Category: Child health

Categories
Academics Awareness campaigns, events, blogs, petitions & posters Biomedical scientists Biotechnology Cell & Microbiology Child health clinicians conference Diagnosticians Drug development EVENTS Geneticists Health and medical Health Care Providers Healthcare Lab Technicians Media Partners medical Medical news stories, blogs and research Medical specialists / consultants Medical technologists Mens health Patient Advocacy patient centricity Patient Engagement Patients Pharma Pharma / Science / Tech / Digital / AI Precision Medicine Professionals Researchers

Precision Medicine Forum PATIENT WEEK – Change of date.

Precision Medicine Forum – Patient Week convenes healthcare professionals, researchers, industry, payers and patients/patient advocates in a unique setting which puts the patient front and centre of the discussions. This time around there will be panels sessions, roundtables, 1-2-1 networking and group networking sessions.

Categories
Care givers Child health chronic illness Drug development FibroFlutters Health and medical Healthcare Join the Community medical Medical Conditions / Disorders Medical news stories, blogs and research Partnerships Patient Advocacy Patient Engagement Patients Product Reviews Rare Rare Disease Advocacy Research Survey Therapies and Treatments Twitter Feed

Voice your opinions to improve medical products and services

Rare Patient Voice connects patients and family caregivers with confidential research studies and surveys. Their studies and surveys are opinion based and are all about the patients and caregivers experience to help improve treatments, products, and services.

Get paid to Voice your opinions. Help companies develop better products and services to help provide better healthcare for patients. Create better patient outcomes!

Categories
Awareness campaigns, events, blogs, petitions & posters Care givers Charities Child health chronic illness EVENTS Join the Community Medical Conditions / Disorders Medical news stories, blogs and research Patient Advocacy Patients Rare rare genetic disorder Sites to visit Support Group Webinar Youth matters

Are you aware of this #Rare? | Wolfram Syndrome UK Virtual Conference 2020 | 19th and 26th September

Wolfram Syndrome is a rare genetic disorder which is also known as DIDMOAD syndrome after its four most common features: Diabetes Insipidus, Diabetes Mellitus, Optic Atrophy and Deafness

Categories
About Us - FibroFlutters Awareness campaigns Charities Child health chronic illness chronic pain Chronic SoMe platforms Disability Drug development EDS news and info Educational EVENTS eyeforpharma Fibro MeCFS online NEWS & INFO sources FibroFlutters Home News Fibromyalgia FMAUK Healthcare HOME HYPERMOBILITY im-patient invisible illness JHS Join the Community MAY 12TH ME CFS Medical Conditions / Disorders mental health Miscellaneous & Other Neurology Newsletters Newsletters/Papers/Magazines/Blogs NIHR NIHR Clinical Research Network Patient & Public Involvement & Engagement Patient Research Ambassador Initiative Patient Advocacy Patients Patients included pharma Pharma / Science / Tech / Digital / AI Professionals Rare Research Skin conditions SoMe Platforms Support Group Twitter Twitter Feed WEGO HEALTH

About Us

Contents About Us – our aims and desires, missions and wants as a patient led group. Advocacy & raising awareness Advocacy & raising awareness (Continued from Page 2) – Including: Updated Version! New Look! | #chronicillnessVOICE | SPECIAL EDITION | eyeforpharma Patient Summit Europe ~ My experiences, incl. Im-patient | Carole Scrafton Is pharma being […]

Categories
AI in medicine Articles Autism Biochemistry cancer Child health chronic illness Dementia / Alzheimers Diabetes Educational Endocrinology genetics genomics Healthcare Heart Health inflammatory Info site invisible illness Medical Conditions / Disorders Medical Device Medical news stories Medical news stories, blogs and research Multiple Sclerosis (MS) Musculoskeletal Neurology Neuroscience Newsletters Newsletters/Papers/Magazines/Blogs Parkinsons Pdf Download Available Pharma / Science / Tech / Digital / AI Professionals Rare Research Respiratory Rheumatology Skin conditions sleep disorder Twitter Feed

Freshly updated Selected Newsletters from News Medical

Photo by rawpixel.com on Pexels.com

Please note that medical information found on this website is designed to support, not to replace the relationship between patient and physician/doctor and the medical advice they may provide.

Categories
Articles Awareness campaigns Awareness campaigns, events, blogs, petitions & posters Child health chronic illness Collagen disorder EDS events FibroFlutters genetics HYPERMOBILITY Hypermobility Spectrum Disorders JHS Media Medical Conditions / Disorders Medical news stories Newsletters/Papers/Magazines/Blogs Patient Advocacy pharma Pharma / Science / Tech / Digital / AI Professionals Rare

Today is #RareDiseaseDay – Read my Patient Experience: Living with multiple rare diseases | Pharmafile | What’s your #Rare? care to share?

Not everyone with EDS has hypermobility, and not everyone with hypermobility has EDS!

Categories
#Innovation Academics AI in medicine Articles Awareness campaigns, events, blogs, petitions & posters big data Biochemistry Biomedical scientists Care givers Child health chronic illness clinical trials conference data privacy data silos Deep learning Diagnosticians Digital Health Drug development EVENTS eyeforpharma FibroFlutters Geneticists genomics Health Care Providers Healthcare Lab Technicians Machine learning Media Medical Conditions / Disorders Medical Device Medical news stories Medical news stories, blogs and research Medical technologists Newsletters/Papers/Magazines/Blogs Patient Advocacy patient centricity Patient Engagement Patients Patients included Pharma pharma Pharma / Science / Tech / Digital / AI pharmaphorum Professionals Research Support Group Therapies and Treatments Webinar

NOT LONG NOW! eyeforpharma Barcelona 2020. Take a look at the agenda! BONUS Q&A re: patient centricity with Paul Simms

The more I think about it, the fact that data sits in silos and is in different formats is the thing that is preventing true patient centricity, because it’s what stops you determining whether intervention X actually created result Y within the population, and hence reward the right kind of behaviour.’

PAUL SIMMS, CHAIRMAN EYEFORPHARMA

Categories
Academics AI in medicine Articles Autoimmune Awareness campaigns Awareness campaigns, events, blogs, petitions & posters Biomedical scientists Bursitis Care givers Charities Child health chronic illness chronic pain clinical trials Collagen disorder conference Deep learning Diagnosticians Digital Health Disability Drug development EDS EVENTS eyeforpharma FibroFlutters Fibromyalgia FMAUK Gastro / Gut / Bowel genetics genomics Health Care Providers Healthcare HOME HSDs HYPERMOBILITY Hypermobility Spectrum Disorders im-patient inflammatory Info site invisible illness Irritable Bowel Syndrome (IBS) JHS Machine learning MAY 12TH ME CFS Medical Conditions / Disorders Medical technologists mental health Musculoskeletal Neuroscience NHS NIHR NIHR Clinical Research Network Patient & Public Involvement & Engagement Patient Research Ambassador Initiative Patient Advocacy patient centricity Patient Engagement Patients Patients included pharma Pharma / Science / Tech / Digital / AI Product Reviews Professionals public health Rare Research Researchers Support Group WEGO HEALTH Youth matters

Reflecting back! My year of patient, health, research and pharma advocacy 2019 | Carole Scrafton

In all honesty I am amazed that I have done all this especially considering my health was quite bad last year. I do tend to distract myself as much as possible, but crikey, I got around quite a bit didn’t I. – closing thoughts

Categories
Academics AI in medicine Ataxia Awareness campaigns Awareness campaigns, events, blogs, petitions & posters Biomedical scientists Care givers Charities Child health chronic illness clinical trials Collagen disorder conference Cystic Fibrosis Diagnosticians Digital Health Disability Drug development EDS Educational EVENTS Geneticists genetics genomics Healthcare Lab Technicians Medical Conditions / Disorders Medical Device Medical technologists Musculoskeletal Neuroscience Patient Advocacy patient centricity Patient Engagement Patients Pharma / Science / Tech / Digital / AI Professionals Rare Research Researchers Scientists Therapies and Treatments Twitter Feed

#RAREsummit19 | 23 September in Cambridge | I’m going, will you join us?!

Will you be joining us in supporting #RAREsummit19 on 23 September in Cambridge.  A highlight on the rare disease calendar. Being an official media partner for this event is a great honour in the name of rare disease advocacy and I cannot wait to attend the event and be a part of the day’s activities. […]

Categories
Awareness campaigns Child health chronic illness chronic pain Disability Educational EVENTS Healthcare Info site invisible illness Juvenile arthritis Medical Conditions / Disorders Musculoskeletal Patient Advocacy Patients Professionals Rheumatoid arthritis Rheumatology The hints and tips station

Patients & Caregivers | American College of Rheumatology | Find information you need about rheumatic diseases & conditions.

Working in tandem with the Health Care Professionals is not easy for many patients, so it is important for the person that you care for to make their healthcare team aware that ‘you’ are their personal care-provider and support system.