Category: Rare

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AI in medicine Alternative / Complementary Therapies & Treatments Articles Awareness campaigns, events, blogs, petitions & posters Blogs / Bloggers Care givers chronic illness Deep learning Digital Health Disability Drug development EVENTS Fibro MeCFS online NEWS & INFO sources FibroFlutters genetics Global resources Health and medical Healthcare Industry & business matters Info site Machine learning medical Medical Conditions / Disorders Medical news stories Medical news stories, blogs and research Neuroscience Newsletters Newsletters/Papers/Magazines/Blogs Patient Advocacy Patients pharma Pharma / Science / Tech / Digital / AI Professionals public health Rare Rare Disease Advocacy rare genetic disorder Research Researchers Scientists Webinar

#chronicillnessVOICE April 20 health, medical, pharma and research news

Bringing a varied selection of health news, medical news, pharma news, research news to you in relation to many aspects within the healthcare, medical healthcare & pharmaceutical landscapes.

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AI in medicine Articles Awareness campaigns, events, blogs, petitions & posters chronic illness clinical trials Collagen disorder Disability Drug development EDS EVENTS Fibro MeCFS online NEWS & INFO sources Fibromyalgia genomics Global resources Health and medical Healthcare medical Medical Conditions / Disorders Medical news stories Medical news stories, blogs and research Neuroscience Newsletters Newsletters/Papers/Magazines/Blogs Parkinsons Patient Advocacy Patient Engagement Patients Patients included Pharma / Science / Tech / Digital / AI Professionals Rare Sites to visit Webinar

April 14 #chronicillnessVOICE health, medical, pharma and research news

Bringing a varied selection of health news, medical news, pharma news, research news to you in relation to many aspects within the healthcare, medical healthcare & pharmaceutical landscapes.

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Charities chronic illness Collagen disorder EDS FibroFlutters Global resources HYPERMOBILITY Hypermobility Spectrum Disorders JHS Join the Community Musculoskeletal Patient Advocacy Rare Rare Disease Advocacy rare genetic disorder Support Group Zebra Strutters

Ehlers Danlos Syndrome resources. Where to find information and support.

Raising awareness of Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders

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#Innovation AI in medicine chronic illness clinical trials conference Deep learning Digital Health Drug development EVENTS genetics genomics Healthcare Machine learning Media Medical Conditions / Disorders Patient Advocacy patient centricity Patients pharma Pharma / Science / Tech / Digital / AI Professionals Rare rare genetic disorder Research Therapies and Treatments

There’s still time to REGISTER for this conference on RARE DISEASE AND ORPHAN DRUGS 1 – 2 October

The goal of this Conference is uniting all well-known clinical researchers, biotech professionals, Medical Advisories, Academicians and decision makers to discuss possible ways to accelerate orphan drug development and access to rare disease patients, including the introduction of recent technologies and products to help aid the access of orphan drugs

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Articles Ataxia Awareness campaigns Awareness campaigns, events, blogs, petitions & posters Charities chronic illness Educational Info site Join the Community Medical Conditions / Disorders Patient Advocacy Patients Rare

Are you aware of this #Rare? Today is International Ataxia Awareness Day.

International Ataxia Awareness Day (IAAD) is on September 25 of each year. It is a coordinated effort from individuals and Ataxia organisations around the world to help shed light on this rare disease. #IAAD

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Awareness campaigns, events, blogs, petitions & posters Care givers Charities Child health chronic illness EVENTS Join the Community Medical Conditions / Disorders Medical news stories, blogs and research Patient Advocacy Patients Rare rare genetic disorder Sites to visit Support Group Webinar Youth matters

Are you aware of this #Rare? | Wolfram Syndrome UK Virtual Conference 2020 | 19th and 26th September

Wolfram Syndrome is a rare genetic disorder which is also known as DIDMOAD syndrome after its four most common features: Diabetes Insipidus, Diabetes Mellitus, Optic Atrophy and Deafness

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Awareness campaigns, events, blogs, petitions & posters chronic illness Disability EDS Educational FibroFlutters HYPERMOBILITY Medical Conditions / Disorders Medical news stories Musculoskeletal Patient Advocacy Patients Rare Slideshows

Pigmented Villonodular Synovitis (PVNS) our Co-Founder’s patient experience with ultra rare disease. #dazzle4rare2020

After having constant dislocations in my knee where the PVNS tumour was removed from 6 years years previously had caused major damage. This was worsened with my hEDS which effects all of my joints.

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Awareness campaigns, events, blogs, petitions & posters Care givers Charities chronic illness Chronic SoMe platforms clinical trials Drug development EDS FibroFlutters HOME Join the Community Medical Conditions / Disorders Patient Advocacy patient centricity Patient Engagement Patients pharma Pharma / Science / Tech / Digital / AI Professionals Rare Research Support Group Youth matters

It is time to ‘dazzle’, ‘strut your stripes’ and share ‘rare voices’ for #dazzle4rare2020! 9 – 14th August

Many rare disease communities are very small which makes it hard to raise awareness by themselves, so through joining forces during this week their voices are strengthened in numbers and become one giant ‘united voice’ for rare disease awareness.

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Academics Awareness campaigns Awareness campaigns, events, blogs, petitions & posters Care givers Charities chronic illness Chronic SoMe platforms clinical trials Disability Drug development eyeforpharma FibroFlutters FibroFlutters Home News Fibromyalgia Healthcare invisible illness Join the Community MAY 12TH Newsletters Patient Advocacy patient centricity Patient Engagement Patients Patients included pharma Pharma Professionals public health Rare Research Slideshows Support Group WEGO HEALTH

Reflecting back on 2020, come look at my advocacy! Then will you please, please, endorse me. #WEGOHealthAwards

Okay, let’s get on with it! The following information is to help give you reasons for why you should endorse Carole for #WEGOHealthAwards

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Academics AI in medicine Alternative / Complementary Therapies & Treatments Arthritis Articles Autoimmune Blogs / Bloggers Brain inury Care givers Central Sensitivity Syndromes chronic illness chronic pain Chronic Widespread Pain Collagen disorder Dementia / Alzheimers Diabetes Digital Health Disability Drug development EDS EDS news and info Educational Endocrinology EVENTS Fibro MeCFS online NEWS & INFO sources FibroFlutters Fibromyalgia Food, drink and recipes Gastro / Gut / Bowel Health Care Providers Healthcare Heart Health Hobbies Homecare inflammatory invisible illness LUPUS Lyme Disease MCAD ME CFS Media Medical Conditions / Disorders Medical news stories Medical news stories, blogs and research mental health migraines mindfulness Musculoskeletal Newsletters Newsletters/Papers/Magazines/Blogs Patient Advocacy Patients pharma Pharma / Science / Tech / Digital / AI Professionals Psoriasis public health Rare Reproductive Health Research Researchers Respiratory Rheumatoid arthritis Rheumatology Scientists Sites to visit Skin conditions The hints and tips station Therapies and Treatments

My favourite Health Medical Research Patient & Pharma related Paper.Li newsletters for everyone #notjustpatients | Self-Updating

Bringing a varied selection of #healthnews #medicalnews #pharmanews #researchnews to you in relation to many aspects within the #healthcare #medicalhealthcare & #pharmaceutical landscapes.