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Precision Medicine Forum PATIENT WEEK – Change of date.

Precision Medicine Forum – Patient Week convenes healthcare professionals, researchers, industry, payers and patients/patient advocates in a unique setting which puts the patient front and centre of the discussions. This time around there will be panels sessions, roundtables, 1-2-1 networking and group networking sessions.

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Survey to produce a ‘state of the industry report’ | eyeforpharma

Hello readers, please can I ask you for a little time to consider the following…? Survey to produce a ‘state of the industry report’ | eyeforpharma eyeforpharma (now Reuters Events Pharma) are conducting a ‘state of the industry report’ – to see what the initial impact of COVID-19 has been across pharma (whether you’re in […]

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‘What Patients Want’ Executive Round table Summary – eyeforpharma Patient Summit October 2019

This EXCLUSIVE PAPER ‘What Patients Want’ discusses the roundtables / interactive sessions that were designed + led by patients, co-chaired by patients, and moderated by industry facilitators ie patient advocates.

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NOT LONG NOW! eyeforpharma Barcelona 2020. Take a look at the agenda! BONUS Q&A re: patient centricity with Paul Simms

The more I think about it, the fact that data sits in silos and is in different formats is the thing that is preventing true patient centricity, because it’s what stops you determining whether intervention X actually created result Y within the population, and hence reward the right kind of behaviour.’

PAUL SIMMS, CHAIRMAN EYEFORPHARMA

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Merry Christmas, happy holidays & all the best for 2020. Thank you for your support.

It is time to pat yourselves on the back for being actively involved to help create change.

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Up for debate next week | Patient Summit | Humanising Healthcare, Building trust, Health Literacy and Disease Awareness

Humanising Healthcare is what I’ll be discussing with friend and fellow patient advocate Cécile Tardy, but it’s just one of the Patient-Led Round-Table topics! Humanising healthcare: Carole Scrafton & Cécile Tardy Healthcare is undergoing a digital transformation, with technology (e.g AI, big data) aiming at delivering more personalised, immediate and accessible care. While the benefits […]

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#RAREsummit19 | 23 September in Cambridge | I’m going, will you join us?!

Will you be joining us in supporting #RAREsummit19 on 23 September in Cambridge.  A highlight on the rare disease calendar. Being an official media partner for this event is a great honour in the name of rare disease advocacy and I cannot wait to attend the event and be a part of the day’s activities. […]