Tag: Patient solution

Who deserves recognition? | Nominations are open for the Reuters Events: Pharma Awards Europe 2020 VIRTUAL! | Formally known as eyeforpharma

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June 24, 2020March 31, 2021 fibrofly73

Nominations are open for the EU @eyeforpharma Awards 2020! Who deserves recognition?

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May 19, 2020March 31, 2021 fibrofly73

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Hello and thank you for visiting our website, FibroFlutters is a 'Patient-Led' Non-profit Community based Patient organisation that is ran by 'unpaid' Patient Volunteers. * We raise awareness, share health communications to educate people about varying chronic illnesses. * Provide resources for patients & professionals alike. * We strive to be patient / health /research /pharma advocates to help create better outcomes for patients whilst promoting patient/person centred multi-disciplinary approaches to medical healthcare. * If you like the work that we do? Please help to support us. * All donations will be graciously received. Carole ~ CEO / Co-Founder on behalf of all patient volunteers at FibroFlutters

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The #chronicillnessVOICE DailyRead our daily news – for #patients #health #medical #pharma #research related newsletter for everyone #notjustpatients’

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Please endorse us / Carole for this award, many thanks and wishing you wellness

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PLEASE CLICK THE LINK BELOW TO ENDORSE FOR THIS AWARD

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FibroFlutters in FEEDSPOT Top Ten for chronic illness blogs

FibroFlutters makes into top 10 Fibro blogs by FEEDSPOT

EDS, JHS, Hypermobility & HSD’s News and info

Autonomic Dysfunction Sheet (PoTS) for people with EDS – HT / (h)EDS | Ehlers Danlos Support UK Autonomic Dysfunction Sheet (PoTS) for people with EDS – HT / (h)EDS | Ehlers Danlos Support UK
FibroFlutters – Face Book CLOSED COMMUNITYPage FibroFlutters Support Group Face Book Page
Disability.gov Disability.gov is an “information and referral” website, which means almost every time you select a resource, you will go to another website.
Oh TWIST Blog about EDS and HSD’s
Link to @FibroFlutters TWITTER

Pharma

eyeforpharma patient policy eyeforpharma: Patient Policy By Paul Simms, Chairman, eyeforpharma. Updated August 2017
Pharmaphorum Pharma news and events – Home page
eyeforpharma ~ Home page

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ME / CFS Awareness poster for May 12th 2017

Fibro Fighting Fluffie Hugs

Don’t ever let anyone dull your sparkle

$The Liebster Award: The Official Rules + My First Blog Award and a Few Personal Secrets Revealed - May 2, 2013 \ Lorraine > Last Updated on: December 7th, 2017$

Leibster Award Nomination

Don’t be afraid to reach out!

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Fight or Flight?

Calendar of posts

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#RareDiseaseDay2021 is fast approaching and we have a new element / addition to #FibroFlutters to launch...

#PEinEarlyStages is part of a series of Patient Focused Medicines Development - PFMD ) How-To Guides co-created in a multi-stakeholder environment built with #PatientEngagement Quality Guidance.

#RegisterNow & join me at the @RE_Pharma #Pharma #Patient #Europe 2020 #Digital Conference & Expo

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Dates Almond Oats Cookies (vegan) April 16, 2021
Happy Cookie Friday to all of you out there! I hope you are celebrating this special day with each week… if not it would be a bit weird if I say “Happy Cookie Friday to all of you” ;P Anyway. Today I got some really nice and easy and vegan and sugar-free and gluten-free and […]
Bake to the roots
Can We Make Mentoring Extraordinary? April 16, 2021
In this article we show ways we can develop high-quality mentoring relationships and the positive impact they can have on diversity and inclusion initiatives.
Psychology Today | Neuroscience
How to Embrace Your Physical “Flaws” and Feel Comfortable in Your Skin April 16, 2021
“When you’re comfortable in your skin, you look beautiful, regardless of any flaws.” ~Emily Deschanel I started doubting the way I looked at the age of eight following comments from other children, about my twin sister being cuter/prettier than me. During adolescence I suffered from bullying because of my appearance and thought I was ugly. Like […]
Tiny Buddha
Free Online Festival: A Different Kind of Trauma Conference April 16, 2021
Hi friends! Last year I invited you all to join the Embodied Trauma Conference, a powerful, healing event hosted by Tiny Buddha contributor Karine Bell. This free, five-day online summit featured a series of talks from twenty-two thought leaders, all focusing on different aspects of healing from trauma—including developmental, sexual, racial, and intergenerational. This year […]
Tiny Buddha
An Open Letter to Caregivers April 15, 2021
An Open Letter to Caregivers Off and on for the last 8 years I’ve been the one needing care. I’ve struggled as a patient, but I never knew how much my caregivers struggled as well. I only saw my pain and my struggles. Recently, that has changed. I’m learning what it’s like to be on the other side […]
Counting My Spoons
How to Tighten Loose Skin After Weight Loss April 15, 2021
After many years, I was finally able to overcome past trauma, reverse my autoimmune disease, and shed some pounds (more than 50 of them actually!). As many of us moms know though, weight loss can come an unfortunate downside… stretched out, loose, or sagging skin. For the most part I’ve learned to become comfortable with […]
Blog – Wellness Mama
Sri Lankan Fried Fish Recipe April 15, 2021
This one is incredibly simple. It’s all about how fresh the fish is. I serve my mum’s Sri Lankan fried fish recipe with my spinach daal and steamed rice. Simple, delish and incredibly nutritious. PrintSri Lankan Fried Fish Recipe Ingredients1 fresh mackerel, cleaned 1 tsp ground turmeric 1 tsp ground red chilli powder 1 […]
Sugar Thumb - A Baking And Food Blog
PROGRESSIVE RELAXATION FOR CHRONIC PAIN AND FIBROMYALGIA… April 15, 2021
Progressive relaxation is the gradual and conscious letting go of built-up tension in the body’s muscles. If you are unwell or recovering from an illness or surgery you can practice this form of relaxation in bed or in an easy chair. HealthLine write that this is a way to relieve muscle tension, also known as […]
Back Pain Blog UK…
Three Tricks From Neuroscience That Will Improve Your Life April 15, 2021
Recent research details ways to use our brains to improve life, whether it’s thinking happy thoughts or getting rid of negative ones.
Psychology Today | Neuroscience
How to Cope with Chronic Pain April 15, 2021
How to Cope with Chronic Pain Living with chronic pain is not easy. There’s no escaping it as chronic pain seeps into every aspect of your life, sucking the enjoyment from your days and the sleep from your nights. Pain takes all of your focus, making it difficult to work, or do other tasks. Unfortunately, […]
Counting My Spoons

Review eligibility of Paramedic Science students for the NHS Learning Support Fund

NIHR – Clinical research is everyone’s future

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Medical news stories / blog posts / research / pharma /science

Medical news stories, blogs and research
Fibroflutters #SocialMedia #healthadvocacy and #allstakeholder approach to #healthcare, across the globe – Peeking at the statistics!
Welcome to the Samaritans Monthly Newsletter | Samaritans | June 2019
New data-led NHS safety strategy lets patients log concerns | Owen Hughes | Digital Health | 8 July 2019
New edition of Airing Pain | Pain Concern | 2 July 2019
For a healthier heart read NHLBI Deliciously Healthy Eating Recipes
Fibromyalgia – Musculoskeletal and Connective Tissue Disorders – Merck Manual Professional Edition
A – Z of Clinical Research – Making Research Better | NIHR
Autonomic Dysfunction Sheet (PoTS) for people with EDS – HT / (h)EDS | Ehlers Danlos Support UK
Patient | Causes and treatments of Irritable Bowel Syndrome (IBS) – video | Dr Sarah Jarvis
British Heart Foundation | Keep hearts beating and blood flowing | 13 June 2018
Muscle Cramps (Charley Horse) and Muscle Spasms |By John A. Daller, MD
Barriers to Patient-Centered Research Aired at Harvard Symposium | EMR & HIPAA | Andy Oram | 2 July 2018
Accepting ‘Chronic Illness’ (Updated Post) | Carole Scrafton
Article – Muscle Atrophy Symptoms Causes-and Treatments. | Healthguidance.org | Poignancy regarding #chronicillness & the wastage in my left leg.
Joint Hypermobility and Fibromyalgia | Is there a connection? | Carole Scrafton
(EDS UK) Ehlers Danlos UK – Fibromyalgia and CF (Chronic fatigue) by Dr Alan Hakim, MA FRCP
Article from HMSA – Anaesthetic and JHS / EDS – Posted By Alan Hakim, June 29, 2013
How does our brain process fear? Study investigates | Medical News Today
Product Review | Nrem Sleep System | Sponsored Post
#NeuroendocrineCancer #NETS RonnyAllan.NET – Community Newsletter Covering August 2018 #PatientAdvocacy
#PAM2018 #Arthritis #Toolkit #TeamApproach #HealthCare The Arthritis Foundation | Managing Health Care With Arthritis | 10 September 2018
Scope Blog Post | “We all want to be a part of society don’t we?” Addressing loneliness in disabled people
Article from Arthritis-health: How Chronic Pain May Sap Your Motivation
How Neglecting Minorities in Medical Research Has Led to Deadly Outcomes | Brian Clark | CEO of (Human Data Project) HDP Health
Why ADHD Can Look Like Depression | By Neil Petersen | psychcentral.com
Migraine Again | Why Painful Light Sensitivity Affects Many with Migraines
Study suggests small cell lung cancer should not be treated as single disease | Cancer Research
A discovery that could alter the whole way that disorders such as Multiple Sclerosis, Autism & Alzeimers are looked at : ‘Landmark discovery’ of vessels connecting brain to immune system – Medical News Today
30 years after Prozac arrived, we still buy the lie that chemical imbalances cause depression | Olivia Goldhill | Quartz
Article from Fibromyalgia News Today (FNT) – Skin of Fibromyalgia Patients Could Provide Disease Clues
5 Ways to Decrease the Health Risks of Sitting | Jaime A. Heidel | June 27, 2016
The most underrated scientific breakthroughs of 2017 | Quartz
8 Tips for Patients Newly Diagnosed with Ehlers-Danlos | Shared via painnewsnetwork.org (2015) | Ellen Lennox Smith
The Importance of Stomach Acid: Why Antacids Could Make You Sick | Hormones Matter
Brain Fog clouding your view of Multiple Sclerosis a cognitive impairment
Article from MigraineAgain: Aching Body, Aching Head: Understanding Migraine and Fibromyalgia
Article: Diagnosing Depression in People with Chronic Pain – Arthritis Health
Pain: Hope Through Research: National Institute of Neurological Disorders and Stroke (NINDS)
Articles from Pro Health: 1- It’s Not All in Your Head – It’s in Your Hands! & 2: Fibromyalgia Research update
Fibromyalgia now considered as a lifelong central nervous system (CNS) disorder
#PAM2018 | What Happens Up Stream Comes Down Stream: The Cause and Effect of the Mental and Physical Connection | Treasures On The Sand | 24 September 2018
#PAM2018 #Arthritis #Toolkit #TeamApproach #HealthCare The Arthritis Foundation | Managing Health Care With Arthritis | 10 September 2018
#NeuroendocrineCancer #NETS RonnyAllan.NET – Community Newsletter Covering August 2018 #PatientAdvocacy
A few FREE Health apps & e-books
A selection of posts from around the National Institutes of Health (NIH) Family
Article -Huffington Post: Here’s How To Stop A Migraine Before It Destroys Your Whole Day
Article: Joint hypermobility: emerging disease or illness behaviour? – Journal of the Royal College of Physicians
Central nervous system and Sympathetic Skin Response
Central Sensitivity Syndromes – Difficult to Classify
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#RareDiseaseDay2021 is fast approaching and we have a new element / addition to #FibroFlutters to launch...

#PEinEarlyStages is part of a series of Patient Focused Medicines Development - PFMD ) How-To Guides co-created in a multi-stakeholder environment built with #PatientEngagement Quality Guidance.

#RegisterNow & join me at the @RE_Pharma #Pharma #Patient #Europe 2020 #Digital Conference & Expo

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aving a tough time, can’t figure things out? Here’s a pretty place for self reflection

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MAY 12TH Awareness Day

Don't miss the Fibromyalgia Summit 2016 – Julie Ryan | Counting My Spoons Don’t miss the Fibromyalgia Summit 2016 – Julie Ryan | Counting My Spoons
IF FIBRO IS INVISIBLE WHAT DOES THAT MAKE ME AWARENESSDAY 2015 Poster: IF FIBRO IS INVISIBLE WHAT DOES THAT MAKE ME International Awareness Day Fibromyalgia 2015
Happy Birthday to all of our supporters, let's celebrate MAY 12th Okay, so our blog is one years old

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Who deserves recognition? | Nominations are open for the Reuters Events: Pharma Awards Europe 2020 VIRTUAL! | Formally known as eyeforpharma

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Nominations are open for the EU @eyeforpharma Awards 2020! Who deserves recognition?

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