About Us – Research

At a similar time that I got fascinated by what was occurring in the world of pharma I was also engaging within the realms of research advocacy and getting more involved wherever I could.… Read More About Us – Research

July 27, 2018July 30, 2018 fibrofly73

About Us – #PatientVoice #PatientEmpowerment #PatientAdvocacy #PatientCentricity #PatientLeaders

Due to a number of bad experiences with social media, in the earlier days, I developed a fear of being photographed or filmed. I am also using these new opportunities in the ‘REAL WORLD’ to help myself, hopefully, overcome these fears to give me more opportunities for advocacy. … Read More About Us – #PatientVoice #PatientEmpowerment #PatientAdvocacy #PatientCentricity #PatientLeaders

July 27, 2018July 30, 2018 fibrofly73

About Us – Raising Awareness

Our wish is to share the experiences of others & know theyare not alone, advise & share useful information & also to help raise awareness of our chronic/invisible illness… Read More About Us – Raising Awareness

July 27, 2018July 30, 2018 fibrofly73

‘Strut your stripes’ in Sunderland TODAY 1 – 3 pm at our first ever EDSUK meet up

If you haven’t signed up as a member please do or I can’t let you into the meeting.

Thankyou

You can sign up for the free membership via this link >>>

Members from both Sunderland and Newcastle areas are welcome… Read More ‘Strut your stripes’ in Sunderland TODAY 1 – 3 pm at our first ever EDSUK meet up

May 3, 2018May 4, 2018 fibrofly73

First meeting of 2018 |Tuesday 20 February | 1 – 4 pm

Friendly support group for anyone with chronic illness and rare illnesses too. It really is an informal event where we just meet up over late lunch and talk about all matters. … Read More First meeting of 2018 |Tuesday 20 February | 1 – 4 pm

February 5, 2018February 5, 2018 fibrofly73

Fibromyalgia / CFS / Anxiety & Depression / Invisible Illness: The viscious circle of ‘Catch 22’ & Setbacks versus Flares: Which is which?

Do you have Fibromyalgia, Chronic Pain, Chronic Fatigue, Fog, Depression and/or Anxiety or any other Illness where you flare from time to time and one illness rubs onto another one making you feel worse? Do you know the difference between a flare and a setback? Many people don’t and often treat themselves for a flare… Read More Fibromyalgia / CFS / Anxiety & Depression / Invisible Illness: The viscious circle of ‘Catch 22’ & Setbacks versus Flares: Which is which?

January 2, 2018December 31, 2017 fibrofly73

HUGE Thank you | MILESTONE |FibroFlutters-Online now has a combined social media following of approximately 2000

FibroFlutters is celebrating reaching a milestone and we Thank you, our followers all across social media for helping to make it happen. It’s that time of year when I start to reflect back across the years activity on social media, yes! I’m talking about which topics are liked or not, how many people are using… Read More HUGE Thank you | MILESTONE |FibroFlutters-Online now has a combined social media following of approximately 2000

December 5, 2017July 22, 2019 fibrofly73

Do you know how to make the most of your Doctors appointment? | fibrofly73

Do you know how to make the most of your Doctors appointment? This happens to be something which as Chronic Illness Warriors we talk about a lot because we have to prioritise which of our ailments need dealing with the most each time we visit our GP’s. We have so many things requiring attention at… Read More Do you know how to make the most of your Doctors appointment? | fibrofly73

June 17, 2017July 21, 2018 fibrofly73

Joint Hypermobility and Fibromyalgia | Is there a connection? | Carole Scrafton

For a number of years I have explained many times that I believe my Fibromyalgia is a result of my Joint Hypermobility and in this post I talk about it. My #chronicblog post will also take you to an article by Carol Eustace, an Arthritis and Joint Conditions Expert, who writes for verywell.com and she… Read More Joint Hypermobility and Fibromyalgia | Is there a connection? | Carole Scrafton