The chronicillnessVOICE


The chronicillnessVOICE Daily bringing a varied selection of health news, medical news, pharma news, and research news to you. All in relation to many aspects within the healthcare, medical healthcare & pharmaceutical landscapes.

Visit the #chronicillnessVOICE Daily News site, or catch the top headlines below.

A health related newsletter for everyone #notjustpatients

Including

Headlines

Videos

MEDICAL, SCIENCE, CLINICAL & RESEARCH RARE DISEASE

BUSINESS, CORPORATE RESPONSIBILITY & REPUTATION

HEALTH CONDITIONS, HEALTHCARE, DISEASE AWARENESS

ACTIVITIES #KEEPMOVING MINDFULNESS & MENTAL HEALTH

GLOBAL MEDICAL AND HEALTH NEWS

DIGITAL HEALTH, MEDICAL TECHNOLOGY #AI #HEALTHIT

#HEALTH / #HEALTHCARE

Pharma, patientcentricity, pharma marketing

Education, Learning & Webinars, Events

Communities, Charities, Patient Groups

#patients #patientadvocacy #caregiver stories

Our chronicillnessVOICE Daily updates and publishes twice daily at approximately 1am / 1pm London Time



Author / Editor

Carole Scrafton

Patient with chronic and genetic rare disease, Patient Partner, Expert Patient, Patient Speaker, Author and Researcher. CEO & Co-founder of FibroFlutters Patient Advocacy Organisation for chronic / rare illnesses. Advocating for multidisciplinary approaches to medical healthcare

#patient #health #medical #pharma #research related newsletter for everyone #notjustpatients

The #chronicillnessVOICE Dailyhttps://paper.li/The-chronicillnessVOICE-Daily#/

Disclaimer: The chronicillnessVOICE Daily PaperLi:

Bringing a varied selection of health news, medical news, pharma news, and research news to you. All in relation to many aspects within the healthcare, medical healthcare & pharmaceutical landscapes.

This is a self-updating online newspaper and the content is not selected by our editor. Carole does, however, review and delete irrelevant content. Sharing items in this paper does not mean endorsement, or necessarily reflect the views of myself or our organisation.

The chronicillnessVOICE Daily Tags:

#notjustpatients #chronicillness #patients #health #research #pharma #science #AI #digitalhealth #globalhealth #clinicalresearch #mentalhealth #rarediseases #mindfulness #lifestyle #medtech #healthIT #medicine #drugdevelopment #publichealth


You might also be interested in other online news that can be found in our post below:


The carousel below displays the last 3 editions of #chronicillnessVOICE Editor’s Picks.

They contain a selection of news and articles, chronic blogs, upcoming events and awareness campaigns. Our editor Carole sources the content from a wide variety of newsletters from within the healthcare industries. Including medical healthcare, clinical, digital health, AI, patient blogs, institutes, charities & pharmaceutical landscapes.

Please note that Carole subscribes to the newsletters that she gets the content from before sharing.



Looking for a clinical trial? click above!

Clinical trial resources for patients


Get paid to Voice your opinions. Help companies develop better products and services to help provide better healthcare for patients. Create better patient outcomes!

Get paid to Voice your opinions. Help companies develop better products and services to help provide better healthcare for patients. Create better patient outcomes!


FibroFlutters

We are a Patient Advocacy Organisation & online social media communications network. Our services are for people affected by chronic illnesses and rare disease. This includes care providers, health professionals and those within the medical healthcare related industries. #notjustpatients

Advocating for a Multi-Disciplinary approach to all aspects of medical healthcare.

To help develop, nurture and help to create a multidisciplinary approach to all aspects of medical healthcare so that #chronicillness & #raredisease patients can receive the type of care and treatments that they need.

The work we do involves disease awareness, health awareness, and, helping to point people in the direction of where to get legitimate health communications and information. As well as this we attend events and use patient voice to get important messages to help create better systems and processes for patients.

Bridging the gap between stakeholders is a different type of awareness raising. It involves sharing events and campaigns by clinicians, pharmaceutical companies, patient led projects, healthcare providers… the list is quite variable. We have newsletters to ensue this which uses our slogan – #chronicillnessVOICE for everyone #notjustpatients



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About the PEM Suite

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The result is the Patient Engagement Management Suite (PEM Suite). A hub of co-created tools, resources and practices to help stakeholders adopt patient engagement in a systematic, efficient and meaningful way. Including How-to guides that our editor helped to co-create.


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