Autonomic Dysfunction Sheet (PoTS) for people with EDS – HT / (h)EDS | Ehlers Danlos Support UK

Autonomic Dysfunction Sheet (PoTS) Article / Paper by: Dr Alan Hakim MA FRCP, Hospital of St John and St Elizabeth, London. Professor Rodney Grahame CBE MD FRCP FACP, Hospital of St John and St Elizabeth, London. Originally posted http://www.ehlers-danlos.org Medical information | Autonomic Dysfunction This post is not aimed at everyone with EDS as explained in… Read More Autonomic Dysfunction Sheet (PoTS) for people with EDS – HT / (h)EDS | Ehlers Danlos Support UK

January 12, 2018September 19, 2021 fibrofly73

8 Tips for Patients Newly Diagnosed with Ehlers-Danlos | Shared via painnewsnetwork.org (2015) | Ellen Lennox Smith

EDS has gone under re-classification since this was written, not that it affects the post content but the reclassification information may be useful for the newly diagnosed. See link below.… Read More 8 Tips for Patients Newly Diagnosed with Ehlers-Danlos | Shared via painnewsnetwork.org (2015) | Ellen Lennox Smith

January 1, 2018May 24, 2018 fibrofly73

Hypermobility disorders & EDS reclassification as of 15th March 2017

Hypermobility disorders & EDS reclassification as of 15th March 2017 If you happen to be one of us that has one these types of disorders the following link will explain not only what the changes are, but also why the changes were required. 4 years ago when I was diagnosed they changed the classification… Read More Hypermobility disorders & EDS reclassification as of 15th March 2017