Categories
Academics Ataxia Autoimmune cancer chronic illness chronic pain clinicians conference EDS EVENTS FibroFlutters Gastro / Gut / Bowel Geneticists Health and medical Healthcare invisible illness Media Media Partners medical Medical Conditions / Disorders Medical news stories, blogs and research Medical specialists / consultants Patient Advocacy Patient Engagement Patients Precision Medicine Professionals Rare rare genetic disorder Researchers Respiratory Rheumatology Sites to visit Supporters / Ambassadors Twitter

PROUD PARTNERS – Precision Medicine Forum PATIENT WEEK

Patient Week convenes healthcare professionals, researchers, industry, payers and patients/patient advocates in a unique setting which puts the patient front and centre of the discussions. This time around there will be panels sessions, roundtables, 1-2-1 networking and group networking sessions.

Categories
Medical news stories, blogs and research

#chronicillnessVOICE June 14 health, medical, pharma and research news

Bringing a varied selection of health news, medical news, pharma news, research news to you in relation to many aspects within the healthcare, medical healthcare & pharmaceutical landscapes.

Categories
Articles Awareness campaigns, events, blogs, petitions & posters Charities chronic illness EVENTS Health and medical medical Medical Conditions / Disorders Medical news stories Medical news stories, blogs and research Newsletters/Papers/Magazines/Blogs Patient Advocacy Patients Pharma / Science / Tech / Digital / AI Professionals Sites to visit

#chronicillnessVOICE June 1 health, medical, pharma and research news

Bringing a varied selection of health news, medical news, pharma news, research news to you in relation to many aspects within the healthcare, medical healthcare & pharmaceutical landscapes.

Categories
AI in medicine Alternative / Complementary Therapies & Treatments Articles Awareness campaigns, events, blogs, petitions & posters Bi-polar Biotechnology Blogs / Bloggers Cell & Microbiology Charities chronic illness chronic pain Diabetes Digital Health Drug development EDS EDS news and info Endocrinology Epilepsy EVENTS Fibromyalgia genomics Global resources Health and medical Heart Health HYPERMOBILITY Hypermobility Spectrum Disorders Machine learning medical Medical Conditions / Disorders Medical Device Medical news stories Medical news stories, blogs and research migraines Molecular & Computational biology Musculoskeletal Neuroscience Newsletters/Papers/Magazines/Blogs Patient Advocacy Patients Pharma / Science / Tech / Digital / AI physiotherapy Professionals public health Rare Research Sites to visit Therapies and Treatments Video Webinar

#chronicillnessVOICE May 20 health, medical, pharma and research news

Bringing a varied selection of health news, medical news, pharma news, research news to you in relation to many aspects within the healthcare, medical healthcare & pharmaceutical landscapes.

Categories
AI in medicine Alternative / Complementary Therapies & Treatments Articles Awareness campaigns, events, blogs, petitions & posters Bi-polar Blogs / Bloggers Charities chronic illness chronic pain Dementia / Alzheimers Digital Health Drug development EDS EDS news and info EVENTS Fibromyalgia genomics Global resources Health and medical Heart Health HYPERMOBILITY Hypermobility Spectrum Disorders Medical Conditions / Disorders Medical Device Medical news stories Medical news stories, blogs and research migraines Musculoskeletal Neuroscience Newsletters/Papers/Magazines/Blogs Patients Pharma / Science / Tech / Digital / AI physiotherapy Professionals public health Rare Research Sites to visit Therapies and Treatments Video Webinar

#chronicillnessVOICE May 19 health, medical, pharma and research news

Bringing a varied selection of health news, medical news, pharma news, research news to you in relation to many aspects within the healthcare, medical healthcare & pharmaceutical landscapes.

Categories
#Innovation Articles Awareness campaigns Awareness campaigns, events, blogs, petitions & posters Blogs / Bloggers cancer celiac Charities chronic illness Drug development EDS EVENTS Fibromyalgia genomics Global resources Health and medical Healthcare Heart Health HYPERMOBILITY Hypermobility Spectrum Disorders Lyme Disease MAY 12TH ME CFS medical Medical Conditions / Disorders Medical news stories, blogs and research Medical specialists / consultants mental health Musculoskeletal Neurology Neuroscience Newsletters/Papers/Magazines/Blogs Patient Advocacy Patients pharma Pharma / Science / Tech / Digital / AI public health Rare Research Rheumatology Webinar

#chronicillnessVOICE May 15 health, medical, pharma and research news

Bringing a varied selection of health news, medical news, pharma news, research news to you in relation to many aspects within the healthcare, medical healthcare & pharmaceutical landscapes.

Categories
Articles Awareness campaigns, events, blogs, petitions & posters chronic illness EVENTS Health and medical Media Medical Conditions / Disorders Medical news stories, blogs and research Newsletters/Papers/Magazines/Blogs Patient Advocacy Patients Pharma / Science / Tech / Digital / AI Professionals Rare Disease Advocacy Sites to visit

#chronicillnessVOICE April 19 health, medical, pharma and research news

Bringing a varied selection of health news, medical news, pharma news, research news to you in relation to many aspects within the healthcare, medical healthcare & pharmaceutical landscapes.

Categories
Academics AI in medicine Articles Autoimmune Awareness campaigns Awareness campaigns, events, blogs, petitions & posters Biomedical scientists Bursitis Care givers Charities Child health chronic illness chronic pain clinical trials Collagen disorder conference Deep learning Diagnosticians Digital Health Disability Drug development EDS EVENTS eyeforpharma FibroFlutters Fibromyalgia FMAUK Gastro / Gut / Bowel genetics genomics Health Care Providers Healthcare HOME HSDs HYPERMOBILITY Hypermobility Spectrum Disorders im-patient inflammatory Info site invisible illness Irritable Bowel Syndrome (IBS) JHS Machine learning MAY 12TH ME CFS Medical Conditions / Disorders Medical technologists mental health Musculoskeletal Neuroscience NHS NIHR NIHR Clinical Research Network Patient & Public Involvement & Engagement Patient Research Ambassador Initiative Patient Advocacy patient centricity Patient Engagement Patients Patients included pharma Pharma / Science / Tech / Digital / AI Product Reviews Professionals public health Rare Research Researchers Support Group WEGO HEALTH Youth matters

Reflecting back! My year of patient, health, research and pharma advocacy 2019 | Carole Scrafton

In all honesty I am amazed that I have done all this especially considering my health was quite bad last year. I do tend to distract myself as much as possible, but crikey, I got around quite a bit didn’t I. – closing thoughts

Categories
About Us - FibroFlutters Academics AI in medicine big data Biochemistry Biomedical scientists Care givers Charities chronic illness Deep learning Diagnosticians Digital Health Drug development FibroFlutters FibroFlutters Home News Geneticists Health Care Providers Healthcare HOME Lab Technicians Machine learning Mainly Medications Medical Conditions / Disorders Medical Device Medical technologists NHS NICE ~ National Institute for Health and Care Excellence NIH ( The National Institutes of Health ) US NIHR Patient Advocacy patient centricity Patient Engagement Patients Patients included Pharma pharma Pharma / Science / Tech / Digital / AI Professionals public health Researchers Scientists Support Group Therapies and Treatments Uncategorized Youth matters

Merry Christmas, happy holidays & all the best for 2020. Thank you for your support.

It is time to pat yourselves on the back for being actively involved to help create change.

Categories
Awareness campaigns chronic illness Chronic SoMe platforms clinical trials Disability Educational EVENTS genetics invisible illness Medical Conditions / Disorders Medical news stories Medical news stories, blogs and research pharma Pharma Pharma / Science / Tech / Digital / AI Professionals Rare Research Video

How Clinical Trials Are Evolving | CheckRare.com

In this video Dr. Weinreb discusses the fact that as we learn more about diseases and illnesses, and their subtypes, that it is “becoming common for clinical trials to be more focused on small subsets of a disease to better target the therapy.”