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NICE Newsletter | July 2018

Including this month’s PODCAST: Be the first to hear NICE talks ep. 8
Child abuse: communication is key… Read More NICE Newsletter | July 2018

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August 6, 2018August 25, 2018 fibrofly73

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Hello and thank you for visiting our website, FibroFlutters is a 'Patient-Led' Non-profit Community based Patient organisation that is ran by 'unpaid' Patient Volunteers. * We raise awareness, share health communications to educate people about varying chronic illnesses. * Provide resources for patients & professionals alike. * We strive to be patient / health /research /pharma advocates to help create better outcomes for patients whilst promoting patient/person centred multi-disciplinary approaches to medical healthcare. * If you like the work that we do? Please help to support us. * All donations will be graciously received. Carole ~ CEO / Co-Founder on behalf of all patient volunteers at FibroFlutters

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EDS, JHS, Hypermobility & HSD’s News and info

Oh TWIST Blog about EDS and HSD’s
Autonomic Dysfunction Sheet (PoTS) for people with EDS – HT / (h)EDS | Ehlers Danlos Support UK Autonomic Dysfunction Sheet (PoTS) for people with EDS – HT / (h)EDS | Ehlers Danlos Support UK
8 Tips for Patients Newly Diagnosed with Ehlers-Danlos Article By Ellen Lenox Smith, Columnist – PainNewsNetwork 2015
EDS and Chronic Pain News & info Blog about EDS and Chronic Pain sharing appropriate news and info
HMSA – Hypermobility Syndromes Association A Charity and place for EDS JHS HMS/HSDs and other connective tissue disorders

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$The Liebster Award: The Official Rules + My First Blog Award and a Few Personal Secrets Revealed - May 2, 2013 \ Lorraine > Last Updated on: December 7th, 2017$

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No Bake Strawberry Cheesecake April 10, 2021
No Bake Strawberry Cheesecake. An easy dessert recipe made from simple ingredients including economical frozen strawberries, which means you can make it year round. The post No Bake Strawberry Cheesecake appeared first on Rock Recipes.
Rock Recipes by Barry C. Parsons
Low Fat Tomato Tandoori Chicken Curry April 10, 2021
Low Fat Tomato Tandoori Chicken Curry. This tasty low fat version of tandoori chicken was created as a lower calorie option to butter chicken but with plenty of the spicy flavour punch you love. The post Low Fat Tomato Tandoori Chicken Curry appeared first on Rock Recipes.
Rock Recipes by Barry C. Parsons
Lemon Sugar Sourdough Rolls with Yuzu Vanilla Cream Cheese Icing April 10, 2021
Lemon Sugar Sourdough Rolls with Yuzu Vanilla Cream Cheese Icing Submitted by Benito on April 10, 2021 - 9:47am. This recipe is an adaptation of Maurizio’s cardamon sweet roll recipe. The dough is enriched and uses a Yudane to gelatinize some of the starches to make for a more shreddable soft crumb. After the delicious […]
The Fresh Loaf
Frozen Coconut Macadamia DIY Energy Bars Recipe April 10, 2021
Some people feel like they shouldn’t snack, but there are lots of reasons you might reach for something to tide yourself over. Maybe you’re snowed in with work and your schedule was thrown off. You could be a little hungrier than normal from yesterday’s tough workout. You could need a snack because you’re just starting […]
Mark&#39;s Daily Apple
Blueberry and Lemon Curd Bread Pudding April 10, 2021
As an Irish woman, I’m certainly no stranger to bread pudding! Homemade bread pudding was commonplace on our table growing up and in a lot of other households in Ireland and England. It wasn’t until I became a professional chef that I realized I could venture from the traditional cinnamon and raisin puddings. Instead, I started […]
Gemma&#39;s Bigger Bolder Baking | Baking Recipes from Chef Gemma Stafford
EASY PAN FRIED PORK CHOPS April 10, 2021
This Easy Pan Fried Pork Chops recipe can be made in less than 30 minutes and makes the most delicious and tender pork chops ever! EASY PAN FRIED PORK CHOPS I'm very fortunate to live in a state that's official meat is ham. Who doesn't love a good pork product? We like to eat pork... […]
The Country Cook
Are Organ Meats Healthy? April 10, 2021
When it comes to discussing nutrition and food, organ meat certainly isn’t the most glamorous subject. For some, the very topic evokes a sense of panic and horror! Perhaps it brings to mind a memory of being served dense, glossy liver and onions. Maybe it reminds you of walking past a city butcher shop with […]
Blog – Wellness Mama
Saturday Stories: The End Of Year One, The End Of Hygiene Theatre, And The End Of The Whole Thing April 10, 2021
Stephen Maher, in Macleans, with the comprehensive story of Canada's first year with the pandemic. Emily Anthes, in The New York Times, on the end of overzealous cleaning. Gregg Gonsalves, in The Nation, on what comes after the end of this stage of the pandemic. Related Stories Saturday Stories: Anti-Science, The Pandemic's Wrongest Man, And […]
Weighty Matters
Crispy Tofu Lettuce Wraps with Peanut Sauce April 10, 2021
In the spirit of spring, we wanted to create some light and simple yet satisfying entrées, and the first idea to come to mind was tofu lettuce wraps! We’ve tried preparing tofu just about every which way, but have settled on this new-and-improved crispy method as our favorite. Think next-level crispy tofu with tons of […]
Minimalist Baker | Simple Food, Simply Delicious
Oreo NYC Cookies! April 10, 2021
Giant chunky NYC style cookies stuffed with white, dark chocolate chips, and Oreo chunks! Oreo NYC Cookies are heavenly! So let’s say hello to my eighth NYC Cookie recipe.. because I just can’t stop. It’s been nearly a year since I posted my NYC Chocolate Chip Cookie recipe onto my blog, and you guys just […]
Jane&#39;s Patisserie - Cake Baking Journey

Review eligibility of Paramedic Science students for the NHS Learning Support Fund

NIHR – Clinical research is everyone’s future

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Medical news stories / blog posts / research / pharma /science

Medical news stories, blogs and research
Fibroflutters #SocialMedia #healthadvocacy and #allstakeholder approach to #healthcare, across the globe – Peeking at the statistics!
Welcome to the Samaritans Monthly Newsletter | Samaritans | June 2019
New data-led NHS safety strategy lets patients log concerns | Owen Hughes | Digital Health | 8 July 2019
New edition of Airing Pain | Pain Concern | 2 July 2019
For a healthier heart read NHLBI Deliciously Healthy Eating Recipes
Fibromyalgia – Musculoskeletal and Connective Tissue Disorders – Merck Manual Professional Edition
A – Z of Clinical Research – Making Research Better | NIHR
Autonomic Dysfunction Sheet (PoTS) for people with EDS – HT / (h)EDS | Ehlers Danlos Support UK
Patient | Causes and treatments of Irritable Bowel Syndrome (IBS) – video | Dr Sarah Jarvis
British Heart Foundation | Keep hearts beating and blood flowing | 13 June 2018
Muscle Cramps (Charley Horse) and Muscle Spasms |By John A. Daller, MD
Barriers to Patient-Centered Research Aired at Harvard Symposium | EMR & HIPAA | Andy Oram | 2 July 2018
Accepting ‘Chronic Illness’ (Updated Post) | Carole Scrafton
Article – Muscle Atrophy Symptoms Causes-and Treatments. | Healthguidance.org | Poignancy regarding #chronicillness & the wastage in my left leg.
Joint Hypermobility and Fibromyalgia | Is there a connection? | Carole Scrafton
(EDS UK) Ehlers Danlos UK – Fibromyalgia and CF (Chronic fatigue) by Dr Alan Hakim, MA FRCP
Article from HMSA – Anaesthetic and JHS / EDS – Posted By Alan Hakim, June 29, 2013
How does our brain process fear? Study investigates | Medical News Today
Product Review | Nrem Sleep System | Sponsored Post
#NeuroendocrineCancer #NETS RonnyAllan.NET – Community Newsletter Covering August 2018 #PatientAdvocacy
#PAM2018 #Arthritis #Toolkit #TeamApproach #HealthCare The Arthritis Foundation | Managing Health Care With Arthritis | 10 September 2018
Scope Blog Post | “We all want to be a part of society don’t we?” Addressing loneliness in disabled people
Article from Arthritis-health: How Chronic Pain May Sap Your Motivation
How Neglecting Minorities in Medical Research Has Led to Deadly Outcomes | Brian Clark | CEO of (Human Data Project) HDP Health
Why ADHD Can Look Like Depression | By Neil Petersen | psychcentral.com
Migraine Again | Why Painful Light Sensitivity Affects Many with Migraines
Study suggests small cell lung cancer should not be treated as single disease | Cancer Research
A discovery that could alter the whole way that disorders such as Multiple Sclerosis, Autism & Alzeimers are looked at : ‘Landmark discovery’ of vessels connecting brain to immune system – Medical News Today
30 years after Prozac arrived, we still buy the lie that chemical imbalances cause depression | Olivia Goldhill | Quartz
Article from Fibromyalgia News Today (FNT) – Skin of Fibromyalgia Patients Could Provide Disease Clues
5 Ways to Decrease the Health Risks of Sitting | Jaime A. Heidel | June 27, 2016
The most underrated scientific breakthroughs of 2017 | Quartz
8 Tips for Patients Newly Diagnosed with Ehlers-Danlos | Shared via painnewsnetwork.org (2015) | Ellen Lennox Smith
The Importance of Stomach Acid: Why Antacids Could Make You Sick | Hormones Matter
Brain Fog clouding your view of Multiple Sclerosis a cognitive impairment
Article from MigraineAgain: Aching Body, Aching Head: Understanding Migraine and Fibromyalgia
Article: Diagnosing Depression in People with Chronic Pain – Arthritis Health
Pain: Hope Through Research: National Institute of Neurological Disorders and Stroke (NINDS)
Articles from Pro Health: 1- It’s Not All in Your Head – It’s in Your Hands! & 2: Fibromyalgia Research update
Fibromyalgia now considered as a lifelong central nervous system (CNS) disorder
#PAM2018 | What Happens Up Stream Comes Down Stream: The Cause and Effect of the Mental and Physical Connection | Treasures On The Sand | 24 September 2018
#PAM2018 #Arthritis #Toolkit #TeamApproach #HealthCare The Arthritis Foundation | Managing Health Care With Arthritis | 10 September 2018
#NeuroendocrineCancer #NETS RonnyAllan.NET – Community Newsletter Covering August 2018 #PatientAdvocacy
A few FREE Health apps & e-books
A selection of posts from around the National Institutes of Health (NIH) Family
Article -Huffington Post: Here’s How To Stop A Migraine Before It Destroys Your Whole Day
Article: Joint hypermobility: emerging disease or illness behaviour? – Journal of the Royal College of Physicians
Central nervous system and Sympathetic Skin Response
Central Sensitivity Syndromes – Difficult to Classify
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aving a tough time, can’t figure things out? Here’s a pretty place for self reflection

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… forget about the world and spend some time on yourself

Go on take a seat, sit back let yourself relax and close your eyes, and absorb the nature around you What can you hear? What can you smell?

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Spina Bifida Occulta spinach spinal surgery Sponsored Post Sponsored posts spoonie Spoonie Talk SSRIs Stakeholder approaches stakeholders standard poodle standards Stanford Start-ups starting point STAT Statins statistics Stevens-Johnson syndrome (SJS) stigma & antidepressants stigmatized Stomach Acid story telling strategic needs assessment Strategy Stress Stress response study stroke Stronger Together Struggle Sue Brown ARMA CEO sugary drinks Suicidal Thoughts Suicide Suicide Prevention Sumatriptan Summer fun Summer Fundraising Sun damaged Skin Sunderland Mind sunderlandmind.co.uk Sunderland Mind Centre Support Group support groups support network Support networks Support System surgery Surveys Survival survivor Sustainability Transition sweet potatoes symposium Systemic Disease Tai-Chi Taste of Home Tax credits Team approach tech news technological innovation Technology telehealth telemedicine Temperature sensitive Tender-Point-test Thankyou THC levels THC oil theatre The Best UK Chronic Illness Blogs The British Society for Rheumatology The Ehlers-Danlos Support UK The Future Of Rare Diseases The Im-patient Conference The Mighty The Moment The NHS Long-Term Plan The Opioid Crisis The Patient Registry Therapeutic Areas Therapeutic Value Therapies There is Always Hope The Sales Rep thought-leaders threadworms Tibial Tubercle Transfer (TTT) tick Time To Talk Tinnitus Tinnitus Hub Tinnitus Research Initiative TMJ Toolkit Tools and resources topamax Top Ten UK Chronic Illness Blogs List toxic epidermal necrolysis (TEN) TpT TpT test Training Transformational changes Transgender pathways transparency Trauma Trauma informed care traumatic experiences tray baked fish Treatment treatment options treatments Treatments & Therapies Trial trial design Trial recruitment Trigeminal Neuralgia Triggers Triptans Trust Trusted Medical Resource Twitter Twitter Chat UAE Nursing Society UK Care Guide Uk Fibromyalgia UK health Ulna nerve entrapment ultrasound Understanding Diabetes test strips undetermined USA Useful user-centered US pharma Valuable Collaborations value based care Vascular Vegan vegetarian Versus Arthritis Vertigo video-cast virtual virtual event Visual guides Visual imagery vitamin A Volunteer vulvodynia walking App Webinar webinar recording available webinars WEGO WEGO Award winner WEGO HEALTH Wego Health Awards 2018 weight gain Wellbeing in the city Wellcome Genome Campus Conference Wellness Wheat free WHEELCHAIR wheelchair user When Patients Take Control white paper whitepapers Why CX Starts In Sales why we do research win-win Windrush Wolfram Syndrome Wolfram Syndrome UK Women in Prison womens health workforce management Working from home Workshop World Arthritis Day World Fibromyalgia Day WorldFibromyalgiaDay2018 World Mental Health Day World Osteoporosis Day World Paediatric Bone & Joint Day World Spine Day Worldwide worm education X-ray-guided Young offenders institutions Youths Zomig ‘The Chronically Hopeful Award’

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