Tag: Patient Engagement

My experience – First face-to-face event in 2 years!

Post author By fibrofly73
Post date November 14, 2021
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This week I was lucky enough to attend the ‘Patient Centricity and Collaboration Global Congress 2021, Europe, that was held in London on 8-9th November. By Paradigm Global Events, that was held in London on 8-9th November. The last time I attended such an event in person was in October 2019, in London. In this article I discuss it, my experience and share the messages that I took with me.

Tags #notjustpatients., Advocacy, Carole Scrafton, chronic illness, collaboration, Drug development, event summary, Face to face meeting, multi stakeholders, Paradigm Global Events, patient centricity, Patient Engagement, patient voice, Patients, PFMD, rare disease, Research

Awareness campaigns, events, blogs, petitions & posters chronic illness EVENTS Health and medical Healthcare Industry & business matters medical Partnerships Patient Advocacy patient centricity Patient Engagement Patients pharma Pharma / Science / Tech / Digital / AI Rare Twitter Feed Webinar

Patient Engagement Day with Prime Patient – Did you miss it?

Post author By fibrofly73
Post date September 27, 2021
1 Comment on Patient Engagement Day with Prime Patient – Did you miss it?
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Patient Engagement Day with Prime Patient – Did you miss it?
UPDATED to include an article by Olivia Kersey, Patient Strategist, at PEP Talks, which outlines the highlights of the very first annual Patient Engagement Day.

Tags #AmplifyThePatientVoice, chronic illness, Drug development, invisible illness, Patient Engagement, Patient Engagement Day, Patient interviews, Patient partnerships, patient voice, Prime Global People, rare disease, Research

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RARE Summit 21 – it’s more than an event – it’s where the magic happens!

Post author By fibrofly73
Post date September 12, 2021
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We're supporting RAREsummit21 #StrongerTogether

RAREsummit is more than an event – it’s where the magic happens. A powerful movement for change that provides the right ingredients and ecosystem for a better future, where productive collaborations are nurtured and flourish for real patient impact.

Tags #RAREsummit21, Cambridge Rare Disease Network, chronic illness, Disability, Healthcare Professionals, invisible illness, medical & healthcare industry, Patient Advocacy, Patient Engagement, patient experience, patient voice, pharma, rare disease, Rare Disease Advocacy, Rare disease awareness, rare drug development, Research, virtual event

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PROUD PARTNERS – Precision Medicine Forum PATIENT WEEK

Post author By fibrofly73
Post date July 12, 2021
1 Comment on PROUD PARTNERS – Precision Medicine Forum PATIENT WEEK

Patient Week convenes healthcare professionals, researchers, industry, payers and patients/patient advocates in a unique setting which puts the patient front and centre of the discussions. This time around there will be panels sessions, roundtables, 1-2-1 networking and group networking sessions.

Tags #AIhealthcare, #PersonalisedMedicine, #PMFPatientWeek, #PrecisionOncology, #VirtualPanels, Event partnerships, Healthcare Professionals, medical & healthcare industry, medical professionals, Medical Research, networking opportunity, Patient Advocacy, Patient Engagement, Patient Week, payers, Precision Medicine Forum, Research, virtual event

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April 14 #chronicillnessVOICE health, medical, pharma and research news

Post author By fibrofly73
Post date April 14, 2021

Bringing a varied selection of health news, medical news, pharma news, research news to you in relation to many aspects within the healthcare, medical healthcare & pharmaceutical landscapes.

Awareness campaigns, events, blogs, petitions & posters chronic illness Drug development EVENTS Health and medical Medical Conditions / Disorders Medical news stories, blogs and research Newsletters/Papers/Magazines/Blogs Patient Advocacy Patient Engagement Patients Pharma / Science / Tech / Digital / AI Professionals Sites to visit

#chronicillnessVOICE daily selection of health, medical, pharma and research news

Post author By fibrofly73
Post date April 13, 2021

#chronicillnessVOICE daily – health, patients, medical, research, #pharma related news for everyone #notjustpatients #chronicillnessVOICE daily: Bringing a varied selection of health news, medical news, pharma news, research news to you in relation to many aspects within the healthcare, medical healthcare & pharmaceutical landscapes. #chronicillnessVOICE #notjustpatients #chronicillness #patients #health #research #pharma #science #AI #digitalhealth #globalhealth #clinicalresearch […]

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CLINICAL TRIALS NEXUS EUROPE – Digital Event November 26-27th

Post author By fibrofly73
Post date November 23, 2020

The Coronavirus Pandemic has got us all considering how to navigate clinical trials and what are the best approaches for patient recruitment and retention. It is my belief that implementing patient engagement from the onset of the trial during trial design could be the beneficial answer.

Tags Carole Scrafton, Clinical trial recruitment, clinical trials, Keynote Speaker, Nexus Series Clinical Trials, Patient Advocacy, patient centricity, Patient Engagement, Patient Focused Medicines Development, patient voice, trial design

Awareness campaigns, events, blogs, petitions & posters chronic illness Drug development Health Care Providers Mainly Medications Medical Conditions / Disorders Medical news stories, blogs and research Patient Advocacy patient centricity Patient Engagement Patients Pdf Download Available pharma Professionals public health Research

Call for action: As patients and HCP’s please give your input on patient information leaflets (PIL) and medicine guides

Post author By fibrofly73
Post date September 29, 2020

your input will help us understand the needs, challenges and expectations regarding this important information, co-create tools to increase patient involvement in the development of patient information leaflets