Hypermobility disorders & EDS reclassification as of 15th March 2017

Hypermobility disorders & EDS reclassification as of 15th March 2017   If you happen to be one of us that has one these types of disorders the following link will explain not only what the changes are, but also why the changes were required. 4 years ago when I was diagnosed they changed the classification… Read More Hypermobility disorders & EDS reclassification as of 15th March 2017

How to Explain Your Pain to a Doctor | EDS and Chronic Pain News & Info

Here are some tips from a doctor about how to describe your pain in terms a doctor can understand best. … Read More How to Explain Your Pain to a Doctor | EDS and Chronic Pain News & Info

Muscle Cramps (Charley Horse) and Muscle Spasms |By John A. Daller, MD

I’m sharing this link because I found this article regarding muscle cramps, and spasms, to be quite interesting.  I have been experiencing muscle spasms for a long time now but I have never really read up about what causes them.  I don’t really have a problem with muscle cramps to the same extent as the… Read More Muscle Cramps (Charley Horse) and Muscle Spasms |By John A. Daller, MD

Hydrotherapy – Heaven or hell? Part Two – session one / week one

Hydrotherapy – heaven or hell?  is a discussion that I have often read in other blogger’s pages, online support groups and also physically discussed with other people just like me who live life with chronic pain, hypermobility and chronic illness, within my own support group FibroFlutters.  For me it is something that I am still… Read More Hydrotherapy – Heaven or hell? Part Two – session one / week one

Do you have Fibromyalgia? Which of these sensitivities causes you the most discomfort?

UPDATED POLL – Do you have Fibromyalgia? Which of these sensitivities causes you the most discomfort? A topic that many of us familiarise with in varying ways such as temperature, touch, pain, smell, taste, or hearing just to name a few.  No two Fibromites are the same though!, as we are all affected differently in differing… Read More Do you have Fibromyalgia? Which of these sensitivities causes you the most discomfort?

Hydrotherapy – heaven or hell? Part one

Hydrotherapy – heaven or hell?  is a discussion that I have often read in other blogger’s pages, online support groups and also physically discussed with other people just like me who live life with chronic pain, hypermobility and chronic illness, within my own support group FibroFlutters.  For me it is something that I am still… Read More Hydrotherapy – heaven or hell? Part one

Fibro Flutters October Meet up

Hi everyone I hope you are all as well as you can be as we move into hibernation and the darker months of Autumn and Winter.   Details for next meeting for FibroFlutters A chance to get together and share our worries, woes as well as all things positive. Last ‘scheduled’ meeting until February as… Read More Fibro Flutters October Meet up

Mindfulness & ilk | Meditation / Study / Relaxation | 3 hours of relaxing music – Peder B. Helland

Relaxation can be beneficial to people with #chronicpain #chronicillness I hope you all like this instrumental composition as an aid for your R&R, meditation or even for whilst you’re studying.   http://www.youtube.com ~ Peder B. Helland – composer

SPOONIE TALK | A Letter to My Ehlers-Danlos Syndrome | The Mighty

Chronic Illness writer, and contributer to The Mighty, Lauren King writes a letter to her chronic illness, EDS expressing her gladness at finally being introduced…. Opening Lines ‘To my chronic illness, from the person who is glad to finally know your name. Dear Ehlers-Danlos Syndrome, Oh, hi there. I didn’t notice you for 25 plus years.… Read More SPOONIE TALK | A Letter to My Ehlers-Danlos Syndrome | The Mighty

Home News | FibroFlutters Information Poster

Find out more about FMAUK  via http://www.fmauk.org  and here on this CAMPAIGN post by FibroFlutters fibroflutters.com/2016/05/12 | fmauk fighting for the freedom from fibromyalgia Sunderland Mind Centre can be found via http://www.sunderlandmind.co.uk Alternatively you can give them a call for confidential support and advice via these numbers:   0191 5657218, or, 07961064117 Or, drop by the… Read More Home News | FibroFlutters Information Poster