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EDS, JHS, Hypermobility & HSD’s News and info

8 Tips for Patients Newly Diagnosed with Ehlers-Danlos Article By Ellen Lenox Smith, Columnist – PainNewsNetwork 2015
Autonomic Dysfunction Sheet (PoTS) for people with EDS – HT / (h)EDS | Ehlers Danlos Support UK Autonomic Dysfunction Sheet (PoTS) for people with EDS – HT / (h)EDS | Ehlers Danlos Support UK
The Mighty > Ehlers Danlos Syndrome ‘We face disability, disease and mental illness together.’ ~ The Mighty Motto – A plac where people read and write about their #chronicillnesses
Ehlers-Danlos Syndrome Overview Connective Tissue Disorder by Carol Eustice Ehlers-Danlos Syndrome Overview Connective Tissue Disorder By Carol Eustice | verywell.com
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Don’t ever let anyone dull your sparkle

$The Liebster Award: The Official Rules + My First Blog Award and a Few Personal Secrets Revealed - May 2, 2013 \ Lorraine > Last Updated on: December 7th, 2017$

Leibster Award Nomination

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Fight or Flight?

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Hello and thank you for visiting our website, FibroFlutters is a 'Patient-Led' Non-profit Community based Patient organisation that is ran by 'unpaid' Patient Volunteers. * We raise awareness, share health communications to educate people about varying chronic illnesses. * Provide resources for patients & professionals alike. * We strive to be patient / health /research /pharma advocates to help create better outcomes for patients whilst promoting patient/person centred multi-disciplinary approaches to medical healthcare. * If you like the work that we do? Please help to support us. * All donations will be graciously received. Carole ~ CEO / Co-Founder on behalf of all patient volunteers at FibroFlutters

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Strawberry, cherry & lime macarons June 28, 2022
These seriously fruity macarons are inspired by the Exuberantly Fruity chocolates from Hotel Chocolat: my favourite of their chocolates. They give a real flavour explosion as soon as you bite into them! I’ve posted before about how much fruity and tangy macaro..
Baking Fanatic
Headaches and Psychiatric Illness June 28, 2022
Headaches are a common comorbidity among a variety of psychiatric diagnoses.
Psychiatric Times
Cultural Issues in Diagnosing and Treating Psychotic Disorders June 28, 2022
All mental health clinicians must now develop skills in cultural competence to avoid perpetuating disparities in health outcomes for BIPOC individuals with serious mental illnesses.
Psychiatric Times
Peanut Butter and Jelly Crisp June 28, 2022
WHAT YOU GET: This Peanut Butter and Jelly Crisp recipe has warm, sweet, jammy apples and berries with a peanutty crisp topping — a homemade summery dessert honoring the classic combination of peanut butter and jelly! Attention all peanut butter and jelly fan..
Gemma's Bigger Bolder Baking
The key to making a cake that tastes straight from the box: A little oil is the answer. June 28, 2022
Cake may seem eternal, but cake as we know it today is a relatively recent creation. Like any food, it, too, is subject to changes in technology and trends. Over the decades, styles have risen and fallen: Today, the ultimate (and nostalgic) ideal for many of ..
King Arthur Baking Blog
Smoked Pork Steaks June 28, 2022
These Smoked Pork Steaks are not only easy to make but also incredibly flavorful with a homemade dry rub and are smoked to perfection! A TASTY PORK RECIPE Over the last few years, I've really gotten into smoking meats. I think it is so much simpler now that t..
The Country Cook
How to Make Coquilles Saint-Jacques June 28, 2022
I’m a huge fan of French food (as you might notice in my cookbook!) as well as seafood, so this coquilles Saint-Jacques recipe is right up my alley. It’s a fancy dish that can impress any dinner guest but it’s also fairly simple to throw together (which I’m a..
Blog – Wellness Mama
Seasonal Eating: Summer Fruits and Vegetables June 28, 2022
Sunshine, beach days, camping, cookouts—there’s a lot to love about summer. My favorite part of summer is when the seasonal summer vegetables hit my community farmer’s market. Strolling past table after table laden with freshly picked berries, heirloom tomato..
Mark&#39;s Daily Apple
The Benefits of Wearing Personal Protective Equipment During the Pandemic June 28, 2022
Mask-wearing can help protect individuals from COVID-19 infection—but it also has several other unexpected advantages.
Psychiatric Times
Taking Pride in Pride Day June 28, 2022
Pride might be bittersweet this year…
Psychiatric Times

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And here's the rest of the construction pictures.

Operation build that wardrobe has commenced!

So was this... decadence at its best 😋😋😋

Picture Gallery

Great place for sound imagery, hear the watery echoes

A place of serenity by the pool

What will you find if you wander through the gate

Go on take a seat, sit back let yourself relax and close your eyes, and absorb the nature around you What can you hear? What can you smell?

A scented garden to take your mind on a soothing aromatic journey.

An eye into the unknown

Fantasy land

… forget about the world and spend some time on yourself

StillnessSpeaks.com

Guide yourself down the path to the…?

An image to guide your mind to anywhere whilst laying on the beach

A picture for using your imagination to take you on a peaceful journey

A thoughtful walk or a fantastical adventure with fairies and pixies, or knights on white horses!? wherever your mind takes you.

Who would you like to sit and chat with?

Feel the stillness and breathe long and deep

aving a tough time, can’t figure things out? Here’s a pretty place for self reflection

Listen to the sounds of the water rushing and feel its energy as is flows and you breathe

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PLEASE NOTE: That here at fibroflutters.com we are not medical professionals just fellow chronic illness warriors sharing information.

Any information read or shared on, to or from this blog site should not override any advice given to you by your own Doctors.

PLEASE NOTE THAT THIS SITE USES GOOGLE ANALYTICS TO COLLECT DEMOGRAPHIC INFORMATION FOR INFORMATION AND CONTENT DECISION MAKING PURPOSES ONLY AND NOT TO SELL TO 3RD PARTIES. PLEASE:

Do not take any work, articles or pages to be your own, including those from third partie, or any external partie links, and always accredit the appropriate authors accordingly.

Always speak to your GP first before stopping, changing or trying new medications or treatments, FibroFlutters will not claim resposibility for any loss or damage from third parties/third partie links, or any external parties..

Always be aware of Internet security and note that we cannot be held responsible for external websites.

Remember that buying products such as 'cure-claiming' remedies on-line can be a risky business and again FibroFlutters will not claim responsibility for any loss or damage from third parties/third partie links or any external parties.

MANY THANKS in advance for your understanding - from the administrator - fibrofly73

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