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March 2, 2020March 31, 2021 fibrofly73

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Hello and thank you for visiting our website, FibroFlutters is a 'Patient-Led' Non-profit Community based Patient organisation that is ran by 'unpaid' Patient Volunteers. * We raise awareness, share health communications to educate people about varying chronic illnesses. * Provide resources for patients & professionals alike. * We strive to be patient / health /research /pharma advocates to help create better outcomes for patients whilst promoting patient/person centred multi-disciplinary approaches to medical healthcare. * If you like the work that we do? Please help to support us. * All donations will be graciously received. Carole ~ CEO / Co-Founder on behalf of all patient volunteers at FibroFlutters

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Ehler's Danlos Support Uk EDS UK was set up in 1987 to support, advise & inform those living with the Ehlers-Danlos syndromes. 25+ years later, they remain the only UK based charity that exclusively represents & supports EDS.
Ehlers-Danlos Syndrome Overview Connective Tissue Disorder by Carol Eustice Ehlers-Danlos Syndrome Overview Connective Tissue Disorder By Carol Eustice | verywell.com
Autonomic Dysfunction Sheet (PoTS) for people with EDS – HT / (h)EDS | Ehlers Danlos Support UK Autonomic Dysfunction Sheet (PoTS) for people with EDS – HT / (h)EDS | Ehlers Danlos Support UK
The Ehlers=Danlos Society Charity and place for EDS and HMS info and support
HMSA – Hypermobility Syndromes Association A Charity and place for EDS JHS HMS/HSDs and other connective tissue disorders

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eyeforpharma patient policy eyeforpharma: Patient Policy By Paul Simms, Chairman, eyeforpharma. Updated August 2017
Pharmaphorum Pharma news and events – Home page
eyeforpharma ~ Home page

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$The Liebster Award: The Official Rules + My First Blog Award and a Few Personal Secrets Revealed - May 2, 2013 \ Lorraine > Last Updated on: December 7th, 2017$

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Blueberry Cobbler June 14, 2021
Blueberry cobbler is a summer staple for a reason. Who can resist juicy, bubbly fruit baked under a layer of cream biscuits? Not to mention the contrast of warm cobbler with cold, creamy ice cream! It's irresistable. The best summer desserts are easy recipes. Recipes just like this one that don't take you away from […]
Bake at 350 by Bridget Edward
Mastering Motivation Amidst Challenging Life Circumstances June 14, 2021
It seems the hot fitness topic of 2020 is learning how to adapt and stay motivated when your gym is closed, events are canceled, and the awesome motivators of group energy and camaraderie are kept at a distance. Interestingly, some folks have been thrown entirely out of whack, with COVID-19 prompting “the COVID 20” in […]
Mark&#39;s Daily Apple
Homemade Welsh Cakes June 14, 2021
Just check out these pics! And I mean both the pictures and the pics—because you can also call Welsh Cakes pics, or bakestones, or just delicious with a cup of tea. My homemade Welsh cakes are so tender and buttery they practically melt in your mouth. They’re almost scone-like in texture, but their flavor comes […]
Gemma&#39;s Bigger Bolder Baking | Baking Recipes from Chef Gemma Stafford
How to Deal with Social Exhaustion When You’re an Introvert June 14, 2021
If you’re experiencing social exhaustion, you might feel like withdrawing…
Psych Central
What The Trevor Project Wants Us to Know About LGBTQ Youth Mental Health June 14, 2021
Gabe Howard, host of the "Inside Mental Health" podcast, interviews Dr. Amy Green of The Trevor Project on the state of LGBTQ+ youth mental health in 2021.
Psych Central
It is *Always* Possible to Make Time for What Matters Most June 14, 2021
If you’re a regular participant, you might have noticed that I haven’t been able to make time to join in my own linkups for the past two months! Life has been fraught with stressors of all sorts. A bit of a vicious cycle as one thing always leads to another; a general rule of life. […]
A Chronic Voice • Articulating lifelong illness
Disabled Women in History: Fannie Lou Hamer and the Civil Rights Movement June 14, 2021
Fannie Lou Hamer grew up as a sharecropper, earned the nickname “the First Lady of Civil Rights”, became the co-founder of the Mississippi Freedom Party and the co-founder of the National Women’s Political Caucus, and she lived with a disability. Fannie had a gift for captivating audiences with her forceful personality. She dealt with violence… […]
Chronic Mom
Disabled Women in History: Fannie Lou Hamer and the Civil Rights Movement June 14, 2021
Fannie Lou Hamer grew up as a sharecropper, earned the nickname “the First Lady of Civil Rights”, became the co-founder of the Mississippi Freedom Party and the co-founder of the National Women’s Political Caucus, and she lived with a disability. Fannie had a gift for captivating audiences with her forceful personality. She dealt with violence… […]
Chronic Mom
Scientific Meeting » Workshop: Advanced Statistical Methods and Dynamic Data Visualizations for Mental Health Studies June 14, 2021
The NIMH is hosting a two-day workshop on advanced statistical methods and dynamic data visualizations for mental health studies.
National Institute of Mental Health (NIMH)
Taco Salad June 14, 2021
Taco Salad This Easy Taco Salad with Ground Beef is a quick and healthy weeknight dinner, with your favorite Tex-Mex ingredients and flavors. Customize the add-ins and toppings for a meal the entire family will devour. An Easy Weeknight Dinner Everyone Loves! When it comes to dinner during the week, my goal is always to […]
Beyond Frosting Blog

Review eligibility of Paramedic Science students for the NHS Learning Support Fund

NIHR – Clinical research is everyone’s future

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Medical news stories / blog posts / research / pharma /science

Medical news stories, blogs and research
Fibroflutters #SocialMedia #healthadvocacy and #allstakeholder approach to #healthcare, across the globe – Peeking at the statistics!
Welcome to the Samaritans Monthly Newsletter | Samaritans | June 2019
New data-led NHS safety strategy lets patients log concerns | Owen Hughes | Digital Health | 8 July 2019
New edition of Airing Pain | Pain Concern | 2 July 2019
For a healthier heart read NHLBI Deliciously Healthy Eating Recipes
Fibromyalgia – Musculoskeletal and Connective Tissue Disorders – Merck Manual Professional Edition
A – Z of Clinical Research – Making Research Better | NIHR
Autonomic Dysfunction Sheet (PoTS) for people with EDS – HT / (h)EDS | Ehlers Danlos Support UK
Patient | Causes and treatments of Irritable Bowel Syndrome (IBS) – video | Dr Sarah Jarvis
British Heart Foundation | Keep hearts beating and blood flowing | 13 June 2018
Muscle Cramps (Charley Horse) and Muscle Spasms |By John A. Daller, MD
Barriers to Patient-Centered Research Aired at Harvard Symposium | EMR & HIPAA | Andy Oram | 2 July 2018
Accepting ‘Chronic Illness’ (Updated Post) | Carole Scrafton
Article – Muscle Atrophy Symptoms Causes-and Treatments. | Healthguidance.org | Poignancy regarding #chronicillness & the wastage in my left leg.
Joint Hypermobility and Fibromyalgia | Is there a connection? | Carole Scrafton
(EDS UK) Ehlers Danlos UK – Fibromyalgia and CF (Chronic fatigue) by Dr Alan Hakim, MA FRCP
Article from HMSA – Anaesthetic and JHS / EDS – Posted By Alan Hakim, June 29, 2013
How does our brain process fear? Study investigates | Medical News Today
Product Review | Nrem Sleep System | Sponsored Post
#NeuroendocrineCancer #NETS RonnyAllan.NET – Community Newsletter Covering August 2018 #PatientAdvocacy
#PAM2018 #Arthritis #Toolkit #TeamApproach #HealthCare The Arthritis Foundation | Managing Health Care With Arthritis | 10 September 2018
Scope Blog Post | “We all want to be a part of society don’t we?” Addressing loneliness in disabled people
Article from Arthritis-health: How Chronic Pain May Sap Your Motivation
How Neglecting Minorities in Medical Research Has Led to Deadly Outcomes | Brian Clark | CEO of (Human Data Project) HDP Health
Why ADHD Can Look Like Depression | By Neil Petersen | psychcentral.com
Migraine Again | Why Painful Light Sensitivity Affects Many with Migraines
Study suggests small cell lung cancer should not be treated as single disease | Cancer Research
A discovery that could alter the whole way that disorders such as Multiple Sclerosis, Autism & Alzeimers are looked at : ‘Landmark discovery’ of vessels connecting brain to immune system – Medical News Today
30 years after Prozac arrived, we still buy the lie that chemical imbalances cause depression | Olivia Goldhill | Quartz
Article from Fibromyalgia News Today (FNT) – Skin of Fibromyalgia Patients Could Provide Disease Clues
5 Ways to Decrease the Health Risks of Sitting | Jaime A. Heidel | June 27, 2016
The most underrated scientific breakthroughs of 2017 | Quartz
8 Tips for Patients Newly Diagnosed with Ehlers-Danlos | Shared via painnewsnetwork.org (2015) | Ellen Lennox Smith
The Importance of Stomach Acid: Why Antacids Could Make You Sick | Hormones Matter
Brain Fog clouding your view of Multiple Sclerosis a cognitive impairment
Article from MigraineAgain: Aching Body, Aching Head: Understanding Migraine and Fibromyalgia
Article: Diagnosing Depression in People with Chronic Pain – Arthritis Health
Pain: Hope Through Research: National Institute of Neurological Disorders and Stroke (NINDS)
Articles from Pro Health: 1- It’s Not All in Your Head – It’s in Your Hands! & 2: Fibromyalgia Research update
Fibromyalgia now considered as a lifelong central nervous system (CNS) disorder
#PAM2018 | What Happens Up Stream Comes Down Stream: The Cause and Effect of the Mental and Physical Connection | Treasures On The Sand | 24 September 2018
#PAM2018 #Arthritis #Toolkit #TeamApproach #HealthCare The Arthritis Foundation | Managing Health Care With Arthritis | 10 September 2018
#NeuroendocrineCancer #NETS RonnyAllan.NET – Community Newsletter Covering August 2018 #PatientAdvocacy
A few FREE Health apps & e-books
A selection of posts from around the National Institutes of Health (NIH) Family
Article -Huffington Post: Here’s How To Stop A Migraine Before It Destroys Your Whole Day
Article: Joint hypermobility: emerging disease or illness behaviour? – Journal of the Royal College of Physicians
Central nervous system and Sympathetic Skin Response
Central Sensitivity Syndromes – Difficult to Classify
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