Skip to content

About FibroFlutters
Home – Latest Posts
The chronicillnessVOICE
Zebra Strutters – Rare Disease Advocacy
PHARMA / SCIENCE / TECH / DIGITAL / AI
- Real World Evidence Live: Rare Diseases & Innovative Therapies
- My experience – First face-to-face event in 2 years!
Medical Disorders
Mental Health
Treatments and Therapies
- Therapies and Treatments
The Chillout Lounge
Newsletters/Papers/Magazines
- Health, Medical, Research, Patient and Pharma related newsletters
- Freshly updated Selected Newsletters from News Medical
Awareness campaigns
Research related readables
Food, drink and recipes
The hints and tips station
SoMe Patient Platforms
Musculoskeletal
- Fibromyalgia & Chronic Pain
Privacy Policy – FibroFlutters

@FibroFlutters on Twitter – Global Community Patient Organisation – Public
FibroFlutters (Sunderland & NE UK) on FACEBOOK ~ Closed Discussion Group
Fibro Flutters HQ – Facebook – Global Community Patient Organisation – Public
FibroFlutters – LinkedIn Global Community Patient Organisation – Public
Fibrofly73 (Carole Sian) – Pinterest
FibroFlutters – YouTube Playlists

FibroFlutters Patient Advocacy Organisation | Chronic Illness & Rare Disease Network

Patient, Health, Research, Medical, Clinical, Digital Health and Pharma news, information, communications, advice, reviews and resources

Fun Pic – I love my pillow…

Save

Please share this:

Tweet
Share on Tumblr
Instagram
Email
Print
More

WhatsApp
Pocket

Like this:

Like Loading...

Our Partners

Looking for a clinical trial? click above!

Clinical trial resources for patients

Get paid to Voice your opinions. Help companies develop better products and services to help provide better healthcare for patients. Create better patient outcomes!

Working towards meeting the needs of the patient organisation by providing low cost services and data governance so that they can own their own data. Jeeva for patients / Jeeva for researchers

Ataxia is raredisease affecting Balance Speech and Coordination. Ataxia and Me are “Patients Helping Patients”

The #chronicillnessVOICE Daily

The #chronicillnessVOICE DailyRead our daily news – for #patients #health #medical #pharma #research related newsletter for everyone #notjustpatients’

Search for:

Google translate:

My Tweets

FibroFlutters in FEEDSPOT Top Ten for chronic illness blogs

FibroFlutters makes into top 10 Fibro blogs by FEEDSPOT

EDS, JHS, Hypermobility & HSD’s News and info

Disability.gov Disability.gov is an “information and referral” website, which means almost every time you select a resource, you will go to another website.
The Mighty > Ehlers Danlos Syndrome ‘We face disability, disease and mental illness together.’ ~ The Mighty Motto – A plac where people read and write about their #chronicillnesses
8 Tips for Patients Newly Diagnosed with Ehlers-Danlos Article By Ellen Lenox Smith, Columnist – PainNewsNetwork 2015
NHS Choices – Joint hypermobility syndrome NHS Choices – Joint hypermobility syndrome – Information pages
EDS reclassification as of 15th March 2017 – FibroFlutters INFO POST FibroFlutters INFO POST

Random images

ME / CFS Awareness poster for May 12th 2017

Fibro Fighting Fluffie Hugs

Don’t ever let anyone dull your sparkle

$The Liebster Award: The Official Rules + My First Blog Award and a Few Personal Secrets Revealed - May 2, 2013 \ Lorraine > Last Updated on: December 7th, 2017$

Leibster Award Nomination

Don’t be afraid to reach out!

Fight or Flight?

May 2022
April 2022
March 2022
November 2021
September 2021
August 2021
July 2021
June 2021
May 2021
April 2021
March 2021
February 2021
November 2020
October 2020
September 2020
August 2020
July 2020
June 2020
May 2020
March 2020
February 2020
January 2020
December 2019
November 2019
October 2019
September 2019
August 2019
July 2019
June 2019
May 2019
April 2019
March 2019
February 2019
January 2019
December 2018
November 2018
October 2018
September 2018
August 2018
July 2018
June 2018
May 2018
April 2018
March 2018
February 2018
January 2018
December 2017
November 2017
July 2017
June 2017
May 2017
March 2017
February 2017
January 2017
October 2016
September 2016
May 2016
April 2016
March 2016
February 2016
January 2016
November 2015
October 2015
September 2015
August 2015
July 2015
June 2015
May 2015

Calendar of posts

September 2022
M	T	W	T	F	S	S
			1	2	3	4
5	6	7	8	9	10	11
12	13	14	15	16	17	18
19	20	21	22	23	24	25
26	27	28	29	30

« May

Support Us

Friendly and charitable donations

Hello and thank you for visiting our website, FibroFlutters is a 'Patient-Led' Non-profit Community based Patient organisation that is ran by 'unpaid' Patient Volunteers. * We raise awareness, share health communications to educate people about varying chronic illnesses. * Provide resources for patients & professionals alike. * We strive to be patient / health /research /pharma advocates to help create better outcomes for patients whilst promoting patient/person centred multi-disciplinary approaches to medical healthcare. * If you like the work that we do? Please help to support us. * All donations will be graciously received. Carole ~ CEO / Co-Founder on behalf of all patient volunteers at FibroFlutters

£1.00

Come check out our YouTube subscriptions and playlists. PLEASE Follow Us

YouTube

Instagram - carole_fibroflutters

Fabulous analogy and infograph #diversity, #equality vs #equity and just needed to share it.

We're now on day 7 of #Dazzle4Rare22 and all week we've been asking for name suggestions for our new mascot.

#Dazzle4Rare is a cross-community undiagnosed and rare disease awareness week. Unlike most awareness events, this week is meant to enable rare disease communities of all sizes share messages for one another, signal boosting the messages to reach a wider audience. The base concept is simple – when you share for another community, they are able to reach your audience who may benefit from hearing their message or learning more about that. In doing so, others will share YOUR message enabling you to reach an audience you would not normally.

Follow FibroFlutters on Feedspot

Follow on Feedspot

feedspot

Potato Skins with Bacon & Cheese September 30, 2022
I guess… if you like to cook and bake as much as I do, you normally have something prepared when guests come over, right? Whenever I got someone coming to our place for a movie or game night I love to prepare stuff I normally don’t do (during the week). Snack..
Bake to the roots
Fluffy Pumpkin Butter Chocolate Chip Pancakes. September 30, 2022
Fluffy Pumpkin Butter Chocolate Chip Pancakes. Best enjoyed with a pat of salted butter and a pour of maple syrup - simple and perfect! READ: Fluffy Pumpkin Butter Chocolate Chip Pancakes. ..
Half Baked Harvest by Tieghan.
Easy Turkey Calzone September 30, 2022
Easy Leftover Turkey Calzone is the perfect way to make your belly happy while using up the leftovers in your fridge. It’s like having a turkey pizza and a calzone recipe in one handy dandy little dish. The kids call them turkey pockets! Pin it now to save fo..
Crazy for Crust
No-Bake Millionaires! September 30, 2022
An easy no-bake millionaires traybake with a shortbread base, microwaved caramel and lots of chocolate on top! Millionaires shortbread So we all know how obsessed I am with all things millionaires shortbread right?! I am just in love and that will never cha..
Jane&#39;s Patisserie
Crock Pot Pumpkin Hot Chocolate September 30, 2022
This Crock Pot Pumpkin Hot Chocolate is an amazingly tasty twist on your usual hot chocolate! It's easy to make and easy to serve to your guests on a cold night! A CROCK POT PUMPKIN DRINK When it comes to hot chocolate, I really love to experiment with flavor..
The Country Cook
This Old Neighborhood Made M1 this Way September 30, 2022
Changes in the content, identity and properties of cells that reside in aging tissues determine aging related deterioration of tissue functionality. In this issue, Gather and colleagues characterize the mutual influence that aged and senescent dermal fibroblas..
Journal of Investigative Dermatology
A Simple Plan to Overcome Self-Doubt and Do What You Want to Do September 30, 2022
“Don’t let others tell you what you can’t do. Don’t let the limitations of others limit your vision. If you can remove your self-doubt and believe in yourself, you can achieve what you never thought possible.” ~Roy T. Bennett Ahh yes, self-doubt. Something th..
Tiny Buddha
Breaks in 'junk' DNA give scientists new insight into neurological disorders September 30, 2022
'Junk' DNA could unlock new treatments for neurological disorders as scientists discover its breaks and repairs affect our protection against neurological disease.
ScienceDaily » Chronic Illness News
Cherry Cobbler September 30, 2022
The post Cherry Cobbler appeared first on Cookie Madness. Original Author is Anna. This Cherry Cobbler recipe is from The Food Allergy Baking Book, a cookbook for people who love baking, but need to avoid dairy, eggs, and/or nuts. The cobbler is one of the bo..
Cookie Madness - Keeping Life Sweet One Cookie at a Time
Spending on Genetic-Drug Interaction Tests for Antidepressant Choice? Think Twice September 29, 2022
Have you heard of a medical test for the selection of antidepressants? It's billed as a simple blood test or cheek swab that can indicate what antidepressant you should or should not take. This is advertised as "personalized medicine" or "precision medicine."..
Natasha Tracy Blog

NIHR – Clinical research is everyone’s future

Chronic Illness Bloggers

Do you blog about Chronic Illness why not click the pic to come and join us

FibroFlutters HQ FB Page

FibroFlutters HQ FB Page

Instagram

Fabulous analogy and infograph #diversity, #equality vs #equity and just needed to share it.

We're now on day 7 of #Dazzle4Rare22 and all week we've been asking for name suggestions for our new mascot.

#Dazzle4Rare is a cross-community undiagnosed and rare disease awareness week. Unlike most awareness events, this week is meant to enable rare disease communities of all sizes share messages for one another, signal boosting the messages to reach a wider audience. The base concept is simple – when you share for another community, they are able to reach your audience who may benefit from hearing their message or learning more about that. In doing so, others will share YOUR message enabling you to reach an audience you would not normally.

Picture Gallery

A scented garden to take your mind on a soothing aromatic journey.

aving a tough time, can’t figure things out? Here’s a pretty place for self reflection

Who would you like to sit and chat with?

Feel the stillness and breathe long and deep

A thoughtful walk or a fantastical adventure with fairies and pixies, or knights on white horses!? wherever your mind takes you.

Listen to the sounds of the water rushing and feel its energy as is flows and you breathe

Fantasy land

An eye into the unknown

Guide yourself down the path to the…?

StillnessSpeaks.com

… forget about the world and spend some time on yourself

A place of serenity by the pool

An image to guide your mind to anywhere whilst laying on the beach

A picture for using your imagination to take you on a peaceful journey

Go on take a seat, sit back let yourself relax and close your eyes, and absorb the nature around you What can you hear? What can you smell?

What will you find if you wander through the gate

Great place for sound imagery, hear the watery echoes

Category Cloud

Arthritis Articles Autoimmune Awareness campaigns Blogs / Bloggers chronic illness chronic pain Disability Fibro MeCFS online NEWS & INFO sources Fibromyalgia Fibro News Healthcare HYPERMOBILITY Info site invisible illness ME CFS Medical Conditions / Disorders Medical news stories mental health Musculoskeletal Newsletters Newsletters/Papers/Magazines/Blogs Patient Advocacy Patients pharma Pharma / Science / Tech / Digital / AI Professionals Research Sites to visit The hints and tips station

Privacy & Cookies: This site uses cookies. By continuing to use this website, you agree to their use.
To find out more, including how to control cookies, see here: Cookie Policy

Spam Blocked

1 spam blocked by Akismet

Follow Blog via Email

Enter your email address to follow this blog and receive notifications of new posts by email.

Email Address

Join 7,184 other subscribers.

_Disclaimer

PLEASE NOTE: That here at fibroflutters.com we are not medical professionals just fellow chronic illness warriors sharing information.

Any information read or shared on, to or from this blog site should not override any advice given to you by your own Doctors.

PLEASE NOTE THAT THIS SITE USES GOOGLE ANALYTICS TO COLLECT DEMOGRAPHIC INFORMATION FOR INFORMATION AND CONTENT DECISION MAKING PURPOSES ONLY AND NOT TO SELL TO 3RD PARTIES. PLEASE:

Do not take any work, articles or pages to be your own, including those from third partie, or any external partie links, and always accredit the appropriate authors accordingly.

Always speak to your GP first before stopping, changing or trying new medications or treatments, FibroFlutters will not claim resposibility for any loss or damage from third parties/third partie links, or any external parties..

Always be aware of Internet security and note that we cannot be held responsible for external websites.

Remember that buying products such as 'cure-claiming' remedies on-line can be a risky business and again FibroFlutters will not claim responsibility for any loss or damage from third parties/third partie links or any external parties.

MANY THANKS in advance for your understanding - from the administrator - fibrofly73

Powered by WordPress.com.

Go to mobile version

Loading Comments...

Write a Comment...

Email (Required)

Name (Required)

Website

%d bloggers like this:

Please share this:

Like this:

Leave a Reply Cancel reply