Category: About Us – FibroFlutters

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#chronicillnessVOICE Aug 17 health, medical, pharma and research news

Post author By fibrofly73
Post date August 17, 2021
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Bringing a varied selection of health news, medical news, pharma news, research news to you in relation to many aspects within the healthcare, medical healthcare & pharmaceutical landscapes.

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#chronicillnessVOICE July 6, health, medical, pharma and research news

Post author By fibrofly73
Post date July 6, 2021

Bringing a varied selection of health news, medical news, pharma news, research news to you in relation to many aspects within the healthcare, medical healthcare & pharmaceutical landscapes.

About Us - FibroFlutters chronic illness chronic pain Collagen disorder EDS FibroFlutters Fibromyalgia HYPERMOBILITY Media Partners Medical Conditions / Disorders Musculoskeletal Patient Advocacy Patients Rare Rare Disease Advocacy Somatic Symptom Disorders Zebra Strutters

About FibroFlutters

Post author By fibrofly73
Post date April 27, 2021
9 Comments on About FibroFlutters
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Read this to learn about FibroFlutters, who we are today. A Patient Advocacy Organisation & online social media communications network for everyone #notjustpatients

Tags About us, chronic illness, FibroFlutters, rare disease, Zebra Strutters

About Us - FibroFlutters Awareness campaigns Charities Child health chronic illness chronic pain Chronic SoMe platforms Disability Drug development EDS news and info Educational EVENTS eyeforpharma Fibro MeCFS online NEWS & INFO sources FibroFlutters Home News Fibromyalgia FMAUK Healthcare HOME HYPERMOBILITY im-patient invisible illness JHS Join the Community MAY 12TH ME CFS Medical Conditions / Disorders mental health Miscellaneous & Other Neurology Newsletters Newsletters/Papers/Magazines/Blogs NIHR NIHR Clinical Research Network Patient & Public Involvement & Engagement Patient Research Ambassador Initiative Patient Advocacy Patients Patients included pharma Pharma / Science / Tech / Digital / AI Professionals Rare Research Skin conditions SoMe Platforms Support Group Twitter Twitter Feed WEGO HEALTH

Contents About Us – our aims and desires, missions and wants as a patient led group. Advocacy & raising awareness Advocacy & raising awareness (Continued from Page 2) – Including: Updated Version! New Look! | #chronicillnessVOICE | SPECIAL EDITION | eyeforpharma Patient Summit Europe ~ My experiences, incl. Im-patient | Carole Scrafton Is pharma being […]

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Merry Christmas, happy holidays & all the best for 2020. Thank you for your support.

Post author By fibrofly73
Post date December 24, 2019
2 Comments on Merry Christmas, happy holidays & all the best for 2020. Thank you for your support.

It is time to pat yourselves on the back for being actively involved to help create change.

Tags academia, Christmas card, Christmas greetings, chronic illness, clinical, Drug development, Happy holidays, health, medical, Patient Engagement, Patients, pharma, Research

About Us - FibroFlutters AI in medicine Awareness campaigns chronic illness clinical trials conference Digital Health Drug development events EVENTS eyeforpharma genetics genomics Healthcare Machine learning Medical Conditions / Disorders Medical Device NICE ~ National Institute for Health and Care Excellence NIHR NIHR Clinical Research Network Patient & Public Involvement & Engagement Patient Research Ambassador Initiative Parkinsons Patient Advocacy Patients Patients included pharma Pharma Pharma / Science / Tech / Digital / AI Professionals public health Rare Research

I’m speaking at the @eyeforpharma PATIENT SUMMIT EUROPE | Pharma’s home for patient-centricity in Europe

Post author By fibrofly73
Post date August 12, 2019
3 Comments on I’m speaking at the @eyeforpharma PATIENT SUMMIT EUROPE | Pharma’s home for patient-centricity in Europe

“For 2019, we have a practical focus on transforming the whole pipeline – R&D, clinical trials and commercial – demonstrating how patient-led design can reduce cost whilst driving effectiveness and value.”

About Us - FibroFlutters Awareness campaigns Blogs / Bloggers chronic illness FibroFlutters Home News Healthcare invisible illness Medical Conditions / Disorders Newsletters Newsletters/Papers/Magazines/Blogs Patient Advocacy Patients pharma Pharma / Science / Tech / Digital / AI Professionals public health Rare Twitter

Fibroflutters #SocialMedia #healthadvocacy and #allstakeholder approach to #healthcare, across the globe – Peeking at the statistics!

Post author By fibrofly73
Post date August 10, 2019

The burning question now 14 months on from that is how are FibroFlutters representing and engaging with ‘all-stakeholders’ themselves. After all it really would be rude of us to demand the industry to respect such a notion and for us not to return the favour and do it ourselves.

About Us - FibroFlutters AI in medicine Articles Awareness campaigns big data chronic illness conference Deep learning Digital Health Drug development EVENTS eyeforpharma Healthcare invisible illness Machine learning Medical Conditions / Disorders Medical Device Patient Advocacy Patients Patients included pharma Pharma Pharma / Science / Tech / Digital / AI Professionals public health Rare

What’s coming up? #pharma #patients @eyeforpharma? Take a look & see! (sponsored)

Post author By fibrofly73
Post date August 3, 2019

Hello and welcome to this eyeforpharma event special where I share with you the upcoming conferences in Philadelphia – North America and in London – Europe, during October 2019 Many people possibly will wish to know why I champion eyeforpharma, and indeed pharma in general so I’ll go into it, ‘briefly’, here before introducing the […]