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EDS, JHS, Hypermobility & HSD’s News and info

How to Explain Your Pain to a Doctor by Dr. Michael J. Cooney, D.C. How to Explain Your Pain to a Doctor by Dr. Michael J. Cooney, D.C.
Autonomic Dysfunction Sheet (PoTS) for people with EDS – HT / (h)EDS | Ehlers Danlos Support UK Autonomic Dysfunction Sheet (PoTS) for people with EDS – HT / (h)EDS | Ehlers Danlos Support UK
HMSA – Hypermobility Syndromes Association A Charity and place for EDS JHS HMS/HSDs and other connective tissue disorders
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ME / CFS Awareness poster for May 12th 2017

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Don’t ever let anyone dull your sparkle

$The Liebster Award: The Official Rules + My First Blog Award and a Few Personal Secrets Revealed - May 2, 2013 \ Lorraine > Last Updated on: December 7th, 2017$

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Fight or Flight?

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May 2022
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Hello and thank you for visiting our website, FibroFlutters is a 'Patient-Led' Non-profit Community based Patient organisation that is ran by 'unpaid' Patient Volunteers. * We raise awareness, share health communications to educate people about varying chronic illnesses. * Provide resources for patients & professionals alike. * We strive to be patient / health /research /pharma advocates to help create better outcomes for patients whilst promoting patient/person centred multi-disciplinary approaches to medical healthcare. * If you like the work that we do? Please help to support us. * All donations will be graciously received. Carole ~ CEO / Co-Founder on behalf of all patient volunteers at FibroFlutters

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May is #ehlersdanlossyndrome and #HypermobilitySpectrumDisorder awareness month

FibroFlutters has developed again and going through rebranding after becoming a registered non-profit.

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Let It Be Sunday, 373! May 22, 2022
This week I’ve been thinking about how easy it is to fill a house. When I first moved into my Bywater house, six years ago now – I marveled at the fact that I was one person sleeping in a house with TWO beds (baby’s first guest room and I’m baby). I splurged..
Joy the Baker
Perfectly Chewy Peanut Butter Cookies May 22, 2022
In between finishing my manuscript and photos for my next cookbook, I’ve made several batches of these amazing peanut butter cookies from Snackable Bakes, the new cookbook from Jessie Sheehan. Jessie’s cookies are perfectly peanut buttery, with crisp edges an..
The Vanilla Bean Blog
HBH Meal Plan: 5.22 May 21, 2022
HBH Meal Plan: 5.22 New Recipes This Week!These fresh new recipes are perfect for special family dinners or quick on-the-go meals! READ: HBH Meal Plan: 5.22 ..
Half Baked Harvest by Tieghan.
strawberry lemon sheet cake May 21, 2022
This party-ready strawberry lemon sheet cake is perfectly fluffy and delicious! Topped with swirls of whipped strawberry frosting, fresh strawberries, and lemon slices, this easy sheet cake is ideal for a birthday, picnic, or gathering. Bursting with the flavo..
Tutti Dolci
Join the Zoom! Lupus Health Management App from KnowYourMeds. Find out More on Monday! May 21, 2022
Mark your calendars! Join me on zoom on Monday, July 23rd at 12p EST to learn about the brand new KnowYourMeds lupus health app that just launched. It's an all-in-one tool to manage every aspect of your chronic illness. It's like tracking with my chronic c..
Despite Lupus
Saturday Stories: Kid Myths, Monkeypox, and Healthcare May 21, 2022
Mark Kline, in The Advocate, on kids’ COVID myths. Ed Yong, in The Atlantic, on Monkeypox. Ed Yong, in The Atlantic, on healthcare’s devastation. Related Stories Saturday Stories: Correlations, Trolling, And School Ventilation Saturday Stories: Not Over..
Weighty Matters
Red, White and Blue Cupcakes May 21, 2022
A delicious patriotic dessert, these Red, White and Blue Cupcakes are fun, flavorful and super easy to bake up! A TASTY PATRIOTIC CUPCAKE These Red, White and Blue Cupcakes are a fun patriotic dessert that you can make for Memorial Day or the 4th of July! It ..
The Country Cook
Exploring the Social Determinants of Mental Health May 21, 2022
A look at the theme for the 2022 American Psychiatric Association Annual Meeting.
Psychiatric Times
Saltine Brownie Ice Cream Sandwiches May 21, 2022
The post Saltine Brownie Ice Cream Sandwiches appeared first on Cookie Madness. Original Author is Anna. I first saw this recipe in a Food52 cookbook and couldn’t get it out of my mind. I trust Food52, but Saltine Brownie Ice Cream Sandwiches? How would that e..
Cookie Madness - Keeping Life Sweet One Cookie at a Time
Big Data for Psychosis Prediction May 21, 2022
The Accelerating Medicines Partnership in Schizophrenia aims to develop better treatments for the early stages of psychotic illness.
Psychiatric Times

NIHR – Clinical research is everyone’s future

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May is #ehlersdanlossyndrome and #HypermobilitySpectrumDisorder awareness month

FibroFlutters has developed again and going through rebranding after becoming a registered non-profit.

Another one!

Picture Gallery

A thoughtful walk or a fantastical adventure with fairies and pixies, or knights on white horses!? wherever your mind takes you.

A scented garden to take your mind on a soothing aromatic journey.

A picture for using your imagination to take you on a peaceful journey

What will you find if you wander through the gate

An eye into the unknown

An image to guide your mind to anywhere whilst laying on the beach

Who would you like to sit and chat with?

Guide yourself down the path to the…?

Go on take a seat, sit back let yourself relax and close your eyes, and absorb the nature around you What can you hear? What can you smell?

Great place for sound imagery, hear the watery echoes

A place of serenity by the pool

Feel the stillness and breathe long and deep

Fantasy land

… forget about the world and spend some time on yourself

Listen to the sounds of the water rushing and feel its energy as is flows and you breathe

aving a tough time, can’t figure things out? Here’s a pretty place for self reflection

StillnessSpeaks.com

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PLEASE NOTE: That here at fibroflutters.com we are not medical professionals just fellow chronic illness warriors sharing information.

Any information read or shared on, to or from this blog site should not override any advice given to you by your own Doctors.

PLEASE NOTE THAT THIS SITE USES GOOGLE ANALYTICS TO COLLECT DEMOGRAPHIC INFORMATION FOR INFORMATION AND CONTENT DECISION MAKING PURPOSES ONLY AND NOT TO SELL TO 3RD PARTIES. PLEASE:

Do not take any work, articles or pages to be your own, including those from third partie, or any external partie links, and always accredit the appropriate authors accordingly.

Always speak to your GP first before stopping, changing or trying new medications or treatments, FibroFlutters will not claim resposibility for any loss or damage from third parties/third partie links, or any external parties..

Always be aware of Internet security and note that we cannot be held responsible for external websites.

Remember that buying products such as 'cure-claiming' remedies on-line can be a risky business and again FibroFlutters will not claim responsibility for any loss or damage from third parties/third partie links or any external parties.

MANY THANKS in advance for your understanding - from the administrator - fibrofly73

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