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FibroFlutters Patient Advocacy Organisation | Chronic Illness & Rare Disease Network

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Ehler's Danlos Support Uk EDS UK was set up in 1987 to support, advise & inform those living with the Ehlers-Danlos syndromes. 25+ years later, they remain the only UK based charity that exclusively represents & supports EDS.
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$The Liebster Award: The Official Rules + My First Blog Award and a Few Personal Secrets Revealed - May 2, 2013 \ Lorraine > Last Updated on: December 7th, 2017$

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September 2023
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Hello and thank you for visiting our website, FibroFlutters is a 'Patient-Led' Non-profit Community based Patient organisation that is ran by 'unpaid' Patient Volunteers. * We raise awareness, share health communications to educate people about varying chronic illnesses. * Provide resources for patients & professionals alike. * We strive to be patient / health /research /pharma advocates to help create better outcomes for patients whilst promoting patient/person centred multi-disciplinary approaches to medical healthcare. * If you like the work that we do? Please help to support us. * All donations will be graciously received. Carole ~ CEO / Co-Founder on behalf of all patient volunteers at FibroFlutters

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The C3 Summit was a fantastic event and TransPerfect LifeSciences were the most amazing hosts.

More pictures from Tuesday evening of mojito's and fun!

Dinner out with these two funny people last night was a real hoot!!

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What to know about the link between psoriasis and sleep September 24, 2023
People with psoriasis may experience sleep disorders or disturbances. Learn the link between psoriasis and difficulty sleeping, how to improve sleep…
Medical News Today » Anxiety / Stress News
Understanding what fear of the unknown is and how to overcome it September 24, 2023
Uncertainty is part of everyone's life. People with this fear of the unknown may try hard to seek certainty and may find it emotionally difficult when…
Medical News Today » Anxiety / Stress News
What to know about touch avoidance in people with psoriatic arthritis September 24, 2023
Psoriatic arthritis symptoms may lead to touch avoidance. Learn more what causes touch avoidance, how to cope with it, and when to speak with a doctor.
Medical News Today » Anxiety / Stress News
Best Cod Recipes September 24, 2023
Best Cod Recipes. Our very best cod fish recipes that readers have loved for over a decade. Traditional Newfoundland favourites, delicious new ideas and more! The post Best Cod Recipes appeared first on Rock Recipes. ..
Rock Recipes
How to Create, When You’re Feeling Overwhelmed September 24, 2023
By Leo Babauta Our days can be overwhelming, and because of this, many people put off their creative work — it just doesn’t feel possible. If you’re in this camp, one or more of these will sound familiar to you: I’m too busy right now, I can always do (insert ..
zenhabits
Posttraumatic brain activity predicts resilience to PTSD September 23, 2023
After a traumatic experience, most people recover without incident, but some people -- between 2% and 10% -- develop posttraumatic stress disorder (PTSD), a mental health condition that can cause debilitating symptoms of anxiety due to emotional dysregulation...
ScienceDaily » Chronic Illness News
Pumpkin Poke Cake September 23, 2023
This easy Pumpkin Poke Cake tastes like pumpkin pie in cake form! The spice from the moist cake combined with the pumpkin filling makes this the perfect autumn cake! A PUMPKIN SPICE POKE CAKE This Pumpkin Poke Cake recipe is a must-try for Fall! A moist, deli..
The Country Cook
The Week in Review: September 18-22 September 23, 2023
From violence risk assessment in emergency departments to connections between bipolar disorder and substance use disorders, here are highlights from the week in Psychiatric Times.
Psychiatric Times
HBH Meal Plan: 9.24 September 23, 2023
HBH Meal Plan: 9.24 READ: HBH Meal Plan: 9.24 ..
Half Baked Harvest by Tieghan.
The Weekend Dish: 9/23/2023 September 23, 2023
The Weekend Dish: 9/23/2023 Happy Saturday, friends! I hope your week was wonderful and that you get to enjoy some beautiful fall weather this weekend. What are you doing, cooking, and baking? On Brown Eyed Baker This Week Friday Things #492 – Siblings, anoth..
Brown Eyed Baker by Michelle

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The C3 Summit was a fantastic event and TransPerfect LifeSciences were the most amazing hosts.

More pictures from Tuesday evening of mojito's and fun!

Dinner out with these two funny people last night was a real hoot!!

Picture Gallery

A scented garden to take your mind on a soothing aromatic journey.

Go on take a seat, sit back let yourself relax and close your eyes, and absorb the nature around you What can you hear? What can you smell?

Feel the stillness and breathe long and deep

An eye into the unknown

A thoughtful walk or a fantastical adventure with fairies and pixies, or knights on white horses!? wherever your mind takes you.

Guide yourself down the path to the…?

Fantasy land

… forget about the world and spend some time on yourself

StillnessSpeaks.com

A place of serenity by the pool

An image to guide your mind to anywhere whilst laying on the beach

What will you find if you wander through the gate

A picture for using your imagination to take you on a peaceful journey

Who would you like to sit and chat with?

aving a tough time, can’t figure things out? Here’s a pretty place for self reflection

Listen to the sounds of the water rushing and feel its energy as is flows and you breathe

Great place for sound imagery, hear the watery echoes

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PLEASE NOTE: That here at fibroflutters.com we are not medical professionals just fellow chronic illness warriors sharing information.

Any information read or shared on, to or from this blog site should not override any advice given to you by your own Doctors.

PLEASE NOTE THAT THIS SITE USES GOOGLE ANALYTICS TO COLLECT DEMOGRAPHIC INFORMATION FOR INFORMATION AND CONTENT DECISION MAKING PURPOSES ONLY AND NOT TO SELL TO 3RD PARTIES. PLEASE:

Do not take any work, articles or pages to be your own, including those from third partie, or any external partie links, and always accredit the appropriate authors accordingly.

Always speak to your GP first before stopping, changing or trying new medications or treatments, FibroFlutters will not claim resposibility for any loss or damage from third parties/third partie links, or any external parties..

Always be aware of Internet security and note that we cannot be held responsible for external websites.

Remember that buying products such as 'cure-claiming' remedies on-line can be a risky business and again FibroFlutters will not claim responsibility for any loss or damage from third parties/third partie links or any external parties.

MANY THANKS in advance for your understanding - from the administrator - fibrofly73

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