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NICE Newsletter | July 2018

Including this month’s PODCAST: Be the first to hear NICE talks ep. 8
Child abuse: communication is key… Read More NICE Newsletter | July 2018

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August 6, 2018August 25, 2018 fibrofly73

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Hello and thank you for visiting our website, FibroFlutters is a 'Patient-Led' Non-profit Community based Patient organisation that is ran by 'unpaid' Patient Volunteers. * We raise awareness, share health communications to educate people about varying chronic illnesses. * Provide resources for patients & professionals alike. * We strive to be patient / health /research /pharma advocates to help create better outcomes for patients whilst promoting patient/person centred multi-disciplinary approaches to medical healthcare. * If you like the work that we do? Please help to support us. * All donations will be graciously received. Carole ~ CEO / Co-Founder on behalf of all patient volunteers at FibroFlutters

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HMSA – Hypermobility Syndromes Association A Charity and place for EDS JHS HMS/HSDs and other connective tissue disorders
8 Tips for Patients Newly Diagnosed with Ehlers-Danlos Article By Ellen Lenox Smith, Columnist – PainNewsNetwork 2015
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The Mighty > Ehlers Danlos Syndrome ‘We face disability, disease and mental illness together.’ ~ The Mighty Motto – A plac where people read and write about their #chronicillnesses
Autonomic Dysfunction Sheet (PoTS) for people with EDS – HT / (h)EDS | Ehlers Danlos Support UK Autonomic Dysfunction Sheet (PoTS) for people with EDS – HT / (h)EDS | Ehlers Danlos Support UK

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How to Build a Consciousness Detector June 22, 2021
Building a machine that would detect consciousness sounds like science fiction, but the growing science of consciousness is beginning to show the way.
Psychology Today | Neuroscience
The Harsh Truth About Dopamine June 22, 2021
Your brain turns on the excitement of dopamine when you approach a reward, but it defines "rewards" with neural pathways built from your dopamine past. New paths to dopamine await.
Psychology Today | Neuroscience
Epigenetic Research, Healing, and the Global Village June 22, 2021
The more we understand about ourselves, the traumas we’ve inherited, and the hurt we may harbor, the greater our responsibility to harness this awareness for change.
Psychology Today | Neuroscience
Why Change People, Places, and Things in Early Recovery? June 22, 2021
Those who are overcoming addiction may have heard that it's important to avoid certain things in early recovery, but why? The answer lies in the brain.
Psychology Today | Neuroscience
Tinnitus: Another Symptom of COVID-19? June 22, 2021
While COVID-19 might be causing a spike in tinnitus cases, new research offers hope for sufferers
Psychology Today | Neuroscience
Boost for mouse genetic analysis June 22, 2021
To understand what role an individual gene plays, biologists have, for 100 years, been using a trick of nature: While in principle, the genome in all cells of an organism is the same, mutations arise in individual cells. These mutations differentiate a cell from its neighbors, forming a 'genetic mosaic.' Now, researchers have advanced genetic […]
ScienceDaily » Chronic Illness News
Study shows brain differences in interpreting physical signals in mental health disorders June 22, 2021
Researchers have shown why people with mental health disorders, including anorexia and panic disorders, experience physical signals differently.
ScienceDaily » Chronic Illness News
RHR: The Harmful Effects of Glyphosate—and How to Reduce Them June 22, 2021
In this episode of RHR, I discuss why glyphosate is one of the most dangerous toxins that we’re exposed to and how to reduce exposure to mitigate some of the dangerous health impacts. The post RHR: The Harmful Effects of Glyphosate—and How to Reduce Them appeared first on Chris Kresser.
Chris Kresser
Roasted Cauliflower Steak June 22, 2021
Tired of regular roasted cauliflower? Try cauliflower “steaks” instead! Cauliflower steak makes a strong presentation at the dinner table. Think of it more as a side dish or meal component than a protein-rich steak—after all, we’re talking about roasted slabs of cauliflower. You can serve these cauliflower steaks as a simple side dish topped with […]
Cookie and Kate - Whole Foods and Vegetarian Recipe Blog
The client intake form: What it is and how to use it. June 22, 2021
Most successful nutrition, fitness, and health coaches will tell you… Client intake forms are crucial. That’s because, as the saying goes, “If you aren’t assessing, you’re guessing.” And guessing about what your client wants and needs can leave both of you feeling frustrated. For example, people who struggle with their weight are likely to overeat. […]
Precision Nutrition | Nutrition Coaching and Certification

Review eligibility of Paramedic Science students for the NHS Learning Support Fund

NIHR – Clinical research is everyone’s future

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Medical news stories / blog posts / research / pharma /science

Medical news stories, blogs and research
Fibroflutters #SocialMedia #healthadvocacy and #allstakeholder approach to #healthcare, across the globe – Peeking at the statistics!
Welcome to the Samaritans Monthly Newsletter | Samaritans | June 2019
New data-led NHS safety strategy lets patients log concerns | Owen Hughes | Digital Health | 8 July 2019
New edition of Airing Pain | Pain Concern | 2 July 2019
For a healthier heart read NHLBI Deliciously Healthy Eating Recipes
Fibromyalgia – Musculoskeletal and Connective Tissue Disorders – Merck Manual Professional Edition
A – Z of Clinical Research – Making Research Better | NIHR
Autonomic Dysfunction Sheet (PoTS) for people with EDS – HT / (h)EDS | Ehlers Danlos Support UK
Patient | Causes and treatments of Irritable Bowel Syndrome (IBS) – video | Dr Sarah Jarvis
British Heart Foundation | Keep hearts beating and blood flowing | 13 June 2018
Muscle Cramps (Charley Horse) and Muscle Spasms |By John A. Daller, MD
Barriers to Patient-Centered Research Aired at Harvard Symposium | EMR & HIPAA | Andy Oram | 2 July 2018
Accepting ‘Chronic Illness’ (Updated Post) | Carole Scrafton
Article – Muscle Atrophy Symptoms Causes-and Treatments. | Healthguidance.org | Poignancy regarding #chronicillness & the wastage in my left leg.
Joint Hypermobility and Fibromyalgia | Is there a connection? | Carole Scrafton
(EDS UK) Ehlers Danlos UK – Fibromyalgia and CF (Chronic fatigue) by Dr Alan Hakim, MA FRCP
Article from HMSA – Anaesthetic and JHS / EDS – Posted By Alan Hakim, June 29, 2013
How does our brain process fear? Study investigates | Medical News Today
Product Review | Nrem Sleep System | Sponsored Post
#NeuroendocrineCancer #NETS RonnyAllan.NET – Community Newsletter Covering August 2018 #PatientAdvocacy
#PAM2018 #Arthritis #Toolkit #TeamApproach #HealthCare The Arthritis Foundation | Managing Health Care With Arthritis | 10 September 2018
Scope Blog Post | “We all want to be a part of society don’t we?” Addressing loneliness in disabled people
Article from Arthritis-health: How Chronic Pain May Sap Your Motivation
How Neglecting Minorities in Medical Research Has Led to Deadly Outcomes | Brian Clark | CEO of (Human Data Project) HDP Health
Why ADHD Can Look Like Depression | By Neil Petersen | psychcentral.com
Migraine Again | Why Painful Light Sensitivity Affects Many with Migraines
Study suggests small cell lung cancer should not be treated as single disease | Cancer Research
A discovery that could alter the whole way that disorders such as Multiple Sclerosis, Autism & Alzeimers are looked at : ‘Landmark discovery’ of vessels connecting brain to immune system – Medical News Today
30 years after Prozac arrived, we still buy the lie that chemical imbalances cause depression | Olivia Goldhill | Quartz
Article from Fibromyalgia News Today (FNT) – Skin of Fibromyalgia Patients Could Provide Disease Clues
5 Ways to Decrease the Health Risks of Sitting | Jaime A. Heidel | June 27, 2016
The most underrated scientific breakthroughs of 2017 | Quartz
8 Tips for Patients Newly Diagnosed with Ehlers-Danlos | Shared via painnewsnetwork.org (2015) | Ellen Lennox Smith
The Importance of Stomach Acid: Why Antacids Could Make You Sick | Hormones Matter
Brain Fog clouding your view of Multiple Sclerosis a cognitive impairment
Article from MigraineAgain: Aching Body, Aching Head: Understanding Migraine and Fibromyalgia
Article: Diagnosing Depression in People with Chronic Pain – Arthritis Health
Pain: Hope Through Research: National Institute of Neurological Disorders and Stroke (NINDS)
Articles from Pro Health: 1- It’s Not All in Your Head – It’s in Your Hands! & 2: Fibromyalgia Research update
Fibromyalgia now considered as a lifelong central nervous system (CNS) disorder
#PAM2018 | What Happens Up Stream Comes Down Stream: The Cause and Effect of the Mental and Physical Connection | Treasures On The Sand | 24 September 2018
#PAM2018 #Arthritis #Toolkit #TeamApproach #HealthCare The Arthritis Foundation | Managing Health Care With Arthritis | 10 September 2018
#NeuroendocrineCancer #NETS RonnyAllan.NET – Community Newsletter Covering August 2018 #PatientAdvocacy
A few FREE Health apps & e-books
A selection of posts from around the National Institutes of Health (NIH) Family
Article -Huffington Post: Here’s How To Stop A Migraine Before It Destroys Your Whole Day
Article: Joint hypermobility: emerging disease or illness behaviour? – Journal of the Royal College of Physicians
Central nervous system and Sympathetic Skin Response
Central Sensitivity Syndromes – Difficult to Classify
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