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Awareness campaigns Awareness campaigns, events, blogs, petitions & posters Charities EDS EVENTS HYPERMOBILITY Hypermobility Spectrum Disorders Join the Community Medical Conditions / Disorders Medical news stories, blogs and research Musculoskeletal Patient Advocacy Rare Rare Disease Advocacy rare genetic disorder Supporters / Ambassadors Zebra Strutters

Dazzle4Rare 2021 – #StrutYourStripes with us at ZebraStrutters to raise awareness!

A simple goal of signal boosting rare and undiagnosed patient and community messages. August week long event, joining allies, advocates, small and large non-profit organisations, and others who wish to elevate rare and undiagnosed voices.

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AI in medicine Alternative / Complementary Therapies & Treatments Articles Awareness campaigns, events, blogs, petitions & posters Bi-polar Biotechnology Blogs / Bloggers Cell & Microbiology Charities chronic illness chronic pain Diabetes Digital Health Drug development EDS EDS news and info Endocrinology Epilepsy EVENTS Fibromyalgia genomics Global resources Health and medical Heart Health HYPERMOBILITY Hypermobility Spectrum Disorders Machine learning medical Medical Conditions / Disorders Medical Device Medical news stories Medical news stories, blogs and research migraines Molecular & Computational biology Musculoskeletal Neuroscience Newsletters/Papers/Magazines/Blogs Patient Advocacy Patients Pharma / Science / Tech / Digital / AI physiotherapy Professionals public health Rare Research Sites to visit Therapies and Treatments Video Webinar

#chronicillnessVOICE May 20 health, medical, pharma and research news

Bringing a varied selection of health news, medical news, pharma news, research news to you in relation to many aspects within the healthcare, medical healthcare & pharmaceutical landscapes.

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AI in medicine Alternative / Complementary Therapies & Treatments Articles Awareness campaigns, events, blogs, petitions & posters Bi-polar Blogs / Bloggers Charities chronic illness chronic pain Dementia / Alzheimers Digital Health Drug development EDS EDS news and info EVENTS Fibromyalgia genomics Global resources Health and medical Heart Health HYPERMOBILITY Hypermobility Spectrum Disorders Medical Conditions / Disorders Medical Device Medical news stories Medical news stories, blogs and research migraines Musculoskeletal Neuroscience Newsletters/Papers/Magazines/Blogs Patients Pharma / Science / Tech / Digital / AI physiotherapy Professionals public health Rare Research Sites to visit Therapies and Treatments Video Webinar

#chronicillnessVOICE May 19 health, medical, pharma and research news

Bringing a varied selection of health news, medical news, pharma news, research news to you in relation to many aspects within the healthcare, medical healthcare & pharmaceutical landscapes.

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#Innovation Articles Awareness campaigns Awareness campaigns, events, blogs, petitions & posters Blogs / Bloggers cancer celiac Charities chronic illness Drug development EDS EVENTS Fibromyalgia genomics Global resources Health and medical Healthcare Heart Health HYPERMOBILITY Hypermobility Spectrum Disorders Lyme Disease MAY 12TH ME CFS medical Medical Conditions / Disorders Medical news stories, blogs and research Medical specialists / consultants mental health Musculoskeletal Neurology Neuroscience Newsletters/Papers/Magazines/Blogs Patient Advocacy Patients pharma Pharma / Science / Tech / Digital / AI public health Rare Research Rheumatology Webinar

#chronicillnessVOICE May 15 health, medical, pharma and research news

Bringing a varied selection of health news, medical news, pharma news, research news to you in relation to many aspects within the healthcare, medical healthcare & pharmaceutical landscapes.

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About Us - FibroFlutters chronic illness chronic pain Collagen disorder EDS FibroFlutters Fibromyalgia HYPERMOBILITY Media Partners Medical Conditions / Disorders Musculoskeletal Patient Advocacy Patients Rare Rare Disease Advocacy Somatic Symptom Disorders Zebra Strutters

About FibroFlutters

Read this to learn about FibroFlutters, who we are today. A Patient Advocacy Organisation & online social media communications network for everyone #notjustpatients

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Charities chronic illness Collagen disorder EDS FibroFlutters Global resources HYPERMOBILITY Hypermobility Spectrum Disorders JHS Join the Community Musculoskeletal Patient Advocacy Rare Rare Disease Advocacy rare genetic disorder Support Group Zebra Strutters

Ehlers Danlos Syndrome resources. Where to find information and support.

Raising awareness of Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders

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Awareness campaigns, events, blogs, petitions & posters chronic illness Disability EDS Educational FibroFlutters HYPERMOBILITY Medical Conditions / Disorders Medical news stories Musculoskeletal Patient Advocacy Patients Rare Slideshows

Pigmented Villonodular Synovitis (PVNS) our Co-Founder’s patient experience with ultra rare disease. #dazzle4rare2020

After having constant dislocations in my knee where the PVNS tumour was removed from 6 years years previously had caused major damage. This was worsened with my hEDS which effects all of my joints.

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Alternative / Complementary Therapies & Treatments Articles Cannabis / THC / Marijuana chronic illness chronic pain Chronic Widespread Pain EDS Fibromyalgia Gastro / Gut / Bowel HYPERMOBILITY inflammatory Musculoskeletal Pain management Patients Pharma / Science / Tech / Digital / AI Product Reviews Psoriasis Therapies and Treatments

Cannacares CBD gel capsules Product Review – (sponsored)

It was easy to notice the fact my mobility wasn’t as stiff; pain was lesser than usual, and I wasn’t getting numbness with pins and needles as much in my hands and feet.

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Awareness campaigns Awareness campaigns, events, blogs, petitions & posters Charities chronic illness chronic pain Chronic Widespread Pain Collagen disorder EDS EDS news and info FibroFlutters Global resources HYPERMOBILITY Hypermobility Spectrum Disorders Info site invisible illness JHS Join the Community Medical Conditions / Disorders Musculoskeletal Patient Advocacy Rare rare genetic disorder Sites to visit

Ehlers-Danlos Syndrome Awareness in the Month of May

Looking for a local support group then please sign up for a basic membership to become a member, it’s free and you get access to their magazine ‘Fragile Links’.

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About Us - FibroFlutters Awareness campaigns Charities Child health chronic illness chronic pain Chronic SoMe platforms Disability Drug development EDS news and info Educational EVENTS eyeforpharma Fibro MeCFS online NEWS & INFO sources FibroFlutters Home News Fibromyalgia FMAUK Healthcare HOME HYPERMOBILITY im-patient invisible illness JHS Join the Community MAY 12TH ME CFS Medical Conditions / Disorders mental health Miscellaneous & Other Neurology Newsletters Newsletters/Papers/Magazines/Blogs NIHR NIHR Clinical Research Network Patient & Public Involvement & Engagement Patient Research Ambassador Initiative Patient Advocacy Patients Patients included pharma Pharma / Science / Tech / Digital / AI Professionals Rare Research Skin conditions SoMe Platforms Support Group Twitter Twitter Feed WEGO HEALTH

About Us

Contents About Us – our aims and desires, missions and wants as a patient led group. Advocacy & raising awareness Advocacy & raising awareness (Continued from Page 2) – Including: Updated Version! New Look! | #chronicillnessVOICE | SPECIAL EDITION | eyeforpharma Patient Summit Europe ~ My experiences, incl. Im-patient | Carole Scrafton Is pharma being […]