#chronicillnessVOICE | Morning Edition | 6 June 2018 ~ a health newsletter for everyone! #notjustpatients

Excerpt:

‘Now is the time for chronic pain patients to start contacting law firms and point out to them – EDUCATE THEM… all the patient abuse, neglect and discrimination that is going on at the hands of these corporate entities that are called “healthcare companies” – and individually these companies are harming hundreds, thousands or tens of thousands of chronic pain patients.’
Do we need to educate the professionals?  | Steve Ariens | via National Pain Report | 5 June 2018… Read More #chronicillnessVOICE | Morning Edition | 6 June 2018 ~ a health newsletter for everyone! #notjustpatients

#chronicillnessVOICE | Morning Edition | 5 June 2018 ~ a health newsletter for everyone! #NotJustPatients

Public Meeting for Patient-Focused Drug Development on Chronic Pain |  Ed Coghlan  |  National Pain Report  | 4 June 2018
Opening paragraph:

Over 1,000 people—many of whom are National Pain Report readers—have filled out a survey designed to inform an FDA Patient Meeting on July 9, 2018. The official title of the event is a Public Meeting for Patient-Focused Drug Development on Chronic Pain.… Read More #chronicillnessVOICE | Morning Edition | 5 June 2018 ~ a health newsletter for everyone! #NotJustPatients

#chronicillnessVOICE | Morning Edition | 3 June 2018 ~ a health newsletter for everyone! #NotJustPatients

Latest!  News Medical | |  The latest medical device news from News Medical |  1 June 2018 Edition… Read More #chronicillnessVOICE | Morning Edition | 3 June 2018 ~ a health newsletter for everyone! #NotJustPatients

#chronicillnessVOICE | Morning Edition | 1 June 2018 ~ a health newsletter for everyone! #NotJustPatients

My Story: Accepting Change is Necessary for Coping with Chronic Pain| Tom Seaman  | National Pain Report  | 31 May 2018… Read More #chronicillnessVOICE | Morning Edition | 1 June 2018 ~ a health newsletter for everyone! #NotJustPatients

#chronicillnessVOICE | Morning Edition | 31 May 2018 ~ a health newsletter for everyone! #NotJustPatients

‘What good is advanced surgery if we can’t even offer proper homecare?’  |  Anna Bawden and Nicola Slawson | The Guardian  |  30 May 2018… Read More #chronicillnessVOICE | Morning Edition | 31 May 2018 ~ a health newsletter for everyone! #NotJustPatients

#chronicillnessVOICE | Morning Edition | 30 May 2018 ~ a health newsletter for everyone! #NotJustPatients

‘When suffering from a chronic illness, the feeling of guilt is one you can often find yourself getting a little too used to. Although, deep down you know things are not your fault or things are not always in your control, you cannot help that guilty feeling in the pit of your stomach when you are not always one hundred percent yourself. We all have bad days and that is completely okay, but it is accepting that it is okay that is the hurdle and celebrating the positive things.’ ~ STUCK IN A GUILTY BUBBLE | VICKY (GUEST WRITER) |  Migraine Mantras  |  25 May 2018… Read More #chronicillnessVOICE | Morning Edition | 30 May 2018 ~ a health newsletter for everyone! #NotJustPatients

#chronicillnessVOICE | Morning Edition | 30 May 2018 ~ a health newsletter for everyone! #NotJustPatients

‘When suffering from a chronic illness, the feeling of guilt is one you can often find yourself getting a little too used to. Although, deep down you know things are not your fault or things are not always in your control, you cannot help that guilty feeling in the pit of your stomach when you are not always one hundred percent yourself. We all have bad days and that is completely okay, but it is accepting that it is okay that is the hurdle and celebrating the positive things.’ ~ STUCK IN A GUILTY BUBBLE | VICKY (GUEST WRITER) |  Migraine Mantras  |  25 May 2018… Read More #chronicillnessVOICE | Morning Edition | 30 May 2018 ~ a health newsletter for everyone! #NotJustPatients

#chronicillnessVOICE | Morning Edition | 28 May 2018 ~ a health newsletter for everyone! #NotJustPatients

#chronicillness #invisibleillness #MCSMN #Fibromyalgia #rare #MSK #EDS #MentalHealth #chatter #projects #advocacy #food #friendly #health #patients #care #family #WHO #MEAction #FMAUK
All things #medicalhealthcare #digitalhealth #pharma #research #science #tech #AI… Read More #chronicillnessVOICE | Morning Edition | 28 May 2018 ~ a health newsletter for everyone! #NotJustPatients

The Power Of A Support Group | John Kaniecki  | PLUS… ‘Thoughts regarding support groups’ by Carole Sian ~ FibroFlutters CEO

“Talking is very beneficial as it helps members to also learn about their conditions and also where to find specified help and resources.  Sometimes just knowing you’re not the only one can mean the World when times are so difficult.” #PatientGroupLeader       #PatientVoice #MentalHealth
Thoughts by Carole Sian ~ FibroFlutters regarding support groups >>>… Read More The Power Of A Support Group | John Kaniecki  | PLUS… ‘Thoughts regarding support groups’ by Carole Sian ~ FibroFlutters CEO

#chronicillnessVOICE | Morning Edition | 25 May 2018 ~ a health newsletter for everyone! #NotJustPatients

A CURRENT Citizen Scientist study opportunity:  Testing a new technology to reduce chronic pain
I am currently going through registration for this study after contacting them yesterday.  I was asked if I could help to encourage people to come and join the study…. ~ … Read More #chronicillnessVOICE | Morning Edition | 25 May 2018 ~ a health newsletter for everyone! #NotJustPatients