Category: EDS

Do you have constant pain? This article may interest you!

Post author By fibrofly73
Post date July 30, 2021
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Constant pain means you need a program or protocol to treat your basic injury or disease. One that reduces electric impulses and helps rebuild the damage to the NTRS in your spinal cord and brain. Symptomatic pain relievers are usually a must, but they don’t treat or reverse your basic problem.

Tags Adhesive Arachnoiditis, Autoimmune Disease, chronic illness, chronic pain, Complex Regional Pain Syndrome, Ehlers Danlos Syndrome, Genetic Connective Tissue Disorder, injury, Intractable Pain, Intractable Pain Syndrome, Medical news, Pain News Network, pain research, Reflex Sympathetic Dystrophy, Research, Traumatic Brain Injury

Ataxia Awareness campaigns, events, blogs, petitions & posters Charities Collagen disorder Disability EDS EVENTS FibroFlutters Patient Advocacy Patients Rare Rare Disease Advocacy rare genetic disorder Sites to visit Zebra Strutters

We’re off mobilising for charity – 1 month long Superhero Series challenge

Post author By fibrofly73
Post date July 18, 2021
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Using my rollator with its seat for those appropriately paced stops we hope to get out of the back lane this time. Last year the pandemic put restrictions on how I could complete the challenge.

Tags #FindyourPower, At Home Superheroes, Ataxia and Me, chronic illness, Disability, disABLED, Dragon Valley Theatre, FUNdraising, get moving, Marvel, Patients, Rare disease event, Superheroes On Vacation, Team, ZebraStrutters

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PROUD PARTNERS – Precision Medicine Forum PATIENT WEEK

Post author By fibrofly73
Post date July 12, 2021
1 Comment on PROUD PARTNERS – Precision Medicine Forum PATIENT WEEK

Patient Week convenes healthcare professionals, researchers, industry, payers and patients/patient advocates in a unique setting which puts the patient front and centre of the discussions. This time around there will be panels sessions, roundtables, 1-2-1 networking and group networking sessions.

Tags #AIhealthcare, #PersonalisedMedicine, #PMFPatientWeek, #PrecisionOncology, #VirtualPanels, Event partnerships, Healthcare Professionals, medical & healthcare industry, medical professionals, Medical Research, networking opportunity, Patient Advocacy, Patient Engagement, Patient Week, payers, Precision Medicine Forum, Research, virtual event

About Us - FibroFlutters Articles Ataxia Awareness campaigns, events, blogs, petitions & posters Charities chronic illness chronic pain Disability EDS EVENTS FibroFlutters Fibromyalgia Gastro / Gut / Bowel Health and medical Healthcare Info site invisible illness Medical Conditions / Disorders Medical news stories Medical news stories, blogs and research mental health Multiple Sclerosis (MS) Musculoskeletal Neurology Neuroscience Newsletters/Papers/Magazines/Blogs Patient Advocacy Patients Pharma / Science / Tech / Digital / AI Professionals public health Rare Rare Disease Advocacy Research Sites to visit Therapies and Treatments

#chronicillnessVOICE July 6, health, medical, pharma and research news

Post author By fibrofly73
Post date July 6, 2021

Bringing a varied selection of health news, medical news, pharma news, research news to you in relation to many aspects within the healthcare, medical healthcare & pharmaceutical landscapes.

Awareness campaigns Awareness campaigns, events, blogs, petitions & posters Charities EDS EVENTS HYPERMOBILITY Hypermobility Spectrum Disorders Join the Community Medical Conditions / Disorders Medical news stories, blogs and research Musculoskeletal Patient Advocacy Rare Rare Disease Advocacy rare genetic disorder Supporters / Ambassadors Zebra Strutters

Dazzle4Rare 2021 – #StrutYourStripes with us at ZebraStrutters to raise awareness!

Post author By fibrofly73
Post date June 28, 2021
1 Comment on Dazzle4Rare 2021 – #StrutYourStripes with us at ZebraStrutters to raise awareness!

A simple goal of signal boosting rare and undiagnosed patient and community messages. August week long event, joining allies, advocates, small and large non-profit organisations, and others who wish to elevate rare and undiagnosed voices.

Tags #dazzle4rare, chronic illness, Ehlers-Danlos Syndromes, patient voice, Pigmented Villonodular Synovitis, Rare Disease Advocacy, Rare disease awareness, Rare disease event, Rare Musculoskeletal Diseases, share your rare, Strut Your Stripes, Ultra Rare Disease, Zebra Strutters

AI in medicine Alternative / Complementary Therapies & Treatments Articles Awareness campaigns, events, blogs, petitions & posters Bi-polar Biotechnology Blogs / Bloggers Cell & Microbiology Charities chronic illness chronic pain Diabetes Digital Health Drug development EDS EDS news and info Endocrinology Epilepsy EVENTS Fibromyalgia genomics Global resources Health and medical Heart Health HYPERMOBILITY Hypermobility Spectrum Disorders Machine learning medical Medical Conditions / Disorders Medical Device Medical news stories Medical news stories, blogs and research migraines Molecular & Computational biology Musculoskeletal Neuroscience Newsletters/Papers/Magazines/Blogs Patient Advocacy Patients Pharma / Science / Tech / Digital / AI physiotherapy Professionals public health Rare Research Sites to visit Therapies and Treatments Video Webinar

#chronicillnessVOICE May 20 health, medical, pharma and research news

Post author By fibrofly73
Post date May 20, 2021

Bringing a varied selection of health news, medical news, pharma news, research news to you in relation to many aspects within the healthcare, medical healthcare & pharmaceutical landscapes.

AI in medicine Alternative / Complementary Therapies & Treatments Articles Awareness campaigns, events, blogs, petitions & posters Bi-polar Blogs / Bloggers Charities chronic illness chronic pain Dementia / Alzheimers Digital Health Drug development EDS EDS news and info EVENTS Fibromyalgia genomics Global resources Health and medical Heart Health HYPERMOBILITY Hypermobility Spectrum Disorders Medical Conditions / Disorders Medical Device Medical news stories Medical news stories, blogs and research migraines Musculoskeletal Neuroscience Newsletters/Papers/Magazines/Blogs Patients Pharma / Science / Tech / Digital / AI physiotherapy Professionals public health Rare Research Sites to visit Therapies and Treatments Video Webinar

#chronicillnessVOICE May 19 health, medical, pharma and research news

Post author By fibrofly73
Post date May 19, 2021

Bringing a varied selection of health news, medical news, pharma news, research news to you in relation to many aspects within the healthcare, medical healthcare & pharmaceutical landscapes.

Tags #chronicillnessVOICE, #notjustpatients, Alzheimers, ARDEnt Report, Artificial Intelligence, Assistive tech, Autism spectrum disorders, Biomedical technology, biopharma, Bipolar Disorder, blood pressure, Cardiovascular disease, Chronic blogs, Chronic Fatigue, chronic illness, covid 19 news, cyber attack, Dementia, Digital Health, Diseases, Drug development, EDS, EMJ GOLD, EMJ Radiology, Fibromyalgia, Frontline Genomics, gene therapy, Global Health, Gluten Free, Google, health, health tech, Healthcare, Heart Health, Irish Healthcare, Med tech, migraines, Patients, PCORI, pharma, public health, rare diseases, rare drug development, Research, Robotics, Samsung, Science, Stem Cell treatment, Syndromes, Testicular cancer, Wales healthcare, wearables

#Innovation Articles Awareness campaigns Awareness campaigns, events, blogs, petitions & posters Blogs / Bloggers cancer celiac Charities chronic illness Drug development EDS EVENTS Fibromyalgia genomics Global resources Health and medical Healthcare Heart Health HYPERMOBILITY Hypermobility Spectrum Disorders Lyme Disease MAY 12TH ME CFS medical Medical Conditions / Disorders Medical news stories, blogs and research Medical specialists / consultants mental health Musculoskeletal Neurology Neuroscience Newsletters/Papers/Magazines/Blogs Patient Advocacy Patients pharma Pharma / Science / Tech / Digital / AI public health Rare Research Rheumatology Webinar

#chronicillnessVOICE May 15 health, medical, pharma and research news

Post author By fibrofly73
Post date May 16, 2021

Bringing a varied selection of health news, medical news, pharma news, research news to you in relation to many aspects within the healthcare, medical healthcare & pharmaceutical landscapes.

Articles Awareness campaigns Awareness campaigns, events, blogs, petitions & posters Blogs / Bloggers Care givers chronic illness Drug development EDS EVENTS Fibromyalgia Health and medical medical Medical Conditions / Disorders Medical news stories Medical news stories, blogs and research Neuroscience Newsletters Patient Advocacy Patients pharma Pharma / Science / Tech / Digital / AI Professionals public health Rare Disease Advocacy Research

#chronicillnessVOICE May 7 health, medical, pharma and research news

Post author By fibrofly73
Post date May 10, 2021
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#chronicillnessVOICE May 7 – health, patients, medical, research, pharma related news for everyone #notjustpatients #chronicillnessVOICE May 7: Bringing a varied selection of health news, medical news, pharma news, research news to you in relation to many aspects within the healthcare, medical healthcare & pharmaceutical landscapes. #chronicillnessVOICE #notjustpatients #chronicillness #patients #health #research #pharma #science #AI #digitalhealth […]

Tags #chronicillnessVOICE, #notjustpatients, 2021 RARE Drug Development Symposium, Artificial Intelligence, awareness, biopharma, Cardiovascular disease, Chronic Bloggers, chronic illness, chronic pain, Clinical research, covid 19 news, Deep Vein Thrombosis, Digital Health, Disability Awareness, Drug development, Ehlers Danlos Syndrome, EMJ, EMJ Radiology, EMJ reviews, FibroFlutters, Fibromyalgia, genetics, Global Genes, Global PNH Patient Registry, Health Advice, Health and wellness, health IT, Health related news, health tech, Healthcare Dive: IT, healthcare industry, healthy eating, Immune system, Lyme Disease, Med tech, Medical news, MedicineNet, mental health, mindfulness, nanotechnology, Neuroendocrine Cancer, Neuroscience, Neuroscience News, newsletters, NORD, Patients, pharma, Policy & Regulation, Radiology, rare disease, Science-X, sleep health, Ulcerative Colitis, VIRTUAL PUBLIC GENOMICS CAFÉ, wearables, Web MD, WordPress

About Us - FibroFlutters chronic illness chronic pain Collagen disorder EDS FibroFlutters Fibromyalgia HYPERMOBILITY Media Partners Medical Conditions / Disorders Musculoskeletal Patient Advocacy Patients Rare Rare Disease Advocacy Somatic Symptom Disorders Zebra Strutters

About FibroFlutters

Post author By fibrofly73
Post date April 27, 2021
9 Comments on About FibroFlutters
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Read this to learn about FibroFlutters, who we are today. A Patient Advocacy Organisation & online social media communications network for everyone #notjustpatients

Tags About us, chronic illness, FibroFlutters, rare disease, Zebra Strutters

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