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Ehlers-Danlos Syndrome Overview Connective Tissue Disorder by Carol Eustice Ehlers-Danlos Syndrome Overview Connective Tissue Disorder By Carol Eustice | verywell.com
The Ehlers=Danlos Society Charity and place for EDS and HMS info and support
How to Explain Your Pain to a Doctor by Dr. Michael J. Cooney, D.C. How to Explain Your Pain to a Doctor by Dr. Michael J. Cooney, D.C.
8 Tips for Patients Newly Diagnosed with Ehlers-Danlos Article By Ellen Lenox Smith, Columnist – PainNewsNetwork 2015
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$The Liebster Award: The Official Rules + My First Blog Award and a Few Personal Secrets Revealed - May 2, 2013 \ Lorraine > Last Updated on: December 7th, 2017$

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Hello and thank you for visiting our website, FibroFlutters is a 'Patient-Led' Non-profit Community based Patient organisation that is ran by 'unpaid' Patient Volunteers. * We raise awareness, share health communications to educate people about varying chronic illnesses. * Provide resources for patients & professionals alike. * We strive to be patient / health /research /pharma advocates to help create better outcomes for patients whilst promoting patient/person centred multi-disciplinary approaches to medical healthcare. * If you like the work that we do? Please help to support us. * All donations will be graciously received. Carole ~ CEO / Co-Founder on behalf of all patient volunteers at FibroFlutters

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Caramel Mocha Nutella Brownies. October 26, 2021
Caramel Mocha Nutella Brownies. Sweet, salty Caramel Mocha Nutella Brownies. Homemade fudgy, crinkly espresso brownies, baked, then layered with sweet Nutella and chunks of homemade salted caramel candies. Every last bite of these indulgent brownies is melt in your mouth delicious. Eat them warm and gooey, or let them cool and package them up for […]
Half Baked Harvest by Tieghan.
Mini Vanilla Flans October 26, 2021
These Mini Vanilla Flans are creamy vanilla custards coated with homemade caramel. It’s a luscious dessert for your next fiesta! These are a delicious way to end a Tex-Mex, Spanish, or Cinco de Mayo-themed meal! Everyone loves having their own dessert, especially when it’s an Easy Flan Recipe!! (more…) The post Mini Vanilla Flans appeared […]
That Skinny Chick Can Bake - Where recipe magic happens...
Smart Like a Spider? October 26, 2021
Outsmarted. By a spider. Forget spidey sense, spidey sense may or may not be real, but spidey smarts is definitely a thing. A bad, scary, frustrating thing. But then I guess it is October, after all. Let me start by saying that the family who built this house did a few […]
Baking in a Tornado
Pumpkin French Toast October 26, 2021
An easy recipe with only 6 ingredients, this Pumpkin French Toast is the perfect, flavorful, autumn breakfast recipe! A TASTY PUMPKIN BREAKFAST They used to say that breakfast is the most important part of the day and I highly agree with that! You will never find me skipping breakfast! Whether it be savory or sweet,... […]
The Country Cook
Chocolate Chip Cake October 26, 2021
This Chocolate Chip Cake recipe proves that you don’t need countless tiers and elaborate fillings to make a crowd-pleasing cake. Simple and unfussy, with a perfect chip-to-cake ratio, this classic cake is one you’ll want to make again and again. Classic Chocolate Chip Cake If you go to any fancy bakery these days, you’re likely […]
Bake or Break by Jennifer Mchenry
IT’S OFFICIAL – PEOPLE IN PAIN CAN BENEFIT FROM OWNING A PET… October 26, 2021
I have written before on the benefit of owning a dog for your health. I miss my poodle every day but I am still holding back from getting another one as I keep thinking of how often we just pop away for a day or a weekend now. It is difficult to make a big […]
Back Pain Blog UK
some recent baguette attempts October 26, 2021
some recent baguette attempts Submitted by technically_bread on October 26, 2021 - 5:08am. I’ve got a backlog of breads I’ve been making, so I’m going to start from the most recent and maybe work my way back a bit. … I love baguettes / French bread but I’ve never made them consistently – I […]
The Fresh Loaf
10 Clever Ways to Stop Ideation Bullies from Hogging Your Brainstorming Sessions October 26, 2021
GUEST POST from Howard Tiersky Whether you’re responsible for digital transformation or just trying to improve a product, process or marketing program, coming up with ideas is almost always an important part of success. And one way you can create …
Innovation Excellence
Pumpkin Neapolitan Cookies October 26, 2021
These pumpkin Neapolitan cookies have three different flavors in one cookie: vanilla, pumpkin spice, and chocolate! Despite their striking appearance, the cookies come together easily. Why? The cookies are made with one chewy, buttery, pumpkin sugar cookie base! Michelle wrote the post Pumpkin Neapolitan Cookies on Hummingbird High.
hummingbird high | A desserts and baking blog
What You Need to Know About Low-Energy Food Swaps October 26, 2021
You don’t have to look very hard to see the ‘clean eating’ message all over social media and the internet. While I believe the intention of this movement isn’t to create harm, it is problematic in so many more ways that people understand. Click play to listen right on this page, no app needed: Or, […]
Stupid Easy Paleo

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Medical news stories / blog posts / research / pharma /science

Medical news stories, blogs and research
For a healthier heart read NHLBI Deliciously Healthy Eating Recipes
Autonomic Dysfunction Sheet (PoTS) for people with EDS – HT / (h)EDS | Ehlers Danlos Support UK
Irritable bowel syndrome (IBS) what is it? – video | Patient | Dr Sarah Jarvis
British Heart Foundation | Keep hearts beating and blood flowing | 13 June 2018
Muscle Cramps (Charley Horse) and Muscle Spasms |By John A. Daller, MD
Barriers to Patient-Centered Research Aired at Harvard Symposium | EMR & HIPAA | Andy Oram | 2 July 2018
Accepting ‘Chronic Illness’ (Updated Post) | Carole Scrafton
Article – Muscle Atrophy Symptoms Causes-and Treatments. | Healthguidance.org | Poignancy regarding #chronicillness & the wastage in my left leg.
(EDS UK) Ehlers Danlos UK – Fibromyalgia and CF (Chronic fatigue) by Dr Alan Hakim, MA FRCP
Article from HMSA – Anaesthetic and JHS / EDS – Posted By Alan Hakim, June 29, 2013
How does our brain process fear? Study investigates | Medical News Today
Why ADHD Can Look Like Depression | By Neil Petersen | psychcentral.com
Product Review | Nrem Sleep System | Sponsored Post
Article from Arthritis-health: How Chronic Pain May Sap Your Motivation
Scope Blog Post | “We all want to be a part of society don’t we?” Addressing loneliness in disabled people
How Neglecting Minorities in Medical Research Has Led to Deadly Outcomes | Brian Clark | CEO of (Human Data Project) HDP Health
Migraine Again | Why Painful Light Sensitivity Affects Many with Migraines
Study suggests small cell lung cancer should not be treated as single disease | Cancer Research
The Importance of Stomach Acid: Why Antacids Could Make You Sick | Hormones Matter
Brain Fog clouding your view of Multiple Sclerosis a cognitive impairment
Article: Diagnosing Depression in People with Chronic Pain – Arthritis Health
Pain: Hope Through Research: National Institute of Neurological Disorders and Stroke (NINDS)
A selection of posts from around the National Institutes of Health (NIH) Family
Article: Joint hypermobility: emerging disease or illness behaviour? – Journal of the Royal College of Physicians
Article -Huffington Post: Here’s How To Stop A Migraine Before It Destroys Your Whole Day
Central nervous system and Sympathetic Skin Response
Central Sensitivity Syndromes – Difficult to Classify
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A thoughtful walk or a fantastical adventure with fairies and pixies, or knights on white horses!? wherever your mind takes you.

Guide yourself down the path to the…?

Go on take a seat, sit back let yourself relax and close your eyes, and absorb the nature around you What can you hear? What can you smell?

… forget about the world and spend some time on yourself

aving a tough time, can’t figure things out? Here’s a pretty place for self reflection

Listen to the sounds of the water rushing and feel its energy as is flows and you breathe

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Feel the stillness and breathe long and deep

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PLEASE NOTE: That here at fibroflutters.com we are not medical professionals just fellow chronic illness warriors sharing information.

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