Category: NIHR

About Us - FibroFlutters Awareness campaigns Charities Child health chronic illness chronic pain Chronic SoMe platforms Disability Drug development EDS news and info Educational EVENTS eyeforpharma Fibro MeCFS online NEWS & INFO sources FibroFlutters Home News Fibromyalgia FMAUK Healthcare HOME HYPERMOBILITY im-patient invisible illness JHS Join the Community MAY 12TH ME CFS Medical Conditions / Disorders mental health Miscellaneous & Other Neurology Newsletters Newsletters/Papers/Magazines/Blogs NIHR NIHR Clinical Research Network Patient & Public Involvement & Engagement Patient Research Ambassador Initiative Patient Advocacy Patients Patients included pharma Pharma / Science / Tech / Digital / AI Professionals Rare Research Skin conditions SoMe Platforms Support Group Twitter Twitter Feed WEGO HEALTH

About Us

Contents About Us – our aims and desires, missions and wants as a patient led group. Advocacy & raising awareness Advocacy & raising awareness (Continued from Page 2) – Including: Updated Version! New Look! | #chronicillnessVOICE | SPECIAL EDITION | eyeforpharma Patient Summit Europe ~ My experiences, incl. Im-patient | Carole Scrafton Is pharma being […]

Academics AI in medicine Articles Autoimmune Awareness campaigns Awareness campaigns, events, blogs, petitions & posters Biomedical scientists Bursitis Care givers Charities Child health chronic illness chronic pain clinical trials Collagen disorder conference Deep learning Diagnosticians Digital Health Disability Drug development EDS EVENTS eyeforpharma FibroFlutters Fibromyalgia FMAUK Gastro / Gut / Bowel genetics genomics Health Care Providers Healthcare HOME HSDs HYPERMOBILITY Hypermobility Spectrum Disorders im-patient inflammatory Info site invisible illness Irritable Bowel Syndrome (IBS) JHS Machine learning MAY 12TH ME CFS Medical Conditions / Disorders Medical technologists mental health Musculoskeletal Neuroscience NHS NIHR NIHR Clinical Research Network Patient & Public Involvement & Engagement Patient Research Ambassador Initiative Patient Advocacy patient centricity Patient Engagement Patients Patients included pharma Pharma / Science / Tech / Digital / AI Product Reviews Professionals public health Rare Research Researchers Support Group WEGO HEALTH Youth matters

Reflecting back! My year of patient, health, research and pharma advocacy 2019 | Carole Scrafton

Post author By fibrofly73
Post date January 14, 2020
1 Comment on Reflecting back! My year of patient, health, research and pharma advocacy 2019 | Carole Scrafton
Sticky post

In all honesty I am amazed that I have done all this especially considering my health was quite bad last year. I do tend to distract myself as much as possible, but crikey, I got around quite a bit didn’t I. – closing thoughts

About Us - FibroFlutters Academics AI in medicine big data Biochemistry Biomedical scientists Care givers Charities chronic illness Deep learning Diagnosticians Digital Health Drug development FibroFlutters FibroFlutters Home News Geneticists Health Care Providers Healthcare HOME Lab Technicians Machine learning Mainly Medications Medical Conditions / Disorders Medical Device Medical technologists NHS NICE ~ National Institute for Health and Care Excellence NIH ( The National Institutes of Health ) US NIHR Patient Advocacy patient centricity Patient Engagement Patients Patients included Pharma pharma Pharma / Science / Tech / Digital / AI Professionals public health Researchers Scientists Support Group Therapies and Treatments Uncategorized Youth matters

Merry Christmas, happy holidays & all the best for 2020. Thank you for your support.

Post author By fibrofly73
Post date December 24, 2019
2 Comments on Merry Christmas, happy holidays & all the best for 2020. Thank you for your support.

It is time to pat yourselves on the back for being actively involved to help create change.

Tags academia, Christmas card, Christmas greetings, chronic illness, clinical, Drug development, Happy holidays, health, medical, Patient Engagement, Patients, pharma, Research

About Us - FibroFlutters AI in medicine Awareness campaigns chronic illness clinical trials conference Digital Health Drug development events EVENTS eyeforpharma genetics genomics Healthcare Machine learning Medical Conditions / Disorders Medical Device NICE ~ National Institute for Health and Care Excellence NIHR NIHR Clinical Research Network Patient & Public Involvement & Engagement Patient Research Ambassador Initiative Parkinsons Patient Advocacy Patients Patients included pharma Pharma Pharma / Science / Tech / Digital / AI Professionals public health Rare Research

I’m speaking at the @eyeforpharma PATIENT SUMMIT EUROPE | Pharma’s home for patient-centricity in Europe

Post author By fibrofly73
Post date August 12, 2019
3 Comments on I’m speaking at the @eyeforpharma PATIENT SUMMIT EUROPE | Pharma’s home for patient-centricity in Europe

“For 2019, we have a practical focus on transforming the whole pipeline – R&D, clinical trials and commercial – demonstrating how patient-led design can reduce cost whilst driving effectiveness and value.”

Arthritis Articles Awareness campaigns Awareness campaigns, events, blogs, petitions & posters big data Blogs / Bloggers cancer celiac Charities Child health chronic illness chronic pain Chronic SoMe platforms clinical trials Collagen disorder conference Dementia / Alzheimers Digital Health Disability Drug development EDS news and info Educational EVENTS eyeforpharma FibroFlutters Home News Fibromyalgia Healthcare Heart Health HYPERMOBILITY Hypermobility Spectrum Disorders im-patient Info site invisible illness JHS Join the Community Juvenile arthritis ME CFS Medical Device Medical news stories Musculoskeletal Neuroendocrine Neurology Neuroscience Newsletters/Papers/Magazines/Blogs NIH ( The National Institutes of Health ) US NIHR Patient Advocacy Patients Patients included pharma Pharma Pharma / Science / Tech / Digital / AI Professionals Rare Research Rheumatology SoMe Platforms Support Group The CHILLOUT LOUNGE Twitter Feed WEGO HEALTH

#chronicillnessVOICE | Health & medical related mini-mag for everyone| February 2019 | #notjustpatients

Post author By fibrofly73
Post date March 10, 2019

Feature: ‘Find Me A Cure’
Very soon FibroFlutters website will have it’s own very unique widget for readers to search for appriate clinical trials for any illness anywhere in the World and Find Me A cure have already sent me some designs to choose from.

chronic illness Newsletters/Papers/Magazines/Blogs NIHR Professionals

NIHR | Latest NIHR funding opportunities | 15 September 2018

Post author By fibrofly73
Post date September 25, 2018

The following new funding opportunities are available:

Public Health Research Programme
18/138 Suicide prevention in high risk groups
@OfficialNIHR

Tags Funding opportunities

Articles Charities Child health chronic illness Digital Health Educational events Healthcare Heart Health Info site invisible illness Medical Conditions / Disorders Medical news stories Newsletters/Papers/Magazines/Blogs NIHR Patients Professionals Research

NIHR Funding and Support Round-up | NIHR | 6 September 2018

Post author By fibrofly73
Post date September 7, 2018

Including >>>

Latest funding opportunities

Have your say: trial registration and timely disclosure of results

New investigators can’t apply for research funding…can they? | By Justine Tomlinson

Hear Professor Jeremy Wyatt explain why the NIHR is seeking to fund more research into digital health, and what kind of proposals we would like to see.

What are studies within a trial (SWAT)?

From the RDS desk

Tags #Innovation, CRN, Life sciences, Technology, Webinar

NIHR Life Sciences Industry Newsletter | NIHR | 30 August 2018

Post author By fibrofly73
Post date August 31, 2018

Record numbers take part in life sciences industry research

New recorded webinar: Our offer to the life sciences

Companies should bring their biosimilar studies to the UK. Here’s why…

NIHR partners with the British Heart Foundation in world-leading cardiovascular research

Transparent and consistent costing approach for commercial contract research

Improving CRN research activity data collection

Tags #Innovation, CRN, Life sciences, Technology, Webinar

chronic illness clinical trials Educational events Info site Medical Conditions / Disorders Medical news stories Newsletters/Papers/Magazines/Blogs NIHR Professionals Research

NIHR Life Sciences Industry | News and Research from the NIHR ~ July 208 | Latest NIHR funding opportunities | NIHR Clinical Research Network

Post author By fibrofly73
Post date August 9, 2018

Latest NIHR funding opportunities

NIHR Life Sciences Industry
News and Research from the NIHR ~ July 208
NIHR Clinical Research Network

National Industry Event – The Future Now

10 October 2018 | De Vere Grand Connaught Rooms, London

Tags Clinical research, clinical trials, Funding opportunities, Life sciences, NIHR CRN, Research news, Toolkit

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