Lara Bloom has Ehlers-Danlos Syndrome, a genetic connective tissue condition and this is her interview on ‘The Moment’ with Maxine Mawhinney.

International Executive Director Lara Bloom was interviewed recently by “The Moment-with Maxine Mawhinney” raising awareness about EDS/HDS and talking about her moment when she walked the London Marathon in 2011.… Read More Lara Bloom has Ehlers-Danlos Syndrome, a genetic connective tissue condition and this is her interview on ‘The Moment’ with Maxine Mawhinney.

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‘Strut your stripes’ in Sunderland TODAY 1 – 3 pm at our first ever EDSUK meet up

If you haven’t signed up as a member please do or I can’t let you into the meeting.

Thankyou

You can sign up for the free membership via this link  >>>

Members from both Sunderland and Newcastle areas are welcome… Read More ‘Strut your stripes’ in Sunderland TODAY 1 – 3 pm at our first ever EDSUK meet up

Autonomic Dysfunction Sheet (PoTS) for people with EDS – HT / (h)EDS | Ehlers Danlos Support UK

Autonomic Dysfunction Sheet (PoTS) Article / Paper by: Dr Alan Hakim MA FRCP, Hospital of St John and St Elizabeth, London. Professor Rodney Grahame CBE MD FRCP FACP, Hospital of St John and St Elizabeth, London. Originally posted http://www.ehlers-danlos.org  Medical information | Autonomic Dysfunction This post is not aimed at everyone with EDS as explained in… Read More Autonomic Dysfunction Sheet (PoTS) for people with EDS – HT / (h)EDS | Ehlers Danlos Support UK