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FibroFlutters Patient Advocacy Organisation | Chronic Illness & Rare Disease Network

Patient, Health, Research, Medical, Clinical, Digital Health and Pharma news, information, communications, advice, reviews and resources

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EDS, JHS, Hypermobility & HSD’s News and info

Ehlers-Danlos Syndrome Overview Connective Tissue Disorder by Carol Eustice Ehlers-Danlos Syndrome Overview Connective Tissue Disorder By Carol Eustice | verywell.com
HMSA – Hypermobility Syndromes Association A Charity and place for EDS JHS HMS/HSDs and other connective tissue disorders
NHS Choices – Joint hypermobility syndrome NHS Choices – Joint hypermobility syndrome – Information pages
How to Explain Your Pain to a Doctor by Dr. Michael J. Cooney, D.C. How to Explain Your Pain to a Doctor by Dr. Michael J. Cooney, D.C.
Ehler's Danlos Support Uk EDS UK was set up in 1987 to support, advise & inform those living with the Ehlers-Danlos syndromes. 25+ years later, they remain the only UK based charity that exclusively represents & supports EDS.

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ME / CFS Awareness poster for May 12th 2017

Fibro Fighting Fluffie Hugs

Don’t ever let anyone dull your sparkle

$The Liebster Award: The Official Rules + My First Blog Award and a Few Personal Secrets Revealed - May 2, 2013 \ Lorraine > Last Updated on: December 7th, 2017$

Leibster Award Nomination

Don’t be afraid to reach out!

Fight or Flight?

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January 2026
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Hello and thank you for visiting our website, FibroFlutters is a 'Patient-Led' Non-profit Community based Patient organisation that is ran by 'unpaid' Patient Volunteers. * We raise awareness, share health communications to educate people about varying chronic illnesses. * Provide resources for patients & professionals alike. * We strive to be patient / health /research /pharma advocates to help create better outcomes for patients whilst promoting patient/person centred multi-disciplinary approaches to medical healthcare. * If you like the work that we do? Please help to support us. * All donations will be graciously received. Carole ~ CEO / Co-Founder on behalf of all patient volunteers at FibroFlutters

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1.30 Friday Faves January 31, 2026
Hi friends! Happy Friday! How are you? What are you up to this weekend? We have the usual basketball game shuffle, celebrating my brother’s bday, and I’m looking forward to a low-key pizza and movie night. I hope you have a relaxing and lovely weekend ahead. ..
The Fitnessista
Two levain Semolina Pizza January 31, 2026
Two levain Semolina Pizza trailrunner Fri, 01/30/2026 - 16:07 Friday night is pizza night at TFL! I promised to show a thick crust light as air focaccia type pizza. Here she is. Parbaked crust weeks ago and frozen for just such an occasion as a cold cold COLD..
The Fresh Loaf
Sourdough Roman Pizza with Tangzhong January 31, 2026
Sourdough Roman Pizza with Tangzhong Benito Fri, 01/30/2026 - 11:34 I thought I was done baking before my trip, but decided to bake a pizza to have tonight and tomorrow night. These Roman style pizzas are what I’ve been enjoying making lately, The size and t..
The Fresh Loaf
Peanut Butter M&M Cookies January 31, 2026
These Peanut Butter M&M Cookies will draw you back to your childhood with this easy, nostalgic recipe! You can make these cookies The post Peanut Butter M&M Cookies appeared first on 365 Days of Baking. ..
365 Days of Baking and More
Chicken and Dumplings – Weekend Potluck #717 January 30, 2026
OLD FASHIONED CHICKEN & DUMPLINGS Our most popular recipe from the last Weekend Potluck was this recipe for Chicken and Dumplings from Cooking with K! Our other featured recipes include: Easy Homemade Brownies from Our Love Language is Food, Creamy Lemon ..
The Country Cook
Late bedtimes are linked to higher heart disease risk January 30, 2026
People who naturally stay up late may be putting their hearts under added strain as they age. A large study tracking more than 300,000 adults found that middle-aged and older night owls had poorer overall heart health and a higher risk of heart attack and stro..
ScienceDaily » Chronic Illness News
The early turning point when men’s heart risk accelerates January 30, 2026
Men start developing heart disease earlier than women, with risks rising faster beginning around age 35, according to long-term research. The difference is driven mainly by coronary heart disease, not stroke or heart failure. Traditional risk factors explain o..
ScienceDaily » Chronic Illness News
Scientists find hidden pathways pancreatic cancer uses to spread January 30, 2026
Researchers have discovered how pancreatic cancer reprograms its surroundings to spread quickly and stealthily. By using a protein called periostin, the tumor remodels nearby tissue and invades nerves, which helps cancer cells travel and form metastases. This ..
ScienceDaily » Chronic Illness News
A fish that ages in months reveals how kidneys grow old January 30, 2026
A fast-aging fish is giving scientists a rare, accelerated look at how kidneys grow old—and how a common drug may slow that process down. Researchers found that SGLT2 inhibitors, widely used to treat diabetes and heart disease, preserved kidney structure, bloo..
ScienceDaily » Chronic Illness News
Five Key Design Questions January 30, 2026
GUEST POST from Mike Shipulski 1. What do they want? Some get there with jobs-to-be-done, some use Customer Needs, some swear by ethnographic research and some like to understand why before what. But in all cases, it starts with the customer. Whichever mechani..
Innovation Excellence

NIHR – Clinical research is everyone’s future

Chronic Illness Bloggers

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Picture Gallery

What will you find if you wander through the gate

aving a tough time, can’t figure things out? Here’s a pretty place for self reflection

Listen to the sounds of the water rushing and feel its energy as is flows and you breathe

An image to guide your mind to anywhere whilst laying on the beach

StillnessSpeaks.com

A place of serenity by the pool

Fantasy land

A picture for using your imagination to take you on a peaceful journey

Go on take a seat, sit back let yourself relax and close your eyes, and absorb the nature around you What can you hear? What can you smell?

Great place for sound imagery, hear the watery echoes

Guide yourself down the path to the…?

A thoughtful walk or a fantastical adventure with fairies and pixies, or knights on white horses!? wherever your mind takes you.

Who would you like to sit and chat with?

A scented garden to take your mind on a soothing aromatic journey.

… forget about the world and spend some time on yourself

Feel the stillness and breathe long and deep

An eye into the unknown

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PLEASE NOTE: That here at fibroflutters.com we are not medical professionals just fellow chronic illness warriors sharing information.

Any information read or shared on, to or from this blog site should not override any advice given to you by your own Doctors.

PLEASE NOTE THAT THIS SITE USES GOOGLE ANALYTICS TO COLLECT DEMOGRAPHIC INFORMATION FOR INFORMATION AND CONTENT DECISION MAKING PURPOSES ONLY AND NOT TO SELL TO 3RD PARTIES. PLEASE:

Do not take any work, articles or pages to be your own, including those from third partie, or any external partie links, and always accredit the appropriate authors accordingly.

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Remember that buying products such as 'cure-claiming' remedies on-line can be a risky business and again FibroFlutters will not claim responsibility for any loss or damage from third parties/third partie links or any external parties.

MANY THANKS in advance for your understanding - from the administrator - fibrofly73

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