About Us

Contents About Us – our aims and desires, missions and wants as a patient led group. Advocacy & raising awareness Advocacy & raising awareness (Continued from Page 2) – Including: Updated Version! New Look! | #chronicillnessVOICE | SPECIAL EDITION | eyeforpharma Patient Summit Europe ~ My experiences, incl. Im-patient | Carole Scrafton Is pharma being… Read More About Us

Reflecting back! My year of patient, health, research and pharma advocacy 2019 | Carole Scrafton

In all honesty I am amazed that I have done all this especially considering my health was quite bad last year. I do tend to distract myself as much as possible, but crikey, I got around quite a bit didn’t I. – closing thoughts… Read More Reflecting back! My year of patient, health, research and pharma advocacy 2019 | Carole Scrafton

Bursitis and Osteoarthritis Similarities and Differences | News Medical | By Tim Boughton, M.Sc.

Knowing the differences between conditions that share so many symptom similarities makes it easier to understand the condition that you have, and also means you can work with your health care providers to create the most suitable management plan for you to cope living with it.… Read More Bursitis and Osteoarthritis Similarities and Differences | News Medical | By Tim Boughton, M.Sc.

Fibromyalgia? What’s that?Pronounced:- Fi – bro – my – al – jia – UPDATED POST

Read this post to find resources for fibromyalgia and to learn the different definitions from around the medical websites and dictionaries.… Read More Fibromyalgia? What’s that?Pronounced:- Fi – bro – my – al – jia – UPDATED POST

TREAT YOURSELF WITH ACUPRESSURE FOR LOWER BACK PAIN… – BACK PAIN BLOG UK…

If you are suffering from lower back pain then according to Science Daily you could treat yourself using acupressure. A recent study fou… Read More TREAT YOURSELF WITH ACUPRESSURE FOR LOWER BACK PAIN… – BACK PAIN BLOG UK…

Patients & Caregivers | American College of Rheumatology | Find information you need about rheumatic diseases & conditions.

Working in tandem with the Health Care Professionals is not easy for many patients, so it is important for the person that you care for to make their healthcare team aware that ‘you’ are their personal care-provider and support system.… Read More Patients & Caregivers | American College of Rheumatology | Find information you need about rheumatic diseases & conditions.

NOT LONG NOW! RCGP’s 7th Health and Justice Summit: Journeys Through Justice – Leadership and Transformation (sponsored)(updated)

The main title will be ‘Journeys Through Justice – Leadership and Transformation’ – focusing on a range of themes including Women in prison, Transgender pathways, Children’s services, Learning disability and difficulty and Trauma-informed care… Read More NOT LONG NOW! RCGP’s 7th Health and Justice Summit: Journeys Through Justice – Leadership and Transformation (sponsored)(updated)

#chronicillnessVOICE health related newsletter for everyone #notjustpatients – FibroFlutters’ Nuzzel Newsletter on Fri, Jul 26 2019

Fri, Jul 26 2019: FibroFlutters (FibroFlutters) Newsletter on Nuzzel. Subscribe to FibroFlutters’ Nuzzel Newsletter Today’s Issue: #chronicillnessVOICE health related newsletter for everyone #notjustpatients – FibroFlutters’ Nuzzel Newsletter on Fri, Jul 26 2019 Good morning from FibroFlutters here’s my selection for Jul 26 Newsletter featuring #chronicillnessVOICE health related newsletter for everyone #notjustpatients #pharma #research #health #caregivers… Read More #chronicillnessVOICE health related newsletter for everyone #notjustpatients – FibroFlutters’ Nuzzel Newsletter on Fri, Jul 26 2019

New edition of Airing Pain | Pain Concern | 2 July 2019

Programme 115: Neuropathic Pain 1 of 2: Targeted Pain Management Programmes Exploring neuropathic pain and the various ways it can be managed. Airing Pain & Pain Concern work to improve the lives of people living with pain and those who care for them. Their goals: Produce information, Provide support and Raise awareness Trailor You can… Read More New edition of Airing Pain | Pain Concern | 2 July 2019

I’ve been nominated for ‘The Chronically Hopeful Award’ created by Pamela Jessen from There is Always Hope

It’s great to be recognised with ‘The Chronically Hopeful Award’ which Pamela Jensen from There is Always Hope has created, by Barbara McLullich from ‘BACKPAINBLOGUK’ who is a fellow blogger, advocate, and chronic friend.… Read More I’ve been nominated for ‘The Chronically Hopeful Award’ created by Pamela Jessen from There is Always Hope