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Hello and thank you for visiting our website, FibroFlutters is a 'Patient-Led' Non-profit Community based Patient organisation that is ran by 'unpaid' Patient Volunteers. * We raise awareness, share health communications to educate people about varying chronic illnesses. * Provide resources for patients & professionals alike. * We strive to be patient / health /research /pharma advocates to help create better outcomes for patients whilst promoting patient/person centred multi-disciplinary approaches to medical healthcare. * If you like the work that we do? Please help to support us. * All donations will be graciously received. Carole ~ CEO / Co-Founder on behalf of all patient volunteers at FibroFlutters

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The #chronicillnessVOICE DailyRead our daily news – for #patients #health #medical #pharma #research related newsletter for everyone #notjustpatients’

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EDS, JHS, Hypermobility & HSD’s News and info

Ehler's Danlos Support Uk EDS UK was set up in 1987 to support, advise & inform those living with the Ehlers-Danlos syndromes. 25+ years later, they remain the only UK based charity that exclusively represents & supports EDS.
Home Page: Pain News Network non-profit online news service
How to Explain Your Pain to a Doctor by Dr. Michael J. Cooney, D.C. How to Explain Your Pain to a Doctor by Dr. Michael J. Cooney, D.C.
Autonomic Dysfunction Sheet (PoTS) for people with EDS – HT / (h)EDS | Ehlers Danlos Support UK Autonomic Dysfunction Sheet (PoTS) for people with EDS – HT / (h)EDS | Ehlers Danlos Support UK
The Ehlers=Danlos Society Charity and place for EDS and HMS info and support

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eyeforpharma patient policy eyeforpharma: Patient Policy By Paul Simms, Chairman, eyeforpharma. Updated August 2017
Pharmaphorum Pharma news and events – Home page
eyeforpharma ~ Home page

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ME / CFS Awareness poster for May 12th 2017

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Don’t ever let anyone dull your sparkle

$The Liebster Award: The Official Rules + My First Blog Award and a Few Personal Secrets Revealed - May 2, 2013 \ Lorraine > Last Updated on: December 7th, 2017$

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Fight or Flight?

Calendar of posts

May 2021
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Creamy Coleslaw Recipe May 13, 2021
Creamy Coleslaw Recipe Make this creamy coleslaw recipe for your next potluck, picnic, or backyard bbq. Made with a crisp coleslaw mix and a sweet yet tangy homemade dressing, this classic coleslaw hits the spot! Why You’ll Love This Recipe Coleslaw can elicit some serious love or hate feelings in a lot of people. When […]
Brown Eyed Baker by Michelle
Mediterranean Hummus Bowl May 13, 2021
Do you like hummus? We have a bowl of that deliciousness almost always in the fridge – whether it’s some hummus from the store or homemade hummus like the one I used for this Mediterranean Hummus Bowl. Hummus is simply delicious and can be used in so many recipes – simply as a dip for […]
Bake to the roots
COVID-19 and the Brain May 13, 2021
Brain fog can persist for months after COVID-19 and significantly affects survivors’ everyday functioning. Here are some practical tips about how to find help.
Psychology Today | Neuroscience
Largest Genome Study of Anxiety to Date May 13, 2021
New risk variants and possible biological mechanisms.
Psychology Today | Neuroscience
3 Ways Workers Are Fueling Their Resilience Despite COVID-19 May 13, 2021
Despite economic, political, racial, and health disruptions, workers have found ways to individually and collectively care for their wellbeing. Their strategies could help manage ongoing challenges related to COVID-19.
Psychology Today | Neuroscience
The Bear of Truth and Love May 13, 2021
Our future can be written in dreams.
Psychology Today | Neuroscience
Hacking the Brain's Negative Bias May 13, 2021
The brain tends to focus on the negative for survival reasons, but a few relatively effortless strategies can retrain it to be more positive.
Psychology Today | Neuroscience
How to Tell If People Are Paying Attention on Zoom May 13, 2021
We’ve all been there: you’re on a long Zoom meeting with several other people, and your attention starts to wander.
Psychology Today | Neuroscience
Homeostatic Consciousness: A New Approach to an Old Problem? May 13, 2021
Can we explain consciousness through the metabolic and biological process of emotional homeostasis?
Psychology Today | Neuroscience
Can AI Explain How Simple Organisms Make Decisions? May 13, 2021
Physicists use AI machine learning to model model how simple, single-celled organisms move and navigate without a brain or nervous system.
Psychology Today | Neuroscience

Review eligibility of Paramedic Science students for the NHS Learning Support Fund

NIHR – Clinical research is everyone’s future

Chronic Illness Bloggers

Do you blog about Chronic Illness why not click the pic to come and join us

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Medical news stories / blog posts / research / pharma /science

Medical news stories, blogs and research
Fibroflutters #SocialMedia #healthadvocacy and #allstakeholder approach to #healthcare, across the globe – Peeking at the statistics!
Welcome to the Samaritans Monthly Newsletter | Samaritans | June 2019
New data-led NHS safety strategy lets patients log concerns | Owen Hughes | Digital Health | 8 July 2019
New edition of Airing Pain | Pain Concern | 2 July 2019
For a healthier heart read NHLBI Deliciously Healthy Eating Recipes
Fibromyalgia – Musculoskeletal and Connective Tissue Disorders – Merck Manual Professional Edition
A – Z of Clinical Research – Making Research Better | NIHR
Autonomic Dysfunction Sheet (PoTS) for people with EDS – HT / (h)EDS | Ehlers Danlos Support UK
Patient | Causes and treatments of Irritable Bowel Syndrome (IBS) – video | Dr Sarah Jarvis
British Heart Foundation | Keep hearts beating and blood flowing | 13 June 2018
Muscle Cramps (Charley Horse) and Muscle Spasms |By John A. Daller, MD
Barriers to Patient-Centered Research Aired at Harvard Symposium | EMR & HIPAA | Andy Oram | 2 July 2018
Accepting ‘Chronic Illness’ (Updated Post) | Carole Scrafton
Article – Muscle Atrophy Symptoms Causes-and Treatments. | Healthguidance.org | Poignancy regarding #chronicillness & the wastage in my left leg.
Joint Hypermobility and Fibromyalgia | Is there a connection? | Carole Scrafton
(EDS UK) Ehlers Danlos UK – Fibromyalgia and CF (Chronic fatigue) by Dr Alan Hakim, MA FRCP
Article from HMSA – Anaesthetic and JHS / EDS – Posted By Alan Hakim, June 29, 2013
How does our brain process fear? Study investigates | Medical News Today
Product Review | Nrem Sleep System | Sponsored Post
#NeuroendocrineCancer #NETS RonnyAllan.NET – Community Newsletter Covering August 2018 #PatientAdvocacy
#PAM2018 #Arthritis #Toolkit #TeamApproach #HealthCare The Arthritis Foundation | Managing Health Care With Arthritis | 10 September 2018
Scope Blog Post | “We all want to be a part of society don’t we?” Addressing loneliness in disabled people
Article from Arthritis-health: How Chronic Pain May Sap Your Motivation
How Neglecting Minorities in Medical Research Has Led to Deadly Outcomes | Brian Clark | CEO of (Human Data Project) HDP Health
Why ADHD Can Look Like Depression | By Neil Petersen | psychcentral.com
Migraine Again | Why Painful Light Sensitivity Affects Many with Migraines
Study suggests small cell lung cancer should not be treated as single disease | Cancer Research
A discovery that could alter the whole way that disorders such as Multiple Sclerosis, Autism & Alzeimers are looked at : ‘Landmark discovery’ of vessels connecting brain to immune system – Medical News Today
30 years after Prozac arrived, we still buy the lie that chemical imbalances cause depression | Olivia Goldhill | Quartz
Article from Fibromyalgia News Today (FNT) – Skin of Fibromyalgia Patients Could Provide Disease Clues
5 Ways to Decrease the Health Risks of Sitting | Jaime A. Heidel | June 27, 2016
The most underrated scientific breakthroughs of 2017 | Quartz
8 Tips for Patients Newly Diagnosed with Ehlers-Danlos | Shared via painnewsnetwork.org (2015) | Ellen Lennox Smith
The Importance of Stomach Acid: Why Antacids Could Make You Sick | Hormones Matter
Brain Fog clouding your view of Multiple Sclerosis a cognitive impairment
Article from MigraineAgain: Aching Body, Aching Head: Understanding Migraine and Fibromyalgia
Article: Diagnosing Depression in People with Chronic Pain – Arthritis Health
Pain: Hope Through Research: National Institute of Neurological Disorders and Stroke (NINDS)
Articles from Pro Health: 1- It’s Not All in Your Head – It’s in Your Hands! & 2: Fibromyalgia Research update
Fibromyalgia now considered as a lifelong central nervous system (CNS) disorder
#PAM2018 | What Happens Up Stream Comes Down Stream: The Cause and Effect of the Mental and Physical Connection | Treasures On The Sand | 24 September 2018
#PAM2018 #Arthritis #Toolkit #TeamApproach #HealthCare The Arthritis Foundation | Managing Health Care With Arthritis | 10 September 2018
#NeuroendocrineCancer #NETS RonnyAllan.NET – Community Newsletter Covering August 2018 #PatientAdvocacy
A few FREE Health apps & e-books
A selection of posts from around the National Institutes of Health (NIH) Family
Article -Huffington Post: Here’s How To Stop A Migraine Before It Destroys Your Whole Day
Article: Joint hypermobility: emerging disease or illness behaviour? – Journal of the Royal College of Physicians
Central nervous system and Sympathetic Skin Response
Central Sensitivity Syndromes – Difficult to Classify
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A picture for using your imagination to take you on a peaceful journey

A thoughtful walk or a fantastical adventure with fairies and pixies, or knights on white horses!? wherever your mind takes you.

Who would you like to sit and chat with?

aving a tough time, can’t figure things out? Here’s a pretty place for self reflection

Go on take a seat, sit back let yourself relax and close your eyes, and absorb the nature around you What can you hear? What can you smell?

An eye into the unknown

Fantasy land

… forget about the world and spend some time on yourself

What will you find if you wander through the gate

Guide yourself down the path to the…?

A place of serenity by the pool

Listen to the sounds of the water rushing and feel its energy as is flows and you breathe

StillnessSpeaks.com

Feel the stillness and breathe long and deep

A scented garden to take your mind on a soothing aromatic journey.

An image to guide your mind to anywhere whilst laying on the beach

Great place for sound imagery, hear the watery echoes

MAY 12TH Awareness Day

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International Fibromyalgia AWARENESS DAY 2015 Poster – International Fibromyalgia AWARENESS DAY 2015

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