Tag: get involved

The Ehlers-Danlos Support UK  Campaign Newsletter ~ Are you ready for Jeans for Genes Day? 

Wear Jeans, Change Lives on September 21st 
Jeans for Genes Day is the annual fundraising campaign for Genetic Disorders UK, the national charity that supports individuals and families affected by a genetic disorder.… Read More The Ehlers-Danlos Support UK  Campaign Newsletter ~ Are you ready for Jeans for Genes Day? 

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HUGE Thank you | MILESTONE |FibroFlutters-Online now has a combined social media following of approximately 2000

FibroFlutters is celebrating reaching a milestone and we Thank you, our followers all across social media for helping to make it happen. It’s that time of year when I start to reflect back across the years activity on social media, yes! I’m talking about which topics are liked or not, how many people are using… Read More HUGE Thank you | MILESTONE |FibroFlutters-Online now has a combined social media following of approximately 2000

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