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FibroFlutters Patient Advocacy Organisation | Chronic Illness & Rare Disease Network

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EDS, JHS, Hypermobility & HSD’s News and info

Autonomic Dysfunction Sheet (PoTS) for people with EDS – HT / (h)EDS | Ehlers Danlos Support UK Autonomic Dysfunction Sheet (PoTS) for people with EDS – HT / (h)EDS | Ehlers Danlos Support UK
HMSA – Hypermobility Syndromes Association A Charity and place for EDS JHS HMS/HSDs and other connective tissue disorders
How to Explain Your Pain to a Doctor by Dr. Michael J. Cooney, D.C. How to Explain Your Pain to a Doctor by Dr. Michael J. Cooney, D.C.
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The Ehlers=Danlos Society Charity and place for EDS and HMS info and support

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ME / CFS Awareness poster for May 12th 2017

Fibro Fighting Fluffie Hugs

Don’t ever let anyone dull your sparkle

$The Liebster Award: The Official Rules + My First Blog Award and a Few Personal Secrets Revealed - May 2, 2013 \ Lorraine > Last Updated on: December 7th, 2017$

Leibster Award Nomination

Don’t be afraid to reach out!

Fight or Flight?

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December 2023
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Hello and thank you for visiting our website, FibroFlutters is a 'Patient-Led' Non-profit Community based Patient organisation that is ran by 'unpaid' Patient Volunteers. * We raise awareness, share health communications to educate people about varying chronic illnesses. * Provide resources for patients & professionals alike. * We strive to be patient / health /research /pharma advocates to help create better outcomes for patients whilst promoting patient/person centred multi-disciplinary approaches to medical healthcare. * If you like the work that we do? Please help to support us. * All donations will be graciously received. Carole ~ CEO / Co-Founder on behalf of all patient volunteers at FibroFlutters

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So... I've woken up to find that the white stuff has been falling again!!

Snow, ❄️🌨❄️

Ooh!

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December 9th Newsletter December 10, 2023
Just acting goofy without drinking! My tiara was slipping (story of my life), so couldn’t resist a silly selfie! Hi!!! Needless to say, it’s been a SUPER busy week behind the scenes here at the 365 homestead. I finished up baking, photographing and editing th..
365 Days of Baking and More
Save on Charting Change Hardcover until December 31st December 10, 2023
Wow! Exciting news! From now until December 31, 2023 you can get the hardcover version of my latest best-selling book Charting Change for only $19.99 (60% off), including free shipping worldwide*! Sorry, unfortunately this sale doesn’t have a discount on the e..
Innovation Excellence
Integrative Keratinocyte Responses to TWEAK with IL-13 and IL-22 Reveal Pathogenic Transcriptomes Associated with Atopic Dermatitis December 10, 2023
Atopic dermatitis (AD) is characterized by dysregulated activity of keratinocytes, and IL-13 and IL-22 are considered drivers of disease in part through stimulating these cells (Facheris et al., 2023, Kim et al., 2019, Humeau et al., 2022). Whether these cytok..
Journal of Investigative Dermatology
Apple crumble mince pies December 10, 2023
A different take on mince pies but very delicous and suitably moreish! These deep mince pies have a buttery shortbread crust, with the festively enticing flavours of orange, mixed spice and almonds coming through. They are filled with a sweet mincemeat, almond..
Baking Fanatic
Perfectly-Spiced Gingerbread Sheet Cake with Velvety Cream Cheese Frosting December 9, 2023
WHY YOU’LL LOVE THIS RECIPE: Bake irresistible Perfectly-Spiced Gingerbread Sheet Cake with Velvety Cream Cheese Frosting and your holiday dinner or party dessert is complete! Everyone loves gingerbread, and this version flawlessly elevates the classic with a..
Gemma&#39;s Bigger Bolder Baking
Sweet and Salty Nut Bars December 9, 2023
Sweet and Salty Nut Bars will be the latest and greatest addition to your holiday sweets menu. Made with a buttery shortbread crust, soft chocolate-peanut butter center, and topped with salty mixed nuts – they…
Sprinkle Bakes by Heather Baird
20231013 Bagels with CLAS December 9, 2023
20231013 Bagels with CLAS Submitted by Yippee on December 9, 2023 - 7:26am. Please see here and here to learn more about concentrated lactic acid sourdough (CLAS). These days, I mostly bake bread using the air fryer and occasionally depend on the bread..
The Fresh Loaf
Friday Faves 12.8 December 9, 2023
Hi friends! Happy Saturday! What are you up to this weekend? We’re spending time with some of our favorite friends: dinner and Botanical gardens, stocking stuffer event, Waitress the Musical, and then pasta making and dinner. I’d love to hear what you’re up t..
The Fitnessista
Creme Brûlée Trifles December 9, 2023
These individual Creme Brûlée Trifles are a surprisingly easy dessert, layered with shortbread cookie crumbs, raspberry jam, and a homemade custard. Such a simple but impressive dessert for the holidays! A DELICIOUS NO BAKE DESSERT Don’t let the name fool you..
The Country Cook
New cause of diabetes discovered, offering potential target for new classes of drugs to treat the disease December 9, 2023
Researchers have identified an enzyme that blocks insulin produced in the body -- a discovery that could provide a new target to treat diabetes. The study focuses on nitric oxide, a compound that dilates blood vessels, improves memory, fights infection and sti..
ScienceDaily » Chronic Illness News

NIHR – Clinical research is everyone’s future

Chronic Illness Bloggers

Do you blog about Chronic Illness why not click the pic to come and join us

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So... I've woken up to find that the white stuff has been falling again!!

Snow, ❄️🌨❄️

Ooh!

Picture Gallery

Great place for sound imagery, hear the watery echoes

Guide yourself down the path to the…?

aving a tough time, can’t figure things out? Here’s a pretty place for self reflection

Who would you like to sit and chat with?

Fantasy land

Feel the stillness and breathe long and deep

An eye into the unknown

StillnessSpeaks.com

What will you find if you wander through the gate

… forget about the world and spend some time on yourself

A picture for using your imagination to take you on a peaceful journey

An image to guide your mind to anywhere whilst laying on the beach

A thoughtful walk or a fantastical adventure with fairies and pixies, or knights on white horses!? wherever your mind takes you.

Listen to the sounds of the water rushing and feel its energy as is flows and you breathe

Go on take a seat, sit back let yourself relax and close your eyes, and absorb the nature around you What can you hear? What can you smell?

A scented garden to take your mind on a soothing aromatic journey.

A place of serenity by the pool

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PLEASE NOTE: That here at fibroflutters.com we are not medical professionals just fellow chronic illness warriors sharing information.

Any information read or shared on, to or from this blog site should not override any advice given to you by your own Doctors.

PLEASE NOTE THAT THIS SITE USES GOOGLE ANALYTICS TO COLLECT DEMOGRAPHIC INFORMATION FOR INFORMATION AND CONTENT DECISION MAKING PURPOSES ONLY AND NOT TO SELL TO 3RD PARTIES. PLEASE:

Do not take any work, articles or pages to be your own, including those from third partie, or any external partie links, and always accredit the appropriate authors accordingly.

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Remember that buying products such as 'cure-claiming' remedies on-line can be a risky business and again FibroFlutters will not claim responsibility for any loss or damage from third parties/third partie links or any external parties.

MANY THANKS in advance for your understanding - from the administrator - fibrofly73

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