Category: ME CFS

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#chronicillnessVOICE May 15 health, medical, pharma and research news

Bringing a varied selection of health news, medical news, pharma news, research news to you in relation to many aspects within the healthcare, medical healthcare & pharmaceutical landscapes.

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Awareness campaigns, events, blogs, petitions & posters Charities chronic illness chronic pain Fibromyalgia FMAUK Info site invisible illness Join the Community MAY 12TH ME CFS Medical news stories, blogs and research

International Awareness Day May 12th

International Awareness Day – May 12th International Awareness Day – May 12th is held every year to raise awareness of Myalgic Encephalomyelitis (ME) / Chronic Fatigue Syndrome (CFS), Fibromyalgia, Multiple Chemical Sensitivity, Gulf War Syndrome and other Chronic Immunological and Neurological Diseases It is important to continue to help people understand what these conditions are, how they affect patients… and […]

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Academics AI in medicine Alternative / Complementary Therapies & Treatments Arthritis Articles Autoimmune Blogs / Bloggers Brain inury Care givers Central Sensitivity Syndromes chronic illness chronic pain Chronic Widespread Pain Collagen disorder Dementia / Alzheimers Diabetes Digital Health Disability Drug development EDS EDS news and info Educational Endocrinology EVENTS Fibro MeCFS online NEWS & INFO sources FibroFlutters Fibromyalgia Food, drink and recipes Gastro / Gut / Bowel Health Care Providers Healthcare Heart Health Hobbies Homecare inflammatory invisible illness LUPUS Lyme Disease MCAD ME CFS Media Medical Conditions / Disorders Medical news stories Medical news stories, blogs and research mental health migraines mindfulness Musculoskeletal Newsletters Newsletters/Papers/Magazines/Blogs Patient Advocacy Patients pharma Pharma / Science / Tech / Digital / AI Professionals Psoriasis public health Rare Reproductive Health Research Researchers Respiratory Rheumatoid arthritis Rheumatology Scientists Sites to visit Skin conditions The hints and tips station Therapies and Treatments

My favourite Health Medical Research Patient & Pharma related Paper.Li newsletters for everyone #notjustpatients | Self-Updating

Bringing a varied selection of #healthnews #medicalnews #pharmanews #researchnews to you in relation to many aspects within the #healthcare #medicalhealthcare & #pharmaceutical landscapes.

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About Us - FibroFlutters Awareness campaigns Charities Child health chronic illness chronic pain Chronic SoMe platforms Disability Drug development EDS news and info Educational EVENTS eyeforpharma Fibro MeCFS online NEWS & INFO sources FibroFlutters Home News Fibromyalgia FMAUK Healthcare HOME HYPERMOBILITY im-patient invisible illness JHS Join the Community MAY 12TH ME CFS Medical Conditions / Disorders mental health Miscellaneous & Other Neurology Newsletters Newsletters/Papers/Magazines/Blogs NIHR NIHR Clinical Research Network Patient & Public Involvement & Engagement Patient Research Ambassador Initiative Patient Advocacy Patients Patients included pharma Pharma / Science / Tech / Digital / AI Professionals Rare Research Skin conditions SoMe Platforms Support Group Twitter Twitter Feed WEGO HEALTH

About Us

Contents About Us – our aims and desires, missions and wants as a patient led group. Advocacy & raising awareness Advocacy & raising awareness (Continued from Page 2) – Including: Updated Version! New Look! | #chronicillnessVOICE | SPECIAL EDITION | eyeforpharma Patient Summit Europe ~ My experiences, incl. Im-patient | Carole Scrafton Is pharma being […]

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Academics AI in medicine Articles Autoimmune Awareness campaigns Awareness campaigns, events, blogs, petitions & posters Biomedical scientists Bursitis Care givers Charities Child health chronic illness chronic pain clinical trials Collagen disorder conference Deep learning Diagnosticians Digital Health Disability Drug development EDS EVENTS eyeforpharma FibroFlutters Fibromyalgia FMAUK Gastro / Gut / Bowel genetics genomics Health Care Providers Healthcare HOME HSDs HYPERMOBILITY Hypermobility Spectrum Disorders im-patient inflammatory Info site invisible illness Irritable Bowel Syndrome (IBS) JHS Machine learning MAY 12TH ME CFS Medical Conditions / Disorders Medical technologists mental health Musculoskeletal Neuroscience NHS NIHR NIHR Clinical Research Network Patient & Public Involvement & Engagement Patient Research Ambassador Initiative Patient Advocacy patient centricity Patient Engagement Patients Patients included pharma Pharma / Science / Tech / Digital / AI Product Reviews Professionals public health Rare Research Researchers Support Group WEGO HEALTH Youth matters

Reflecting back! My year of patient, health, research and pharma advocacy 2019 | Carole Scrafton

In all honesty I am amazed that I have done all this especially considering my health was quite bad last year. I do tend to distract myself as much as possible, but crikey, I got around quite a bit didn’t I. – closing thoughts

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Blogs / Bloggers chronic illness chronic pain Collagen disorder Fibromyalgia Healthcare ME CFS Medical Conditions / Disorders Newsletters/Papers/Magazines/Blogs Patient Advocacy Patients

I’ve been nominated for ‘The Chronically Hopeful Award’ created by Pamela Jessen from There is Always Hope

It’s great to be recognised with ‘The Chronically Hopeful Award’ which Pamela Jensen from There is Always Hope has created, by Barbara McLullich from ‘BACKPAINBLOGUK’ who is a fellow blogger, advocate, and chronic friend.

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anxiety Arthritis Awareness campaigns, events, blogs, petitions & posters Blogs / Bloggers chronic illness chronic pain Disability EDS Fibromyalgia Gastro / Gut / Bowel HYPERMOBILITY Info site invisible illness Irritable Bowel Syndrome (IBS) ME CFS Medical Conditions / Disorders mental health Musculoskeletal Pain management Patient Advocacy Stress The hints and tips station

The burdens of pain management, inflammation and sensitivity to anti-inflammatories. | Carole Scrafton | 27 March 2019

What I have explained in this post is the chain reaction of ‘pain’ and ‘inflammation’ that I fight to prevent on a daily basis and when it gets as bad as this the ‘sciatic’ pain is so intense that it really does make me cry.

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Arthritis Articles Awareness campaigns Awareness campaigns, events, blogs, petitions & posters big data Blogs / Bloggers cancer celiac Charities Child health chronic illness chronic pain Chronic SoMe platforms clinical trials Collagen disorder conference Dementia / Alzheimers Digital Health Disability Drug development EDS news and info Educational EVENTS eyeforpharma FibroFlutters Home News Fibromyalgia Healthcare Heart Health HYPERMOBILITY Hypermobility Spectrum Disorders im-patient Info site invisible illness JHS Join the Community Juvenile arthritis ME CFS Medical Device Medical news stories Musculoskeletal Neuroendocrine Neurology Neuroscience Newsletters/Papers/Magazines/Blogs NIH ( The National Institutes of Health ) US NIHR Patient Advocacy Patients Patients included pharma Pharma Pharma / Science / Tech / Digital / AI Professionals Rare Research Rheumatology SoMe Platforms Support Group The CHILLOUT LOUNGE Twitter Feed WEGO HEALTH

#chronicillnessVOICE | Health & medical related mini-mag for everyone| February 2019 | #notjustpatients

Feature: ‘Find Me A Cure’
Very soon FibroFlutters website will have it’s own very unique widget for readers to search for appriate clinical trials for any illness anywhere in the World and Find Me A cure have already sent me some designs to choose from.

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Autoimmune chronic illness chronic pain Chronic/Invisile illness NEXT MEET UP Disability eyeforpharma FibroFlutters Home News Fibromyalgia FMAUK Healthcare HOME HYPERMOBILITY Info site invisible illness JHS Join the Community LUPUS ME CFS Medical Conditions / Disorders mental health Patient Advocacy Patients pharma Professionals Support Group The hints and tips station

Home news | Next meet up is on 20th November

This meeting is also for our Fibromyalgia members and Fibromyalgia Action UK supporters as an extra meeting on top of our sister FMA UK Fibromyalgia group’s meeting on the FIRST MONDAY OF THE MONTH which our members are welcome to Join.

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Articles Awareness campaigns Blogs / Bloggers Charities Child health chronic illness chronic pain Chronic SoMe platforms Collagen disorder Disability Educational events Fibromyalgia Healthcare HYPERMOBILITY Info site invisible illness JHS LUPUS ME CFS Medical Conditions / Disorders Medical news stories Newsletters/Papers/Magazines/Blogs Patients Pharma / Science / Tech / Digital / AI Professionals Research Rheumatology SoMe Platforms Webinar

Latest edition!  ARMA Newletter | Arthritis & Musculoskeletal Alliance  | September 2018

MSK services survey – Please let us know what is happening locally
As part of our Clinical Networks Project, ARMA wants to find out what is happening to improve MSK services across England in order to see how we can best target our support for improvements.