Starting on September 28 and 29, AIMed will go live with a weekly series of high quality content. Shorter, more focused sessions available to view for free live or on-demand.
Tag: patient experience
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Voice your opinions to improve medical products and services
Get paid to Voice your opinions. Help companies develop better products and services to help provide better healthcare for patients. Create better patient outcomes!
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#Innovation Awareness campaigns, events, blogs, petitions & posters Care givers Drug development EVENTS Health and medical Healthcare Industry & business matters Media Partners medical Medical Conditions / Disorders Medical news stories, blogs and research Patient Advocacy patient centricity Patient Engagement Patients pharma Professionals Rare Rare Disease Advocacy rare genetic disorder Researchers Scientists Supporters / Ambassadors Twitter Feed
RARE Summit 21 – it’s more than an event – it’s where the magic happens!
RAREsummit is more than an event – it’s where the magic happens. A powerful movement for change that provides the right ingredients and ecosystem for a better future, where productive collaborations are nurtured and flourish for real patient impact.
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About Us - FibroFlutters Articles Ataxia Awareness campaigns, events, blogs, petitions & posters Charities chronic illness chronic pain Disability EDS EVENTS FibroFlutters Fibromyalgia Gastro / Gut / Bowel Health and medical Healthcare Info site invisible illness Medical Conditions / Disorders Medical news stories Medical news stories, blogs and research mental health Multiple Sclerosis (MS) Musculoskeletal Neurology Neuroscience Newsletters/Papers/Magazines/Blogs Patient Advocacy Patients Pharma / Science / Tech / Digital / AI Professionals public health Rare Rare Disease Advocacy Research Sites to visit Therapies and Treatments
#chronicillnessVOICE July 6, health, medical, pharma and research news
Bringing a varied selection of health news, medical news, pharma news, research news to you in relation to many aspects within the healthcare, medical healthcare & pharmaceutical landscapes.
After having constant dislocations in my knee where the PVNS tumour was removed from 6 years years previously had caused major damage. This was worsened with my hEDS which effects all of my joints.
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Awareness campaigns, events, blogs, petitions & posters Care givers Charities chronic illness Chronic SoMe platforms clinical trials Drug development EDS FibroFlutters HOME Join the Community Medical Conditions / Disorders Patient Advocacy patient centricity Patient Engagement Patients pharma Pharma / Science / Tech / Digital / AI Professionals Rare Research Support Group Youth matters
It is time to ‘dazzle’, ‘strut your stripes’ and share ‘rare voices’ for #dazzle4rare2020! 9 – 14th August
Many rare disease communities are very small which makes it hard to raise awareness by themselves, so through joining forces during this week their voices are strengthened in numbers and become one giant ‘united voice’ for rare disease awareness.
healtheo360 is a community where patients can connect with one another for support, inspiration, and motivation.
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Articles Awareness campaigns Awareness campaigns, events, blogs, petitions & posters Child health chronic illness Collagen disorder EDS events FibroFlutters genetics HYPERMOBILITY Hypermobility Spectrum Disorders JHS Media Medical Conditions / Disorders Medical news stories Newsletters/Papers/Magazines/Blogs Patient Advocacy pharma Pharma / Science / Tech / Digital / AI Professionals Rare
Today is #RareDiseaseDay – Read my Patient Experience: Living with multiple rare diseases | Pharmafile | What’s your #Rare? care to share?
Not everyone with EDS has hypermobility, and not everyone with hypermobility has EDS!
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Up for debate next week | Patient Summit | Humanising Healthcare, Building trust, Health Literacy and Disease Awareness
Humanising Healthcare is what I’ll be discussing with friend and fellow patient advocate Cécile Tardy, but it’s just one of the Patient-Led Round-Table topics! Humanising healthcare: Carole Scrafton & Cécile Tardy Healthcare is undergoing a digital transformation, with technology (e.g AI, big data) aiming at delivering more personalised, immediate and accessible care. While the benefits […]
The attractive thing for me about this app is the fact that I can donate to charities just for taking my medications.