Skip to the content
Search
FibroFlutters Patient Advocacy Organisation | Chronic Illness & Rare Disease Network
Patient, Health, Research, Medical, Clinical, Digital Health and Pharma news, information, communications, advice, reviews and resources
Menu
About FibroFlutters
Home – Latest Posts
International Fibromyalgia Awareness Day – Happy 8th Birthday to FibroFlutters
Redevelopment and rebranding underway at Flutters and Strutters
My experience – First face-to-face event in 2 years!
Patient Engagement Day with Prime Patient – Did you miss it?
Rare neurological disease – Awareness campaign for AtaxiaUK #IAAD21
International Ataxia Awareness Day 25th September with ‘Ataxia and Me’
Clinician Series is back with a Fresh new format – AIMed
Patient Engagement With Patient Focused Medicine Development
RARE Summit 21 – it’s more than an event – it’s where the magic happens!
Voice your opinions to improve medical products and services
Rare Disease Male Support Group – mental health community support.
Irritable bowel syndrome (IBS) what is it? – video | Patient | Dr Sarah Jarvis
HOME – Categories
Do you have constant pain? This article may interest you!
We’re off mobilising for charity – 1 month long Superhero Series challenge
ARDEnt Report – Rare Disease and the impact of the COVID19 pandemic.
Health, Medical, Research, Patient and Pharma related newsletters
Where can you find Fibromyalgia and Chronic Pain resources across the Globe? Find out here!
Look at us on this chronic illness related community ‘aDoddle Map’ for groups, charities and related organisations to help locate each other!
FibroFlutters ~ CHRONIC, INVISIBLE AND RARE ILLNESS SUPPORT / ADVICE / ADVOCACY| Disclaimer | Privacy Notes | 8 May 2018
Fibromyalgia? What’s that?Pronounced:- Fi – bro – my – al – jia – UPDATED POST
Pharma and Health Hub – Reuters Events Pharma Formerly eyeforpharma
The chronicillnessVOICE
Zebra Strutters – Rare Disease Advocacy
EDS, JHS, HMS & all things collagen / connective-tissue
Hypermobility disorders & EDS reclassification as of 15th March 2017
Lara Bloom has Ehlers-Danlos Syndrome, a genetic connective tissue condition and this is her interview on ‘The Moment’ with Maxine Mawhinney.
Info site – Ehlers Danlos UK: Hypermobility Ehlers-Danlos syndrome
Autonomic Dysfunction Sheet (PoTS) for people with EDS – HT / (h)EDS | Ehlers Danlos Support UK
How to Explain Your Pain to a Doctor | EDS and Chronic Pain News & Info
(EDS UK) Ehlers Danlos UK – Fibromyalgia and CF (Chronic fatigue) by Dr Alan Hakim, MA FRCP
Article from HMSA – Anaesthetic and JHS / EDS – Posted By Alan Hakim, June 29, 2013
Volunteer with The Ehlers-Danlos Society | Volunteer Opportunities (2018)
(EDS UK) Ehlers Danlos UK – Fibromyalgia and CF (Chronic fatigue) by Dr Alan Hakim, MA FRCP
Rare neurological disease – Awareness campaign for AtaxiaUK #IAAD21
International Ataxia Awareness Day 25th September with ‘Ataxia and Me’
Rare Disease Male Support Group – mental health community support.
Dazzle4Rare 2021 – #StrutYourStripes with us at ZebraStrutters to raise awareness!
ARDEnt Report – Rare Disease and the impact of the COVID19 pandemic.
Pigmented Villonodular Synovitis (PVNS) our Co-Founder’s patient experience with ultra rare disease. #dazzle4rare2020
Are you aware of this #Rare? Today is International Ataxia Awareness Day.
Are you aware of this #Rare? | Wolfram Syndrome UK Virtual Conference 2020 | 19th and 26th September
Today is #RareDiseaseDay – Read my Patient Experience: Living with multiple rare diseases | Pharmafile | What’s your #Rare? care to share?
It is time to ‘dazzle’, ‘strut your stripes’ and share ‘rare voices’ for #dazzle4rare2020! 9 – 14th August
PHARMA / SCIENCE / TECH / DIGITAL / AI
Real World Evidence Live: Rare Diseases & Innovative Therapies
My experience – First face-to-face event in 2 years!
Medical Disorders
Mental Health
MedicineNet ~ Newsletter | Stages of Alcohol Use Disorder | 30 August 2018
Why ADHD Can Look Like Depression | By Neil Petersen | psychcentral.com
NHS Choices: Ten ways to fight your fears – Stress, anxiety and depression – NHS Choices
This Is Your Body On Anxiety
How does our brain process fear? Study investigates | Medical News Today
How does Chronic Illness / Pain affect your Sleeping Habits
Treatments and Therapies
Therapies and Treatments
How to Get Started with Essential Oils – Pink Fortitude, LLC
THE BOWEN TECHNIQUE FOR PAIN RELIEF IN FIBROMYALGIA AND BACK PAIN…
Medical news Article: How Muscle Relaxants can Benefit People Suffering From Fibromyalgia | Welcome to Fibromyalgia Symptoms
WHAT ARE SOME OF THE MOST USED MEDICATIONS TO TAKE FOR FIBROMYALGIA?…
Hydrotherapy – Heaven or hell? Part Four – Week Four starting 22/02/2017
Hydrotherapy – Heaven or hell? Part Two – session one / week one
Product Review | Nrem Sleep System | Sponsored Post
The Chillout Lounge
The CHILLOUT LOUNGE
Alternative / Complementary Therapies & Treatments
TREAT YOURSELF WITH ACUPRESSURE FOR LOWER BACK PAIN… – BACK PAIN BLOG UK…
Cannacares CBD gel capsules Product Review – (sponsored)
Reflexology reduces anxiety and improves quality of sleep in informal carers — Federation of Holistic Therapists (FHT) – BACK PAIN BLOG UK…
Your Aromatherapy Guide | Jan Randall | 14 April 2018
‘OIL’ have you know!
Fibromyalgia, Essential Oils, and You | Fibromyalgia news Today | Robin Dix
Honey Colony’s Superior Cannabinoid Rich Hemp Oil ⋆ Lilac and Lyme
INFO site: Thinking about trying something complementary here are the ‘Ten Must Have Basic Essential Oils’ | your-aromatherapy-guide.com
Are You in Chronic Stress Mode? Seastones natural therapies
Complementary Therapy – Massage for Stress Management: Get in touch with its many benefits – Mayo Clinic
Reblogged |TRIGGER POINT THERAPY FOR CHRONIC PAIN AND FIBROMYALGIA | BackPainBlog
Touch Heals
Relaxation Techniques
Mindfulness & ilk | Meditation / Study / Relaxation | 3 hours of relaxing music – Peder B. Helland
Serenely Sunday: Guided Imagery, Visualisation & Relaxation down by the Lake
The Therapeutic Benefits of Gardening | By: Virgil Anderson
Serenly Sunday – Let’s take a few deep breaths… and a few slow steps…
Relaxation can be the key to helping us to recharge our batteries when they’re feeling a bit on the flat side…
Article from Huff Post Healthy Living: 5 Big Benefits Of Being A Doodler
Serenely Sunday: A lake that is noisy cannot reflect anything – Robert Adams
Newsletters/Papers/Magazines
Health, Medical, Research, Patient and Pharma related newsletters
Freshly updated Selected Newsletters from News Medical
Awareness campaigns
Fibromyalgia Awareness Week 2021 – #BecomeFibroAware
International Ataxia Awareness Day 25th September with ‘Ataxia and Me’
International Awareness Day May 12th
Ehlers-Danlos Syndrome Awareness in the Month of May
May 12th International Fibromyalgia Awareness Day
FMAUK | Fighting for the freedom from Fibromyalgia
Research related readables
ARMA has a new #knowledgehub
Accessing specialist doctors faster after a brain injury
Bursitis and Osteoarthritis Similarities and Differences | News Medical | By Tim Boughton, M.Sc.
Focusing on Nature for New Sources of Analgesic Compounds | Craig Hopp, PhD | NCCIH | July 1 2019
Somatic Symptom Disorder. Learn about this disorder. | Patient
Are you interested in #research? Would like to get more involved, or know what research is going on around you?
You may be partly conscious under general anesthesia | Ana Sandoiu | Medical News Today | 6 July 2018
Pain: Hope Through Research: National Institute of Neurological Disorders and Stroke (NINDS)
Food, drink and recipes
Sweet potato and spinach chilli recipe | Patient
For a healthier heart read NHLBI Deliciously Healthy Eating Recipes
Simple and easy Cauliflower English Muffins.
Two Peas and Their Pod Lemon Almond Cookies – Bake at 350°
Ellen Bayens | The Celiac Scene News | Issue: August 2019
Patient Newsletter | Subject: The best foods for fighting skin problems | 11 July 2018
Make The Healthiest Desserts Ever With Only Fruits, Nuts And Seeds – The Alternative Daily
10 Amazing Health Benefits Of Green Tea | DIY Health Remedy
Natural Remedies: Ginger Ale Recipe for Pain: Reduce Chronic Inflammation, Migraines, & Pain REALfarmacy.com | Healthy News and Information
The hints and tips station
How to sleep when pregnant: Best positions and sleep aids
Do you have arthritis? and do you find exercising problematic? Read this post by Arthritis Foundation
#PAM2018 #Arthritis #Toolkit #TeamApproach #HealthCare The Arthritis Foundation | Managing Health Care With Arthritis | 10 September 2018
Live Better with Rheumatoid Arthritis | Arthritis Foundation
Do you know how to make the most of your Doctors appointment? | fibrofly73
THE BEST EVER PORTABLE HEAT PAD FOR TRAVEL..
How to employ your own Personal Assistant (PA)
Article -Huffington Post: Here’s How To Stop A Migraine Before It Destroys Your Whole Day
HOW TO KEEP A PAIN DIARY (free download)…
SoMe Patient Platforms
healtheo360 Join a ‘PATIENT’ community and share your story!
Look at us on this chronic illness related community ‘aDoddle Map’ for groups, charities and related organisations to help locate each other!
Weekly Digest for September 10th, 2018 [Mayo Clinic Social Media Network]
Are you a ‘SAVVY’ patient? come and check it out!
Are you looking for a chance to change the future of personalized health, join ‘Patients Like Me’.
NEW online magazine channel | Siemens Healthineers ~ News & Stories – Online magazine channel
RELIEF: PAIN RESEARCH NEWS, INSIGHTS AND IDEAS |BROUGHT TO YOU BY THE IASP PAIN RESEARCH FORUM
New Patient platform! patient-patient registry
Chronic Illness Bloggers | Connecting You to the Chronic Illness Community
Musculoskeletal
Fibromyalgia & Chronic Pain
Stretch, 1, 2, 3, 4… Bend 1, 2, 3, 4 … | ActivePosture shirt – Product review | Carole Scrafton
Article: Diagnosing Depression in People with Chronic Pain – Arthritis Health
Rare Revolution Mag ~ Morven May MacCullum discusses her journey with Lyme Disease about finding new purpose
I love to nap. Do you? |You may enjoy reading ‘Napping: the expert’s guide’
Patients & Caregivers | American College of Rheumatology | Find information you need about rheumatic diseases & conditions.
Fibro – What’s that? Find out here!
Central Sensitivity Syndromes – Difficult to Classify
Where can you find Fibromyalgia and Chronic Pain resources across the Globe? Find out here!
Latest edition! ARMA Newletters | Arthritis & Musculoskeletal Alliance | March / February 2019
Do you have arthritis? and do you find exercising problematic? Read this post by Arthritis Foundation
Fibromyalgia? What’s that?Pronounced:- Fi – bro – my – al – jia – UPDATED POST
MSK services survey – Please let us know what is happening locally | ARMA
Fibromyalgia – What’s that? Find out where to find relevant information :-)
What are the Symptoms of Fibromyalgia? UPDATED POST
Article – Muscle Atrophy Symptoms Causes-and Treatments. | Healthguidance.org | Poignancy regarding #chronicillness & the wastage in my left leg.
Fibromyalgia – Symptoms – NHS Choices
The burdens of pain management, inflammation and sensitivity to anti-inflammatories. | Carole Scrafton | 27 March 2019
DO THE DISCS IN YOUR SPINE ‘SLIP’ ?…| BARMAC5 | BackPainBlog | 22 September 2018
Fibro Files: 1990 ACR classification pdf and Tender Points image for diagnosing Fibromyalgia
Central nervous system and Sympathetic Skin Response
How is Fibromyalgia Classified/Diagnosed Part 1 – Historical background – From Fibrositis to Fibromyalgia
How is Fibromyalgia Classified/Diagnosed Part 2 – TpT & ACR diagnostic criteria of 1990
Tune in: How Listening to Music Improves Fibromyalgia | Katarina Zulak ~ Skillfully Well & Painfully Aware | 4 August 2017
Fibromyalgia – Musculoskeletal and Connective Tissue Disorders – Merck Manual Professional Edition
Hyperparathyroidism Sometimes Misdiagnosed as Fibromyalgia | edsinfo.wordpress.com
Article from MigraineAgain: Aching Body, Aching Head: Understanding Migraine and Fibromyalgia
Migraine Again | Why Painful Light Sensitivity Affects Many with Migraines
Questions and Answers About Fibromyalgia – Information resource | NIAMS
Exclusive Interview: Health Ergonomics – Health Professional explains what it is and then talks about how #covid19 pivoted her into tele-consulting.
Top 10 Self-Help Tips for Back Pain and Fibromyalgia Sufferers | Nichola Adams, Health Ergonomist
Skin Rashes and Fibromyalgia Syndrome
Privacy Policy – FibroFlutters
Menu
Search
Search for:
Close search
Close Menu
FibroFlutters Sunderland
For the Professionals
HOME – Categories
Lifestyle
I love to nap. Do you? You may enjoy reading these – ‘Fibromyalgia: Need to Nap Increases as Symptoms Worsen’ & ‘Napping: the expert’s guide’
I love to nap. Do you? |You may enjoy reading ‘Napping: the expert’s guide’
Relaxation can be the key to helping us to recharge our batteries when they’re feeling a bit on the flat side…
Medical Disorders
Collagen/Connective Tissue Disorders
Treatments and Therapies
Newsletters/Papers/Magazines
Patient-Centred; Centric; Included #patients and #caregivers
PHARMA / SCIENCE / TECH / DIGITAL / AI
Pharma and Health Hub – Reuters Events Pharma Formerly eyeforpharma
Privacy Policy – FibroFlutters
Rare Disease Advocacy
Research related readables
Serenely Sunday: A lake that is noisy cannot reflect anything – Robert Adams
Social Media Patient Platforms / Networks
The chronicillnessVOICE
12th May is International Fibromyalgia Awareness Day – SHOUT IT LOUD
All things FUN – Laughter is the best medicine & good for the soul!
Fun Pic – I love my pillow…
Fun Pic – The Monday Lisa
Fun-pic: A good laugh and a good sleep…..
Funpic
Wishing you wellness – smiling sunshine
Brain versus FOG
Funpic -‘ Fatigueing’ around about fatigue :D
FibroFlutters Information Poster
About FibroFlutters
Home – Latest Posts
Show sub menu
International Fibromyalgia Awareness Day – Happy 8th Birthday to FibroFlutters
Redevelopment and rebranding underway at Flutters and Strutters
My experience – First face-to-face event in 2 years!
Patient Engagement Day with Prime Patient – Did you miss it?
Rare neurological disease – Awareness campaign for AtaxiaUK #IAAD21
International Ataxia Awareness Day 25th September with ‘Ataxia and Me’
Clinician Series is back with a Fresh new format – AIMed
Patient Engagement With Patient Focused Medicine Development
RARE Summit 21 – it’s more than an event – it’s where the magic happens!
Voice your opinions to improve medical products and services
Rare Disease Male Support Group – mental health community support.
Irritable bowel syndrome (IBS) what is it? – video | Patient | Dr Sarah Jarvis
HOME – Categories
Do you have constant pain? This article may interest you!
We’re off mobilising for charity – 1 month long Superhero Series challenge
ARDEnt Report – Rare Disease and the impact of the COVID19 pandemic.
Health, Medical, Research, Patient and Pharma related newsletters
Where can you find Fibromyalgia and Chronic Pain resources across the Globe? Find out here!
Look at us on this chronic illness related community ‘aDoddle Map’ for groups, charities and related organisations to help locate each other!
FibroFlutters ~ CHRONIC, INVISIBLE AND RARE ILLNESS SUPPORT / ADVICE / ADVOCACY| Disclaimer | Privacy Notes | 8 May 2018
Fibromyalgia? What’s that?Pronounced:- Fi – bro – my – al – jia – UPDATED POST
Pharma and Health Hub – Reuters Events Pharma Formerly eyeforpharma
The chronicillnessVOICE
Zebra Strutters – Rare Disease Advocacy
Show sub menu
EDS, JHS, HMS & all things collagen / connective-tissue
Show sub menu
Hypermobility disorders & EDS reclassification as of 15th March 2017
Lara Bloom has Ehlers-Danlos Syndrome, a genetic connective tissue condition and this is her interview on ‘The Moment’ with Maxine Mawhinney.
Info site – Ehlers Danlos UK: Hypermobility Ehlers-Danlos syndrome
Autonomic Dysfunction Sheet (PoTS) for people with EDS – HT / (h)EDS | Ehlers Danlos Support UK
How to Explain Your Pain to a Doctor | EDS and Chronic Pain News & Info
(EDS UK) Ehlers Danlos UK – Fibromyalgia and CF (Chronic fatigue) by Dr Alan Hakim, MA FRCP
Article from HMSA – Anaesthetic and JHS / EDS – Posted By Alan Hakim, June 29, 2013
Volunteer with The Ehlers-Danlos Society | Volunteer Opportunities (2018)
(EDS UK) Ehlers Danlos UK – Fibromyalgia and CF (Chronic fatigue) by Dr Alan Hakim, MA FRCP
Rare neurological disease – Awareness campaign for AtaxiaUK #IAAD21
International Ataxia Awareness Day 25th September with ‘Ataxia and Me’
Rare Disease Male Support Group – mental health community support.
Dazzle4Rare 2021 – #StrutYourStripes with us at ZebraStrutters to raise awareness!
ARDEnt Report – Rare Disease and the impact of the COVID19 pandemic.
Pigmented Villonodular Synovitis (PVNS) our Co-Founder’s patient experience with ultra rare disease. #dazzle4rare2020
Are you aware of this #Rare? Today is International Ataxia Awareness Day.
Are you aware of this #Rare? | Wolfram Syndrome UK Virtual Conference 2020 | 19th and 26th September
Today is #RareDiseaseDay – Read my Patient Experience: Living with multiple rare diseases | Pharmafile | What’s your #Rare? care to share?
It is time to ‘dazzle’, ‘strut your stripes’ and share ‘rare voices’ for #dazzle4rare2020! 9 – 14th August
PHARMA / SCIENCE / TECH / DIGITAL / AI
Show sub menu
Real World Evidence Live: Rare Diseases & Innovative Therapies
My experience – First face-to-face event in 2 years!
Medical Disorders
Mental Health
Show sub menu
MedicineNet ~ Newsletter | Stages of Alcohol Use Disorder | 30 August 2018
Why ADHD Can Look Like Depression | By Neil Petersen | psychcentral.com
NHS Choices: Ten ways to fight your fears – Stress, anxiety and depression – NHS Choices
This Is Your Body On Anxiety
How does our brain process fear? Study investigates | Medical News Today
How does Chronic Illness / Pain affect your Sleeping Habits
Treatments and Therapies
Show sub menu
Therapies and Treatments
Show sub menu
How to Get Started with Essential Oils – Pink Fortitude, LLC
THE BOWEN TECHNIQUE FOR PAIN RELIEF IN FIBROMYALGIA AND BACK PAIN…
Medical news Article: How Muscle Relaxants can Benefit People Suffering From Fibromyalgia | Welcome to Fibromyalgia Symptoms
WHAT ARE SOME OF THE MOST USED MEDICATIONS TO TAKE FOR FIBROMYALGIA?…
Hydrotherapy – Heaven or hell? Part Four – Week Four starting 22/02/2017
Hydrotherapy – Heaven or hell? Part Two – session one / week one
Product Review | Nrem Sleep System | Sponsored Post
The Chillout Lounge
Show sub menu
The CHILLOUT LOUNGE
Alternative / Complementary Therapies & Treatments
Show sub menu
TREAT YOURSELF WITH ACUPRESSURE FOR LOWER BACK PAIN… – BACK PAIN BLOG UK…
Cannacares CBD gel capsules Product Review – (sponsored)
Reflexology reduces anxiety and improves quality of sleep in informal carers — Federation of Holistic Therapists (FHT) – BACK PAIN BLOG UK…
Your Aromatherapy Guide | Jan Randall | 14 April 2018
‘OIL’ have you know!
Show sub menu
Fibromyalgia, Essential Oils, and You | Fibromyalgia news Today | Robin Dix
Honey Colony’s Superior Cannabinoid Rich Hemp Oil ⋆ Lilac and Lyme
INFO site: Thinking about trying something complementary here are the ‘Ten Must Have Basic Essential Oils’ | your-aromatherapy-guide.com
Are You in Chronic Stress Mode? Seastones natural therapies
Complementary Therapy – Massage for Stress Management: Get in touch with its many benefits – Mayo Clinic
Reblogged |TRIGGER POINT THERAPY FOR CHRONIC PAIN AND FIBROMYALGIA | BackPainBlog
Touch Heals
Relaxation Techniques
Show sub menu
Mindfulness & ilk | Meditation / Study / Relaxation | 3 hours of relaxing music – Peder B. Helland
Serenely Sunday: Guided Imagery, Visualisation & Relaxation down by the Lake
The Therapeutic Benefits of Gardening | By: Virgil Anderson
Serenly Sunday – Let’s take a few deep breaths… and a few slow steps…
Relaxation can be the key to helping us to recharge our batteries when they’re feeling a bit on the flat side…
Article from Huff Post Healthy Living: 5 Big Benefits Of Being A Doodler
Serenely Sunday: A lake that is noisy cannot reflect anything – Robert Adams
Newsletters/Papers/Magazines
Show sub menu
Health, Medical, Research, Patient and Pharma related newsletters
Freshly updated Selected Newsletters from News Medical
Awareness campaigns
Show sub menu
Fibromyalgia Awareness Week 2021 – #BecomeFibroAware
International Ataxia Awareness Day 25th September with ‘Ataxia and Me’
International Awareness Day May 12th
Ehlers-Danlos Syndrome Awareness in the Month of May
May 12th International Fibromyalgia Awareness Day
FMAUK | Fighting for the freedom from Fibromyalgia
Research related readables
Show sub menu
ARMA has a new #knowledgehub
Accessing specialist doctors faster after a brain injury
Bursitis and Osteoarthritis Similarities and Differences | News Medical | By Tim Boughton, M.Sc.
Focusing on Nature for New Sources of Analgesic Compounds | Craig Hopp, PhD | NCCIH | July 1 2019
Somatic Symptom Disorder. Learn about this disorder. | Patient
Are you interested in #research? Would like to get more involved, or know what research is going on around you?
You may be partly conscious under general anesthesia | Ana Sandoiu | Medical News Today | 6 July 2018
Pain: Hope Through Research: National Institute of Neurological Disorders and Stroke (NINDS)
Food, drink and recipes
Show sub menu
Sweet potato and spinach chilli recipe | Patient
For a healthier heart read NHLBI Deliciously Healthy Eating Recipes
Simple and easy Cauliflower English Muffins.
Two Peas and Their Pod Lemon Almond Cookies – Bake at 350°
Ellen Bayens | The Celiac Scene News | Issue: August 2019
Patient Newsletter | Subject: The best foods for fighting skin problems | 11 July 2018
Make The Healthiest Desserts Ever With Only Fruits, Nuts And Seeds – The Alternative Daily
10 Amazing Health Benefits Of Green Tea | DIY Health Remedy
Natural Remedies: Ginger Ale Recipe for Pain: Reduce Chronic Inflammation, Migraines, & Pain REALfarmacy.com | Healthy News and Information
The hints and tips station
Show sub menu
How to sleep when pregnant: Best positions and sleep aids
Do you have arthritis? and do you find exercising problematic? Read this post by Arthritis Foundation
#PAM2018 #Arthritis #Toolkit #TeamApproach #HealthCare The Arthritis Foundation | Managing Health Care With Arthritis | 10 September 2018
Live Better with Rheumatoid Arthritis | Arthritis Foundation
Do you know how to make the most of your Doctors appointment? | fibrofly73
THE BEST EVER PORTABLE HEAT PAD FOR TRAVEL..
How to employ your own Personal Assistant (PA)
Article -Huffington Post: Here’s How To Stop A Migraine Before It Destroys Your Whole Day
HOW TO KEEP A PAIN DIARY (free download)…
SoMe Patient Platforms
Show sub menu
healtheo360 Join a ‘PATIENT’ community and share your story!
Look at us on this chronic illness related community ‘aDoddle Map’ for groups, charities and related organisations to help locate each other!
Weekly Digest for September 10th, 2018 [Mayo Clinic Social Media Network]
Are you a ‘SAVVY’ patient? come and check it out!
Are you looking for a chance to change the future of personalized health, join ‘Patients Like Me’.
NEW online magazine channel | Siemens Healthineers ~ News & Stories – Online magazine channel
RELIEF: PAIN RESEARCH NEWS, INSIGHTS AND IDEAS |BROUGHT TO YOU BY THE IASP PAIN RESEARCH FORUM
New Patient platform! patient-patient registry
Chronic Illness Bloggers | Connecting You to the Chronic Illness Community
Musculoskeletal
Show sub menu
Fibromyalgia & Chronic Pain
Show sub menu
Stretch, 1, 2, 3, 4… Bend 1, 2, 3, 4 … | ActivePosture shirt – Product review | Carole Scrafton
Article: Diagnosing Depression in People with Chronic Pain – Arthritis Health
Rare Revolution Mag ~ Morven May MacCullum discusses her journey with Lyme Disease about finding new purpose
I love to nap. Do you? |You may enjoy reading ‘Napping: the expert’s guide’
Patients & Caregivers | American College of Rheumatology | Find information you need about rheumatic diseases & conditions.
Fibro – What’s that? Find out here!
Central Sensitivity Syndromes – Difficult to Classify
Where can you find Fibromyalgia and Chronic Pain resources across the Globe? Find out here!
Latest edition! ARMA Newletters | Arthritis & Musculoskeletal Alliance | March / February 2019
Do you have arthritis? and do you find exercising problematic? Read this post by Arthritis Foundation
Fibromyalgia? What’s that?Pronounced:- Fi – bro – my – al – jia – UPDATED POST
MSK services survey – Please let us know what is happening locally | ARMA
Fibromyalgia – What’s that? Find out where to find relevant information :-)
What are the Symptoms of Fibromyalgia? UPDATED POST
Article – Muscle Atrophy Symptoms Causes-and Treatments. | Healthguidance.org | Poignancy regarding #chronicillness & the wastage in my left leg.
Fibromyalgia – Symptoms – NHS Choices
The burdens of pain management, inflammation and sensitivity to anti-inflammatories. | Carole Scrafton | 27 March 2019
DO THE DISCS IN YOUR SPINE ‘SLIP’ ?…| BARMAC5 | BackPainBlog | 22 September 2018
Fibro Files: 1990 ACR classification pdf and Tender Points image for diagnosing Fibromyalgia
Central nervous system and Sympathetic Skin Response
How is Fibromyalgia Classified/Diagnosed Part 1 – Historical background – From Fibrositis to Fibromyalgia
How is Fibromyalgia Classified/Diagnosed Part 2 – TpT & ACR diagnostic criteria of 1990
Tune in: How Listening to Music Improves Fibromyalgia | Katarina Zulak ~ Skillfully Well & Painfully Aware | 4 August 2017
Fibromyalgia – Musculoskeletal and Connective Tissue Disorders – Merck Manual Professional Edition
Hyperparathyroidism Sometimes Misdiagnosed as Fibromyalgia | edsinfo.wordpress.com
Article from MigraineAgain: Aching Body, Aching Head: Understanding Migraine and Fibromyalgia
Migraine Again | Why Painful Light Sensitivity Affects Many with Migraines
Questions and Answers About Fibromyalgia – Information resource | NIAMS
Exclusive Interview: Health Ergonomics – Health Professional explains what it is and then talks about how #covid19 pivoted her into tele-consulting.
Top 10 Self-Help Tips for Back Pain and Fibromyalgia Sufferers | Nichola Adams, Health Ergonomist
Skin Rashes and Fibromyalgia Syndrome
Privacy Policy – FibroFlutters
@FibroFlutters on Twitter – Global Community Patient Organisation – Public
FibroFlutters (Sunderland & NE UK) on FACEBOOK ~ Closed Discussion Group
Fibro Flutters HQ – Facebook – Global Community Patient Organisation – Public
FibroFlutters – LinkedIn Global Community Patient Organisation – Public
Fibrofly73 (Carole Sian) – Pinterest
FibroFlutters – YouTube Playlists
FibroFlutters Information Poster
Please share this:
Print
Exit mobile version
{{#pages}}
Older posts
{{/pages}}
