Tag: Pharmafocus

Today is #RareDiseaseDay – Read my Patient Experience: Living with multiple rare diseases | Pharmafile | What’s your #Rare? care to share?

Post author By fibrofly73
Post date February 29, 2020
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Not everyone with EDS has hypermobility, and not everyone with hypermobility has EDS!

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Reflecting back! My year of patient, health, research and pharma advocacy 2019 | Carole Scrafton

Post author By fibrofly73
Post date January 14, 2020
1 Comment on Reflecting back! My year of patient, health, research and pharma advocacy 2019 | Carole Scrafton
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In all honesty I am amazed that I have done all this especially considering my health was quite bad last year. I do tend to distract myself as much as possible, but crikey, I got around quite a bit didn’t I. – closing thoughts

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