Tag: patient centricity

My experience – First face-to-face event in 2 years!

Post author By fibrofly73
Post date November 14, 2021
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This week I was lucky enough to attend the ‘Patient Centricity and Collaboration Global Congress 2021, Europe, that was held in London on 8-9th November. By Paradigm Global Events, that was held in London on 8-9th November. The last time I attended such an event in person was in October 2019, in London. In this article I discuss it, my experience and share the messages that I took with me.

Tags #notjustpatients., Advocacy, Carole Scrafton, chronic illness, collaboration, Drug development, event summary, Face to face meeting, multi stakeholders, Paradigm Global Events, patient centricity, Patient Engagement, patient voice, Patients, PFMD, rare disease, Research

chronic illness clinical trials conference EVENTS FibroFlutters Patient Advocacy Patient Engagement Patients Professionals

CLINICAL TRIALS NEXUS EUROPE – Digital Event November 26-27th

Post author By fibrofly73
Post date November 23, 2020

The Coronavirus Pandemic has got us all considering how to navigate clinical trials and what are the best approaches for patient recruitment and retention. It is my belief that implementing patient engagement from the onset of the trial during trial design could be the beneficial answer.

Tags Carole Scrafton, Clinical trial recruitment, clinical trials, Keynote Speaker, Nexus Series Clinical Trials, Patient Advocacy, patient centricity, Patient Engagement, Patient Focused Medicines Development, patient voice, trial design

chronic illness Pharma / Science / Tech / Digital / AI

Pharma / Science / Tech / Digital / AI – Categories listing

Post author By fibrofly73
Post date August 18, 2020
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Categories listing – Pharma / Science / Tech / Digital / AI

Tags AI in medicine, Artificial Intelligence, Digital Health, Drug development, medical devices, patient centricity, pharma, Science, Technology

Academics Awareness campaigns Awareness campaigns, events, blogs, petitions & posters Care givers Charities chronic illness Chronic SoMe platforms clinical trials Disability Drug development eyeforpharma FibroFlutters FibroFlutters Home News Fibromyalgia Healthcare invisible illness Join the Community MAY 12TH Newsletters Patient Advocacy patient centricity Patient Engagement Patients Patients included Pharma pharma Professionals public health Rare Research Slideshows Support Group WEGO HEALTH

Reflecting back on 2020, come look at my advocacy! Then will you please, please, endorse me. #WEGOHealthAwards

Post author By fibrofly73
Post date July 30, 2020

Okay, let’s get on with it! The following information is to help give you reasons for why you should endorse Carole for #WEGOHealthAwards

Tags #WEGOHealthAwards, Awareness Campaign, Awareness Raising, chronic illness, clinical trials, collaboration, Community Network, Disease Awareness, Healthcare, Patient Advocacy, patient centricity, Patient Engagement, patient voice, rare disease, Social Media Network, WEGO HEALTH

#Innovation Academics AI in medicine Articles Awareness campaigns, events, blogs, petitions & posters big data Biochemistry Biomedical scientists Care givers Child health chronic illness clinical trials conference data privacy data silos Deep learning Diagnosticians Digital Health Drug development EVENTS eyeforpharma FibroFlutters Geneticists genomics Health Care Providers Healthcare Lab Technicians Machine learning Media Medical Conditions / Disorders Medical Device Medical news stories Medical news stories, blogs and research Medical technologists Newsletters/Papers/Magazines/Blogs Patient Advocacy patient centricity Patient Engagement Patients Patients included pharma Pharma Pharma / Science / Tech / Digital / AI pharmaphorum Professionals Research Support Group Therapies and Treatments Webinar

NOT LONG NOW! eyeforpharma Barcelona 2020. Take a look at the agenda! BONUS Q&A re: patient centricity with Paul Simms

Post author By fibrofly73
Post date February 10, 2020

The more I think about it, the fact that data sits in silos and is in different formats is the thing that is preventing true patient centricity, because it’s what stops you determining whether intervention X actually created result Y within the population, and hence reward the right kind of behaviour.’

PAUL SIMMS, CHAIRMAN EYEFORPHARMA

Tags #efpbarca, #Innovation, academia, AI, AI in medicine, Articles, big data, CEO activism, clinical trials, co-creation, collaboration, Commercial / Sales, commercial excellence, consumer marketing, CSR, data privacy, data silos, Digital clinical trials, digital endpoints, digital health solutions, digital marketing, Digital RCTs, digital therapeutics, Drug development, DTx, European Patients Forum, eyeforpharma, Healthcare, interactive sessions, Kris Sterkens, market access, medical affairs, multi stakeholders, Next-Gen Technology, patient advocates, patient centricity, Patient Engagement, Patient Perspective, Patients, Patients as partners, Paul Simms, Paul Tunnah, PFMD, pharma, Pharma / Science / Tech / Digital / AI, pharma marketing, pharma summit, reputation building, RWE, social media, webinars, whitepapers

Articles Awareness campaigns, events, blogs, petitions & posters chronic illness Chronic SoMe platforms conference Digital Health EVENTS eyeforpharma Healthcare invisible illness Miscellaneous & Other Newsletters/Papers/Magazines/Blogs Patient Advocacy Patients Pharma pharma Pharma / Science / Tech / Digital / AI Professionals

Patient-Centricity: An Appraisal | Ross Davies | eyeforpharma | 30 January 2019

Post author By fibrofly73
Post date January 31, 2019

Read the article, via the link button below, to gain perspectives from
Jen Horonjeff and Carole Scrafton as they give us their appraisals regarding how patient centricity appears to show a huge gap between ‘patient compliance’ and ‘patient experience’.

Tags chronic illness, disease silos, eyeforpharma, future of pharma, health communities, invisible illness, patient centricity, patient communities, patient compliance, patient experience, patient experts, patient voice, personalised medicine, pharma, platforming, social media

About Us - FibroFlutters Awareness campaigns big data Biochemistry chronic illness Digital Health events EVENTS eyeforpharma FibroFlutters Home News Healthcare Medical Device Medical news stories Patient Advocacy Patients Patients included pharma Pharma Pharma / Science / Tech / Digital / AI Rare

Only 4 weeks to go and we’ll be packing our little cases and boarding the train to London, will you be there? The eyeforpharma Patient Summit

Post author By fibrofly73
Post date September 23, 2018

Helping to close the gap between pharma and patients and increase relations, encourage collaborations and stave off the ideas that patients can be manipulated.

The Im-patient Conference which is new, and its bold.

No longer is eyeforpharma HQ in the driving seat, instead it is entirely designed, created and hosted by patients. We believe that in doing so, we will capture the true essence of what patients want – and put them in the driving seat.

Come and see me take part: 17th October | 17:00 – 17:40 (Day 2)

Panel: Candid patient perspectives on the good, the bad and the ugly of service design

Tags #efp, Collaborative, conference, Marketing and Customer Innovation Europe 2018, Patient Advocacy, patient centricity, patient experience, Patient Summit, patient voice, Patients included, The Im-patient Conference

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