunteers. * We raise awareness, share health communications to educate people about varying chronic illnesses. * Provide resources for patients & professionals alike. * We strive to be patient / health /research /pharma advocates to help create better outcomes for patients whilst promoting patient/person centred multi-disciplinary approaches to medical healthcare. * If you like the work that we do? Please help to support us. * All donations will be graciously received. Carole ~ CEO / Co-Founder on behalf of all patient volunteers at FibroFlutters

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Skin Rashes and Fibromyalgia Syndrome
Article fromabout.com | Telephone Difficulties with Fibromyalgia & Chronic Fatigue Syndrome
10 Amazing Health Benefits Of Green Tea | DIY Health Remedy
Fibro Files: 1990 ACR classification pdf and Tender Points image for diagnosing Fibromyalgia
Clinician Series: AI in Medicine - Surgery and Procedural Virtual Event
Fibromyalgia Poll - Which 3 of these cause you the most distress?

MEDICAL DISORDERS

Medical Disorders

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FibroFlutters in FEEDSPOT Top Ten for chronic illness blogs

FibroFlutters makes into top 10 Fibro blogs by FEEDSPOT

EDS, JHS, Hypermobility & HSD’s News and info

EDS and Chronic Pain News & info Blog about EDS and Chronic Pain sharing appropriate news and info
FibroFlutters – Face Book CLOSED COMMUNITYPage FibroFlutters Support Group Face Book Page
NHS Choices – Joint hypermobility syndrome NHS Choices – Joint hypermobility syndrome – Information pages
Ehlers-Danlos Syndrome Overview Connective Tissue Disorder by Carol Eustice Ehlers-Danlos Syndrome Overview Connective Tissue Disorder By Carol Eustice | verywell.com
Disability.gov Disability.gov is an “information and referral” website, which means almost every time you select a resource, you will go to another website.

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eyeforpharma ~ Home page
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eyeforpharma patient policy eyeforpharma: Patient Policy By Paul Simms, Chairman, eyeforpharma. Updated August 2017

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ME / CFS Awareness poster for May 12th 2017

Fibro Fighting Fluffie Hugs

Don’t ever let anyone dull your sparkle

$The Liebster Award: The Official Rules + My First Blog Award and a Few Personal Secrets Revealed - May 2, 2013 \ Lorraine > Last Updated on: December 7th, 2017$

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Fight or Flight?

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#fibroflutters celebrate their 7th birthday today 🎂

#RareDiseaseDay2021 is fast approaching and we have a new element / addition to #FibroFlutters to launch...

#PEinEarlyStages is part of a series of Patient Focused Medicines Development - PFMD ) How-To Guides co-created in a multi-stakeholder environment built with #PatientEngagement Quality Guidance.

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Friday Things #426 June 25, 2021
Friday Things #426 1. This boy asks to do school books all the time; he loves working on them, gets frustrated when he can’t quite get something, but then celebrates with his whole being once he nails it ❤️️ 2. And Isabelle just wants to be where “her boys” are; I just love how much […]
Brown Eyed Baker by Michelle
3 Ways to Make Whipped Cream Frosting June 25, 2021
3 Ways to Make Whipped Cream Frosting Whipping cream, no doubt, is the easiest and most versatile type of frosting. While there are a variety of ways to do it, it is important that we know how to compare and create different types of whipped cream frosting. For today’s recipe, we will focus on the […]
Bake Fresh
Coffee Frosting June 25, 2021
If you love coffee, you need this frosting on everything! It’s super easy to make, the perfect consistency to pipe on cakes and cupcakes, and it tastes just like coffee ice cream! I struggled getting the perfect consistency for this frosting because adding brewed coffee directly to the frosting makes it too loose and reduces […]
Cupcake Project
New Study Reveals How 'Muscle Memory' Works June 25, 2021
Researchers report that mental “instant replay” after each performance is critical to perfecting a new skill.
Psychology Today | Neuroscience
Sleeping Better with Depression June 25, 2021
How to fall and stay asleep, and not oversleep, when you have depression.
Psych Central
20210623 Whole-grain Cinnamon Raisin Bread with CLAS June 25, 2021
20210623 Whole-grain Cinnamon Raisin Bread with CLAS Submitted by Yippee on June 24, 2021 - 4:26pm. To learn more about concentrated lactic acid sourdough (CLAS), please see here and here. Another dessert bread! You may already notice that I sweets. Eating wholesome sweet bread as a snack is much healthier than eating candies! Made with CLAS, this […]
The Fresh Loaf
Sleeping Better with Depression June 24, 2021
How to fall and stay asleep, and not oversleep, when you have depression.
World of Psychology | Psychology and mental health blog
Video » The NIMH Director’s Innovation Speaker Series: Addressing Ethnoracial Disparities in Mental Health Risk, Assessment, and Service Delivery June 24, 2021
Roberto Lewis-Fernández, M.D., was the guest speaker for the NIMH Director’s Innovation Speaker Series. Dr. Lewis-Fernández is a professor of clinical psychiatry at Columbia University and director of the New York State Center of Excellence for Cultural Competence and the Hispanic Treatment Program, and co-director of the Anxiety Disorders Clinic, at New York State Psychiatric […]
National Institute of Mental Health (NIMH)
Parents of children with complex medical conditions more likely to have mental health issues June 24, 2021
Parents of children with Complex Medical Conditions were five times more likely to report suffering from poor or fair mental than parents of kids without these conditions, and also were more likely to struggle finding help, according to a new study.
ScienceDaily » Chronic Illness News
Can Medical Cannabis Ease Anxiety and Depression Symptoms? June 24, 2021
Many people claim that cannabis helps them reduce symptoms of anxiety and depression. Here's what the science says.
Psych Central

Review eligibility of Paramedic Science students for the NHS Learning Support Fund

Review eligibility of Paramedic Science students for the NHS Learning Support Fund

NIHR – Clinical research is everyone’s future

Chronic Illness Bloggers

Do you blog about Chronic Illness why not click the pic to come and join us

FibroFlutters HQ FB Page

FibroFlutters HQ FB Page

Medical news stories / blog posts / research / pharma /science

Medical news stories, blogs and research
Fibroflutters #SocialMedia #healthadvocacy and #allstakeholder approach to #healthcare, across the globe – Peeking at the statistics!
Welcome to the Samaritans Monthly Newsletter | Samaritans | June 2019
New data-led NHS safety strategy lets patients log concerns | Owen Hughes | Digital Health | 8 July 2019
New edition of Airing Pain | Pain Concern | 2 July 2019
For a healthier heart read NHLBI Deliciously Healthy Eating Recipes
Fibromyalgia – Musculoskeletal and Connective Tissue Disorders – Merck Manual Professional Edition
A – Z of Clinical Research – Making Research Better | NIHR
Autonomic Dysfunction Sheet (PoTS) for people with EDS – HT / (h)EDS | Ehlers Danlos Support UK
Patient | Causes and treatments of Irritable Bowel Syndrome (IBS) – video | Dr Sarah Jarvis
British Heart Foundation | Keep hearts beating and blood flowing | 13 June 2018
Muscle Cramps (Charley Horse) and Muscle Spasms |By John A. Daller, MD
Barriers to Patient-Centered Research Aired at Harvard Symposium | EMR & HIPAA | Andy Oram | 2 July 2018
Accepting ‘Chronic Illness’ (Updated Post) | Carole Scrafton
Article – Muscle Atrophy Symptoms Causes-and Treatments. | Healthguidance.org | Poignancy regarding #chronicillness & the wastage in my left leg.
Joint Hypermobility and Fibromyalgia | Is there a connection? | Carole Scrafton
(EDS UK) Ehlers Danlos UK – Fibromyalgia and CF (Chronic fatigue) by Dr Alan Hakim, MA FRCP
Article from HMSA – Anaesthetic and JHS / EDS – Posted By Alan Hakim, June 29, 2013
How does our brain process fear? Study investigates | Medical News Today
Product Review | Nrem Sleep System | Sponsored Post
#NeuroendocrineCancer #NETS RonnyAllan.NET – Community Newsletter Covering August 2018 #PatientAdvocacy
#PAM2018 #Arthritis #Toolkit #TeamApproach #HealthCare The Arthritis Foundation | Managing Health Care With Arthritis | 10 September 2018
Scope Blog Post | “We all want to be a part of society don’t we?” Addressing loneliness in disabled people
Article from Arthritis-health: How Chronic Pain May Sap Your Motivation
How Neglecting Minorities in Medical Research Has Led to Deadly Outcomes | Brian Clark | CEO of (Human Data Project) HDP Health
Why ADHD Can Look Like Depression | By Neil Petersen | psychcentral.com
Migraine Again | Why Painful Light Sensitivity Affects Many with Migraines
Study suggests small cell lung cancer should not be treated as single disease | Cancer Research
A discovery that could alter the whole way that disorders such as Multiple Sclerosis, Autism & Alzeimers are looked at : ‘Landmark discovery’ of vessels connecting brain to immune system – Medical News Today
30 years after Prozac arrived, we still buy the lie that chemical imbalances cause depression | Olivia Goldhill | Quartz
Article from Fibromyalgia News Today (FNT) – Skin of Fibromyalgia Patients Could Provide Disease Clues
5 Ways to Decrease the Health Risks of Sitting | Jaime A. Heidel | June 27, 2016
The most underrated scientific breakthroughs of 2017 | Quartz
8 Tips for Patients Newly Diagnosed with Ehlers-Danlos | Shared via painnewsnetwork.org (2015) | Ellen Lennox Smith
The Importance of Stomach Acid: Why Antacids Could Make You Sick | Hormones Matter
Brain Fog clouding your view of Multiple Sclerosis a cognitive impairment
Article from MigraineAgain: Aching Body, Aching Head: Understanding Migraine and Fibromyalgia
Article: Diagnosing Depression in People with Chronic Pain – Arthritis Health
Pain: Hope Through Research: National Institute of Neurological Disorders and Stroke (NINDS)
Articles from Pro Health: 1- It’s Not All in Your Head – It’s in Your Hands! & 2: Fibromyalgia Research update
Fibromyalgia now considered as a lifelong central nervous system (CNS) disorder
#PAM2018 | What Happens Up Stream Comes Down Stream: The Cause and Effect of the Mental and Physical Connection | Treasures On The Sand | 24 September 2018
#PAM2018 #Arthritis #Toolkit #TeamApproach #HealthCare The Arthritis Foundation | Managing Health Care With Arthritis | 10 September 2018
#NeuroendocrineCancer #NETS RonnyAllan.NET – Community Newsletter Covering August 2018 #PatientAdvocacy
A few FREE Health apps & e-books
A selection of posts from around the National Institutes of Health (NIH) Family
Article -Huffington Post: Here’s How To Stop A Migraine Before It Destroys Your Whole Day
Article: Joint hypermobility: emerging disease or illness behaviour? – Journal of the Royal College of Physicians
Central nervous system and Sympathetic Skin Response
Central Sensitivity Syndromes – Difficult to Classify
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#fibroflutters celebrate their 7th birthday today 🎂

#RareDiseaseDay2021 is fast approaching and we have a new element / addition to #FibroFlutters to launch...

#PEinEarlyStages is part of a series of Patient Focused Medicines Development - PFMD ) How-To Guides co-created in a multi-stakeholder environment built with #PatientEngagement Quality Guidance.

Picture Gallery

Listen to the sounds of the water rushing and feel its energy as is flows and you breathe

Guide yourself down the path to the…?

A picture for using your imagination to take you on a peaceful journey

What will you find if you wander through the gate

… forget about the world and spend some time on yourself

StillnessSpeaks.com

An image to guide your mind to anywhere whilst laying on the beach

Go on take a seat, sit back let yourself relax and close your eyes, and absorb the nature around you What can you hear? What can you smell?

An eye into the unknown

A place of serenity by the pool

Who would you like to sit and chat with?

A thoughtful walk or a fantastical adventure with fairies and pixies, or knights on white horses!? wherever your mind takes you.

Feel the stillness and breathe long and deep

aving a tough time, can’t figure things out? Here’s a pretty place for self reflection

A scented garden to take your mind on a soothing aromatic journey.

Fantasy land

Great place for sound imagery, hear the watery echoes

MAY 12TH Awareness Day

Happy Birthday to all of our supporters, let's celebrate MAY 12th Okay, so our blog is one years old
The #Fibro & #MECFS News An online daily magazine
International Fibromyalgia AWARENESS DAY 2015 Poster – International Fibromyalgia AWARENESS DAY 2015

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