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Rare neurological disease - Awareness campaign for AtaxiaUK #IAAD21
International Ataxia Awareness Day 25th September with 'Ataxia and Me'
How to sleep when pregnant: Best positions and sleep aids
Fibro Files: 1990 ACR classification pdf and Tender Points image for diagnosing Fibromyalgia
Are you aware of this #Rare? Today is International Ataxia Awareness Day.
Joint Hypermobility and Fibromyalgia | Is there a connection? | Carole Scrafton

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Muscular Symptom Atrophy
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Disability.gov Disability.gov is an “information and referral” website, which means almost every time you select a resource, you will go to another website.
HMSA – Hypermobility Syndromes Association A Charity and place for EDS JHS HMS/HSDs and other connective tissue disorders
Link to @FibroFlutters TWITTER
8 Tips for Patients Newly Diagnosed with Ehlers-Danlos Article By Ellen Lenox Smith, Columnist – PainNewsNetwork 2015
How to Explain Your Pain to a Doctor by Dr. Michael J. Cooney, D.C. How to Explain Your Pain to a Doctor by Dr. Michael J. Cooney, D.C.

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Calendar of posts

September 2021
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Hello and thank you for visiting our website, FibroFlutters is a 'Patient-Led' Non-profit Community based Patient organisation that is ran by 'unpaid' Patient Volunteers. * We raise awareness, share health communications to educate people about varying chronic illnesses. * Provide resources for patients & professionals alike. * We strive to be patient / health /research /pharma advocates to help create better outcomes for patients whilst promoting patient/person centred multi-disciplinary approaches to medical healthcare. * If you like the work that we do? Please help to support us. * All donations will be graciously received. Carole ~ CEO / Co-Founder on behalf of all patient volunteers at FibroFlutters

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International #Ataxia Awareness Day #IAAD 25th September

International #Ataxia Awareness Day #IAAD 25th September

International #Ataxia Awareness Day #IAAD 25th September

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BPB ALERT : FIBROMYALGIA PATIENTS REPORT LESS PAIN, IMPROVED SLEEP FOLLOWING MEDICAL CANNABIS TREATMENT… September 25, 2021
Written on NORML “Patients diagnosed with fibromyalgia and other inflammatory rheumatic diseases report experiencing reduced levels of pain and improved sleep quality following their use of medical cannabis products, according to data published in the journal Pain Research and Management.“ Israeli investigators surveyed 319 patients about their use of prescription medical cannabis products. Among those with fibromyalgia (82 percent of […]
Back Pain Blog UK
Saturday Stories: Our Biggest Failing, Anti-Vaxxers' Ongoing Radicalization, And Breakthrough Infectiousness September 25, 2021
James Heathers, with a rare must read recommendation, in Medium, on how our biggest failing of the pandemic has been keeping it invisible. Ben Collins, in NBC News, on the rapid continuing radicalization of the anti-vaxxer movement Craig Spencer, in The Atlantic, explains why vaccinated people are far less likely to spread the coronavirus [And […]
Weighty Matters
Chocolate Orange Traybake Cake! September 25, 2021
An easy and delicious chocolate orange traybake with a chocolate orange fudge cake, and chocolate orange buttercream frosting! So we all know just how obsessed I am with anything chocolate orange… I just can’t help myself. I just love the combination of milk or dark chocolate with an orange twist. My favourite of course is… […]
Jane's Patisserie
The 20 Most Popular Fall Drinks. September 25, 2021
The 20 Most Popular Fall Drinks. Sharing The 20 Most Popular Fall Drinks today to help you find the perfect drink for all the cozy fall nights ahead. This list has everything from pitcher-style drinks…like my Pumpkin Patch Punch, to spooky Halloween cocktails, to warming apple cider moscow mules, and just about everything in between. […]
Half Baked Harvest by Tieghan.
Let It Be Sunday, 336! September 25, 2021
Hello friends! Happy Sunday from your favorite baker on the back of a motorcycle. I’m in Northern California with Will at my family reunion. We have too much food and more water guns than people it’s all going really well my heart is full up. This week’s Sunday reads come from my dear friend Toby […]
Joy the Baker
The Weekend Dish: 9/25/2021 September 25, 2021
The Weekend Dish: 9/25/2021 Happy first Saturday of fall! The weather has significantly turned here and it’s just glorious! Yesterday was in the low 70’s but there was a distinct chill to the air, and the sun felt warm but noticeably different than the summer sun. I just adore this time of year. What are […]
Brown Eyed Baker by Michelle
Ode to Salt: Commentary on “Skin Sodium Accumulates in Psoriasis and Reflects Disease Severity” September 25, 2021
“Skin Sodium Accumulates in Psoriasis and Reflects Disease Severity” (Maifeld et al., 2021) showed that skin sodium ion (Na+) is increased in patients with a PASI > 5. Na+ concentration as well as its content were increased in these patients, supporting the proposed mechanism that increased Na+ concentrations enhance IL-17 expression from CD4+ cells. These data […]
Journal of Investigative Dermatology
Keratinocytes Counteract UVB-Induced Immunosuppression in Mice Via HIF-1a Signaling September 25, 2021
The transcription factor Hypoxia-Inducible Factor-1alpha (HIF-1a) regulates cellular metabolism under hypoxia but also immune responses and UVB-induced skin reactions. In keratinocytes, HIF-1a is an environmental sensor orchestrating the adaptation to environmental changes. Here, we investigated the role of HIF-1a in keratinocytes for skin reactions to acute and chronic UVB exposure in mice.The function of HIF-1a […]
Journal of Investigative Dermatology
TRPC3 Antagonizes Pruritus in A Mouse Contact Dermatitis Model September 25, 2021
Contact dermatitis (CD), including allergic and irritant CD, are common dermatological diseases and characterized by an erythematous rash and severe itch. In this study, we investigated the function of TRPC3, a canonical TRP channel highly expressed in type 1 non-peptidergic (NP1) nociceptive primary afferents and other cell types, in a mouse CD model. Though TrpC3 […]
Journal of Investigative Dermatology
Nailfold Microvascular Imaging by Dynamic Optical Coherence Tomography in Systemic Sclerosis: a Case-Controlled Pilot Study September 25, 2021
In systemic sclerosis (SSc) outcome measures of skin microvasculopathy are needed for both clinical trials and practice. Aim of this study was to determine whether dynamic-optical coherence tomography (D-OCT) is able to provide information on microvasculopathy compared to the current gold-standard, nailfold videocapillaroscopy (NVC), in SSc patients. This case-controlled study included: 1) forty SSc patients, […]
Journal of Investigative Dermatology

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Medical news stories / blog posts / research / pharma /science

Medical news stories, blogs and research
For a healthier heart read NHLBI Deliciously Healthy Eating Recipes
Autonomic Dysfunction Sheet (PoTS) for people with EDS – HT / (h)EDS | Ehlers Danlos Support UK
Irritable bowel syndrome (IBS) what is it? – video | Patient | Dr Sarah Jarvis
British Heart Foundation | Keep hearts beating and blood flowing | 13 June 2018
Muscle Cramps (Charley Horse) and Muscle Spasms |By John A. Daller, MD
Barriers to Patient-Centered Research Aired at Harvard Symposium | EMR & HIPAA | Andy Oram | 2 July 2018
Accepting ‘Chronic Illness’ (Updated Post) | Carole Scrafton
Article – Muscle Atrophy Symptoms Causes-and Treatments. | Healthguidance.org | Poignancy regarding #chronicillness & the wastage in my left leg.
(EDS UK) Ehlers Danlos UK – Fibromyalgia and CF (Chronic fatigue) by Dr Alan Hakim, MA FRCP
Article from HMSA – Anaesthetic and JHS / EDS – Posted By Alan Hakim, June 29, 2013
How does our brain process fear? Study investigates | Medical News Today
Why ADHD Can Look Like Depression | By Neil Petersen | psychcentral.com
Product Review | Nrem Sleep System | Sponsored Post
Article from Arthritis-health: How Chronic Pain May Sap Your Motivation
Scope Blog Post | “We all want to be a part of society don’t we?” Addressing loneliness in disabled people
How Neglecting Minorities in Medical Research Has Led to Deadly Outcomes | Brian Clark | CEO of (Human Data Project) HDP Health
Migraine Again | Why Painful Light Sensitivity Affects Many with Migraines
Study suggests small cell lung cancer should not be treated as single disease | Cancer Research
The Importance of Stomach Acid: Why Antacids Could Make You Sick | Hormones Matter
Brain Fog clouding your view of Multiple Sclerosis a cognitive impairment
Article: Diagnosing Depression in People with Chronic Pain – Arthritis Health
Pain: Hope Through Research: National Institute of Neurological Disorders and Stroke (NINDS)
A selection of posts from around the National Institutes of Health (NIH) Family
Article: Joint hypermobility: emerging disease or illness behaviour? – Journal of the Royal College of Physicians
Article -Huffington Post: Here’s How To Stop A Migraine Before It Destroys Your Whole Day
Central nervous system and Sympathetic Skin Response
Central Sensitivity Syndromes – Difficult to Classify
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International #Ataxia Awareness Day #IAAD 25th September

International #Ataxia Awareness Day #IAAD 25th September

International #Ataxia Awareness Day #IAAD 25th September

Picture Gallery

aving a tough time, can’t figure things out? Here’s a pretty place for self reflection

StillnessSpeaks.com

What will you find if you wander through the gate

… forget about the world and spend some time on yourself

A picture for using your imagination to take you on a peaceful journey

A scented garden to take your mind on a soothing aromatic journey.

A place of serenity by the pool

An eye into the unknown

Fantasy land

Feel the stillness and breathe long and deep

An image to guide your mind to anywhere whilst laying on the beach

Great place for sound imagery, hear the watery echoes

Listen to the sounds of the water rushing and feel its energy as is flows and you breathe

A thoughtful walk or a fantastical adventure with fairies and pixies, or knights on white horses!? wherever your mind takes you.

Who would you like to sit and chat with?

Guide yourself down the path to the…?

Go on take a seat, sit back let yourself relax and close your eyes, and absorb the nature around you What can you hear? What can you smell?

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PLEASE NOTE: That here at fibroflutters.com we are not medical professionals just fellow chronic illness warriors sharing information.

Any information read or shared on, to or from this blog site should not override any advice given to you by your own Doctors.

PLEASE NOTE THAT THIS SITE USES GOOGLE ANALYTICS TO COLLECT DEMOGRAPHIC INFORMATION FOR INFORMATION AND CONTENT DECISION MAKING PURPOSES ONLY AND NOT TO SELL TO 3RD PARTIES. PLEASE:

Do not take any work, articles or pages to be your own, including those from third partie, or any external partie links, and always accredit the appropriate authors accordingly.

Always speak to your GP first before stopping, changing or trying new medications or treatments, FibroFlutters will not claim resposibility for any loss or damage from third parties/third partie links, or any external parties..

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Remember that buying products such as 'cure-claiming' remedies on-line can be a risky business and again FibroFlutters will not claim responsibility for any loss or damage from third parties/third partie links or any external parties.

MANY THANKS in advance for your understanding - from the administrator - fibrofly73

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