Category: SoMe Platforms

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Academics Awareness campaigns Awareness campaigns, events, blogs, petitions & posters Care givers Charities chronic illness Chronic SoMe platforms clinical trials Disability Drug development eyeforpharma FibroFlutters FibroFlutters Home News Fibromyalgia Healthcare invisible illness Join the Community MAY 12TH Newsletters Patient Advocacy patient centricity Patient Engagement Patients Patients included pharma Pharma Professionals public health Rare Research Slideshows Support Group WEGO HEALTH

Reflecting back on 2020, come look at my advocacy! Then will you please, please, endorse me. #WEGOHealthAwards

Okay, let’s get on with it! The following information is to help give you reasons for why you should endorse Carole for #WEGOHealthAwards

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About Us - FibroFlutters Awareness campaigns Charities Child health chronic illness chronic pain Chronic SoMe platforms Disability Drug development EDS news and info Educational EVENTS eyeforpharma Fibro MeCFS online NEWS & INFO sources FibroFlutters Home News Fibromyalgia FMAUK Healthcare HOME HYPERMOBILITY im-patient invisible illness JHS Join the Community MAY 12TH ME CFS Medical Conditions / Disorders mental health Miscellaneous & Other Neurology Newsletters Newsletters/Papers/Magazines/Blogs NIHR NIHR Clinical Research Network Patient & Public Involvement & Engagement Patient Research Ambassador Initiative Patient Advocacy Patients Patients included pharma Pharma / Science / Tech / Digital / AI Professionals Rare Research Skin conditions SoMe Platforms Support Group Twitter Twitter Feed WEGO HEALTH

About Us

Contents About Us – our aims and desires, missions and wants as a patient led group. Advocacy & raising awareness Advocacy & raising awareness (Continued from Page 2) – Including: Updated Version! New Look! | #chronicillnessVOICE | SPECIAL EDITION | eyeforpharma Patient Summit Europe ~ My experiences, incl. Im-patient | Carole Scrafton Is pharma being […]

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Academics AI in medicine Articles Autoimmune Awareness campaigns Awareness campaigns, events, blogs, petitions & posters Biomedical scientists Bursitis Care givers Charities Child health chronic illness chronic pain clinical trials Collagen disorder conference Deep learning Diagnosticians Digital Health Disability Drug development EDS EVENTS eyeforpharma FibroFlutters Fibromyalgia FMAUK Gastro / Gut / Bowel genetics genomics Health Care Providers Healthcare HOME HSDs HYPERMOBILITY Hypermobility Spectrum Disorders im-patient inflammatory Info site invisible illness Irritable Bowel Syndrome (IBS) JHS Machine learning MAY 12TH ME CFS Medical Conditions / Disorders Medical technologists mental health Musculoskeletal Neuroscience NHS NIHR NIHR Clinical Research Network Patient & Public Involvement & Engagement Patient Research Ambassador Initiative Patient Advocacy patient centricity Patient Engagement Patients Patients included pharma Pharma / Science / Tech / Digital / AI Product Reviews Professionals public health Rare Research Researchers Support Group WEGO HEALTH Youth matters

Reflecting back! My year of patient, health, research and pharma advocacy 2019 | Carole Scrafton

In all honesty I am amazed that I have done all this especially considering my health was quite bad last year. I do tend to distract myself as much as possible, but crikey, I got around quite a bit didn’t I. – closing thoughts

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About Us - FibroFlutters Articles chronic illness chronic pain Chronic SoMe platforms Educational FibroFlutters Home News Healthcare Homecare Info site invisible illness Join the Community Medical Conditions / Disorders Medical news stories mental health Newsletters Newsletters/Papers/Magazines/Blogs Patients Professionals Reproductive Health SoMe Platforms The hints and tips station

Patient Newsletters  |    8 June / 19 May 2019

“Over four in ten adults in the UK are affected by food allergy or intolerance. But how can you go about finding out what the culprit is?”

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About Us - FibroFlutters Articles big data chronic illness Educational events Healthcare Heart Health Hypermobility Spectrum Disorders Join the Community Medical Device Medical news stories Musculoskeletal Neuroendocrine Neurology Parkinsons Pharma pharma Pharma / Science / Tech / Digital / AI Professionals Rare Rheumatology sleep disorder WEGO HEALTH

Check out AIMed Cardiology / Radiology 17-19 June CHICAGO AREA| Live Stream available for global interest (Sponsored)

Do you live within the region of Chicago and work in the fields of cardiology? or radiology??…
… then these events may be of interest to you.

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Academics Awareness campaigns Blogs / Bloggers Charities chronic illness chronic pain Chronic SoMe platforms Educational Healthcare Heart Health Info site invisible illness Join the Community Medical Conditions / Disorders Medical news stories Medical news stories, blogs and research Medical technologists Newsletters Newsletters/Papers/Magazines/Blogs Patient Advocacy Patients Professionals Research Researchers Scientists SoMe Platforms The hints and tips station Twitter Twitter Feed Video Youth matters

Heart Matters  | Are carbs the best comfort food ever, or best avoided? 1 June 2019

Photo by Pixabay on Pexels.com

Are carbohydrates really bad for you? And do they make you put on weight? Try our new quiz to see whether you can sort the fact from the fiction.

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About Us - FibroFlutters Articles big data Biochemistry chronic illness chronic pain Chronic SoMe platforms conference Digital Health Drug development Educational EVENTS eyeforpharma Healthcare im-patient Info site invisible illness Join the Community Mainly Medications Medical Conditions / Disorders Medical Device Medical news stories mental health Miscellaneous & Other Newsletters Newsletters/Papers/Magazines/Blogs Patient Advocacy Patients Patients included pharma Pharma Pharma / Science / Tech / Digital / AI pharmaphorum Professionals Rare Research SoMe Platforms Twitter Feed Video

#ChronicillnessVOICE SPECIAL EDITION ‘PHARMA’ APRIL 2019 | eyeforpharma Barcelona review | Plus Newsletters & Resources

I am a supporter of pharma community platforms, but as a patient wish there was one platform for all of them rather than insular separate ones. I believe that compiling resources and knowledge could lead to better results. Plus, it would make them easier to find.

Hope you enjoy reading!

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About Us - FibroFlutters Articles chronic illness chronic pain Chronic SoMe platforms Dementia / Alzheimers Educational Food, drink and recipes Healthcare Homecare Info site invisible illness Join the Community Medical Conditions / Disorders Medical news stories mental health Musculoskeletal Newsletters Newsletters/Papers/Magazines/Blogs Patients Professionals Reproductive Health sleep disorder SoMe Platforms The hints and tips station

Patient Newsletters  |    17 March / 14 March 2019

Dreaming is crucial to normal brain function, but certain sleep and dream behaviours may be an indicator of underlying health issues. We examine what your dream patterns can reveal about your health ahead of World Sleep Day.
Patient Newsletter | Subject: Give us a smile! | 17 March 2019

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Arthritis Articles Awareness campaigns Awareness campaigns, events, blogs, petitions & posters big data Blogs / Bloggers cancer celiac Charities Child health chronic illness chronic pain Chronic SoMe platforms clinical trials Collagen disorder conference Dementia / Alzheimers Digital Health Disability Drug development EDS news and info Educational EVENTS eyeforpharma FibroFlutters Home News Fibromyalgia Healthcare Heart Health HYPERMOBILITY Hypermobility Spectrum Disorders im-patient Info site invisible illness JHS Join the Community Juvenile arthritis ME CFS Medical Device Medical news stories Musculoskeletal Neuroendocrine Neurology Neuroscience Newsletters/Papers/Magazines/Blogs NIH ( The National Institutes of Health ) US NIHR Patient Advocacy Patients Patients included Pharma pharma Pharma / Science / Tech / Digital / AI Professionals Rare Research Rheumatology SoMe Platforms Support Group The CHILLOUT LOUNGE Twitter Feed WEGO HEALTH

#chronicillnessVOICE | Health & medical related mini-mag for everyone| February 2019 | #notjustpatients

Feature: ‘Find Me A Cure’
Very soon FibroFlutters website will have it’s own very unique widget for readers to search for appriate clinical trials for any illness anywhere in the World and Find Me A cure have already sent me some designs to choose from.

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About Us - FibroFlutters Alternative / Complementary Therapies & Treatments Arthritis Articles Awareness campaigns Awareness campaigns, events, blogs, petitions & posters Blogs / Bloggers cancer Charities Child health chronic illness chronic pain Chronic SoMe platforms clinical trials Dementia / Alzheimers Diabetes Digital Health Disability Educational EVENTS eyeforpharma FibroFlutters Home News FibroFlutters Milestone Fibromyalgia FMAUK Food, drink and recipes Healthcare Heart Health HYPERMOBILITY im-patient Info site invisible illness JHS Join the Community Juvenile arthritis Medical Conditions / Disorders Medical Device Medical news stories Medical news stories, blogs and research mental health Musculoskeletal Neurology Neuroscience Newsletters/Papers/Magazines/Blogs Pain management Patient Advocacy Patients pharma Pharma Pharma / Science / Tech / Digital / AI Podcast Professionals Rare Research Rheumatoid arthritis Rheumatology SoMe Platforms Twitter Feed Webinar

Special edition Happy new year & ‘Happy birthday’ #chronicillnessVOICE 1yrs young| January 2019 ~ a health newsletter for everyone! #chronicillness #notjustpatients

‘Attending an event during the middle of hibernation was a little daunting but I wasn’t going to let that stop me from going. ‘
What a way to celebrate our newsletters 1st birthday