Fun Pic – I love my pillow…

Save

Please share this:

Tweet
Share on Tumblr
Instagram
Email
Print
More

WhatsApp
Pocket

Like this:

Like Loading...

Can you help to support us?

Friendly and charitable donations

Hello and thank you for visiting our website, FibroFlutters is a 'Patient-Led' Non-profit Community based Patient organisation that is ran by 'unpaid' Patient Volunteers. * We raise awareness, share health communications to educate people about varying chronic illnesses. * Provide resources for patients & professionals alike. * We strive to be patient / health /research /pharma advocates to help create better outcomes for patients whilst promoting patient/person centred multi-disciplinary approaches to medical healthcare. * If you like the work that we do? Please help to support us. * All donations will be graciously received. Carole ~ CEO / Co-Founder on behalf of all patient volunteers at FibroFlutters

£1.00

The #chronicillnessVOICE Daily

The #chronicillnessVOICE DailyRead our daily news – for #patients #health #medical #pharma #research related newsletter for everyone #notjustpatients’

Search for:

Google translate:

Please endorse us / Carole for this award, many thanks and wishing you wellness

https://badges.wegohealth.com/ha-awards-2019.js?referrer=1YcEFqk-vPEacUvZEidHYg

PLEASE CLICK THE LINK BELOW TO ENDORSE FOR THIS AWARD

https://badges.wegohealth.com/ha-awards-2019.js?referrer=5EqrFJ_-MSKPBms4aaLiSA

MEDICAL DISORDERS

Medical Disorders

Please follow us on Twitter

My Tweets

FibroFlutters in FEEDSPOT Top Ten for chronic illness blogs

FibroFlutters makes into top 10 Fibro blogs by FEEDSPOT

EDS, JHS, Hypermobility & HSD’s News and info

FibroFlutters – Face Book CLOSED COMMUNITYPage FibroFlutters Support Group Face Book Page
HMSA – Hypermobility Syndromes Association A Charity and place for EDS JHS HMS/HSDs and other connective tissue disorders
Ehlers-Danlos Syndrome Overview Connective Tissue Disorder by Carol Eustice Ehlers-Danlos Syndrome Overview Connective Tissue Disorder By Carol Eustice | verywell.com
8 Tips for Patients Newly Diagnosed with Ehlers-Danlos Article By Ellen Lenox Smith, Columnist – PainNewsNetwork 2015
Disability.gov Disability.gov is an “information and referral” website, which means almost every time you select a resource, you will go to another website.

Pharma

eyeforpharma patient policy eyeforpharma: Patient Policy By Paul Simms, Chairman, eyeforpharma. Updated August 2017
Pharmaphorum Pharma news and events – Home page
eyeforpharma ~ Home page

Random images

ME / CFS Awareness poster for May 12th 2017

Fibro Fighting Fluffie Hugs

Don’t ever let anyone dull your sparkle

$The Liebster Award: The Official Rules + My First Blog Award and a Few Personal Secrets Revealed - May 2, 2013 \ Lorraine > Last Updated on: December 7th, 2017$

Leibster Award Nomination

Don’t be afraid to reach out!

https://badges.wegohealth.com/ha-awards-2020.js?referrer=VUJKwwYtpro1AYSYyW6UOw

Fight or Flight?

Calendar of posts

July 2021
M	T	W	T	F	S	S
			1	2	3	4
5	6	7	8	9	10	11
12	13	14	15	16	17	18
19	20	21	22	23	24	25
26	27	28	29	30	31

« Jun

Come check out our YouTube subscriptions and playlists. PLEASE Follow Us

YouTube

Instagram - carole_fibroflutters

#fibroflutters celebrate their 7th birthday today 🎂

#RareDiseaseDay2021 is fast approaching and we have a new element / addition to #FibroFlutters to launch...

#PEinEarlyStages is part of a series of Patient Focused Medicines Development - PFMD ) How-To Guides co-created in a multi-stakeholder environment built with #PatientEngagement Quality Guidance.

Follow FibroFlutters on Feedspot

Follow on Feedspot

feedspot

When It’s Time to Treat Your Anxiety July 23, 2021
If you have an anxiety disorder and your symptoms are bothersome, it might be time to consider medication.
Psych Central
Chocolate Heath Pie July 23, 2021
Chocolate Heath Pie is a no-bake dessert made with an Oreo cookie crust filled with chocolate cheesecake and toffee bits, topped with whipped cream and more toffee bits. For the ‘adult version’ of this pie, try my Baileys Chocolate Cream Pie. Chocolate Heath Pie This no-bake dessert will definitely satisfy your sweet tooth with each […]
I Am Baker
Strawberry Lemon Blondies July 23, 2021
Strawberry Lemon Blondies are soft and chewy dessert bars with a lemony flavor and fresh strawberries and topped with a lemon glaze. Try my Lemon Brownies for another lemon-flavored treat! Strawberry Lemon Blondies The texture of these dessert bars is like a fudgy brownie but in a strawberry and lemon-flavored dessert bar. Blondies, also known […]
I Am Baker
When It’s Time to Treat Your Anxiety July 23, 2021
If you have an anxiety disorder and your symptoms are bothersome, it might be time to consider medication.
Psych Central
Differential involvement of programmed cell death ligands in skin immune responses July 23, 2021
Programmed cell death-1 (PD-1) is an immuno-regulatory receptor that can bind PD-L1 or PD-L2 expressed on stimulated antigen-presenting cells. In this study, isolated antigen-presenting cells (macrophages and dendritic cells) were cultured with interferon (IFN)-γ, interleukin (IL)-4, or IL-17A and expression of PD-L1 and PD-L2 was compared by flow cytometry. Strong upregulation of PD-L1 expression was […]
Journal of Investigative Dermatology
CLEC12B decreases melanoma proliferation by repressing STAT3 July 23, 2021
The potential role of CLEC12B, a gene predominantly expressed by skin melanocytes discovered through transcriptomic analysis, in melanoma is unknown. Here we show that CLEC12B expression is lower in melanoma and melanoma metastases than in melanocytes and benign melanocytic lesions, and that its decrease correlates with a poor prognosis. We further show that CLEC12B recruits […]
Journal of Investigative Dermatology
The Role of CNTNAP2 in Itch Sensation July 23, 2021
To the Editor
Journal of Investigative Dermatology
Transcriptomic Analysis of Blaschko-Linear Psoriasis Reveals Shared and Distinct Features with Psoriasis Vulgaris July 23, 2021
To the Editor, Psoriasis is a common chronic inflammatory skin disease characterized by abnormal proliferation/differentiation of keratinocytes and increased immune cell infiltration in the dermis and epidermis (Greb et al., 2016). Although immune cells are considered to be the main driver of psoriasis, keratinocytes may also be implicated in triggering psoriasis and in sustaining inflammation […]
Journal of Investigative Dermatology
Strawberry, Lemon & Elderflower Cake July 23, 2021
This is the cake features a fresh strawberry buttercream and elderflower cordial – can’t get more summery than THAT. As I find layer cakes endlessly frustrating to make, I decided to go sheet cake style here. They’re very easy to make and decorate so are much better for my level of patience! Fresh strawberry […]
Top With Cinnamon by Izy Hossack
Friday Five: Building an Ethical Wardrobe July 23, 2021
From BakeandDestroy.net: I’ve wanted to write this post forever because like veganism (which I endlessly cover here) it can be really overwhelming to take the first step toward a more ethical closet when there are seemingly five million ways to do it “wrong.” But also like veganism, the most important step is the very first […]
Bake & Destroy by Natalie Slater

Review eligibility of Paramedic Science students for the NHS Learning Support Fund

NIHR – Clinical research is everyone’s future

Chronic Illness Bloggers

Do you blog about Chronic Illness why not click the pic to come and join us

FibroFlutters HQ FB Page

FibroFlutters HQ FB Page

Medical news stories / blog posts / research / pharma /science

Medical news stories, blogs and research
Fibroflutters #SocialMedia #healthadvocacy and #allstakeholder approach to #healthcare, across the globe – Peeking at the statistics!
Welcome to the Samaritans Monthly Newsletter | Samaritans | June 2019
New data-led NHS safety strategy lets patients log concerns | Owen Hughes | Digital Health | 8 July 2019
New edition of Airing Pain | Pain Concern | 2 July 2019
For a healthier heart read NHLBI Deliciously Healthy Eating Recipes
Fibromyalgia – Musculoskeletal and Connective Tissue Disorders – Merck Manual Professional Edition
A – Z of Clinical Research – Making Research Better | NIHR
Autonomic Dysfunction Sheet (PoTS) for people with EDS – HT / (h)EDS | Ehlers Danlos Support UK
Patient | Causes and treatments of Irritable Bowel Syndrome (IBS) – video | Dr Sarah Jarvis
British Heart Foundation | Keep hearts beating and blood flowing | 13 June 2018
Muscle Cramps (Charley Horse) and Muscle Spasms |By John A. Daller, MD
Barriers to Patient-Centered Research Aired at Harvard Symposium | EMR & HIPAA | Andy Oram | 2 July 2018
Accepting ‘Chronic Illness’ (Updated Post) | Carole Scrafton
Article – Muscle Atrophy Symptoms Causes-and Treatments. | Healthguidance.org | Poignancy regarding #chronicillness & the wastage in my left leg.
Joint Hypermobility and Fibromyalgia | Is there a connection? | Carole Scrafton
(EDS UK) Ehlers Danlos UK – Fibromyalgia and CF (Chronic fatigue) by Dr Alan Hakim, MA FRCP
Article from HMSA – Anaesthetic and JHS / EDS – Posted By Alan Hakim, June 29, 2013
How does our brain process fear? Study investigates | Medical News Today
Product Review | Nrem Sleep System | Sponsored Post
#NeuroendocrineCancer #NETS RonnyAllan.NET – Community Newsletter Covering August 2018 #PatientAdvocacy
#PAM2018 #Arthritis #Toolkit #TeamApproach #HealthCare The Arthritis Foundation | Managing Health Care With Arthritis | 10 September 2018
Scope Blog Post | “We all want to be a part of society don’t we?” Addressing loneliness in disabled people
Article from Arthritis-health: How Chronic Pain May Sap Your Motivation
How Neglecting Minorities in Medical Research Has Led to Deadly Outcomes | Brian Clark | CEO of (Human Data Project) HDP Health
Why ADHD Can Look Like Depression | By Neil Petersen | psychcentral.com
Migraine Again | Why Painful Light Sensitivity Affects Many with Migraines
Study suggests small cell lung cancer should not be treated as single disease | Cancer Research
A discovery that could alter the whole way that disorders such as Multiple Sclerosis, Autism & Alzeimers are looked at : ‘Landmark discovery’ of vessels connecting brain to immune system – Medical News Today
30 years after Prozac arrived, we still buy the lie that chemical imbalances cause depression | Olivia Goldhill | Quartz
Article from Fibromyalgia News Today (FNT) – Skin of Fibromyalgia Patients Could Provide Disease Clues
5 Ways to Decrease the Health Risks of Sitting | Jaime A. Heidel | June 27, 2016
The most underrated scientific breakthroughs of 2017 | Quartz
8 Tips for Patients Newly Diagnosed with Ehlers-Danlos | Shared via painnewsnetwork.org (2015) | Ellen Lennox Smith
The Importance of Stomach Acid: Why Antacids Could Make You Sick | Hormones Matter
Brain Fog clouding your view of Multiple Sclerosis a cognitive impairment
Article from MigraineAgain: Aching Body, Aching Head: Understanding Migraine and Fibromyalgia
Article: Diagnosing Depression in People with Chronic Pain – Arthritis Health
Pain: Hope Through Research: National Institute of Neurological Disorders and Stroke (NINDS)
Articles from Pro Health: 1- It’s Not All in Your Head – It’s in Your Hands! & 2: Fibromyalgia Research update
Fibromyalgia now considered as a lifelong central nervous system (CNS) disorder
#PAM2018 | What Happens Up Stream Comes Down Stream: The Cause and Effect of the Mental and Physical Connection | Treasures On The Sand | 24 September 2018
#PAM2018 #Arthritis #Toolkit #TeamApproach #HealthCare The Arthritis Foundation | Managing Health Care With Arthritis | 10 September 2018
#NeuroendocrineCancer #NETS RonnyAllan.NET – Community Newsletter Covering August 2018 #PatientAdvocacy
A few FREE Health apps & e-books
A selection of posts from around the National Institutes of Health (NIH) Family
Article -Huffington Post: Here’s How To Stop A Migraine Before It Destroys Your Whole Day
Article: Joint hypermobility: emerging disease or illness behaviour? – Journal of the Royal College of Physicians
Central nervous system and Sympathetic Skin Response
Central Sensitivity Syndromes – Difficult to Classify
Categories 1
About Us
HOME – Categories
PHARMA / SCIENCE / TECH / DIGITAL / AI
Rare Disease Advocacy

Instagram

#fibroflutters celebrate their 7th birthday today 🎂

#RareDiseaseDay2021 is fast approaching and we have a new element / addition to #FibroFlutters to launch...

#PEinEarlyStages is part of a series of Patient Focused Medicines Development - PFMD ) How-To Guides co-created in a multi-stakeholder environment built with #PatientEngagement Quality Guidance.

Picture Gallery

Fantasy land

A place of serenity by the pool

A thoughtful walk or a fantastical adventure with fairies and pixies, or knights on white horses!? wherever your mind takes you.

Who would you like to sit and chat with?

An image to guide your mind to anywhere whilst laying on the beach

aving a tough time, can’t figure things out? Here’s a pretty place for self reflection

Listen to the sounds of the water rushing and feel its energy as is flows and you breathe

Guide yourself down the path to the…?

A picture for using your imagination to take you on a peaceful journey

… forget about the world and spend some time on yourself

Feel the stillness and breathe long and deep

A scented garden to take your mind on a soothing aromatic journey.

Go on take a seat, sit back let yourself relax and close your eyes, and absorb the nature around you What can you hear? What can you smell?

Great place for sound imagery, hear the watery echoes

What will you find if you wander through the gate

StillnessSpeaks.com

An eye into the unknown

MAY 12TH Awareness Day

Happy Birthday to all of our supporters, let's celebrate MAY 12th Okay, so our blog is one years old
Home Page: National Fibromyalgia and Chronic Pain Association US Organisation raising awareness and giving support where they can
FibroFlutters – Face Book CLOSED COMMUNITYPage FibroFlutters Support Group Face Book Page

Tags

#AIhealthcare #BecomeFibroAware #BeKind21 #carers #chronicblog #chronicillness #chronicillness #disability #chronicillnessVOICE #ChronicKidneyDisease #chronic life #chronicpain #clinical trial #complementary health #dazzle4rare #dazzle4rare2020 #dietary issues #efp #efpawards #efpbarca #efpphilly #efpvirtual #EPFCongress2021 #Fibro2018 #Fibroawareness #FibroSummit2016 #FindyourPower #Genomics cafe #givingbytaking #HealtheVoices18 #HealtheVoices18VE #HOPE #IAAD #IAMRESEARCH #ICTD2021 #ImmuneSystem #Innovation #IntegratedCare #International awareness Day #invisibleillness #MEACTION #MentalHealth #Migraine Study #MillionsMissing #minorities #MSK #myEDS story #natural #notjustpatients #OneToWatch #PAM2018 #Patient #Patient Advocate #patient value #PersonalisedMedicine #PMFPatientWeek #PositiveThinking #PrecisionOncology #PublicHealthandJustice #pwme #RareRevolution #RAREsummit19 Cambridge #RareYouthProject #rockofffibro #ScientificResearch #shoutitloud #therapeutics #ThrowBackThursday #TinnitusAwarenessWeek #VirtualPanels #WEGOHEALTH #WEGOHealthAwards #WEGOHEALTHAwards 2019 #wellbeing (CTS) Cubital Tunnel Syndrome - schizophrenia - Sexual harrassment 3Dprinted 3D printed medtech 3D printed tissues 3d printing 7th annual Health & Justice Summit event in November 2019 at Bristol 14th annual eyeforpharma Japan 2020 18th annual eyeforpharma Barcelona Conference 18th annual eyeforpharma Philadelphia Conference 1990 ACR Classification 2018 Ehlers-Danlos Society Global Learning Conference 2019 2021 RARE Drug Development Symposium A2CPS Program Abbvie About us Above the fold Abuse ACA academia Acceptance accessibility A Chronic Voice ACR ActiPatch Active Choice ActivePosture Acupressure Acupuncture Adam Chapman Addiction ADHD adoddle adoddle.org ADS Advocacy Africa Agnitio AHP's AI AI AND ANALYTICS ai in healthcare AI in medicine AIMed AI Med AIMed Europe AIMed ICU AIMed Surgery AIMed webinar AIMS Airing Pain Alan Thomas Alcoholism Alfred Binet algorithms Allergies Allodynia all stake holders all stakeholders alternative/complementary Alternative / Complementary Alternative treatment Alzheimers Alzheimers Reading Room Amazon Smile America American College of Rheumatology American Diabetes Association American Tinnitus Association Anaesthesiology ANALGESIC COMPOUNDS analytics anesthesia anesthetics Anger and sadness Anne Maitland MD PHD Annual Lecture 2018 ~21 November 2018 Anonymous Survey ANS Antacids Anthony Chang antidepressants antioxidants antipsychotics anxiety Appeals Apple Watch Apps ARDEnt Report ARMA ARMA OCTOBER Newsletter ARMA SEPTEMBER Newsletter Aromatherapy Arthritis Arthritis & Musculoskeletal Alliance Arthritis Articles Autoimmune Awareness campaigns Blogs / Bloggers Chronic illness Chronic Pain Disability Fibro MeCFS online NEWS & INFO sources Fibromyalgia Fibro News Healthcare HYPERMOBILITY I Arthritis Foundation Arthritis Foundation PsA Arthritis RA Articles Artificial Intelligence ARTS AND CULTURE ASCVD ASMR Assistive tech AstraZeneca Ataxia and Me Atherosclerotic Cardiovascular Disease At Home Superheroes ATOS Australia Autism Autism spectrum disorders Autoimmune Automated Patient Dashboard AUTONOMIC DYSFUNCTION Autonomic Nervous system awareness Awareness Campaign Awareness Initiative Awareness Raising B12 Back Care Awareness Week Back issues back pain backpain and RA BACK PAIN BLOG BACKPAINBLOGUK Bacterial infections Bake at 350` baking Balance and coordination Barcelona Barcelona 2018 Barcelona 2019 Basil essential oil behaviour Benefits Benefits and Poverty bepositive be positive Bergamot oil Bernard Marr best practises Beta big data Biochemistry Biodiversity Biology biomarkers Biomedical technology biomedicine Bio Pharma biopharma biotech biotechnology Bipolar Bipolar Disorder Birth cohort study Birth control bleeding gums Blindness Bloated blockchain blog Blog Awards blogger Blogger Barbara Bloggers blogging blogging advice blogging tips Blood-brain barrier Blood Glucose Management System blood glucose meters blood pressure blue-light BME body alignment body image bones Born This Way Foundation Bottlenecks bowel Bowel function Bowen Technique Brain Brain Fog Brain game Brain Health brain injury Brainless Blogger Brains brain tumours brand Breaking Barriers Project breast biopsy breastfeeding problems Breath Brew Monday 2019 Bristol-Myers Squibb British Heart Foundation British Tinnitus Association budget Building Trust Bullying Burnout bursiitis Bursitis caffeine shampoo Call for action Callifornia law Cambridge Rare Disease Network Campaign Campaigns camraredisease Canada CANADIAN CELIAC PODCASTS cancer Cancer drug cancer drugs cancer research cancer support Cannacares carbohydrate intake carbs cardiac care Cardiac muscle Cardiology Cardiovascular disease cardiovascular health Care Care-giving caregiver engagement caregivers Care givers Care news Carer Voice Carole Scrafton Case study Cauliflour CBD CBD & work warning CBD capsules CBD oil CBD oil & the worlplace cEDS Celebration of Healthcare celiac celiac disease celiac news Celiac Scene cell stem cell Central Nervous System CEO activism Ceoliac Disease cerebal palsy Cerebelum Certified Grade CBD product CFS CFS/ME change for the better Charitable Radio Charity Charley Horse Check Rare Chest Pains Chicken Child's Health Child abuse Child health Childhood history child mental health children Childrens homes Child services Chocolate Fudge Cholesterol Christmas card Christmas greetings chronic back pain Chronic blog Chronic Bloggers Chronic blogs chronicblogs Chronic Disease Chronic Fatigue Chronic fatigue syndrome Chronic illnerss chronic illness Chronic illness Bloggers chronickids chronic migraine Chronic Opioid Use chronic pain chronic pain and inflammation Chronic Pain Disorders Chronic Pain Survey chronic pain treatments chronic pain warrior chronic pelvic pain Chronic Widespread Pain Circular Economy circulatory disease Citizen Scientist climate change clinical Clinical Networks Project Clinical Neuroscience clinical news Clinical Professionals Clinical research Clinical reserach clinical software Clinical trial education Clinical trial recruitment clinical trials Clinical Trials Day clinicians Clinincal Radiology CME accredited co-creation codeine codeine and constipation Coeliac Cognitive Difficulties cognitive functioning Cognitive impairment cold feet collaboration Collaborative Collagen disorder colon cancer colonoscopy Commercial Commercial / Sales commercial excellence commercial value communicating with patients Communication Access Communincation skills Communities Map Communities Platform Community Community engagement Community Map Community NETS news Community Network community party Community Support comorbiditiy Comorbidity & MCAD competition complementary Complementary and Integrative Health compliance Compliment Computational biology computer science Condition information Conditions Coneective tissue disorders conference Conference LIVE streams Congenital and Genetic Conditions connective-tissue connectivetissue Consumer health trackers consumer marketing contagious QUIZ Convenzis convolutional neural networks (CNN) cookies COPD coping skills coping straegies coping strategies coping strategy coping systems Corporate Governance corporate responsibility counselling counterfeit drugs Counting My Spoons covid19 covid 19 covid 19 news covid 19 pandemic covid news CPD Craig Hopp Craig Mills Craiog Venter CRDN creativity CRN crohns cross-channelling cross-networking cross functional Crutches CSR CSS Cubex culture change in pharma customer-centricity customer centred customer engagement customer experience Customer Innovation CX cyber attack Cystic Fibrosis dance data Data Analysis Data Bridge Market Research data privacy data science data sharing data silos data tracking Dazzle4Rare 2021 Deafness Debilitating disease Decentralised trials Deep-Learning Deep Dive - Pharmaphorum Deep learning Deep Vein Thrombosis Degenerative Discs DEI Dementia Dementia care denial depression dermatitis Dermatology dessert Diabetes Diabetes and diet Diabetes and Medicare Diabetes Diagnosis Diabetes Health Apps Diabetes Management Diabetes Type 2 Diabetic Recipes diagnosis Diagnostic criteria diary DID DIDMOAD diet Dietry news Different Needs Digestion Digital digital and marketing digital biomarkers Digital clinical trials digital endpoints digital GP centre Digital Health Digital Health News digital health solutions digital implementation digital initiatives digital investment digital marketing digital news] digitalNHS digital patient Digital RCTs Digital Solutions digital strategy digital technology digital therapeutics digital transformation digital trials disabilities Disability Disability Awareness Disability Gamechanger Disability news Disability News Service disABLED Disclaimers Disease Awareness Diseases disease silos disease subtypes Dissociative Identity Disorder Distraction distraction therapy disuse atrophy diversity Diversity Equity Inclusion DIY SPring cleaning recipe Dizziness DLA DNA robots Doctors dog show Downs Syndrome Dragon Valley Theatre Dr Anthony Chang Dr Clauw dreams dreams and sleep dried plums Dr Jarred Younger Phd drug adherence Drug delivery Drug development Drug policy reform Drug pricing Drug repurposing drugs Drugs and medications DrugStar App drug tessting Dr Weinreb DTx Duchenne Muscular Dystrophy DWP dyslexia dysmenorrheah dyspepsia e-commerce e-pharma EASD Easy recipes Eating disorder recovery Ebola eczema Ed Coghlan EDS EDS-HT EDS-reclassification EDS UK education education-led approaches Educational efpbarca19 efplondon efppatient Ehler's Danlos Syndrome Ehlers-Danlos Society Ehlers-Danlos Syndromes Ehlers Danlos Syndrome Ehlers Danlos Syndrome hypermobility type Ellen bayans Emergency Medicine emerging therapies EMG GOLD EMJ EMJ Diabetes EMJ Gastroenterology EMJ GOLD EMJ Hematology EMJ Innovations EMJ Radiology EMJ reviews EMK Reviews Emma D'arcy Sutcliffe emotional regulation emotions empowerment EMR & HIPAA Enable Injections end-of-summer blues endemetriosis Endocrinology endoscopy Endpoints News end the stigma ENFA England Entrepreneurs Environment EPF Congress 2021 Epilepsy ER ESG essential oil information Essential Oils Europe European medical journal European Patients Forum EURORDIS Evening Post event Event Brochures Event partnerships EVENTS evidence-based Executive Summary Exercise exercise at your desk Exercise hurdles exercises exoskeleton EXP2 protein Expert systems Expert voice Eye conditions /PsA eye floaters eyeforpharma eyeforpharma 2019 Awards family friendly fatigue Fats in the bloods FDA Fear Federated Data Solutions Feedback Feedspot feeling bloated feet Fentanyl Ferring fibre fibro Fibro Awareness Fibro background Fibro Diagnosis Fibro Flare FibroFlutters FibroFlutters 4 FMAUK FibroFlutters Meet Fibro Flutters meet up Fibro Flutters support Fibro Fog Fibro history Fibromites Fibromyalgia Fibromyalgia Action Uk Fibromyalgia awareness FibromyalgiaAwarenessDay Fibromyalgia definition Fibromyalgia Information websites fibromyalgia research Fibromyalgia resources Fibromyalgia support networks fibromyalgia symptoms Fibro News fibrositis Fibro Symptoms Fibro Warrior Fight-Fibro Fight or Flight Find Me A Cure Find your voice Fitbit Fitness Fitness & Nutrition Flare Florence Nightingale Fluffie Fibro-Fighters Fluffmeister Arts Flu shots FMAUK fmauk.org FMCG knowledge FODMAP Fog Fogginess folates Food Food & Recipes Food Allergies food allergy food intolerance Food and drink food intolerance Food Network food sensitivities Food supplement Foot and Toe Problems Forum forum Fossil Gen 5 Founding Five Fraud Syndrome Frederick Wolfe Frederick Wolfe MD FREE FREE App freedom FREE Fundraising Kit free fundraising pack FREE live chat TODAY Free Webinar: Friends and family guide Frontera Frontline Genomics frontline staff Fruit and veg funding Funding opportunities FUNdraising Funny Future generstions future of pharma Gabapentin Gardening gastric health Gastro Gastro / Gut / Bowel gastroenterology gastroparesis gastroparesis (slow gut motility) GDPR gene therapy genetic connective tissue condition genetic disease Geneticist genetics genetics and genomics Genome Technology genomics GERD Geriatrics Gerontology gestational diabetes get involved get moving get together Give feedback Give to charity Global Global Genes Global Health Global PNH Patient Registry global reach Global Registry GlobalSurvey Global Year About Back Pain Gluten Gluten-free GLUTEN-FREE EVENTS GLUTEN-FREE RECIPES Gluten Free GOALS Google gout GOV GPS locator Greetings card grief and anxiety Guest Blog guestr blog Guide guided imagery Guided meditation guide to essential oils Gulf War Syndrome gum disease gut Gut Bacteria gut microbiome gut problems Gynae Gynecology haematology handler with a disability hangover Happiful happiness Happy 5th Birthday Happy holidays Happy Thanksgiving Harvard Symposium Havas Lynx hay fever Hazel Tang HCP's Heaalth Advice Heaalth News Headache Headache treatment - patients head lice Head pain health Health & Social Care health. wealth & social care Health Advice Health Advocacy Health and wellness Health Apps Health Awareness Health care Healthcare Healthcare Dive: IT healthcare executives healthcare industry Healthcare IT Healthcare Managers Healthcare Professionals Healthcare Providers healthCIO health communities health concerns health e-books health education health ergonomics HealtheVoices health inequity Health information health in the workplace health IT Health Literacy health monitoring Health network Health News Health Professionals health recording Health related news health research Health Research Authority health resources health risks of sitting Health screening HEALTH SERVICES health specialist referrals health support groups health tech health tracking Health Unblocked 2018 healthy healthy eating Healthy lifestyle Healthy Living Hearing loss Heart Heart / Lungs Heartburn heart disease Heart Health Heart Matters heart palpatations heart valve surgery heat rash hEDS Heightened senses Helpful Information Helpful leaflet hemiplegic migraine hemorrhoids Hemp Oil HHS Hibernation Hidradentitis Suppurativa Hints and tips hippocampus HIV HIV /AIDS HIV prevention HMS hobbies Holidays Holistic Holly Bertone HOME NEWS Home Office design Horticultural Therapy hospitals HPV laws HSD HSDs Hugh A. Smythe MD Hugh A Smythe Human brain signals Humanising Healthcare humanity Human Pain Research human rights HUMAN RIGHTS & DISABILITY ISSUES Humira hybrid trials hydrotherapy hyperarousal HYPERMOBILITY Hypermobility Spectrum Disorders hypersensitivities hypochondria I am research IASP IBD IBS IBS v IBD ICU If Everyone Cares im-patient Imitrex immediate access Immigration centres Immune system Immunological diseases Immunology IMPACT impact of covid-19 impact of covid19 Impatient Impatient Barcelona imposter in-depth information Inclusivity Increased Pain Sensitivity independence independent living India infectious disease Infectious diseases inflammation inflammation and RA inflammatory informal Information site information sites infrastructure injury law innmovation innovation Integrated Health and Wellness integrative health Intelligence interactive sessions International International Awareness Day International Fibromyalgia Awareness Day Interoperability Advisory series interstitial cystitis In the name of fun invisible illness Ipsen Irish Healthcare irritable bowel syndrome IT It's a Doddle itchy skin JAMA Jeans for Genes Day JHS JNJCares joint and ligaments Join The ME Project Joint Hypermobility Syndrome joint pain joints Julie Ryan just for fun Justice Keeping safe this winter Kessler Foundation Keynote Speaker Knee Replacement knowledge knowledgehub Kris Sterkens Laboratory Lack of order Lara Bloom leadership learning Learning disability Leibster Award lemon and almond cookies library of resources Lidocaine life-changing science life-savers life-science Life sciences lifestyle lifestyle and healthcare life uncertainties Linda Tannenbaum Linked In lockdown Lode De Wulf London low back pain study - animals lower back pain Lung diseases lungs LUPUS LYME Lyme Disease Lyrica Machine-Learning Machine learning Machine learning & AI magazine make-up Make it Public Making the unseen seen malaria medication malaria parasite Male insecurity male pattern baldness Mammography Manchester Uni Manic Map / Fascilitate / Enable /Discover Margaret Aranda Maria Montessori Marijuana market access Marketers marketing Marketing & Innovation Marketing and Customer Innovation Europe 2018 marketing and customer innovation Europe 2019 Marketing Tool market leaders market value Marvel Massage Mast Cell Activation Disease mast cell activation syndrome Matt Hancock Maxalt Maxine Mawhinney May12th MAY 12TH May 12th International Awareness Day Mayo Clinic Mayo Clinic Social Media Network M B Yunus MCAS Webinar MCSMN mditation ME ME/CFS ME Association ME CFS Medcity Invest MedComms Medial Patellofemoral Ligament (MPFL) Reconstruction medicaid medical medical & healthcare industry Medical Advice medical affairs Medical article Medical Device medical devices Medical healthcare medical image interpretation Medical Imaging medical information medical innovation Medical nerws Medical news medical professionals Medical Research Medical Science medication intolerances Medication Overuse medication reminder Medication Reminder App medications Medications /Treatments medication side-effects Medication Study medicine Medicine & health news Medicine and health medicine development Medicine Discovery Medicine Guides MedicineNet Medicines Discovery Catapult Medics4RareDiseases Meditation Mediterranean diet Med tech medtech Memory Foam men's mental health Mens helth mental exhaustion mental health Mental Health Awareness Mental Health Awareness Week mental health forum mental health matters Mentors Merck Merck Manuals meta-analysis Metabolic Disorders Metastatic Breast Cancer Microbiome Migraine Migraine.com migraines mindful drinking mindfulness minority health Misophonia mobile Apps Mobility Montana co-op Mood Mood changes Mood decoding Morning Post Morning Rounds morning stiffness Mosquitos Motability loss Motherhood MOTS Trial mouth health MRI-guided MS MSK and Mental Health Policy Position Paper MSKhub MSK hub MSK SERVICE MSK services MSK services survey MSK survey Muhammad B. Yunus MD multi-channelling Multi-stakeholder platform multi-stakeholders Multidisciplinary Medical Centre multidiscplinary multiple chemical sensitivity multiple chronic conditions Multiple conditions Multiple Sclerosis multi stakeholders MUMPS – The Manchester University Medics’ Muscle Atrophy Muscle cramps Muscle pain Muscle Relaxants muscles muscle spasms Muscle types Musculoskeletal Musculoskeletal related Matters music and mental health Music and pain music therapy muskoskeletal muskoskeletal pain muskuloskeletal myalgiafibrowarrior Myalgic Encephalomyelitis myasthenia gravis My Medical Musings myofascial pain nanodevices nanotechnology Narcissistic Abuse NASS voices National Fibromyalgia Association National Institute for Health and Care Excellence National Pain Report National Pharmacy Association National Psoriasis Foundation natural opioids Nature News Navigator Tool NCCIH NCCIH 20th anniversary NCCIH Research Blog neck pain Nervous Breakdown Nervous System Nervous system disorders Nervous system encoding NETCommunity NETS Networking networking opportunity Networking tool Net Zero Neural Plasticity neuro-inflammation neurochemistry Neuroendocrine Cancer Neurological Diseases Neurological Rehabilitation Therapist Neurology Neuropathic Pain Neuroscience Neuroscience News neurosciences neuroendocrine cancer New Community Newly Diagnosed Newsleter Newsletter newsletters News Medical Next-Gen Technology next meeting Nexus Series Clinical Trials NFA NHLBI NHS NHS 70 NHS choices NHS Confederation nhs data NHS digital NHS England nhs patients nhs professionals nhs staff safety NIAMS NICE NIH NIHR NIHR CRN NINDS noise Nonopioid Analgesics NORD North America Not just for #patients not just patients Novartis Nrem nurses Nursing mothers Nutrition Nutrition Facts Nuzzel News OB-GYN obedience Obstetrics & gynaecology OMF Oncology oncology support One London Onliine resources online library of resources online magazine online parties Online Pharmacy Open Medicine Foundation opinions opiod crisis Opioid Epidemic Opioids Opportunities organ donation OrganDonation Organ Donor Register Organic Foods Organ transplant llist Orphan drug development Osteoarthritis osteoporosis our first dog show overload Overthinking Pacing PAE Pain Pain & Immune system pain addiction Pain Alliance Europe Pain Awareness Month Pain Concern Pain Concern P 106 pain education Pain management Pain Pathways Pain rallies pain research pain scale Pain Summit Pain toolkit Pain Triggers Pakistan PAL wearable system Pamela Jensen Panel discussion Panic paper.li Paper li's Paraesthesia Paramedic Paramedic scientists Parenting parents Parkinsons Partnerships patient & carer story-telling patient-patient registry patient-registry patient access Patient Advocacy patient advocates Patient Care Patient Centred Patientcentric Patientcentricity patient centricity patient champions patient communities patient compliance patient consent patient control patient data patient empowerment Patient Empowerment Network Patient Engagement patient experience patient expert patient experts Patient Focused Medicines Development Patient group patient groups Patient Information Leaflets (PIL) patient involvement patient journey Patient Leader Patient Leaders Patient Led patient led design patient news Patient Organizations patient outcomes Patient Partners Patient Perspective Patient platform Patient platforms patient policy patient portals patient registries Patient Research Ambassadors Patients Patient Safety Patients as partners PatientsAsPartners Patients included Patients In Pharma series. Patients involved Patients Like Me Patient solution PatientSummit Patient Summit patient support patient voice PatientVoice Patient Week Patint news - heart health Paul Simms Paul Tunnah payers PCORI Pediatric Anxiety Disorders pediatric skin conditions Pedriatrics peer-reviewed Peer Comparison Feedback Peer to Peer PEMF therapy Penicillin Allergy Penn Medicine PENSIONS AND BENEFITS perinatal and infant mental health Period problems personal Personal Assistance personalised health personalised medicine personalized healthcare Person Before Patient Pes Cavus Petition petitions pfizer PFMD pharma Pharma / Science / Tech / Digital / AI Pharma Advocacy Pharmaceutical pharmaceutical Industry pharmacology Pharmafile Pharmafocus Pharmageek pharma intelligence pharma marketing pharma news pharmanews Pharma sales pharma strategy pharma summit Pharma Trends pharma value-chain phone Apps Photophobia physical health physicians Physio physiotherapy Pigmented Villonodular Synovitis pillsample Pink Fortitude PIP PIP benefit PKU Planning ahead Plantar Fasciitis platforming Pneumonia Podcast Podcasting in Medicine Policies policy Policy & Regulation policy analysis poll polls polymyalgia poodle population health Positive thinking positivity postural orthostatic tachycardia syndrome posture Posture clothing Power Of Peseverence PPIE PRAI Pre-diabetes precision medicine Precision Medicine Forum Preclinical Pregnancy Pregnancy / Obstetrics Pregnancy and sleep pregnancy tips Prescribing Presentation skills Presenting Preventative Measures prevention Primary Care Primary care conference Primary Care Rheumatology Society Conference 2018 Privacy Privacy Policy private healthcare procedural subspecialties. productivity Product Review professional advisors Professionals proton pump inhibitors (PPI) PsA PsA screening toolkit Psoriasis Psoriatic Arthritis Psorisis / Eczema Psych Central psychiatric illness psychiatry psychiatry advisor psychology Psychosocial Impact Psychotic PTSD publication public health Public Health England public health events Public Involvement Public Speaking pulmonary fibrosis pulmonology Quarterly Quarterly meet quitting smoking Quiz R&D R&D Review RA Radiologists Radiology Radiopharma raise awareness raising awareness rally obedience Ranch Dressing Rare Rare6thVertebrae Rare and Genetic Disease Network RareCare rare disease Rare Disease Advocacy Rare disease awareness rare disease day rarediseaseday.org Rare Disease Day 2020 Rare disease event rare diseases rare drug development rare genetic disorder Rare illness Rare is Many Rare is Strong Rare is Proud RareMagazine Rare Musculoskeletal Diseases Rare Revolution Magazine Rare Revolution Magazine issue 6 rare skin conditions RCGP Secure Environments RCN rdsummit2018 real world real world evidence recipe Recipes recovering sex addict rectocele reflexology Reflux regeneration Register Now Regulations and Compliance Relapsing Polychondritis relax relaxation Relaxation Technique remote consulting remote patient monitoring Reputation reputation building Research Research Advocacy Research Centre Research news research opportunity Research surveys research symposium Research Transparency Survey resources Respect Respiratory Diseases Restless Legs - RLS Reuters Events Reviews Rheumatic Rheumatic Disease Rheumatoid arthritis Rheumatological Society Rheumatology risks to heart health RLS RMD Robotics Roche Rock off Fibro Ron Davis Ronny Allan NETS rosacea Roundtables Royal Society of Medicine Ruth Wilson RWD RWE Salads Salford Uni Samarathon Samaritans Samsung Sanofi Sano Genetics Sarcoma UK Savvy Scalp Psoriasis schizophrenia stidy school bullying Sciatica Science Science-X Science Daily Science news science x Scoliosis sdoh security Self-care self-criticism self-doubt Self-Help self-hypnosis self-improvement self-management self-sabotage selfcare self care tips self help tips selfie Sensitive sepsis care service design service dog Setback Sexism Sexual health checks shared knowledge shared records share your rare shout it loud show your stripes Siemens Healthineers Simon Denegri simple weightlifting moves Simply Symptoms SIP sitting Sjogrens Skeletal muscle Skin Skincare skin care Skin Disease Skin Health Skin problems skull and the brain sleep Sleep aids sleep and pain sleep disorder Sleep Disorders sleep health sleep problems sleep show slipped discs SMA small cell lung cancer Small Vessel Disease SMART Smart brain foods smart data Smartphone apps Smooth muscle Smythe & Moldovsky social anxieties Social Anxiety Social Care social determinants of health social media Social media health community social media marketing Social Media Network social media networking social media networks social media strategies social metrics Social Purpose Social research Societal Impact of Pain Sociodemographic Soft sensors solution providers SoMe SoMe Platform SOMNEX sound stimulation sound therapy South Tees CGG spasms Speakers Trust Speaking Special Diet sphincter of Oddi dysfunction (SOD). Spina Bifida Occulta spinach spinal cord injury spinal surgery Sponsored Post Sponsored posts spoonie Spoonie Talk SSRIs Stakeholder approaches stakeholders standard poodle standards Stanford Start-ups starting point STAT Statins statistics Stelara Stem Cell treatment Stevens-Johnson syndrome (SJS) stigma & antidepressants stigmatized Stomach Acid story telling strategic needs assessment Strategy Stress Stress response study stroke Stronger Together Struggle Strut Your Stripes Sue Brown ARMA CEO sugary drinks Suicidal Thoughts Suicide Suicide Prevention Sumatriptan Summer activities Summer fun Summer Fundraising summer rashes Sun damaged Skin Sunderland Mind sunderlandmind.co.uk Sunderland Mind Centre Superheroes On Vacation Support Group support groups support network Support networks Support System surgery Surveys Survival survivor Sustainability Transition sweet potatoes symposium Syndromes Systemic Disease Tai-Chi Taste of Home Tax credits Team Team approach tech news technological innovation Technology Teeth and health telehealth telemedicine Telomeres Temperature sensitive Tender-Point-test Testicular cancer Thankyou THC levels THC oil theatre The Best UK Chronic Illness Blogs The British Society for Rheumatology The Celiac Scene The Ehlers-Danlos Support UK The Future Of Rare Diseases The Im-patient Conference The ME Association The Mighty The Moment The NHS Long-Term Plan The Opioid Crisis The Patient Registry Therapeutic Areas Therapeutic Value Therapies There is Always Hope The Sales Rep thought-leaders threadworms Tibial Tubercle Transfer (TTT) tick Time To Talk Tinnitus Tinnitus Hub Tinnitus Research Initiative tissue regeneration TMJ Toolkit Tools and resources topamax Top Ten UK Chronic Illness Blogs List toxic epidermal necrolysis (TEN) TpT TpT test Training Transformational changes Transgender pathways transparency Trauma Trauma informed care traumatic experiences tray baked fish Treatment treatment options treatments Treatments & Therapies Trial trial design Trial recruitment Trigeminal Neuralgia Triggers Triptans Trust Trusted Medical Resource Twitter Twitter Chat UAE Nursing Society UK Care Guide Uk Fibromyalgia UK health Ulcerative Colitis Ulna nerve entrapment Ultra Rare Disease ultrasound Understanding Diabetes test strips undetermined USA Useful user-centered US pharma Valuable Collaborations value based care Vascular Vegan vegetarian Versus Arthritis Vertigo video-cast virtual virtual event VIRTUAL PUBLIC GENOMICS CAFÉ Virtual Public Genomics Café Visual guides Visual imagery vitamin A vitamin c Volunteer vulvodynia Wales Gene Park Wales Health Wales healthcare walking App wearables wearable tech Webinar webinar recording available webinars Web MD WEGO WEGO Award winner WEGO HEALTH Wego Health Awards 2018 weight gain Wellbeing in the city Wellcome Genome Campus Conference Wellness Welsh health and social care We support them Wheat free WHEELCHAIR wheelchair user When Patients Take Control white paper whitepapers Why CX Starts In Sales why we do research win-win Windrush Wolfram Syndrome Wolfram Syndrome UK Women in Prison womens health WordPress workforce management Working from home Workshop World Arthritis Day World Fibromyalgia Day WorldFibromyalgiaDay2018 World Health Organisation World Mental Health Day World Orphan Drug Congress USA World Osteoporosis Day World Paediatric Bone & Joint Day World Spine Day Worldwide worm education X-ray-guided Young offenders institutions Youths ZebraStrutters Zebra Strutters Zomig ‘The Chronically Hopeful Award’

FibroFlutters Patient Advocacy Organisation | Chronic Illness & Rare Disease Network

Patient, Health, Research, Medical, Clinical, Digital Health and Pharma news, information, communications, advice, reviews and resources

Fun Pic – I love my pillow…

Like this:

Leave a Reply Cancel reply