Category: Youth matters

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Awareness campaigns, events, blogs, petitions & posters Care givers Charities Child health chronic illness EVENTS Join the Community Medical Conditions / Disorders Medical news stories, blogs and research Patient Advocacy Patients Rare rare genetic disorder Sites to visit Support Group Webinar Youth matters

Are you aware of this #Rare? | Wolfram Syndrome UK Virtual Conference 2020 | 19th and 26th September

Wolfram Syndrome is a rare genetic disorder which is also known as DIDMOAD syndrome after its four most common features: Diabetes Insipidus, Diabetes Mellitus, Optic Atrophy and Deafness

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Awareness campaigns, events, blogs, petitions & posters Care givers Charities chronic illness Chronic SoMe platforms clinical trials Drug development EDS FibroFlutters HOME Join the Community Medical Conditions / Disorders Patient Advocacy patient centricity Patient Engagement Patients pharma Pharma / Science / Tech / Digital / AI Professionals Rare Research Support Group Youth matters

It is time to ‘dazzle’, ‘strut your stripes’ and share ‘rare voices’ for #dazzle4rare2020! 9 – 14th August

Many rare disease communities are very small which makes it hard to raise awareness by themselves, so through joining forces during this week their voices are strengthened in numbers and become one giant ‘united voice’ for rare disease awareness.

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Care givers chronic illness Chronic SoMe platforms Join the Community Medical Conditions / Disorders Patients Support Group Youth matters

healtheo360 Join a ‘PATIENT’ community and share your story!

healtheo360 is a community where patients can connect with one another for support, inspiration, and motivation.

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#Innovation AI in medicine Awareness campaigns, events, blogs, petitions & posters big data Biochemistry Care givers chronic illness conference data privacy data silos Deep learning Digital Health Drug development EVENTS eyeforpharma FibroFlutters Health Care Providers Healthcare Lab Technicians Machine learning Media Medical Device Medical technologists Patient Advocacy patient centricity Patient Engagement Patients Patients included Pdf Download Available Pharma pharma Pharma / Science / Tech / Digital / AI Professionals public health Researchers Scientists Support Group Youth matters

‘What Patients Want’ Executive Round table Summary – eyeforpharma Patient Summit October 2019

This EXCLUSIVE PAPER ‘What Patients Want’ discusses the roundtables / interactive sessions that were designed + led by patients, co-chaired by patients, and moderated by industry facilitators ie patient advocates.

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Academics AI in medicine Articles Autoimmune Awareness campaigns Awareness campaigns, events, blogs, petitions & posters Biomedical scientists Bursitis Care givers Charities Child health chronic illness chronic pain clinical trials Collagen disorder conference Deep learning Diagnosticians Digital Health Disability Drug development EDS EVENTS eyeforpharma FibroFlutters Fibromyalgia FMAUK Gastro / Gut / Bowel genetics genomics Health Care Providers Healthcare HOME HSDs HYPERMOBILITY Hypermobility Spectrum Disorders im-patient inflammatory Info site invisible illness Irritable Bowel Syndrome (IBS) JHS Machine learning MAY 12TH ME CFS Medical Conditions / Disorders Medical technologists mental health Musculoskeletal Neuroscience NHS NIHR NIHR Clinical Research Network Patient & Public Involvement & Engagement Patient Research Ambassador Initiative Patient Advocacy patient centricity Patient Engagement Patients Patients included pharma Pharma / Science / Tech / Digital / AI Product Reviews Professionals public health Rare Research Researchers Support Group WEGO HEALTH Youth matters

Reflecting back! My year of patient, health, research and pharma advocacy 2019 | Carole Scrafton

In all honesty I am amazed that I have done all this especially considering my health was quite bad last year. I do tend to distract myself as much as possible, but crikey, I got around quite a bit didn’t I. – closing thoughts

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Merry Christmas, happy holidays & all the best for 2020. Thank you for your support.

It is time to pat yourselves on the back for being actively involved to help create change.

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Awareness campaigns, events, blogs, petitions & posters Care givers chronic illness FibroFlutters HOME Patients Professionals Support Group Uncategorized Youth matters

Happy Thanksgiving

Happy Thanksgiving Huge #gratitude to all of our #American #friends for your #support of our #healthcare #advocacy + for your #friendships. #strongertogether #chronicillness.Wishing you all wellness + a fabulous day from @FibroFlutters + me @Scrufton73 aka Carole

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Awareness campaigns Child health chronic illness chronic pain conference Disability EVENTS Healthcare invisible illness Medical Conditions / Disorders Medical news stories, blogs and research mental health NHS Patients pharma Pharma / Science / Tech / Digital / AI Professionals public health Suicide Prevention Youth matters

NOT LONG NOW! RCGP’s 7th Health and Justice Summit: Journeys Through Justice – Leadership and Transformation (sponsored)(updated)

The main title will be ‘Journeys Through Justice – Leadership and Transformation’ – focusing on a range of themes including Women in prison, Transgender pathways, Children’s services, Learning disability and difficulty and Trauma-informed care

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anxiety Articles Awareness campaigns Awareness campaigns, events, blogs, petitions & posters Charities chronic illness depression Educational EVENTS Healthcare invisible illness Medical Conditions / Disorders Medical news stories mental health Newsletters Patient Advocacy Patients Stress Suicide Prevention The hints and tips station Twitter Feed Youth matters

Welcome to the Samaritans Monthly Newsletter | Samaritans | June 2019

Suicide prevention research recognised in the ‘Nation’s Lifesavers List’
Support research commissioned by Samaritans by taking part in an online survey investigating how people react when they meet people who are in distress or are suicidal.

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AI in medicine big data Child health chronic illness conference Deep learning Digital Health Educational EVENTS Healthcare Heart Health invisible illness Machine learning Medical Conditions / Disorders Medical Device Medical news stories Neuroscience Newsletters pharma Pharma Pharma / Science / Tech / Digital / AI Professionals Rare Research Twitter Feed Youth matters

Who are AI Med? Get to know about AI in Medicine with ‘AI Med’

Who are AI Med? Who are AI Med? This post will help you get to know about AI in Medicine with the company ‘AI Med’. Led by clinicians for clinicians! Global news round-up from the world of artificial intelligence in medicine on their home page. AI Med are a clinician led community exploring how AI […]