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#Innovation Awareness campaigns, events, blogs, petitions & posters Care givers Drug development EVENTS Health and medical Healthcare Industry & business matters Media Partners medical Medical Conditions / Disorders Medical news stories, blogs and research Patient Advocacy patient centricity Patient Engagement Patients pharma Professionals Rare Rare Disease Advocacy rare genetic disorder Researchers Scientists Supporters / Ambassadors Twitter Feed

RARE Summit 21 – it’s more than an event – it’s where the magic happens!

RAREsummit is more than an event – it’s where the magic happens.  A powerful movement for change that provides the right ingredients and ecosystem for a better future, where productive collaborations are nurtured and flourish for real patient impact.

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Academics Ataxia Autoimmune cancer chronic illness chronic pain clinicians conference EDS EVENTS FibroFlutters Gastro / Gut / Bowel Geneticists Health and medical Healthcare invisible illness Media Media Partners medical Medical Conditions / Disorders Medical news stories, blogs and research Medical specialists / consultants Patient Advocacy Patient Engagement Patients Precision Medicine Professionals Rare rare genetic disorder Researchers Respiratory Rheumatology Sites to visit Supporters / Ambassadors Twitter

PROUD PARTNERS – Precision Medicine Forum PATIENT WEEK

Patient Week convenes healthcare professionals, researchers, industry, payers and patients/patient advocates in a unique setting which puts the patient front and centre of the discussions. This time around there will be panels sessions, roundtables, 1-2-1 networking and group networking sessions.

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Awareness campaigns, events, blogs, petitions & posters chronic illness Drug development Health Care Providers Mainly Medications Medical Conditions / Disorders Medical news stories, blogs and research Patient Advocacy patient centricity Patient Engagement Patients Pdf Download Available pharma Professionals public health Research

Call for action: As patients and HCP’s please give your input on patient information leaflets (PIL) and medicine guides

your input will help us understand the needs, challenges and expectations regarding this important information, co-create tools to increase patient involvement in the development of patient information leaflets