This week I was lucky enough to attend the ‘Patient Centricity and Collaboration Global Congress 2021, Europe, that was held in London on 8-9th November. By Paradigm Global Events, that was held in London on 8-9th November. The last time I attended such an event in person was in October 2019, in London. In this article I discuss it, my experience and share the messages that I took with me.
During these extraordinary times, the most important thing Pharma can do is collaborate cross-functionally and cross-company.
In all honesty I am amazed that I have done all this especially considering my health was quite bad last year. I do tend to distract myself as much as possible, but crikey, I got around quite a bit didn’t I. – closing thoughts
The burning question now 14 months on from that is how are FibroFlutters representing and engaging with ‘all-stakeholders’ themselves. After all it really would be rude of us to demand the industry to respect such a notion and for us not to return the favour and do it ourselves.
HealtheVoices Conference provides online #healthadvocates the empowerment to throw their patient voices, share ideas and also gives them the opportunity network, connect and meet other fabulous Advocates/Peers at the same time.
New Patient platform! Be a Supportive Voice for Future Patients | WEGO HEALTH | 19 March 2018 Quote from Stage 5 Melanoma survivor Dan Engel – Author at WEGO HEALTH “I believe that there are thousands and thousands of survivors like myself who provide informal advocacy on an ad-hoc basis all the time, and would love […]
New! Participate in the 2018 #MillionsMissing with #MEACTION | 7 March 2018 Participate in the 2018 #MillionsMissing with #MEACTION A map of #MillionsMissing registered events will appear over the next week for you to join and RSVP! Keep checking millionsmissing.org for updates. Latest! #MEACTION Daily Digest: Urgent Congressional Action! Ask your Rep. to Sign Letter for […]
Volunteer Opportunities (2018) Volunteer Job Opportunities Photography Videography and Video Editing Graphic Design Editing Campaigns Online Moderator Patient Advocate Grants/Trusts Events EDS Conference Volunteer Jobs Artistic Talents Writing If you think you can offer support as a volunteer please click the link for more information and if you decide it is something you would […]
Do you have Fibromyalgia, Chronic Pain, Chronic Fatigue, Fog, Depression and/or Anxiety or any other Illness where you flare from time to time and one illness rubs onto another one making you feel worse? Do you know the difference between a flare and a setback? Many people don’t and often treat themselves for a flare […]
FibroFlutters is celebrating reaching a milestone and we Thank you, our followers all across social media for helping to make it happen. It’s that time of year when I start to reflect back across the years activity on social media, yes! I’m talking about which topics are liked or not, how many people are using […]