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Rare neurological disease – Awareness campaign for AtaxiaUK #IAAD21

Taryn is delivering the Ataxia UKs medical guidelines to her GP in Sunderland for the campaign. Educating doctors is important to help this rare condition, ataxia, get recognised. Knowing about the disease can help people with symptoms to get noticed sooner… and diagnosed quicker.

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International Ataxia Awareness Day 25th September with ‘Ataxia and Me’

The word ‘ataxia’ comes from the Greek ‘a taxis’, which means ‘without order’.
          Our mission is to bring back some of the order to the lack of order
It is the term used for a group of neurodegenerative diseases that affect balance and coordination.

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Ataxia Awareness campaigns, events, blogs, petitions & posters Charities Collagen disorder Disability EDS EVENTS FibroFlutters Patient Advocacy Patients Rare Rare Disease Advocacy rare genetic disorder Sites to visit Zebra Strutters

We’re off mobilising for charity – 1 month long Superhero Series challenge

Using my rollator with its seat for those appropriately paced stops we hope to get out of the back lane this time. Last year the pandemic put restrictions on how I could complete the challenge.

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#chronicillnessVOICE July 6, health, medical, pharma and research news

Bringing a varied selection of health news, medical news, pharma news, research news to you in relation to many aspects within the healthcare, medical healthcare & pharmaceutical landscapes.

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Awareness campaigns Awareness campaigns, events, blogs, petitions & posters Charities EDS EVENTS HYPERMOBILITY Hypermobility Spectrum Disorders Join the Community Medical Conditions / Disorders Medical news stories, blogs and research Musculoskeletal Patient Advocacy Rare Rare Disease Advocacy rare genetic disorder Supporters / Ambassadors Zebra Strutters

Dazzle4Rare 2021 – #StrutYourStripes with us at ZebraStrutters to raise awareness!

A simple goal of signal boosting rare and undiagnosed patient and community messages. August week long event, joining allies, advocates, small and large non-profit organisations, and others who wish to elevate rare and undiagnosed voices.

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#chronicillnessVOICE June 1 health, medical, pharma and research news

Bringing a varied selection of health news, medical news, pharma news, research news to you in relation to many aspects within the healthcare, medical healthcare & pharmaceutical landscapes.

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#chronicillnessVOICE May 20 health, medical, pharma and research news

Bringing a varied selection of health news, medical news, pharma news, research news to you in relation to many aspects within the healthcare, medical healthcare & pharmaceutical landscapes.

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AI in medicine Alternative / Complementary Therapies & Treatments Articles Awareness campaigns, events, blogs, petitions & posters Bi-polar Blogs / Bloggers Charities chronic illness chronic pain Dementia / Alzheimers Digital Health Drug development EDS EDS news and info EVENTS Fibromyalgia genomics Global resources Health and medical Heart Health HYPERMOBILITY Hypermobility Spectrum Disorders Medical Conditions / Disorders Medical Device Medical news stories Medical news stories, blogs and research migraines Musculoskeletal Neuroscience Newsletters/Papers/Magazines/Blogs Patients Pharma / Science / Tech / Digital / AI physiotherapy Professionals public health Rare Research Sites to visit Therapies and Treatments Video Webinar

#chronicillnessVOICE May 19 health, medical, pharma and research news

Bringing a varied selection of health news, medical news, pharma news, research news to you in relation to many aspects within the healthcare, medical healthcare & pharmaceutical landscapes.

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#chronicillnessVOICE May 15 health, medical, pharma and research news

Bringing a varied selection of health news, medical news, pharma news, research news to you in relation to many aspects within the healthcare, medical healthcare & pharmaceutical landscapes.

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Awareness campaigns, events, blogs, petitions & posters Charities chronic illness chronic pain Fibromyalgia FMAUK Info site invisible illness Join the Community MAY 12TH ME CFS Medical news stories, blogs and research

International Awareness Day May 12th

International Awareness Day – May 12th International Awareness Day – May 12th is held every year to raise awareness of Myalgic Encephalomyelitis (ME) / Chronic Fatigue Syndrome (CFS), Fibromyalgia, Multiple Chemical Sensitivity, Gulf War Syndrome and other Chronic Immunological and Neurological Diseases It is important to continue to help people understand what these conditions are, how they affect patients… and […]