It is time to ‘dazzle’, ‘strut your stripes’ and share ‘rare voices’ for #dazzle4rare2020! 9 – 14th August

Many rare disease communities are very small which makes it hard to raise awareness by themselves, so through joining forces during this week their voices are strengthened in numbers and become one giant ‘united voice’ for rare disease awareness.… Read More It is time to ‘dazzle’, ‘strut your stripes’ and share ‘rare voices’ for #dazzle4rare2020! 9 – 14th August

Why Patient Organizations Are No Summer Fling For Pharma By Adam Chapman |  8 August 2018

#pharmanews #eyeforpharma #pharma #tech Why Patient Organizations Are No Summer Fling For Pharma By Adam Chapman |  8 August 2018 Opening paragraph ‘Breaking news: Protestors from patient organizations gather en masse outside a pharmaceutical company’s headquarters wielding placards emblazoned with the words TRANSACTIONAL and TOKENISTIC.’ Excerpt ‘A patient expert’s contribution may not always be considered but letting… Read More Why Patient Organizations Are No Summer Fling For Pharma By Adam Chapman |  8 August 2018