Tag: Patients

My experience – First face-to-face event in 2 years!

Post author By fibrofly73
Post date November 14, 2021
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This week I was lucky enough to attend the ‘Patient Centricity and Collaboration Global Congress 2021, Europe, that was held in London on 8-9th November. By Paradigm Global Events, that was held in London on 8-9th November. The last time I attended such an event in person was in October 2019, in London. In this article I discuss it, my experience and share the messages that I took with me.

Tags #notjustpatients., Advocacy, Carole Scrafton, chronic illness, collaboration, Drug development, event summary, Face to face meeting, multi stakeholders, Paradigm Global Events, patient centricity, Patient Engagement, patient voice, Patients, PFMD, rare disease, Research

Academics Awareness campaigns, events, blogs, petitions & posters Biomedical scientists Biotechnology Cell & Microbiology Child health clinicians conference Diagnosticians Drug development EVENTS Geneticists Health and medical Health Care Providers Healthcare Lab Technicians Media Partners medical Medical news stories, blogs and research Medical specialists / consultants Medical technologists Mens health Patient Advocacy patient centricity Patient Engagement Patients Pharma Pharma / Science / Tech / Digital / AI Precision Medicine Professionals Researchers

Precision Medicine Forum PATIENT WEEK – Change of date.

Post author By fibrofly73
Post date September 18, 2021
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Precision Medicine Forum – Patient Week convenes healthcare professionals, researchers, industry, payers and patients/patient advocates in a unique setting which puts the patient front and centre of the discussions. This time around there will be panels sessions, roundtables, 1-2-1 networking and group networking sessions.

Tags #PMFPatientWeek, Clinical reserach, Healthcare, innovation, medical & healthcare industry, medical professionals, Medical Research, Patients, pharma, Precision Medicine Forum, Research

Care givers Child health chronic illness Drug development FibroFlutters Health and medical Healthcare Join the Community medical Medical Conditions / Disorders Medical news stories, blogs and research Partnerships Patient Advocacy Patient Engagement Patients Product Reviews Rare Rare Disease Advocacy Research Survey Therapies and Treatments Twitter Feed

Voice your opinions to improve medical products and services

Post author By fibrofly73
Post date September 13, 2021
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Rare Patient Voice connects patients and family caregivers with confidential research studies and surveys. Their studies and surveys are opinion based and are all about the patients and caregivers experience to help improve treatments, products, and services.

Get paid to Voice your opinions. Help companies develop better products and services to help provide better healthcare for patients. Create better patient outcomes!

Tags caregivers, chronic illness, clinical, Disability, get paid for your experiences, Give feedback, Healthcare, invisible illness, medical & healthcare industry, patient experience, patient voice, Patients, rare diseases, Research, share your story, voice your opinion

Ataxia Awareness campaigns, events, blogs, petitions & posters Charities Collagen disorder Disability EDS EVENTS FibroFlutters Patient Advocacy Patients Rare Rare Disease Advocacy rare genetic disorder Sites to visit Zebra Strutters

We’re off mobilising for charity – 1 month long Superhero Series challenge

Post author By fibrofly73
Post date July 18, 2021
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Using my rollator with its seat for those appropriately paced stops we hope to get out of the back lane this time. Last year the pandemic put restrictions on how I could complete the challenge.

Tags #FindyourPower, At Home Superheroes, Ataxia and Me, chronic illness, Disability, disABLED, Dragon Valley Theatre, FUNdraising, get moving, Marvel, Patients, Rare disease event, Superheroes On Vacation, Team, ZebraStrutters

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