Category: Industry & business matters

My experience – First face-to-face event in 2 years!

Post author By fibrofly73
Post date November 14, 2021
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This week I was lucky enough to attend the ‘Patient Centricity and Collaboration Global Congress 2021, Europe, that was held in London on 8-9th November. By Paradigm Global Events, that was held in London on 8-9th November. The last time I attended such an event in person was in October 2019, in London. In this article I discuss it, my experience and share the messages that I took with me.

Tags #notjustpatients., Advocacy, Carole Scrafton, chronic illness, collaboration, Drug development, event summary, Face to face meeting, multi stakeholders, Paradigm Global Events, patient centricity, Patient Engagement, patient voice, Patients, PFMD, rare disease, Research

Awareness campaigns, events, blogs, petitions & posters chronic illness EVENTS Health and medical Healthcare Industry & business matters medical Partnerships Patient Advocacy patient centricity Patient Engagement Patients pharma Pharma / Science / Tech / Digital / AI Rare Twitter Feed Webinar

Patient Engagement Day with Prime Patient – Did you miss it?

Post author By fibrofly73
Post date September 27, 2021
1 Comment on Patient Engagement Day with Prime Patient – Did you miss it?
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Patient Engagement Day with Prime Patient – Did you miss it?
UPDATED to include an article by Olivia Kersey, Patient Strategist, at PEP Talks, which outlines the highlights of the very first annual Patient Engagement Day.

Tags #AmplifyThePatientVoice, chronic illness, Drug development, invisible illness, Patient Engagement, Patient Engagement Day, Patient interviews, Patient partnerships, patient voice, Prime Global People, rare disease, Research

#Innovation Awareness campaigns, events, blogs, petitions & posters Care givers Drug development EVENTS Health and medical Healthcare Industry & business matters Media Partners medical Medical Conditions / Disorders Medical news stories, blogs and research Patient Advocacy patient centricity Patient Engagement Patients pharma Professionals Rare Rare Disease Advocacy rare genetic disorder Researchers Scientists Supporters / Ambassadors Twitter Feed

RARE Summit 21 – it’s more than an event – it’s where the magic happens!

Post author By fibrofly73
Post date September 12, 2021
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We're supporting RAREsummit21 #StrongerTogether

RAREsummit is more than an event – it’s where the magic happens. A powerful movement for change that provides the right ingredients and ecosystem for a better future, where productive collaborations are nurtured and flourish for real patient impact.

Tags #RAREsummit21, Cambridge Rare Disease Network, chronic illness, Disability, Healthcare Professionals, invisible illness, medical & healthcare industry, Patient Advocacy, Patient Engagement, patient experience, patient voice, pharma, rare disease, Rare Disease Advocacy, Rare disease awareness, rare drug development, Research, virtual event

Industry & business matters Responsibility & Sustainability

Responsible Business Awards | Reuters Events – Have you entered yet?

Post author By fibrofly73
Post date July 29, 2021
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Have you entered yet for The Responsible Business Awards by Reuters Events? There is less than 1 week to go until the deadline on 30th July

Tags Biodiversity, corporate responsibility, Diversity Equity Inclusion, innovation, Net Zero, Recognition, Responsible Business, Reuters Events, SDG, Social Impact, Sustainability, The Responsible Business Awards

AI in medicine Articles Awareness campaigns Awareness campaigns, events, blogs, petitions & posters Blogs / Bloggers chronic illness Digital Health Disability Drug development Educational EVENTS Fibro MeCFS online NEWS & INFO sources Global resources Health and medical Health Care Providers Healthcare Industry & business matters Info site Medical Conditions / Disorders Medical Device Medical news stories Medical news stories, blogs and research Medical specialists / consultants Newsletters Newsletters/Papers/Magazines/Blogs Patient Advocacy Patients Pharma / Science / Tech / Digital / AI Professionals public health Rare Rare Disease Advocacy Research Researchers Scientists Slideshows Therapies and Treatments Webinar

#chronicillnessVOICE April 28 health, medical, pharma and research news

Post author By fibrofly73
Post date May 4, 2021

Bringing a varied selection of health news, medical news, pharma news, research news to you in relation to many aspects within the healthcare, medical healthcare & pharmaceutical landscapes.

Tags #chronicillnessVOICE, #notjustpatients, 2021 RARE Drug Development Symposium, Artificial Intelligence, awareness, biopharma, Bristol-Myers Squibb, Burnout, cancer drugs, Chronic Bloggers, chronic illness, chronic pain, Clinical research, covid 19 news, Digital Health, Drug development, EMJ, EMJ Radiology, EMJ reviews, FDA, FibroFlutters, Fibromyalgia, genetics, Global Genes, Global PNH Patient Registry, Health Advice, health IT, Health related news, health tech, Healthcare Dive: IT, healthcare industry, Infectious diseases, Med tech, Medical news, MedicineNet, mental exhaustion, mental health, Merck, Metastatic Breast Cancer, Multiple Sclerosis, Neuroendocrine Cancer, Neuroscience, Neuroscience News, newsletters, NORD, Patients, pharma, Policy & Regulation, Radiology, Radiopharma, rare disease, regeneration, Roche, Sciatica, Science-X, Skin Health, sleep health, Telomeres, Ulcerative Colitis, Virtual Public Genomics Café, wearables, Web MD, WordPress, World Orphan Drug Congress USA

#chronicillnessVOICE April 26 health, medical, pharma and research news

Post author By fibrofly73
Post date April 26, 2021
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Bringing a varied selection of health news, medical news, pharma news, research news to you in relation to many aspects within the healthcare, medical healthcare & pharmaceutical landscapes.

Tags #chronicillnessVOICE, #notjustpatients, 2021 RARE Drug Development Symposium, Artificial Intelligence, awareness, biopharma, Bristol-Myers Squibb, Burnout, cancer drugs, Chronic Bloggers, chronic illness, chronic pain, Clinical research, covid 19 news, Digital Health, Drug development, EMJ, EMJ Radiology, EMJ reviews, FDA, FibroFlutters, Fibromyalgia, genetics, Global Genes, Global PNH Patient Registry, Health Advice, health IT, Health related news, health tech, Healthcare Dive: IT, healthcare industry, Infectious diseases, Med tech, Medical news, MedicineNet, mental exhaustion, mental health, Merck, Metastatic Breast Cancer, Multiple Sclerosis, neuroendocrine cancer, Neuroscience, Neuroscience News, newsletters, NORD, Patients, pharma, Policy & Regulation, Radiology, Radiopharma, rare disease, regeneration, Roche, Sciatica, Science-X, Skin Health, sleep health, Telomeres, Ulcerative Colitis, Virtual Public Genomics Café, wearables, Web MD, WordPress, World Orphan Drug Congress USA

AI in medicine Alternative / Complementary Therapies & Treatments Articles Awareness campaigns, events, blogs, petitions & posters Blogs / Bloggers Care givers chronic illness Deep learning Digital Health Disability Drug development EVENTS Fibro MeCFS online NEWS & INFO sources FibroFlutters genetics Global resources Health and medical Healthcare Industry & business matters Info site Machine learning medical Medical Conditions / Disorders Medical news stories Medical news stories, blogs and research Neuroscience Newsletters Newsletters/Papers/Magazines/Blogs Patient Advocacy Patients pharma Pharma / Science / Tech / Digital / AI Professionals public health Rare Rare Disease Advocacy rare genetic disorder Research Researchers Scientists Webinar

#chronicillnessVOICE April 20 health, medical, pharma and research news

Post author By fibrofly73
Post date April 20, 2021
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Bringing a varied selection of health news, medical news, pharma news, research news to you in relation to many aspects within the healthcare, medical healthcare & pharmaceutical landscapes.

EVENTS Industry & business matters Media Partners Responsibility & Sustainability

Reuters Events Responsible Business 2021 announce opening Keynote

Post author By fibrofly73
Post date March 19, 2021

The following is a Press Release from Reuters Events Sustainable Business HRH The Prince of Wales confirms Reuters Events Responsible Business 2021 opening keynote 18th March 2021Reuters Events Sustainable Business today announced HRH The Prince of Wales will be the opening keynote speaker at this year’s Reuters Events Responsible Business 2021. Ahead of this year’s […]

chronic illness conference EVENTS FibroFlutters Industry & business matters Media Partners Pharma / Science / Tech / Digital / AI

Evolution Of E-Pharma

Post author By fibrofly73
Post date February 11, 2021

How the future of e-pharma will be driven by technology so that more pharma and e-commerce companies collaborate and offer last mile delivery so as to bring more transparency and safety during COVID-19.

Tags customer centred, digital strategy, digital transformation, e-commerce, e-pharma, healthcare industry, Networking, Online Pharmacy, pharma marketing, user-centered

conference EVENTS Industry & business matters Media Partners pharma Pharma / Science / Tech / Digital / AI Responsibility & Sustainability

Press Release: Reuters Events launches a new and revamped Global Responsible Business Week 2021

Post author By fibrofly73
Post date February 4, 2021
1 Comment on Press Release: Reuters Events launches a new and revamped Global Responsible Business Week 2021

Global challenges must be tackled collectively with global solutions, that can be adapted to local resources and capabilities.

Tags Biodiversity, Circular Economy, Corporate Governance, CSR, DEI, Diversity Equity Inclusion, Environment, ESG, medical & healthcare industry, Net Zero, pharmaceutical Industry, Social Purpose, Sustainability Transition

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