Category: EDS news and info

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AI in medicine Alternative / Complementary Therapies & Treatments Articles Awareness campaigns, events, blogs, petitions & posters Bi-polar Biotechnology Blogs / Bloggers Cell & Microbiology Charities chronic illness chronic pain Diabetes Digital Health Drug development EDS EDS news and info Endocrinology Epilepsy EVENTS Fibromyalgia genomics Global resources Health and medical Heart Health HYPERMOBILITY Hypermobility Spectrum Disorders Machine learning medical Medical Conditions / Disorders Medical Device Medical news stories Medical news stories, blogs and research migraines Molecular & Computational biology Musculoskeletal Neuroscience Newsletters/Papers/Magazines/Blogs Patient Advocacy Patients Pharma / Science / Tech / Digital / AI physiotherapy Professionals public health Rare Research Sites to visit Therapies and Treatments Video Webinar

#chronicillnessVOICE May 20 health, medical, pharma and research news

Bringing a varied selection of health news, medical news, pharma news, research news to you in relation to many aspects within the healthcare, medical healthcare & pharmaceutical landscapes.

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AI in medicine Alternative / Complementary Therapies & Treatments Articles Awareness campaigns, events, blogs, petitions & posters Bi-polar Blogs / Bloggers Charities chronic illness chronic pain Dementia / Alzheimers Digital Health Drug development EDS EDS news and info EVENTS Fibromyalgia genomics Global resources Health and medical Heart Health HYPERMOBILITY Hypermobility Spectrum Disorders Medical Conditions / Disorders Medical Device Medical news stories Medical news stories, blogs and research migraines Musculoskeletal Neuroscience Newsletters/Papers/Magazines/Blogs Patients Pharma / Science / Tech / Digital / AI physiotherapy Professionals public health Rare Research Sites to visit Therapies and Treatments Video Webinar

#chronicillnessVOICE May 19 health, medical, pharma and research news

Bringing a varied selection of health news, medical news, pharma news, research news to you in relation to many aspects within the healthcare, medical healthcare & pharmaceutical landscapes.

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AI in medicine Alternative / Complementary Therapies & Treatments Arthritis Articles Awareness campaigns Awareness campaigns, events, blogs, petitions & posters Blogs / Bloggers chronic illness EDS news and info EVENTS Fibro MeCFS online NEWS & INFO sources FibroFlutters Fibromyalgia Health and medical Health Care Providers Hypermobility Spectrum Disorders invisible illness MAY 12TH medical Medical Conditions / Disorders Medical news stories Medical news stories, blogs and research Medical specialists / consultants Medical technologists Neuroscience Newsletters Newsletters/Papers/Magazines/Blogs Parkinsons Patient Advocacy Patients pharma Pharma / Science / Tech / Digital / AI public health Rare Disease Advocacy rare genetic disorder Reproductive Health Research Researchers Scientists Slideshows

#chronicillnessVOICE May 11 health, medical, pharma and research news

#chronicillnessVOICE May 11 – health, patients, medical, research, pharma related news for everyone #notjustpatients #chronicillnessVOICE May 11: Bringing a varied selection of health news, medical news, pharma news, research news to you in relation to many aspects within the healthcare, medical healthcare & pharmaceutical landscapes. #chronicillnessVOICE #notjustpatients #chronicillness #patients #health #research #pharma #science #AI #digitalhealth […]

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Academics AI in medicine Alternative / Complementary Therapies & Treatments Arthritis Articles Autoimmune Blogs / Bloggers Brain inury Care givers Central Sensitivity Syndromes chronic illness chronic pain Chronic Widespread Pain Collagen disorder Dementia / Alzheimers Diabetes Digital Health Disability Drug development EDS EDS news and info Educational Endocrinology EVENTS Fibro MeCFS online NEWS & INFO sources FibroFlutters Fibromyalgia Food, drink and recipes Gastro / Gut / Bowel Health Care Providers Healthcare Heart Health Hobbies Homecare inflammatory invisible illness LUPUS Lyme Disease MCAD ME CFS Media Medical Conditions / Disorders Medical news stories Medical news stories, blogs and research mental health migraines mindfulness Musculoskeletal Newsletters Newsletters/Papers/Magazines/Blogs Patient Advocacy Patients pharma Pharma / Science / Tech / Digital / AI Professionals Psoriasis public health Rare Reproductive Health Research Researchers Respiratory Rheumatoid arthritis Rheumatology Scientists Sites to visit Skin conditions The hints and tips station Therapies and Treatments

My favourite Health Medical Research Patient & Pharma related Paper.Li newsletters for everyone #notjustpatients | Self-Updating

Bringing a varied selection of #healthnews #medicalnews #pharmanews #researchnews to you in relation to many aspects within the #healthcare #medicalhealthcare & #pharmaceutical landscapes.

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Awareness campaigns Awareness campaigns, events, blogs, petitions & posters Charities chronic illness chronic pain Chronic Widespread Pain Collagen disorder EDS EDS news and info FibroFlutters Global resources HYPERMOBILITY Hypermobility Spectrum Disorders Info site invisible illness JHS Join the Community Medical Conditions / Disorders Musculoskeletal Patient Advocacy Rare rare genetic disorder Sites to visit

Ehlers-Danlos Syndrome Awareness in the Month of May

Looking for a local support group then please sign up for a basic membership to become a member, it’s free and you get access to their magazine ‘Fragile Links’.

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About Us - FibroFlutters Awareness campaigns Charities Child health chronic illness chronic pain Chronic SoMe platforms Disability Drug development EDS news and info Educational EVENTS eyeforpharma Fibro MeCFS online NEWS & INFO sources FibroFlutters Home News Fibromyalgia FMAUK Healthcare HOME HYPERMOBILITY im-patient invisible illness JHS Join the Community MAY 12TH ME CFS Medical Conditions / Disorders mental health Miscellaneous & Other Neurology Newsletters Newsletters/Papers/Magazines/Blogs NIHR NIHR Clinical Research Network Patient & Public Involvement & Engagement Patient Research Ambassador Initiative Patient Advocacy Patients Patients included pharma Pharma / Science / Tech / Digital / AI Professionals Rare Research Skin conditions SoMe Platforms Support Group Twitter Twitter Feed WEGO HEALTH

About Us

Contents About Us – our aims and desires, missions and wants as a patient led group. Advocacy & raising awareness Advocacy & raising awareness (Continued from Page 2) – Including: Updated Version! New Look! | #chronicillnessVOICE | SPECIAL EDITION | eyeforpharma Patient Summit Europe ~ My experiences, incl. Im-patient | Carole Scrafton Is pharma being […]

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Arthritis Articles Awareness campaigns Awareness campaigns, events, blogs, petitions & posters big data Blogs / Bloggers cancer celiac Charities Child health chronic illness chronic pain Chronic SoMe platforms clinical trials Collagen disorder conference Dementia / Alzheimers Digital Health Disability Drug development EDS news and info Educational EVENTS eyeforpharma FibroFlutters Home News Fibromyalgia Healthcare Heart Health HYPERMOBILITY Hypermobility Spectrum Disorders im-patient Info site invisible illness JHS Join the Community Juvenile arthritis ME CFS Medical Device Medical news stories Musculoskeletal Neuroendocrine Neurology Neuroscience Newsletters/Papers/Magazines/Blogs NIH ( The National Institutes of Health ) US NIHR Patient Advocacy Patients Patients included Pharma pharma Pharma / Science / Tech / Digital / AI Professionals Rare Research Rheumatology SoMe Platforms Support Group The CHILLOUT LOUNGE Twitter Feed WEGO HEALTH

#chronicillnessVOICE | Health & medical related mini-mag for everyone| February 2019 | #notjustpatients

Feature: ‘Find Me A Cure’
Very soon FibroFlutters website will have it’s own very unique widget for readers to search for appriate clinical trials for any illness anywhere in the World and Find Me A cure have already sent me some designs to choose from.

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anxiety Awareness campaigns Charities chronic illness chronic pain Collagen disorder depression EDS news and info Educational genetics genomics HSDs HYPERMOBILITY Hypermobility Spectrum Disorders invisible illness Irritable Bowel Syndrome (IBS) MCAD Medical Conditions / Disorders Medical news stories mental health Musculoskeletal Patient Advocacy Patients Rare Research Rheumatology Stress Suicide Prevention The hints and tips station Video

Lara Bloom has Ehlers-Danlos Syndrome, a genetic connective tissue condition and this is her interview on ‘The Moment’ with Maxine Mawhinney.

International Executive Director Lara Bloom was interviewed recently by “The Moment-with Maxine Mawhinney” raising awareness about EDS/HDS and talking about her moment when she walked the London Marathon in 2011.

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Awareness campaigns Blogs / Bloggers celiac Central Sensitivity Syndromes Child health chronic illness chronic pain Disability EDS EDS news and info Educational Endocrinology events Gastro / Gut / Bowel Healthcare Heart Health HOME HSDs HYPERMOBILITY Hypermobility Spectrum Disorders invisible illness Join the Community MCAD Medical Conditions / Disorders Medical news stories mental health Musculoskeletal Neuroendocrine Neurology Newsletters/Papers/Magazines/Blogs Patient Advocacy Patients Professionals Rare Research Sites to visit Spoonie Talk Twitter Feed Webinar

CONNECT: Pain Awareness Month, Zebra Strong Tour, and more!  |  The Ehlers-Danlos Society  |  11 September 2018

September is Pain Awareness Month

90% of EDS patients live with some form of pain, but all experience this pain in a different way. Follow us on social media throughout the month for information, discussion, and support on the many aspects of EDS and HSD pain. #myEDSHurts #myHSDHurts
THE EHLERS-DANLOS SOCIETY EDS & RELATED DISORDERS GLOBAL REGISTRY

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Awareness campaigns chronic illness chronic pain Collagen disorder EDS EDS news and info events genetics HYPERMOBILITY Hypermobility Spectrum Disorders invisible illness JHS Medical Conditions / Disorders Musculoskeletal Neurology Patient Advocacy Patients Rare Rheumatoid arthritis Rheumatology

The Ehlers-Danlos Support UK  Campaign Newsletter ~ Are you ready for Jeans for Genes Day? 

Wear Jeans, Change Lives on September 21st 
Jeans for Genes Day is the annual fundraising campaign for Genetic Disorders UK, the national charity that supports individuals and families affected by a genetic disorder.