Our site is currently old and sporting some posts that need attention. We need to get rid of dead links and update everything. Redevelopment and rebranding is essential to us moving forwards.
Category: FibroFlutters Home News
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Exclusive Interview: Health Ergonomics – Health Professional explains what it is and then talks about how #covid19 pivoted her into tele-consulting.
Do you have back problems? Arthritis or Fibromyalgia, other problems with joint pain and stiffness?? Then how you are sitting at your desk in the office could be making it worse, whether you work at home or in a company environment. Read on to find out why, and how! This article comes as the result […]
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Academics Awareness campaigns Awareness campaigns, events, blogs, petitions & posters Care givers Charities chronic illness Chronic SoMe platforms clinical trials Disability Drug development eyeforpharma FibroFlutters FibroFlutters Home News Fibromyalgia Healthcare invisible illness Join the Community MAY 12TH Newsletters Patient Advocacy patient centricity Patient Engagement Patients Patients included Pharma pharma Professionals public health Rare Research Slideshows Support Group WEGO HEALTH
Reflecting back on 2020, come look at my advocacy! Then will you please, please, endorse me. #WEGOHealthAwards
Okay, let’s get on with it! The following information is to help give you reasons for why you should endorse Carole for #WEGOHealthAwards
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About Us
Contents About Us – our aims and desires, missions and wants as a patient led group. Advocacy & raising awareness Advocacy & raising awareness (Continued from Page 2) – Including: Updated Version! New Look! | #chronicillnessVOICE | SPECIAL EDITION | eyeforpharma Patient Summit Europe ~ My experiences, incl. Im-patient | Carole Scrafton Is pharma being […]
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Merry Christmas, happy holidays & all the best for 2020. Thank you for your support.
It is time to pat yourselves on the back for being actively involved to help create change.
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About Us - FibroFlutters Awareness campaigns Blogs / Bloggers chronic illness FibroFlutters Home News Healthcare invisible illness Medical Conditions / Disorders Newsletters Newsletters/Papers/Magazines/Blogs Patient Advocacy Patients pharma Pharma / Science / Tech / Digital / AI Professionals public health Rare Twitter
Fibroflutters #SocialMedia #healthadvocacy and #allstakeholder approach to #healthcare, across the globe – Peeking at the statistics!
The burning question now 14 months on from that is how are FibroFlutters representing and engaging with ‘all-stakeholders’ themselves. After all it really would be rude of us to demand the industry to respect such a notion and for us not to return the favour and do it ourselves.
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About Us - FibroFlutters Articles chronic illness chronic pain Chronic SoMe platforms Educational FibroFlutters Home News Healthcare Homecare Info site invisible illness Join the Community Medical Conditions / Disorders Medical news stories mental health Newsletters Newsletters/Papers/Magazines/Blogs Patients Professionals Reproductive Health SoMe Platforms The hints and tips station
Patient Newsletters | 8 June / 19 May 2019
“Over four in ten adults in the UK are affected by food allergy or intolerance. But how can you go about finding out what the culprit is?”
Our loyalty has remained since 2014 and as a result today on our fifth birthday I ask you to please help us to support their 2019 International Awareness Day Campaign by ‘becoming Fibromyalgia Aware’. Please visit the website to learn about the condition, but also learn about the work that the charity does in support of research and education.
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#ChronicillnessVOICE SPECIAL EDITION ‘PHARMA’ APRIL 2019 | eyeforpharma Barcelona review
> I am a supporter of pharma community platforms, but as a patient wish there was one platform for all of them rather than insular separate ones. I believe that compiling resources and knowledge could lead to better results. Plus, it would make them easier to find.
>Being invited back to #efpbarca this year was indeed exciting and also an honour. This review that follows will give you a few insights into my week at Barcelona with eyeforpharma as a ‘Volunteer’ Patient Advocate, and as ‘Impatient Conference Steering Committee member, attending through their ‘Patient Policy’.
Hope you enjoy reading!
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About Us - FibroFlutters Articles big data Biochemistry chronic illness chronic pain Chronic SoMe platforms conference Digital Health Drug development Educational EVENTS eyeforpharma Healthcare im-patient Info site invisible illness Join the Community Mainly Medications Medical Conditions / Disorders Medical Device Medical news stories mental health Miscellaneous & Other Newsletters Newsletters/Papers/Magazines/Blogs Patient Advocacy Patients Patients included pharma Pharma Pharma / Science / Tech / Digital / AI pharmaphorum Professionals Rare Research SoMe Platforms Twitter Feed Video
#ChronicillnessVOICE SPECIAL EDITION ‘PHARMA’ APRIL 2019 | eyeforpharma Barcelona review | Plus Newsletters & Resources
I am a supporter of pharma community platforms, but as a patient wish there was one platform for all of them rather than insular separate ones. I believe that compiling resources and knowledge could lead to better results. Plus, it would make them easier to find.
Hope you enjoy reading!