Tag: Drug development

Real World Evidence Live: Rare Diseases & Innovative Therapies

Post author By fibrofly73
Post date March 21, 2022

Real-World Evidence 2022: Rare Diseases and Innovative Therapies will unite healthcare stakeholders to discuss and advance agile strategies for accelerating collaboration and patient focus in a post-COVID Europe.

Tags academia, agile strategies, Drug development, Early Bird, innovative therapies, medical & healthcare industry, pharma, post covid, rare diseases, rare drug development, real world evidence, Regulations and Compliance, RWE LIVE 2022, The Evidence Base

#Innovation chronic illness conference Disability Drug development EVENTS FibroFlutters Health and medical Healthcare Industry & business matters medical Medical news stories, blogs and research Patient Advocacy patient centricity Patient Engagement Patients pharma Pharma / Science / Tech / Digital / AI Professionals Rare Disease Advocacy Research

My experience – First face-to-face event in 2 years!

Post author By fibrofly73
Post date November 14, 2021
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This week I was lucky enough to attend the ‘Patient Centricity and Collaboration Global Congress 2021, Europe, that was held in London on 8-9th November. By Paradigm Global Events, that was held in London on 8-9th November. The last time I attended such an event in person was in October 2019, in London. In this article I discuss it, my experience and share the messages that I took with me.

Tags #notjustpatients., Advocacy, Carole Scrafton, chronic illness, collaboration, Drug development, event summary, Face to face meeting, multi stakeholders, Paradigm Global Events, patient centricity, Patient Engagement, patient voice, Patients, PFMD, rare disease, Research

Awareness campaigns, events, blogs, petitions & posters chronic illness EVENTS Health and medical Healthcare Industry & business matters medical Partnerships Patient Advocacy patient centricity Patient Engagement Patients pharma Pharma / Science / Tech / Digital / AI Rare Twitter Feed Webinar

Patient Engagement Day with Prime Patient – Did you miss it?

Post author By fibrofly73
Post date September 27, 2021
1 Comment on Patient Engagement Day with Prime Patient – Did you miss it?
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Patient Engagement Day with Prime Patient – Did you miss it?
UPDATED to include an article by Olivia Kersey, Patient Strategist, at PEP Talks, which outlines the highlights of the very first annual Patient Engagement Day.

Tags #AmplifyThePatientVoice, chronic illness, Drug development, invisible illness, Patient Engagement, Patient Engagement Day, Patient interviews, Patient partnerships, patient voice, Prime Global People, rare disease, Research

Awareness campaigns clinical trials Drug development Educational patient centricity Patient Engagement pharma Research Sites to visit

Patient Engagement With Patient Focused Medicine Development

Post author By fibrofly73
Post date September 23, 2021
1 Comment on Patient Engagement With Patient Focused Medicine Development
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The PFMD network is making sure to aggregate existing knowledge and tools, identifying good practices and coherently combining them before designing accessible and useful avenues for the various audiences that will use them.

Tags #notjustpatients., Clinical research, Drug development, Educational, Learning hub, Made with patients, multi stakeholders, Network, Patient Engagement Management, Patient Focused Medicines Development, patient voice, PEM Suite, PFMD, Pharma / Science / Tech / Digital / AI, Research, research and development, toolkits, Trainings

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